Just Breathe

I would if I could. For years now I’ve been having trouble breathing, especially when I do anything strenuous. Walking up a hill or an incline, pushing or pulling an object or just taking a shower causes me to get out of breath. For years now I thought it was due to fluid being built up around my heart and lungs due to diastolic heart failure and medications for my CML. I just recently went to my pulmonologist and they found a little bit of fluid around my lungs which I had it removed it was only 1.5 liters of fluid. After having it removed I’m still having trouble breathing. The pulmonologist put me on a once a day inhaler for 2 months. Today marks the end of my inhaler as well as my next appointment for my pulmonologist and I’m not any better as of yet.

I’ve got my doctor scratching his head because there is no apparent reasoning for my shortness of breath. The pulmonologist did suggest that I tried to lose weight because I’ve got a lot of pressure against my lungs.

I’ve lost 6 lb since my last visit two months ago.

Welcome!!

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It’s been a while since I’ve posted anything and I have probably lost several followers because of it. As I’ve stated several times throughout my time here, I really don’t post to gain followers. I post because this is a way that I can keep myself honest.

If you want to know about me just ask. I’ve posted enough about my health that I think most people turn me off the minute they see that I’ve posted something. I do feel encouraged that people do like a post though. Although they are few, I do like the comments that get posted on here. So far none have been out of line and I appreciate it.

I lead a pretty boring life so there’s nothing much to post about unless it’s my health. Having CML does make it a little challenging. Something is causing my breathing issues but we are not sure yet.

Stat tuned, I’ll have a story to tell about our flooring project that’s going on now.

Good Evening!!

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Like I said earlier today, I’m still here. I kept thinking that I needed to post something but as always, I got busy with something else. I’ve got a bit of bad news to share. The breathing problems that I’m having are not caused by my heart or fluid in my lungs. What’s worse is that they don’t know why I’m having these issues. I can’t walk into my home and climb the one flight of stairs without becoming winded.

Not so long ago I was riding my bicycle twenty miles a day. Not any more. My son now is riding my bike where he lives. At least my bike is getting some mileage on the tires.

YAG Surgery

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Who would have thought. I’ve never heard such a thing. YAG? Evedently it’s a thing. I had cateract surgery a couple of years ago and it seems that the pocket that the new lense fits in, well, the bottom had become cloudy and the doctor needed to go in there and trim off the edges so my vision ca could be corrected.

It’s a simple process really. The waiting was the most difficlut part. I had to be there at 7:30 am but wasn’t called back until after 10:30 am. The proceedure was simple; just looking at a light for a couple of seconds and it was over. I have several floaters but they said that it will go away in a few days. I have a followup appointment this Wednesday so maybe he can get me a new script for new glasses.

Much Needed Update

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A lot has gone on since my last update. I’ll try to limit my discussion to one or two items as so not to bore you.

My last Oyncologist report was good but on one of the tests shows that my Creatine levels were high so off to the nephrologist I go. Wwe illinated some meds and reduced my lacix but that didn’t help. I was told to lay off my lacix altogether but when I did that I gained nearly ten pounds in a week. Cause? Fluid. Fluid has been my advasary for quite some time. I go to the gym twice a week, I diet all week long, I drink at least 64 oz of water a day but my weight remains about the same each day. As long as I’m on the lacix I’m okay but when I go off it I gain weight. But, on the other hand, while I’m on the lacix I don’t lose weight no matter how hard i try. This has been going on for a couple of months now.

I had a conversation with my cardiologist the other day and he said that he didn’t want me to get my heart rate much above 130 and I’ve been trying to abide by that. It really doesn’t take much to get my heart rate up and when it does it stays around 125 to 135 and that’s when I’m on the treadmill or spin cycle. I usually try to stay on those machines for at least thirty minutes each. When I’m working out with my trainer he has my heart rate up to nearly 120 at times.

Stay tuned and I’ll tell you about my recent eye surgery.

10-6-2020 Update My Son Bought a House!

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I know, it’s been a while. I’ve been rather busy with life’s ups and downs.

The Great Cycle Challenge is over and I met my goal of 200 miles by riding 219 miles. However, I didn’t quite meet my monitary goal of $1000 but I did manage to raise over $800.

My son bought a house and he’s driving me nuts with things he’s wanting done in the house. My wife and two daughters spent a week there helping him paint several of the rooms. Now it seems every time he calls he’s wanting something else done. Now it’s hanging a fan, replacing a thermostate, and a multitude of other items that he can’t do himself.

