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Tag Archives: CML

One Positive Result

18 Tuesday Aug 2026

Posted by Tim Hughes Living with CML in Cancer, Leukemia, Life, Uncategorized

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:Labs, Birthday, Blood Work, Cancer, CML, Doctor, Email, health, infusion, Iron, Leukemia, Life, mental-health, Positive, Rerports, Scale, Tests, writing

I got an email yesterday from the place that did my recent oncology lab work.

I was at my mom and dad’s house celebrating my birthday when the email came in. Of course, I immediately noticed it and started debating whether or not I should open it.

Part of me thought, “If it’s good news, I’ll open it and share it with everyone.”

But if it was bad news?

Well, I probably wouldn’t want to open it while I was surrounded by family. I’d probably gather everyone together, tell them what was going on, and then go home.

That may sound a little dramatic, but when you’ve been dealing with cancer for more than a decade, you learn that opening a lab report can feel a lot like opening a Christmas present from someone who doesn’t particularly like you.

You just don’t know what’s inside.

After a little discussion with my wife, I decided to bite the bullet and open the email.

For months, my test results have come back negative.

I’ve learned not to get too excited when I see those negative results, though. As much as I would love to believe that things are going to stay that way forever, I know better.

Eventually, something is going to change.

And change it did.

Of the three markers they check, one of them came back positive for BCR-ABL1.

Now, before anybody starts panicking, it’s not the end of the world.

It’s something we’ve seen before, and hopefully, when I have my labs checked again in a few months, that number will come back down.

My oncologist called me today to go over the results. He explained that I need another iron infusion, which isn’t exactly surprising considering my iron levels have been giving me fits lately.

As for the elevated BCR-ABL1 marker, we’re not going to change anything right now.

We’ll wait and see what happens.

If it continues to stay high, then we may have to look at changing medications. But for now, it’s a matter of keeping an eye on it and letting the medication continue doing what it’s supposed to do.

And honestly, this isn’t the first time we’ve been here.

We’ve seen this movie before.

I just wish they would quit making sequels.

For now, I’m going to continue taking my medication, get the iron infusion, have my labs checked again in a few months, and hopefully get another email that says everything is back where it should be.

Until then, I’m going to try not to worry about something that hasn’t happened yet.

After all, I’ve learned over the years that when it comes to my lab results, there’s not much I can do about the numbers once the blood has left my arm.

I just have to wait for the next chapter.

And hopefully, the next chapter is a little less exciting than this one.

When the Climb Feels Steeper

01 Saturday Aug 2026

Posted by Tim Hughes Living with CML in bariatric-surgery, Cancer, Depression, Disability, Family, Fishing, Kayaking, Leukemia, Life, Uncategorized, Weight Loss

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appointments, blog, Cancer, CML, Depression, Doctor, health, Life, love, mental-health, writing

There are days when I feel like I’m stuck in a rut. It seems like nothing I do matters anymore.

Lately, nothing really excites me. All I want to do is sit and do absolutely nothing. The television doesn’t interest me, so I turn it off. I tried reading, but after a sentence or two, I put the book back down.

I’m going through my daily routines simply because they’re expected of me, but I’m not getting much out of them.

If you’ve been following my journey for any length of time, you know I’ve dealt with some pretty serious health issues. Thankfully, since my gastric bypass surgery, my health has improved in several ways. But my CML is still there, and it’s something I’ll live with for the rest of my life.

I’ll be honest. It’s a constant battle not to end up in the frame of mind I’m in right now. I’m not at the point where I’d say I’m depressed, but I also can’t pretend it isn’t peeking around the corner.

I can’t tell you what triggers these episodes. They just seem to appear out of nowhere, and when they do, it usually takes me a couple of days to climb back out.

Is this just a “woe is me” moment? Maybe. I can’t completely rule that out. But even if it is, is it really so terrible that I have days like this every now and then?

I’ve been doing some yard work around the house—things that genuinely needed to be done—but my heart just wasn’t in it. I had the opportunity to go fishing on Friday, something I normally look forward to, but I made every excuse in the book not to go. Instead, I stayed home and worked in the yard.

