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~ Diabetes, Cancer Survivor, Cycling, Photographer, Exercise, College Parent, Twins, Boy Scout Leader, Life

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Tag Archives: University of Alabama

Improving? Not so Much.

28 Sunday Aug 2016

Posted by Tim Hughes Living with CML in Cancer, Family, Leukemia, Photography

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Tags

Alabama, CML, Doctor, health, Kids, Leukemia, Million Dollar Band, Oncologist, Parents, Sick, University of Alabama

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I started back on my CML meds last Monday and to be honest I think my breathing has gotten a little worse. I’ve started climbing the steps at work a little more and trying to maintain at least 10,000 steps in a day. I spoke at length to my oncologist last Monday the day I started back on my Sprycell and he told me that the majority of the people who end up with water retention will do better at a lower dosage.  I’m now at 80 mg instead of the 100mg that I was once on.

I’ve decided not to just sit at home waiting to see if my lungs will fill back up with fluid.  I don’t really feel like getting out and doing anything but I feel that I’ve at least got to try  and get what little exercise that I can get.  I think it could only help matters if I get off the couch and do something.

Yesterday, my wife and I met our son at the university where my daughters are attending.  They’re both in the band, one plays the sax and the other is a band manager.  Yesterday was their parent preview show.  It was awesome seeing my daughter’s perform. I got to meet one of their roommates and enjoyed going out to dinner afterwards.  As usual it was hard for us to leave after visiting with them.

Today I went to my parents house to check on them as well as my bees.  It’s been at least two months since I’ve done either one.  The bee yard was grown up with weeds and it took everything I had to use my weedeater to chop down the weeds just so I could get to the beehive.  After about an hour of cleaning up I went and sat with my parents for a couple of hours.

It was hard to leave my parents. They are both getting up in age and their health is not as good as it used to be.  My mom had to have more surgery a couple of weeks ago on her diaphragm due to finding a hole where her colon and her intestine were coming through.  The doctors seem to think that this was caused by the accident they had back in February.

The above picture is of the band managers.  The young lady is my daughter.  What a  trooper.

A Lot Going On

10 Tuesday May 2016

Posted by Tim Hughes Living with CML in Photography

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Tags

Alabama, Disney, Family, Flowers, Graduation, High School Graduation, Orlando Florida, Rose, University of Alabama, Vacation

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It’s been a busy past few weeks here in the deep south. In fact, the whole month of May is going to be very busy.  My son graduated from the University of Alabama this past Friday evening, my twin daughters had their spring concert last week, and they had their awards program tonight to list a few.  I’ve got cataract surgery on Thursday, a bicycle ride that I’ll be working communication this Sunday and my daughters graduation in two weeks.  Not to mention a couple of other doctor appointments thrown in there for good measure.

I knew this month would be busy and I’m trying to build my vacation time up so I’ve been working a lot of overtime so as to not have to take personal time when taking time off.  It’s an okay plan but I’m not getting home until late and the girls have already gone to bed when I do get home.  I’ve got a week in June that I’ll be taking off to take the kids to Disney in Orlando Florida so I’ve got to have at least forty hours to be able to take off.  It will be close but I’ll make it.

365 Day Photo Challenge 249/365 “Exhausting Day”

04 Friday Sep 2015

Posted by Tim Hughes Living with CML in Photography

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Tags

365 Day Photo Challenge, Collage Graduation, Flower Mound, Graduation, Marcus High School, Million Dollar Band, Texas, University of Alabama

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Woke up at 3am to call my son to make sure he was awake.  He was not.  He had set his alarm to wake him at 3:15am so I woke him 15 minutes earlier than he had planned.  He assured me that he would get on up and get ready to meet the buses.  I received a text at 6am stating that he was on his way.

I never really got back to sleep before my alarm clock went off so I woke up feeling like crap.  I stayed pretty busy at work so that was good.  It didn’t give me time to sit and get sleepy, especially after lunch.  After work I rushed home, ate supper and jumped into the shower.  I had to help with the flag ceremony at our high school football game.  It was a nail biter.  The game nearly went into overtime but we pulled it out.

Tonight, my son is in Flower Mound Texas.  The band played an exhibition performance at Marcus High School for their during their half time show. I’m going to see if I can post the link to the show.  400 plus members on a football field is a lot of people.

My son is a second year senior and this will be his last year in the band.  He should graduate in December.  I am a very proud dad.

https://www.periscope.tv/w/aLooszEzNjYzNDU4fDFrdktwUFJ3WGpPS0U-Kd8iMyAl2tqOFiRmCBXqRlaxbpGZGrLtr6y5f-lvgg==

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