Tag Archives: Doctor

The 80/20 Decision

19 Wednesday Aug 2026

Posted by in Cancer, Leukemia, Life, Uncategorized

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I had an iron infusion today. Before I went to the treatment room, I was unexpectedly led to an exam room, where I waited for several minutes.

I was beginning to get a little concerned because I had another doctor’s appointment later in the afternoon, and I really didn’t want to be late. My normal infusions take approximately two hours, so I had a right to be concerned.

Eventually, my doctor stuck his head in the door and told me he needed to see me, but it would have to wait until after my infusion. He assured me that the information he had for me wasn’t bad.

Of course, there’s nothing quite like a doctor telling you, “It’s not bad,” and then walking away.

That statement may be reassuring to him, but my brain immediately responded with, “Well, if it’s not bad, why can’t you tell me now?”

My infusion itself went according to plan. They gave me Benadryl as a precautionary measure, and within a few minutes, I was sound asleep.

I always bring my Kindle with me so I can read while I’m getting my infusion.

I don’t know why.

I think I have brought that Kindle to every infusion I’ve had, and I’m pretty sure the most I’ve ever accomplished was getting past the title page.

At this point, the Kindle is basically just an expensive security blanket.

I should probably start bringing a pillow instead.

Once the infusion was finished, I finally got to meet with my oncologist.

Thankfully, the meeting wasn’t nearly as bad as I had imagined.

It was about that one marker that just can’t seem to behave itself. Apparently, there is a new drug available, and my doctor would like me to consider trying it. He gave me some literature to take home and asked me to let him know by next week whether I want to give it a try.

The biggest reason he wants me to consider it is the success rate. According to what he told me, about 80 percent of the people who take this drug can be free of the cancer within five years.

Eighty percent.

That’s pretty encouraging.

Then there’s the other 20 percent.

Those are the people who will have to remain on some type of medication for the rest of their lives.

And, knowing my luck, I’ll probably be sitting in the 20 percent section.

I can see it now.

“Congratulations! You have been selected for the premium medication package. Unfortunately, there is no prize.”

Of course, I’m joking…mostly.

There are also some potential side effects that I need to consider. Upon first inspection, there are concerns about pancreatitis, heart problems, and kidney problems.

Unfortunately, those aren’t exactly unfamiliar words to me. Most of these are things that I’m already dealing with or being constantly monitored for.

Apparently, my body likes to keep my doctors employed.

That’s probably one of the reasons I’m hesitant to make a quick decision.

My doctor gave me some literature to take home and read so I can make an informed decision.

I’ll probably need the “Cliff Notes” version to fully understand what I’m reading.

Medical literature has a way of taking something that could probably be explained in three sentences and turning it into twelve pages of words that require a medical degree, a dictionary, and possibly a translator.

I’m sure somewhere in those pages it will say something like, “This medication may cause some serious side effects.”

Then I’ll spend the next three hours wondering if a headache means I’m dying.

On the other hand, the possibility of eventually being free of the cancer is hard to ignore.

I’ve been dealing with this for years, so the thought of taking a different medication with the possibility of reaching that point is certainly appealing.

Now I have a week to read through the information, think about it, and probably drive myself crazy trying to decide what I should do.

I suppose that’s the downside of being given choices.

Sometimes it’s easier when someone else just tells you what to do.

For now, I’m going to read the literature, talk to my doctor if I have questions, and try not to let my imagination get the best of me.

After all, I’ve already spent two hours today worrying about news that turned out not to be bad.

I might as well give my brain a little time off before it starts worrying about the next thing.

And if anyone needs me, I’ll be over here reading my “Cliff Notes”…

assuming I can figure out what the Cliff Notes are saying.

One Positive Result

18 Tuesday Aug 2026

Posted by in Cancer, Leukemia, Life, Uncategorized

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I got an email yesterday from the place that did my recent oncology lab work.

I was at my mom and dad’s house celebrating my birthday when the email came in. Of course, I immediately noticed it and started debating whether or not I should open it.

Part of me thought, “If it’s good news, I’ll open it and share it with everyone.”

But if it was bad news?