This morning, I spent a few hours volunteering at church with some friends. While I was there, I genuinely enjoyed myself. We laughed, got some work done, and for a little while, everything felt normal.

On the drive home, I found myself thinking about all the things I wanted to do once I got back. That alone gave me hope. I thought maybe I was finally climbing out of this hole.

But as soon as I walked through the front door, that feeling disappeared. The heaviness came right back, and I honestly don’t know why.

Since getting home, I’ve done little more than sit in this recliner, not really wanting to do much of anything.

Maybe what I really need is a change of scenery. I need a break from doctor’s appointments every other day. I need to go somewhere where I don’t have to wonder what’s going to break next—or assume I’ll be the one expected to fix it.

On a brighter note, my wife’s car is finally back. That means I won’t have to chauffeur her to appointments anymore, and I can start making plans without first checking to see if she needs me somewhere else.

I’ll be okay. I’ve been through these seasons before. They come, and they go. Right now, the climb just feels a little steeper than usual.

Sometimes life is less about never falling into the hole and more about remembering that you’ve climbed out before. I’m trusting that, with God’s help, I’ll climb out again.

Benadryl, Broken Noses, and a Busy Day

20 Monday Jul 2026

Posted by Tim Hughes Living with CML in Boy Scouts, Family, Leukemia, Life, Uncategorized

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adventure, Appointment, Benadryl, Calendar, Cancer, CML, Doctor, Drugs, Family, health, infusion, Kindle, Life, Nose, Reading, Therapist, writing

Today started out busy, and judging by my calendar, it’s only the beginning.

I had two doctor appointments today—one at 10:00 a.m. and another at 3:00 p.m.

My first stop was my oncologist’s office for an iron infusion. They usually take about two hours, so I figured I’d have plenty of time to get home, eat lunch, and make it to my physical therapy appointment.

Well… that was the plan.

The infusion ended up lasting nearly three hours, which turned my carefully planned schedule into a race against the clock.

Before the infusion, they always draw blood to check my iron levels and determine if—and when—I’ll need another treatment. Then comes the fun part. They hook me up to a small IV bag of Benadryl.

They use Benadryl to offset any reaction I may have to the infusion.

I don’t know about everyone else, but Benadryl absolutely knocks me out. I’m talking “you could redecorate the room around me, and I’d never know it” kind of asleep.

I had brought my Kindle to pass the time, but after the Benadryl started flowing, I don’t remember making it past the second page.

A lady sitting next to me was receiving three bags of chemotherapy. I knew I’d been asleep for quite a while when I woke up, and she was already on her third bag.

When I finally came to, my iron infusion was almost finished. I did my best to stay awake long enough for the nurse to remove the IV. Truthfully, I could have happily curled up in that recliner and taken another nap, but I had places to be.

Downstairs, I stopped to pay for parking. An elderly lady ahead of me was having trouble with the payment machine. Her card wouldn’t work, and she didn’t have another card or any cash. I asked her to cancel the transaction, scan her ticket again, and I paid for her parking.

Four dollars wasn’t going to make me go broke.

My good deed for today.

She thanked me several times before heading on her way, and then I paid for my own parking.

My physical therapy appointment went well, although concentrating wasn’t exactly easy with all that Benadryl still floating through my system. I think my therapist took one look at me, decided I wasn’t going to set any personal records that afternoon, and let me go home about ten minutes early.

Tomorrow will be another busy day. I’ll have to miss my Tuesday morning Bible study because I’m taking my dad to the doctor to have his broken nose checked after his fall.

He’s already informed me that he has no intention of letting them reset it.

According to him, he broke it as a kid, it’s been crooked ever since, and he doesn’t see much point in making it straight now.

At 87 years old, I guess he’s decided that a crooked nose has become part of his identity. Who am I to argue with that?

Built with Love (and a Little Bit of Crooked Math)

30 Thursday Apr 2026

Posted by Tim Hughes Living with CML in Arts and Crafts, Cancer, Disability, Family, Fishing, Kayaking, Leukemia, Life, Nature, Retirement, Uncategorized, Woodworking

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adventure, Appointment, Back Pain, Bible Study, CML, Doctor, Family, gardening, Gift, Handmade, Leukemia, Life, love, Math, Mom, Mother's Day, Pain, Theology, Tools, Woodworking, writing

With Mother’s Day fast approaching, I decided it was time to push through the pain and make something for my mom. She loves plants—like, really loves plants—so I figured a couple of wooden planters would be the perfect gift. Plus, I’ve got a pile of scrap wood that’s been quietly judging me for months, including some cypress fencing material my wife has been not-so-subtly encouraging me to “do something with.”

