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Grayfeathersblog

~ Diabetes, Cancer Fighter, Father of Twins, Kayak Fishing, Lover of Life

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Category Archives: Photography

Not Quite There but Better!

24 Wednesday Aug 2016

Posted by Tim Hughes Living with CML in Cancer, Leukemia, Photography

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Tags

CAT Scan, CML, Diuretics, Exercise, Lungs, Oncologist, Pills, Vacation Time

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It has come a time in my life where I have to ask myself will I ever be as healthy as I used to be.  It seems that every time I get better I have another set back.  Every time I gain some vacation time I end up sick and  using most if not all of it trying to get well again. It’s usually after I gain about two weeks of time when something happens and I lose down to a day or so.  Currently I’m at 24 hours so I’ve got about a month to go before I can reset the clock.  In the meantime I have to be at work and if I have any doctor’s appointments, which I do, I’ll have to work over to make up for the time I take off or else I’ll lose more time.

I’ve spoken to my oncologist and he’s instructed me to resume my CML meds but at a lower dose. I’ve having to cut my 100mg pill in half then cut one of the halves in half again.  That way I take one half and a quarter so hopefully that’s about 75mg. I don’t like doing it this way because I’m not sure I’m getting the dosage right.  The oncologist seems to think that I can get the pill in a 80mg strength tablet and that’s what he really wants.

To say that I’m not concerned about the fluid coming back into my lungs is an understatement.  I’m deeply concerned and I’m wanting to know if there’s a test that can monitor the amount of fluid being stored in my lungs.  Currently the only way is a CAT scan and I can’t keep going in for a CAT scan every few weeks. So, according to my doctor I’ll just have to monitor my breathing on my own.

With all the diuretics that I’m on I’m losing weight.  I’m down over ten pounds since I had the stents put in.  I am feeling better but the breathing is still not 100 percent. I am back climbing the stairs at work but only one floor at a time.  Next week I’ll add an additional floor. I still get quite winded but I’m able to recover much quickly.

I’m still plugging along and hopefully I’ll be able to do more exercise but right now I’m going to take it easy and not push myself too hard right now.  Definitely later though.

Caption This!!

21 Sunday Aug 2016

Posted by Tim Hughes Living with CML in Cancer, Pets, Photography

≈ 3 Comments

Tags

Camera, Cat, Feline, Photo, Photography

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What am I thinking??

First time in months since I’ve felt like picking up my camera.  I walk into my bedroom and I see one of my four legged kids next to my bed. I go get my camera and he gives me this look.  I wonder what he’s thinking?

Another Visit Part 2

14 Sunday Aug 2016

Posted by Tim Hughes Living with CML in Cancer, Photography, Weight Loss

≈ 3 Comments

Tags

Cooking, Cycling, Eating Healthy, Exercising, Food, Heart Healthy Meals, Hearth Cath, Weightloss

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I got to thinking on the way home from the hospital about just how serious this past visit to the hospital was.  It was just happenstance that they found the blockage and even more so the fluid in my lungs.  I was thinking just how bad I have felt the last few months and that it was the sole reason for me not exercising.  Now that I had all this stuff done I should feel well enough to start walking more and hopefully get on my bicycle soon.

Now comes the hard part.  Wife and I had a discussion about food choices and eating better.  The wife does most of the cooking in the house and she is a working girl too.  She comes home and feels like she’s got to cook something so it usually ends up with hamburger helper or chicken fingers.  Looks like I’ll be searching for heart healthy meals for us to get acquainted with.

All these changes won’t come overnight.  My wife and I have got to start eating better and exercising more if we want to live long enough to see our kids grow up and have families of their own.

 

 

Another Visit Part One

13 Saturday Aug 2016

Posted by Tim Hughes Living with CML in Cancer, Photography

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Tags

Blockage, CAT Scan, Fluid Build Up, Heart, Heart CATH, Hospital, Lungs, Medications, Stents, Thoracentesis

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I knew it was only a matter of time before I ended up in the hospital again.  This makes the third time since January.  This time it was a little more serious than all the others.

I went and saw my cardiologist this past Wednesday and it was decided that because my breathing was so bad he would admit me to the hospital for a heart cath.  I was under the impression that the procedure would be done Wednesday afternoon after i was admitted but all they did was blood work. The next morning a heart cath was performed where they found the left artery 75% blocked.  Two stents were installed and I just knew that would help my breathing.  It did not help at all.

After returning to my room I started talking to my cardiologist and he informed me that he had called a pulmonologist in to see me.  A little while later I got carted off for several tests in which one was a breathing test and the other was a sniffing test.  Both of which I failed.  The pulmonologist came in later Thursday evening and basically told me that after seeing the results he had no idea what was causing my difficulties.  All he could tell me was that my diaphragm wasn’t working.

Friday morning I was carted off again for a CAT scan of my lungs.  After returning to my room I was told that I would have a procedure known as a Thoracentesis,  a procedure to remove fluid around my lungs.  At 2pm they removed 2 liters of fluid off my right lung.  I was told that the procedure wouldn’t be painful.  They lied.  I sort of reminded me of my bone marrow biopsy.  Maybe it was the way they did it but it was in the top ten as far as pain.

I never got to comfortable last night because of the pain but as long as I stayed still it didn’t bother me too bad.  I had to hook up my CPap tonight and the pain was still there.  I’ll be taking some pain meds tonight before going to bed.

My daily medicine count has increased by five.  That makes 17 pills that I have to take on a daily basis.  As long as they keep me alive and my insurance holds up I’ll keep taking them.