Well, I probably wouldn’t want to open it while I was surrounded by family. I’d probably gather everyone together, tell them what was going on, and then go home.

That may sound a little dramatic, but when you’ve been dealing with cancer for more than a decade, you learn that opening a lab report can feel a lot like opening a Christmas present from someone who doesn’t particularly like you.

You just don’t know what’s inside.

After a little discussion with my wife, I decided to bite the bullet and open the email.

For months, my test results have come back negative.

I’ve learned not to get too excited when I see those negative results, though. As much as I would love to believe that things are going to stay that way forever, I know better.

Eventually, something is going to change.

And change it did.

Of the three markers they check, one of them came back positive for BCR-ABL1.

Now, before anybody starts panicking, it’s not the end of the world.

It’s something we’ve seen before, and hopefully, when I have my labs checked again in a few months, that number will come back down.

My oncologist called me today to go over the results. He explained that I need another iron infusion, which isn’t exactly surprising considering my iron levels have been giving me fits lately.

As for the elevated BCR-ABL1 marker, we’re not going to change anything right now.

We’ll wait and see what happens.

If it continues to stay high, then we may have to look at changing medications. But for now, it’s a matter of keeping an eye on it and letting the medication continue doing what it’s supposed to do.

And honestly, this isn’t the first time we’ve been here.

We’ve seen this movie before.

I just wish they would quit making sequels.

For now, I’m going to continue taking my medication, get the iron infusion, have my labs checked again in a few months, and hopefully get another email that says everything is back where it should be.

Until then, I’m going to try not to worry about something that hasn’t happened yet.

After all, I’ve learned over the years that when it comes to my lab results, there’s not much I can do about the numbers once the blood has left my arm.

I just have to wait for the next chapter.

And hopefully, the next chapter is a little less exciting than this one.

When it’s too hot to do anything.

14 Friday Aug 2026

Posted by in Family, Fishing, Kayaking, Life, Nature, Uncategorized, Weather

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I have lived here all my life, and you would think by now I would have become accustomed to this heat. Apparently, my body never got the memo. Even with my anemia, it has gotten too warm for me.

Every day this week, I’ve either had a doctor’s appointment, a physical therapy appointment, or I’ve had to drive my wife to one of hers. That means I’ve had to be outside at least twice a day, every day this week, and it has been brutal.

Yesterday, after taking my wife to the doctor, I volunteered my services to help a friend with his two air-conditioning units. I had planned on changing into a lighter shirt before going, but, of course, I forgot. Within just a few minutes, that shirt was soaked with sweat.

There’s nothing quite like standing outside in 100-degree weather wearing a shirt that has decided to become a second skin.

It’s too hot for me to do any yard work, and it’s even too hot for me to work in my garage. There are plenty of things I need to do out there, but when the temperature in the garage feels like it could double as an oven, suddenly those projects don’t seem quite as important.

I’ll get to them eventually.

Or maybe in November.

It’s even too hot to go fishing.

And that’s saying something.

I was reading yesterday about a lady who was giving instructions on how to make bread in your mailbox. In this heat, I can actually see someone trying it. You could probably put the dough in the mailbox in the morning and have a loaf of bread by lunchtime.

I also saw where a meteorologist had taken his cast-iron pan and left it sitting in the sun for about thirty minutes. He was able to fry a couple of eggs in it.

At this point, I’m beginning to wonder why we’re still using stoves.

Just put your skillet on the driveway.

The ambient air temperature at my house this afternoon was 100 degrees, with a heat index of 115 degrees. When you walk outside, the humidity is so thick that it feels as though you’re walking into a brick wall.

They say it’s not the heat, it’s the humidity that will get to you.

I believe it.

At 115 degrees, I don’t think the heat and humidity are working independently anymore. They’ve formed a partnership.

We’re supposed to get a break in this heatwave sometime in the middle of next week. Along with the cooler temperatures will come a few much-welcomed thunderstorms.

I’m looking forward to both.

Maybe I’ll even get back out in the garage.

Then again, if it’s still too hot, there’s always November.