So, around 9:30 this morning, I dragged all my equipment outside and got to work. By about 11:30, I had everything cut down to size and was feeling pretty good about life. That’s usually the exact moment things take a turn.

I started assembling the first planter and quickly realized something wasn’t right. The pieces weren’t lining up like the plans said they should. Now, the plans called for ¾-inch wood… and I’m working with ½-inch. Details, right? Apparently not. Turns out, those little fractions matter.

Still, I pressed on.

At this point, I’ve got one planter about 90% complete. It’s… let’s just say “custom shaped.” Not exactly square, which means putting the top boards on requires some math. And if you’ve followed me for any length of time, you already know—math and I are not on speaking terms. I’m pretty sure an angle finder is in my near future, the next time I wander into the store pretending I know what I’m doing.

After spending most of the day bending, lifting, and moving around, my back has officially filed a formal complaint. Sitting usually doesn’t bother me, but tonight I can’t seem to find a position that doesn’t make me question why I thought this was a good idea. The heating pad is doing its best, but the second I move, my back reminds me who’s really in charge. I took a pain pill earlier, but it’s apparently operating on its own schedule.

After looking at what I’ve completed on this planter, I’m not really happy with it. It’s one of those projects that looked a whole lot better in my head than it does sitting in front of me. So, there’s a good chance this one becomes a “keep it at the house” planter, and I’ll come up with something else for Mom.

I guess you could say this was my practice run… whether I planned it that way or not.

It all really depends on how I’m feeling after this upcoming pain block. If I can get a little relief and move around without feeling like my back is plotting against me, I may give it another shot and build something I’m actually proud to give her.

If not, well… Mom may be getting something a little less handmade and a little more store-bought this year—and honestly, she’ll probably love it just the same.

As for doctor updates, I’ve now got two appointments lined up—one with the orthopedic in mid-June and another with a pain specialist next Thursday. I’m hoping the pain specialist can help take the edge off until June gets here.

And yes, I’ll admit it… I probably shouldn’t have stayed out on that kayak as long as I did last Thursday. But I’ll still argue it was worth it. I needed that time on the water—maybe just not that much time.

Tomorrow looks like it’ll be a recliner day. I plan on catching up on my Bible study material for Tuesday morning. Theology isn’t exactly my strong suit, but I’m giving it my best shot—kind of like woodworking and math.

I also had a visit with my oncologist last week. My iron levels were low again, so they gave me a shot of Epoetin alfa to help boost my red blood cell production. They also ran my BCR-ABL1 test to check on my CML. The last several tests over the past six months have come back non-detectable, which is great news. I’m curious to see how this one turns out, though—it seems like those numbers like to keep me guessing. Should have results in a few days.

Other than that, things are pretty quiet around here. I’ll finish up that planter (eventually), survive the math, and hopefully have something worth showing for it.

I’ll check back in when I’ve got something else to write about… or when the second planter decides to humble me too.

It’s Not the End of the Road

27 Monday Apr 2026

Posted by Tim Hughes Living with CML in Cancer, Depression, Family, Fishing, Kayaking, Leukemia, Life, Uncategorized

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adventure, Anger, appointments, Babies, Blogging, Cancer, CML, Depression, Diagnosis, Dreams, Emotions, Family, Help, Journey, Kids, Leukemia, Life, love, Medications, mental-health, Support, writing

Just a quick post.

I have Chronic Myeloid Leukemia (CML). I was diagnosed back in 2014. I’m not going to lie—when I first heard those words, I thought my world had come to an end.

I was devastated.
I got depressed.
I was angry at everything and everyone.

I couldn’t even carry on a simple conversation without it turning into something it didn’t need to be. In short, I wasn’t exactly easy to live with.