Good Food

30 Saturday Jul 2016

Posted by Tim Hughes Living with CML in Photography

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Alabama, College, Food, Girls, Grill, Steaks, Supper, Twins, Weekend

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No matter how poorly I’ve felt the last few days I made myself go to the butcher shop and purchase some nice steaks and grill them for supper tonight.  I wouldn’t have done it for no other reason than for my girls last weekend before leaving for college later on this week.  I’m really going to miss them.

To Be Healthy Again

29 Friday Jul 2016

Posted by Tim Hughes Living with CML in Cancer, Cycling, Photography

≈ 3 Comments

Tags

Breathing, Cancer, Cardiologist, Cycling, Doctor Appointment, Heart

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This year has got to be the worst year so far as far as my health is concerned.  I’ve already been hospitalized twice this year and another visit is just around the corner.  This month alone I’ve been to a doctor five times for tests and other examinations.

Since my bout with pneumonia back in May, my breathing has gotten worse.  So much so that I can’t walk any distance or do any type of work without gasping for a breath.  Even sitting here typing this my breathing is labored.  I had a nuclear stress test last week as well as an ultrasound of my heart and both tests have come back without any abnormalities.  My regular doctor is supposed to be setting up an appointment with a cardiologist hopefully one day next week for a follow up.

I long for the day I’m able to walk down the hallways at work or hop on my bicycle for a twenty mile ride without feeling like crap.

This Made Me Laugh

09 Saturday Jul 2016

Posted by Tim Hughes Living with CML in Photography

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Top 10 Not Logical Images of Cats LogicThe dictionary tells us that there are only two types of logical arguments. One deductive, the other inductive. Why? Because these two types of logic provide the complete evidence of the truth of its conclusion. But what type of logic is cat logic… Top 10 Not Logical Images…

via Top 10 Not Logical Images of Cats Logic — The top 10 of Anything and Everything!!!

It Sucks Getting Old :(

08 Friday Jul 2016

Posted by Tim Hughes Living with CML in Cancer, Leukemia, Photography

≈ 1 Comment

Tags

Cancer, CML, Doctor, Leukemia, Oncologist

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For several months now I have been undergoing a barrage of test by one doctor or another. If you’ve ever seen the movie National Treasure, it’s like one clue leads to another clue.  It all started with a personal evaluation that was performed on me back in March from my boss.  In the months prior to my evaluation I had made several costly mistakes.  Luckily they were all monetary and not personal injury.  During my evaluation my boss discussed with me that he was worried that either I would be harmed by my actions or the person I was working with would be harmed.  He also stated that until I was checked out by my physician I would be temporarily placed on light duty with any safety related responsibilities.   At first I was furious as you can imagine but the more I thought about it the more I realized he may be right.  Although I didn’t want to admit it I had been experiencing some forgetfulness but I had chalked it up to getting old.

The first test was with a neuropsychologist.  I failed miserably.  One test consisted of the nurse reciting a list of paired words, about 50 I think, that after she recited the list I was supposed to repeat to her one of the words that was paired too.  Example; Truck-Bread, Dog-Umbrella.  She would read Truck and I was supposed to tell her Bread.  I failed at this test.  There were several other tests that I failed at.  The results that were given to my primary care doctor was that I had three areas of disabilities, motor control, memory loss and multitasking.

Another test that was performed was on my feet.  I had been put in the hospital with influenza A and pneumonia.  After spending a week there I was released to spend another week at home.  While I was off I had an appointment with a neurologist in which I spent over an hour being hooked to electrodes that shocked my feet to find out just how numb they really were.  After the tests were performed I was given the diagnoses of diabetic neuropathy.  Hell, I already knew that.

During one of my visits with my oncologist I was given a test to check out my immunity because being admitted twice to the hospital in less than six months set off a couple of alarms.  He did a preliminary test and it came back showing signs of IgG deficiency (immunoglobulin G). I went back on Wednesday of this week to let them do a more thorough test.  I’ll find out the results of those test sometime next week.

Today I went to another neurologist that all i did was talk and answer a few questions.  A small word association test was performed and again I failed.  He asked me to remember three words and he would ask me later on to recite these words back to him. When asked a few minutes later I couldn’t remember the three words.  I saw the doctor for only a few minutes after which he wanted to do a blood test and an MRI.  The blood test was done downstairs but the MRI will have to be scheduled once the insurance company approves the test.

So, as you see I’m falling apart.  I’m not letting it get me down.  Just living day to day right now.

I Feel as Though I’m Losing My Kids

03 Sunday Jul 2016

Posted by Tim Hughes Living with CML in Family, Photography, Twins

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College, Dorm Life, Family, Twins

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My oldest just graduated college and my two daughters just graduated high school. My son is currently looking for a job while my daughters are working at a local water park from 9am until 8pm.  Both my daughters will be attending the same college where my son graduated and they will leaving sometime this month to start school.  Where has the time gone?  I was hoping that my daughters would spend some time at home before going off to school but they want to earn some money before leaving out.  I can’t blame them for that.  It’s just going to be harder on mom and me when they do finally move out.

I guess that’s part of being a parent.  Time for the kids to leave the nest.  I had my doubts about my son but he turned out pretty good.  My daughters are another story.  They will be sharing the same dorm but I feel that neither can live without the other.  They depend on each other so much. Both have separate majors so each will have their own classes.  They will just have to work it out on their own I guess.  Mom and I will be basket cases before it’s all over with.

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Enough Said

30 Thursday Jun 2016

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Posted by Tim Hughes Living with CML | Filed under Photography

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