Progress Isn’t Always a Straight Line (Especially with My Back)

06 Thursday Aug 2026

Posted by in Family, Fishing, Kayaking, Nature, Uncategorized

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Twice a week for the past five weeks, I’ve been going to physical therapy for my back. I’ll admit that when I first started, I didn’t think therapy would do much good for fused vertebrae and a bulging disc. I figured it was something I would just have to live with. Much to my surprise, though, therapy has been more beneficial than I ever expected.

That doesn’t mean there haven’t been a few setbacks.

This week alone, my back decided to remind me that it’s still in charge of this relationship. Apparently, I only get voting rights.

After church on Sunday, my kids and I went out to eat. The restaurant seated us in a booth with one of the strangest backrests I’ve ever encountered. Whoever designed it must have based it on someone who had never actually sat down before.

Within a few minutes, I knew it wasn’t going to work. My back was getting more uncomfortable by the second, so I finally excused myself and headed out to my truck to do some stretching.

Apparently, seeing a grown man bent, twisted, and stretched out in a restaurant parking lot gets people’s attention. Several patrons stopped to ask if I needed medical assistance. I appreciated their concern, but thankfully, all I needed was for my back to quit throwing its little temper tantrum.

The very next day, I went fishing with my friend Rick. Before we launched, I warned him that I probably wouldn’t make it through a full day on the water. My plan was to fish until about 11:30 a.m., giving us roughly five hours before heading home.

Well…my back had already looked at my schedule and crossed that out.

By 10:30, it was screaming, “We’re done!” Loud enough that I didn’t feel the need to argue. I paddled back to the launch, unloaded my gear, and before loading my kayak into the truck, I stretched out flat on my back across the tailgate for about ten minutes.

If anyone drove by, they probably thought I was either taking a nap or waiting for the coroner. Thankfully, neither was true.

That little break settled my back down enough for me to finish loading everything. Rick finally made it back around noon. He was fortunate I’d taken those few minutes to recover because otherwise he would have been loading all of his gear by himself. As much as I enjoy fishing with him, I was ready to get home and put some heat on my back.

When I told my physical therapist about both incidents yesterday, she decided to extend my therapy for another couple of weeks. Her goal is to add some exercises specifically designed to help reduce the pain I experience while fishing.

Normally, I probably would have complained about having to continue therapy longer than expected. But in this case, I’ll let it slide. After all, if a few more therapy sessions help me spend a few more hours fishing, that’s a trade I’m willing to make.

She also suggested replacing the seat in my kayak with one that offers better lumbar support. I’ve already started looking at a few options, and I’m planning to show her what I’ve found during tomorrow’s appointment. Who knew shopping for kayak seats would become part of my medical treatment?

If there’s one thing this experience has taught me, it’s that progress isn’t always a straight line. There are good days and bad days, victories and setbacks. But each week I’m seeing small improvements that remind me I’m moving in the right direction.

My back may still think it’s the boss, but physical therapy is slowly teaching it that it’s about to lose some of its authority.

When the Climb Feels Steeper

01 Saturday Aug 2026

Posted by in bariatric-surgery, Cancer, Depression, Disability, Family, Fishing, Kayaking, Leukemia, Life, Uncategorized, Weight Loss

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There are days when I feel like I’m stuck in a rut. It seems like nothing I do matters anymore.

Lately, nothing really excites me. All I want to do is sit and do absolutely nothing. The television doesn’t interest me, so I turn it off. I tried reading, but after a sentence or two, I put the book back down.

I’m going through my daily routines simply because they’re expected of me, but I’m not getting much out of them.

If you’ve been following my journey for any length of time, you know I’ve dealt with some pretty serious health issues. Thankfully, since my gastric bypass surgery, my health has improved in several ways. But my CML is still there, and it’s something I’ll live with for the rest of my life.

I’ll be honest. It’s a constant battle not to end up in the frame of mind I’m in right now. I’m not at the point where I’d say I’m depressed, but I also can’t pretend it isn’t peeking around the corner.

I can’t tell you what triggers these episodes. They just seem to appear out of nowhere, and when they do, it usually takes me a couple of days to climb back out.