The truth is, everything I felt is something a lot of people experience when they hear the word “cancer.” That flood of emotions hits hard. But what I’ve learned since then is this—there is always hope, no matter the diagnosis.

I follow several CML groups online, and I try to help people who are just starting this journey and struggling to process it all.

Last night, I came across a post from a young woman who had just been diagnosed with CML. She was going through the same emotions I went through—fear, anger, and the overwhelming feeling that her life was over. She had just gotten married and was planning to start a family, but now she was ready to give up on that dream. Her husband, loving her the way he does, was willing to give that up, too.

That hit me.

So I reached out to her privately.

I told her what I wish someone had made crystal clear to me in the beginning: things have changed. Years ago, this diagnosis looked very different. Today, it’s not the same story.

There are medications now that can control this disease. It may not be something that just disappears, but it’s something many people live with—and live well with.

I also told her I understood exactly what she was feeling, because I had been there—the anger, the depression, the uncertainty. And I let her know she didn’t have to go through it alone.

And I told her about this blog—about my life after diagnosis, the ups and downs, the fishing trips, the everyday moments. I wanted her to see that there is still a life to live after hearing those words.

Honestly, I didn’t expect a response.

But she wrote back.

And after several messages, I could tell something had shifted. Knowing that someone else had been walking this road since 2014—and is still here—gave her a different perspective. It even made her reconsider the idea that her future, including having a family, might not be over after all.

That right there is why I share my story.

CML is not a death sentence. It’s a bump in the road. A big one sometimes—but not a roadblock.

My numbers still go up and down like a rollercoaster. Some months are good, some aren’t. But it’s been that way long enough that it doesn’t shake me like it used to.

Life goes on.

And that’s exactly what I told her—live your life. Keep your appointments. Take your medication. Listen to your doctor.

But don’t stop living.

Because this diagnosis doesn’t mean the end of your story.

The Phone Call That Changed Everything

17 Saturday Jan 2026

Posted by Tim Hughes Living with CML in Cancer, Depression, Diabetic, Disability, Leukemia, Life, Weather

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Anniversery, Cancer, Celebrate, Chemotherapy, CML, Depression, Doctor, health, Lab Work, Laughter, Leukemia, Life, Medicine, Oncologist, Weather

It’s hard to believe, but I’m coming up on my 12th anniversary of being diagnosed with CML (Chronic Myeloid Leukemia). My most recent lab work showed my cancer as undetected—which is always good news… with an asterisk. In my case, “undetected” can be a little sneaky. It can be undetected on one visit and pop back out of range on the next. I wish I could tell you why there’s such a swing, but I don’t do anything differently from month to month. Same diet. Same routine. Same bad jokes. The only thing that really changes is what the numbers decide to do.

I will never forget the day I found out. Or the days leading up to it.

I had gone in for a routine six-month checkup when my GP called and asked me to come back in for more lab work because something looked “off.” Then on February 14, 2014—Valentine’s Day—my wife and I were getting ready to meet one of my daughter’s newest boyfriends. He was coming to pick her up for a high school date, and I was in the important stage of fatherhood known as trying to find the right words to mildly terrify a teenage boy.

That’s when my phone rang.

Keep in mind, this was late on a Friday afternoon, when most doctors’ offices are already mentally in their cars. The nurse told me my white blood cell count was extremely high and that they wanted me to see an oncologist.

At that moment, I had never heard the word “oncologist.” I didn’t know what kind of doctor that was.

During the phone call, my wife quietly looked it up and said, “Tim… that’s a cancer doctor.”

Needless to say, my carefully rehearsed intimidation speech for my daughter’s boyfriend completely left the building.

My appointment was scheduled for the following Tuesday at 10 a.m., which made that weekend the longest weekend of my life. A thousand scenarios ran through my head. I didn’t sleep much. I just wanted Tuesday to get there so I could talk to someone who actually knew what was going on.

Tuesday morning arrived with snow and ice. I kept calling the office. No answer. The hospital sat on top of a steep hill, and the road was iced over. No one was going up it, including me.

Later that day, the temperatures rose, someone finally answered, and my appointment was moved to 2 p.m.

I’ll never forget meeting my oncologist. He made a lasting impression. My wife decided that day she didn’t like him from the start.

