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~ Diabetes, Cancer Survivor, Cycling, Photographer, Exercise, College Parent, Twins, Boy Scout Leader, Life

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Tag Archives: Parents

Improving? Not so Much.

28 Sunday Aug 2016

Posted by Tim Hughes Living with CML in Cancer, Family, Leukemia, Photography

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Tags

Alabama, CML, Doctor, health, Kids, Leukemia, Million Dollar Band, Oncologist, Parents, Sick, University of Alabama

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I started back on my CML meds last Monday and to be honest I think my breathing has gotten a little worse. I’ve started climbing the steps at work a little more and trying to maintain at least 10,000 steps in a day. I spoke at length to my oncologist last Monday the day I started back on my Sprycell and he told me that the majority of the people who end up with water retention will do better at a lower dosage.  I’m now at 80 mg instead of the 100mg that I was once on.

I’ve decided not to just sit at home waiting to see if my lungs will fill back up with fluid.  I don’t really feel like getting out and doing anything but I feel that I’ve at least got to try  and get what little exercise that I can get.  I think it could only help matters if I get off the couch and do something.

Yesterday, my wife and I met our son at the university where my daughters are attending.  They’re both in the band, one plays the sax and the other is a band manager.  Yesterday was their parent preview show.  It was awesome seeing my daughter’s perform. I got to meet one of their roommates and enjoyed going out to dinner afterwards.  As usual it was hard for us to leave after visiting with them.

Today I went to my parents house to check on them as well as my bees.  It’s been at least two months since I’ve done either one.  The bee yard was grown up with weeds and it took everything I had to use my weedeater to chop down the weeds just so I could get to the beehive.  After about an hour of cleaning up I went and sat with my parents for a couple of hours.

It was hard to leave my parents. They are both getting up in age and their health is not as good as it used to be.  My mom had to have more surgery a couple of weeks ago on her diaphragm due to finding a hole where her colon and her intestine were coming through.  The doctors seem to think that this was caused by the accident they had back in February.

The above picture is of the band managers.  The young lady is my daughter.  What a  trooper.

365 Day Photo Challenge 248/365 “What We Will Do For Our Kids”

03 Thursday Sep 2015

Posted by Tim Hughes Living with CML in Photography

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Tags

365 Day Photo Challenge, Alabama, Early Morning, MDB, Million Dollar Band, Parents, Photography, UofA

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My son, who is in the Million Dollar Band, leaves in the morning heading to Dallas Texas.  The buses load at 4 am in the morning. This is his fifth year playing for the University of Alabama and he’s used to getting up early to load the buses to head out on long trips but not this early.  He told me this morning that he will be getting up at 3am to get ready so he can get to the buses early.  He like to get there early to get a good seat on the bus.  Band members who are late pay hell and get reprimanded for not being on time.  I remember a couple of years ago a young lady overslept and by the time she got to where the busses were parked the bus had already left.  She and her roommate drove for nearly an hour to flag down the bus for her to load it.  The band director was not pleased and said “Never again will the busses stop for a student that is late.  He/she will simply not make the trip and receive not only a reprimand but will be forced to sit out the next performance.” So with that said, I will be doing my parental duty by setting my alarm clock for 3 am so that I can call my son so that I know he is up and getting ready so he won’t be late.  After all, he is one of the section leaders for his section and I would really hate for him to start the season showing a bad example to his section.  I just hope I can go back to sleep after I make the phone call.  He can sleep on the bus.  My boss would probably frown on me taking a nap while at work.

“Life Goes On!”

Life Does Have a Purpose

14 Sunday Sep 2014

Posted by Tim Hughes Living with CML in Uncategorized

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Tags

Alabama, Band, CML, College, Diabeties, Million Dollar Band, Old Age, Parents

Life has been busy and full of activities.  Work still sucks but I only have 3 yrs 11 months and 15 days left before I can retire at 55.  But who’s counting?

My health hasn’t changed much.  My eyesight has not improved much and I’m still taking ejections every month.  My CML is still not under control yet but I’m hopping that by my next doctor’s visit that will change.  When I was diagnosed my levels were at 138%.  At my last visit two months ago it had dropped to .73%.  0% is where it needs to be.  My next visit will be this Tuesday so I’m hopping for the best.

I turned 51 one month ago tomorrow.  For my birthday my son gave me two sets of tickets to a couple of Alabama games.  What is so special about this is that my son plays for the Million Dollar Band.  He is a senior this year and we have not been to a game with ticket prices being as high as they are we just couldn’t afford for the rest of the family to go.

My wife and one of my daughters went to a wedding while my parents, my other daughter and I went to the game.  Needless to say getting to our seats was an adventure within itself. Both my parents are in their early to mid 70’s.  The tickets we had were in the highest portion of the stadium that you could be.  I was really worried for my mom who has trouble walking long distances.  Once we finally made it to our seats we all had a great time watching the game as well as watching our son march on the field.  Couldn’t see him but I know he was down there somewhere.

As l’m going through the pictures of yesterday, I am reminded that life moves quickly.  It seems just like yesterday that my son and I was playing catch in our back yard.  Now I’m seeing him in full uniform marching in a college band.  Where does the time go.  I took a picture of my parents with my son and daughter.  As I’m sitting here in front of the computer editing the picture I realize that life does have a purpose.  My parents had a purpose raising me and now it’s my turn to raise my kids.  I think my parents did an outstanding job with me and I’m hopping I’m doing the same with my kids.  So far no arrest records have been made on either of my kids so apparently I’m doing a fair job.

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