Is this just a “woe is me” moment? Maybe. I can’t completely rule that out. But even if it is, is it really so terrible that I have days like this every now and then?

I’ve been doing some yard work around the house—things that genuinely needed to be done—but my heart just wasn’t in it. I had the opportunity to go fishing on Friday, something I normally look forward to, but I made every excuse in the book not to go. Instead, I stayed home and worked in the yard.

This morning, I spent a few hours volunteering at church with some friends. While I was there, I genuinely enjoyed myself. We laughed, got some work done, and for a little while, everything felt normal.

On the drive home, I found myself thinking about all the things I wanted to do once I got back. That alone gave me hope. I thought maybe I was finally climbing out of this hole.

But as soon as I walked through the front door, that feeling disappeared. The heaviness came right back, and I honestly don’t know why.

Since getting home, I’ve done little more than sit in this recliner, not really wanting to do much of anything.

Maybe what I really need is a change of scenery. I need a break from doctor’s appointments every other day. I need to go somewhere where I don’t have to wonder what’s going to break next—or assume I’ll be the one expected to fix it.

On a brighter note, my wife’s car is finally back. That means I won’t have to chauffeur her to appointments anymore, and I can start making plans without first checking to see if she needs me somewhere else.

I’ll be okay. I’ve been through these seasons before. They come, and they go. Right now, the climb just feels a little steeper than usual.

Sometimes life is less about never falling into the hole and more about remembering that you’ve climbed out before. I’m trusting that, with God’s help, I’ll climb out again.

My Mouth Has Declared a Revolt

30 Thursday Jul 2026

Posted by in Amateur Radio, Cancer, Diabetic, Disability, Family, Fishing, Kayaking, Leukemia, Life

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I believe I’ve mentioned this a couple of times before, but I have a love/hate relationship with doctors. When it comes to dentists, though, it’s a little different—I absolutely despise dentistry. Don’t get me wrong, I love my dentist, but I hate everything about going to see him.

I know how important it is to take care of my teeth. I’ve also been told—although I’m not sure how much truth there is to it—that having CML can affect your dental health. Whether that’s the culprit or not, my teeth seem determined to keep my dentist in business.

About two weeks ago, I noticed what I thought was a missing filling. I already had an appointment scheduled to have my teeth cleaned, so I called the office to see if they could replace the filling during the same visit. When I got there, my dentist took one look and informed me that it wasn’t a missing filling at all—it was a broken tooth. That meant scheduling yet another appointment to get it fixed.

Then, last Friday, while I was out fishing with my daughter, I bit into a peanut butter cracker and heard that dreaded little crunch. Sure enough, I had managed to break another tooth. Because apparently my teeth have a flair for dramatic timing, this one was on the opposite side of my mouth… and my appointment to fix the first tooth was the following Tuesday.

On Monday morning, I called the dentist’s office to let them know I’d added another broken tooth to my collection. I figured if they were already going to be working in my mouth, they might as well fix both while they had me in the chair.

I’ve been going to the same dentist for more than forty years, so we’ve developed a pretty good rapport. Naturally, his first question was whether I’d been eating rocks again.

Before long, he had both sides of my jaw full of the magic juice that makes you feel like your face is sliding off your skull. He drilled both teeth and fitted them with temporary crowns.

About an hour after I got home, the numbness started to wear off. The right side of my mouth seemed perfectly fine, but the left side was a completely different story. I’m not sure why, but even two days later it’s still pretty sore.

Then this morning, while eating a bowl of Cheerios, I felt something strange. Sure enough, the temporary crown on my right side had come loose. It’s currently sitting on the table beside my recliner, patiently waiting for me to throw it in the trash.

I go back to the dentist on August 5th to have the permanent crowns installed, so I think I’m just going to wait. Knowing my luck, they’d put another temporary crown on, and I’d probably find a way to break that one too.

Have I mentioned lately just how much I despise going to the dentist?

At this point, I wouldn’t be surprised if my dentist sends me a Christmas card thanking me for helping put one of his kids through college.