I had a thousand questions loaded and ready. I opened my mouth to ask the first one. He held up a finger and said, “I’m talking. When I’m done, I’ll answer your questions.”

And just like that, I realized I was not in charge anymore.

He’s an older doctor, and sometimes I worry that one day I’ll walk in and find out he’s retiring. I’ve been with him nearly the whole time—nearly because there was one stretch when he tried to pawn me off on another doctor at another hospital because my numbers wouldn’t behave. But that’s a story for another time.

The time after my diagnosis was one of the darkest periods of my life. I slipped into a depression I had never known before. I truly thought CML was a death sentence. I was afraid to buy anything because I figured it would just have to be sold or given away. There were days I stayed home—not because I was sick, but because I didn’t want anyone to see me fall apart.

And honestly… at that time, I didn’t care.

Through some very serious conversations with my wife, my parents, and my oncologist, I slowly crawled my way out of that hole. It didn’t happen quickly. It didn’t happen neatly. But it happened.

They say laughter is the best medicine, and while my insurance company may disagree, I’ve found it to be pretty true. If you go back and read some of my early posts, you’ll notice they don’t carry the same humor as the ones I write now. There’s a reason for that.

I still have days when the weight hits harder than others. I still have moments of fear, frustration, and fatigue. But I’ve learned that sometimes it’s better to laugh at life’s situations than to let them crush you. Humor didn’t remove cancer from my life—but it did give me a way to live with it.

So here I am, almost twelve years in. Still showing up. Still rolling the dice on lab work. Still grateful for “undetected,” even when it comes with an asterisk. Still learning. Still stumbling. Still here. And still trying to laugh whenever possible… because some days, laughter is the only thing in the room that reminds you you’re still alive.

If you’re reading this and you’re walking through cancer, or any other terminal or life-altering diagnosis, let me tell you something I had to learn the hard way: don’t give up. Don’t give up on tomorrow. Don’t give up on joy. Don’t give up on the people who love you. And don’t give up on yourself.

There will be dark days. There will be scary appointments. There will be lab results that knock the wind out of you. But there will also be days you never thought you’d see. Conversations you didn’t think you’d have. Laughs, you didn’t think you were capable of anymore. Life doesn’t end when a diagnosis begins. It just changes.

Hold on. Ask questions. Lean on the people God has put in your life. Celebrate the good days. Endure the hard ones. And if all you can do on some days is get out of bed and breathe, then that is more than enough for that day.

Almost twelve years ago, I thought my story was coming to an end.

It turns out that it was just the beginning of a very different chapter.

And as long as there’s breath in your lungs, there is still a reason to keep turning the pages.

Please Hold…My Brain is Loading

11 Sunday Jan 2026

Posted by Tim Hughes Living with CML in bariatric-surgery, Cancer, Family, Leukemia, Weight Loss

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B12, blog, Brain Fog, Buffering, Chemotherapy, CML, Concentrating, Diary, Drugs, Forgetfulness, gastric bypass, health, Leukemia, Life, Medications, Memory, Memory Loss, Mental, mental-health, Sleep, Sticky Notes, Venting, writing

When I started this blog some years ago, it was mainly meant to be a diary of sorts — a place to vent and to voice my opinions. Gaining an audience was never part of the plan. This was more “Dear Diary” than “Dear Internet.” It wasn’t until I was diagnosed with CML that I decided to use this platform to write about my experiences with cancer and maybe, just maybe, help some other poor soul going through the same thing.

As with most things in life, plans change. Sometimes gently. Sometimes with a two-by-four.

Not only was I dealing with CML, but I also decided to write about my experiences with gastric bypass surgery. When I was doing my research, I noticed there really wasn’t much content out there. And what I did find often ended shortly after surgery, for whatever reason — almost like everyone vanished once the anesthesia wore off and nobody ever came back to update the internet.

There’s something else that’s been going on for quite some time, and I’ve finally decided to put it down on paper. I’ve been experiencing brain fog for several years, and over time, it has gotten worse. “Brain fog” is a term used to describe symptoms such as difficulty concentrating, memory problems, mental cloudiness, confusion, and trouble finding words — essentially, feeling like your brain is running Windows 95 in a world that expects fiber internet.