When Good Days Take Unexpected Turns

24 Friday Jul 2026

Posted by in Family, Fishing, Kayaking, Life, Nature, Twins, Uncategorized

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Tuesday was spent at the doctor’s office with my dad, following up on his broken nose. After examining him, the doctor decided not to do anything since he could still breathe through it without any difficulty. Dad actually broke his nose when he was a kid, so it was already a little crooked. I guess he’s had decades to get used to a nose that doesn’t point due north.

My plans to go fishing on Wednesday changed when my son called early that morning saying his air conditioner had quit working.

I haven’t had to do much HVAC work since I retired, so it took me a little longer than usual to diagnose the problem. It didn’t help that there were actually two problems. After several hours, two trips to the hardware store, a new thermostat, and a new capacitor, his air conditioner was finally back up and running. It felt good to know I hadn’t forgotten everything I learned after 32 years in the business.

My daughter told me on Sunday that she wanted to go fishing. Since she had a hair appointment on Thursday, she decided to spend the night and get an early start the next morning.

We fished for several hours before either of us had any luck. Her luck changed first when she hooked a big fish, but it got off before she could get it to the kayak. Then my luck changed when I finally landed one. Unfortunately, my good fortune lasted about five seconds.

As I was handling the fish, my phone slipped out of my pocket and disappeared into the lake, never to be seen again.

My daughter actually climbed out of her kayak and tried feeling around with her feet to find it, but it was gone. This is the second time my phone landed in the water, and you’d think after the first time I’d have learned my lesson. I have a phone tether on order now that should arrive tomorrow.

As the saying goes, a day late and a dollar short.

Needless to say, we called it a day and headed home.

After unloading the truck, I spent the next several hours at the phone store getting everything transferred to a new phone. It wasn’t exactly how I had planned to spend my afternoon, but at least I got to spend the morning on the water with my daughter.

I’d gladly trade a phone for memories like that… although I’d really prefer not to make it a habit.

Benadryl, Broken Noses, and a Busy Day

20 Monday Jul 2026

Posted by in Boy Scouts, Family, Leukemia, Life, Uncategorized

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Today started out busy, and judging by my calendar, it’s only the beginning.

I had two doctor appointments today—one at 10:00 a.m. and another at 3:00 p.m.

My first stop was my oncologist’s office for an iron infusion. They usually take about two hours, so I figured I’d have plenty of time to get home, eat lunch, and make it to my physical therapy appointment.

Well… that was the plan.

The infusion ended up lasting nearly three hours, which turned my carefully planned schedule into a race against the clock.

Before the infusion, they always draw blood to check my iron levels and determine if—and when—I’ll need another treatment. Then comes the fun part. They hook me up to a small IV bag of Benadryl.

They use Benadryl to offset any reaction I may have to the infusion.

I don’t know about everyone else, but Benadryl absolutely knocks me out. I’m talking “you could redecorate the room around me, and I’d never know it” kind of asleep.

I had brought my Kindle to pass the time, but after the Benadryl started flowing, I don’t remember making it past the second page.

A lady sitting next to me was receiving three bags of chemotherapy. I knew I’d been asleep for quite a while when I woke up, and she was already on her third bag.

When I finally came to, my iron infusion was almost finished. I did my best to stay awake long enough for the nurse to remove the IV. Truthfully, I could have happily curled up in that recliner and taken another nap, but I had places to be.

Downstairs, I stopped to pay for parking. An elderly lady ahead of me was having trouble with the payment machine. Her card wouldn’t work, and she didn’t have another card or any cash. I asked her to cancel the transaction, scan her ticket again, and I paid for her parking.

Four dollars wasn’t going to make me go broke.

My good deed for today.

She thanked me several times before heading on her way, and then I paid for my own parking.

My physical therapy appointment went well, although concentrating wasn’t exactly easy with all that Benadryl still floating through my system. I think my therapist took one look at me, decided I wasn’t going to set any personal records that afternoon, and let me go home about ten minutes early.

Tomorrow will be another busy day. I’ll have to miss my Tuesday morning Bible study because I’m taking my dad to the doctor to have his broken nose checked after his fall.

He’s already informed me that he has no intention of letting them reset it.