I notice it most when I’m trying to carry on a conversation and, right in the middle of it, my mind just… leaves. Names vanish. Phone numbers disappear. Sometimes I forget what I was saying while I’m still saying it. Short-term or long-term, it doesn’t matter. It’s there… then it’s not, kind of like my car keys.

What makes this so difficult isn’t just the symptoms themselves, but how they sneak into everyday life. I’ll walk into a room and forget why I’m there. I’ll open my phone to look something up and immediately forget what I was looking for. I’ll stand in the kitchen staring into the fridge like it’s going to explain my life choices to me.

Conversations that should be easy sometimes turn into mental obstacle courses as I search for words I’ve used my entire life. It affects my confidence more than I care to admit. When you can’t trust your own memory, you start second-guessing yourself. You hesitate before speaking. You rely more on notes, reminders, and the people around you. I’m grateful for their patience, but it’s a strange feeling when your own brain doesn’t always show up prepared.

Some days are better than others. There are moments when everything feels clear and normal, and I start to think maybe I’ve turned a corner. Then there are days when my thoughts feel like they’re moving through mud, and even simple tasks take extra effort. Those are the days that wear on you — not with fireworks, but with a steady drip of “Seriously? Again?”

If you Google the term “brain fog,” you’ll find a long list of possible causes: lack of sleep, medications, chemotherapy, B12 deficiency, and even anemia. I’ve spoken to my doctor about it, and while some over-the-counter options might help, with my anemia and the chemotherapy drugs I’m on, they may not make much difference. In other words, this may just be part of my user agreement for now.

I don’t share any of this for sympathy. I share it because this blog has always been about honesty — the good, the bad, and the occasionally forget-why-I-walked-in-here. Brain fog may be part of my story right now, but it’s not the whole story. I still laugh, I still enjoy life, and I still manage to function… even if I need a few more sticky notes than the average person.

I’ve learned to adapt. I write more things down. I set reminders. I give myself a little more grace than I used to. And when I lose my train of thought mid-sentence, I’ve decided it’s perfectly acceptable to blame the fog, shrug, and move on. If nothing else, it gives the people around me a chuckle — and honestly, some days I’m laughing right along with them.

And if you ever see me standing in a room staring off into space like I’m waiting on divine revelation, don’t worry. I’m probably just buffering.

Time Doesn’t Stand Still

22 Wednesday Oct 2025

Posted by Tim Hughes Living with CML in Cancer, Depression, Family, Leukemia

≈ 1 Comment

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Cancer, Classmates, CML, Dating, Depression, Family, Grandkids, Great Grandkids, Kids, Lab Results, Leukemia, Life, love, Medications, mental-health, Old Age, Parents, Worrying, writing

The older I get, the more I realize that time doesn’t stand still. It seems like almost every week I hear about someone I used to go to school with or work with who has passed away. Just the thought of it can be depressing.

This past Saturday, I did a craft fair and happened to run into one of my high school classmates and her sister. We had a chance to catch up for a bit, and somehow the conversation turned to the classmates we’ve already lost. Sadly, cancer seems to have claimed most of them.

I’m 62 now — older than many of my classmates since I was held back a year — and although my health hasn’t always been the best, I count myself lucky to still be here.

Most of my classmates already have great-grandkids. Me? None of my three kids are married yet, so I’m not even a grandparent. Only one of the three is dating anyone right now, and I’m not sure when or if the other two will. That’s okay, though. I don’t ever want them to feel pressured. Still, before I go, I’d love to see all my kids married and maybe even get the chance to hold a grandbaby or two.

My parents, who are both in their mid to upper eighties, would love to see great-grandkids too. I have to remind my mom not to put pressure on my kids — she has a way of speaking her mind about things like that.

As I’ve mentioned before, I have a form of leukemia called CML. Right now, it’s under control. Sometimes one of the markers the doctors watch goes a little wild and sends everyone into a panic, but eventually, the numbers settle back down, and all is well again. I’ve come to accept that nothing I do can change the fact that I have CML. All I can do is take my daily pill, stay consistent, and be thankful that the medicine is working. Worrying won’t change the outcome.