According to him, he broke it as a kid, it’s been crooked ever since, and he doesn’t see much point in making it straight now.

At 87 years old, I guess he’s decided that a crooked nose has become part of his identity. Who am I to argue with that?

When Plans Change in an Instant

17 Friday Jul 2026

Posted by in Family, Kayaking, Life, Uncategorized

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It doesn’t matter how carefully you make your plans—one phone call from one of your parents can change everything in the blink of an eye.

I had planned on going fishing today. It had already been a challenge just getting ready. I had a meeting Thursday night, so I wasn’t able to load my kayak until I got home late. I loaded everything else beforehand, leaving only the kayak for when I returned.

We’re also down to one vehicle right now, so after my physical therapy session, I needed to take my wife grocery shopping. Then I had to drive across town to exchange my shoes before I could even think about heading to the water.

Then the phone rang.

It was my mom.

She told me my dad had fallen outside. According to her, there was blood everywhere. She had already called 911, and the paramedics were on their way to take him to the emergency room.

I left the house immediately. I got to the ER so quickly that I actually arrived before the ambulance did.

A short time later, my mom and my nephew arrived, and Dad came in around the same time. He had a pretty nasty gash on his forehead that had cut open a blood vessel. He also broke his nose and badly bruised his right arm.

My sister arrived shortly afterward, and then came the waiting. Anyone who has spent time in an emergency room knows that waiting is just part of the process.

After about two hours, I knew Dad was stable and being well cared for. Since there wasn’t much more I could do, I left to attend my meeting.

A couple of hours later, after the meeting ended, I called to check on everyone. Thankfully, they were already back home.

I called Dad again this morning, and I’m happy to report that he had a good night. He’ll see a doctor on Tuesday to have his broken nose evaluated. I offered to take him, but my nephew may be able to do it. We’ll know for sure in the next couple of days.

Days like yesterday are a reminder of how quickly life can change. One minute you’re thinking about fishing, and the next you’re sitting in an emergency room with your family.

I’m just thankful the outcome wasn’t worse. At 87 years old, a fall can be life-changing. God was watching over Dad, and for that, I’m incredibly grateful.

A Calendar Full of Red

15 Wednesday Jul 2026

Posted by in Diabetic, Disability, Family, Fishing, Kayaking, Life, Pets, Retirement, Uncategorized

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My cat Sophia must have decided I needed the extra rest because she let me sleep until 6:30 this morning—an hour later than my usual wake-up call. I don’t know what got into her, but I’m not about to question a miracle.

My wife had a physical therapy appointment today, so I didn’t get much accomplished before it was time to chauffeur her to the appointment at 11:00. While she was with her therapist, I stayed in the truck. I used the time to go over my upcoming Bible study lesson. It was a productive way to pass the time.

I had planned to take my new shoes back to the store because the longer I wear them, the more my right foot hurts. I was hoping I could simply exchange them for a 7E width, but after doing some research online, I discovered that width isn’t available in the current style. Since my wife also had another appointment later in the day, I couldn’t make it to the shoe store. That means I’ll have to make a special trip tomorrow and hope I can find a pair that actually fits.

I have physical therapy in the morning, and afterward I’ll head across town to the shoe store. Once that’s done, I’ll come back home, pick up my wife, and take her grocery shopping.

After we get back, I’ll start loading what I can for Friday’s fishing trip. Unfortunately, I have a late meeting across town, so I won’t be able to load my kayak or fishing rods until I get home around 11:00 that night. Thankfully, it only takes a few minutes to load everything, so I should still be able to get to bed early enough for my 4:00 a.m. alarm.

I looked over my calendar for the next month, and it’s covered in red. I mark all of my appointments—and all of my wife’s appointments—in red so they stand out. Right now, there’s something scheduled at least three days every week, and several days have two appointments. Retirement sure wasn’t supposed to involve this many waiting rooms.

I’ll be glad when my wife gets her car back. Sharing one vehicle has made scheduling everything a lot more complicated. I know it’s only temporary and it couldn’t really be helped, but it has definitely added a layer of inconvenience to our daily routine. Hopefully, things will get back to normal soon.