Are you the worrying type? What’s the main thing that weighs on your mind — your kids, your health, your future, or something else? I get my worrying honestly; my grandmother on my mom’s side was a worrier, and my mom’s the same way. I guess it just runs in the family.

Life Updates: Weight Loss, Clyde, and Cold Mornings on the River

19 Sunday Oct 2025

Posted by Tim Hughes Living with CML in bariatric-surgery, Cancer, Diabetic, diet, Fishing, Kayaking, Leukemia, Nature, Pets, Weight Loss

≈ 2 Comments

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Anemic, Bariatric Surgery, Bass, Cancer, CML, Cold, Fishing, health, Hobbies, Kayacking, Leukemia, Life, Pets, Temperature, Tumor, Vlogs, Weighloss, writing

I know—it’s been a minute since I’ve posted anything. Honestly, I don’t even remember what I wrote about last time, so forgive me if I repeat myself a bit.

My weight loss journey has finally leveled out—or at least I think it has. My original goal was 190 pounds, but I’ve actually surpassed that by almost 20. I weighed in this morning at 174 pounds and have been hovering there for several weeks now. That’s over a hundred pounds lost in total, which is still hard for me to wrap my head around sometimes. I’m pretty happy with where I’m at.

I don’t regret having the surgery one bit—if anything, I just wish I’d been able to do it sooner. That said, there are a few side effects I could do without. I get these hunger pains unlike anything I’ve ever felt before—sharp, deep aches around my stomach area that only fade after I eat. And since they removed my inflamed gallbladder during surgery, well, let’s just say I have to stay close to a restroom after meals. What goes in tends to come out quickly, and sometimes with little to no warning. Sometimes it’s 30 minutes, sometimes hours later—but when the tummy starts to rumble, it’s a do-or-die situation. I’ll let your imagination fill in the rest.

On a more personal note, my old buddy Clyde is still hanging in there. He’ll be 21 in January if he makes it that long. About a month ago, we found out he has a tumor on his liver. We don’t know if it’s cancerous, but because of his age, surgery isn’t an option. All we can do now is keep him comfortable and make sure his final days are filled with love. The vet couldn’t give us a timeframe, so we’re just taking things day by day. It’s tough to think about, and we’re trying to prepare ourselves mentally—but that’s easier said than done.

I’m still getting out on the river for some kayak fishing about once a week. I love it, but those 4 a.m. wake-up calls are brutal. I usually try to be on the water by sunrise to make the most of the day, and I’m typically done around 2 p.m. That’s a long stretch to be sitting in a kayak, but it’s peaceful out there.

As the temperatures drop, though, I’m not sure how much longer I’ll be able to keep it up. I’m chronically anemic and stay cold most of the time. Anything below 76 degrees is jacket weather for me. In fact, my thermostat is set at 76, and I still wear a jacket indoors most days. I have a trip planned for this Thursday, but the forecast says 43 degrees in the morning. I can bundle up, but once it warms up, I’ll have to stash my jacket somewhere—and space is limited in a kayak. The front compartment is out of reach when I’m seated, so it’s always a bit of a puzzle.

But hey, that’s life. I’ll enjoy it while I can—cold mornings, creaky joints, and all.

I’m also going to try to stay more active on here, share a bit more often, and hopefully regain some of my old followers—and maybe even find a few new ones along the way.

Feel free to ask me anything about my gastric bypass journey, my buddy Clyde, or my fishing trips. I’d love to share what I’ve learned and experienced. And if you’ve gone through weight loss surgery, have a special pet, or just want to chat about your own hobbies, I’d really enjoy hearing about them too.

Time for a Poll

01 Thursday Sep 2022

Posted by Tim Hughes Living with CML in Photography

≈ Leave a comment

Tags

Cancer, CML, poll, Weight, Weightloss

Tomorrow is weigh-in. I’d like to see if anyone out there is willing to voice their opinion as to how much I’ve gained or lost.

Come on guys let’s play along. Did I gain weight? If so, how much? Did I lose weight? If so, how much did I lose?

I’m looking forward to seeing what you guys have to say. Remember, I lost over fifteen pounds last week. Did I lose that much again? What do you think??

Alice Fitts. One of the girls that I photographed earlier this week.
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