I have failed as a father raising him. My dad made sure that I knew everything there was to know about everything. He made me help him do everything and at the time all I wanted to do is lay around and watch television. I hated him for ruining my sleep espesially on weekends. So as a father I didn’t make my son do things my dad asked me to do and now it’s coming back to haunt me. My son even called me and asked how to cut his grass. I know I’ve taught him how to cut grass but evidently I didn’t.

I appreciate the fact that my son thinks I can do anythiing he asks of me. Most of the things he asks I can do but there are some things I can’t do and I think he doesn’t believe me when I tell him so. For example, he couldn’t get his cable to work in one of his rooms. He asked me to help him fix it. I don’t know much about internet but I told him I’d help him check it out. We worked in his attic for nearly two hours trying to figure it out. Finally, I told him that he’d better call his cable company because it was obivious that we didn’t know what we were doing.

H went to college for five years to get his degree in Mechanical Engineering. He is willing to do the work himself but in most cases he doesn’t know what he’s doing and he gets himself into trouble. Example, at 8 pm the other night he decides he’s going to disconnect his washer and get it ready to move out. He called wanting to know which direction to turn the water off. I told him that even though the water is turned off he would still have pressure on the water hose that feeds the washer. He called again about five minues later telling me that he needs help because he’s flooded his kitchen. As I’m getting ready to leave my house he calls back to tell me that he thinks he’s got it. Five minutes later another call demanding me to come help becuase he’s still getting water out of the hose. I asked him how much and he says a lot of water.

His house is a good 45 minutes away. He’s stated that his kitchen is flooded and the water is getting deep. Thoughts of him having to pay for damages for his appartment as well as the one beneath him is running through my head. I’m wearing a pair of shorts and t shirt. I grab some sandels, my keys, my driver’s license and my tools from my truck and off I went in my wife’s car. Upon my arrival 45 minuets later I find that he has stuck the hose from the faucett into a bucket which is quickly filling up. I took a wrench and grabbed the handle of the valve and turned it a couple of times which caused the water to slow to a steady drip. I stuck the hose from the bucket to the drain in the wall and called it done. That will keep the water from the going on the floor until the appartment manager can call a plumber and replace the valve.

I spent the next half hour helping him clean up the water on the floor. It really wasn’t that bad. His panic made it sound a lot worse than what it was. As we were cleaning up the water we talked about what he could have done differently and what he learned from this experience. I have a rule about doing any type of plumbing work after 5pm. Most hardware places close about that time so if you run into issues then your screwed. Unless it’s an emergency it can wait until the next day. Disconnecting a washing machine is not that difficult but for someone who’s never done it and don’t know what to expect when you have a gate valve that won’t shut off completly can be quite problematic.

Now I’ve got to install a ceiling fan which I’ve never done before but I’m sure between the two of us we can figure it out. I’m proud of my son for what he’s become. He’s smart and willing to try anything. He’s been living in appartments since he’s started college and now he’s bought a house. He’s making more money that I’ve ever made. I’m sure through his many failures he’ll learn what to do and not do and when he get’s to be my age he’ll know more than I know about doing things.

Made my Goal!!

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As part of The Great Cyclel Challange, a cycling effort to raise money to fight kids cancer, I have set myself a goal to ride 50 miles a week throughout the month of September. My goal for the event is just 100 miles because at the time I just didn’t think I could ride that much due to not riding any for about a year. It has become apparent that I may want to up my main goal to 200 miles.

I was short milage last week because I had broken a spoke. I’ve never replaced a spoke nor did I have any spokes to replace it with. The guy at the bike shop stated that it would be the 9th of September before I’d get my wheel back. I told him why I needed it back sooner but he didn’t have the same concern that I had. I was able to get the wheel back a lot sooner than expected so that meant that I had at least 23 miles that I had to ride to reach my 50 mile/week goal. Yesterday I road a little over 25 miles which made my weekly goal of 51.98 miles.

The goal starts over today but I’m doing a recovery day. Yesterday came with a small price. I went to stop and I couldn’t get my left foot unclipped from my peddle and down I went. Banged up my left knee pretty bad. I’ve been hurt worse but I’m going to take it easy today. Maybe I’ll spend the afternoon cleaning the bike. It’s gotten quite dirty over the past week of riding.

https://greatcyclechallenge.com/Riders/TimHughes

It’s a Beginning

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When I started riding back in 2013, I rode a total of 1700 miles.  I know, to some of you that’s a drop in a bucket but I was pretty proud of my accomplishment.  2014 is when I was diagnosed and because of my health issues, I was only able to ride 530 miles.  I was able to increase my mileage somewhat to 890 miles in 2015.  2016 was a different story.  I stayed in the hospital for several weeks because of complications and I never had the energy nor the strength to ride therefore I rode zero miles that year.  In 2017, I was determined to start again and I did get a decent start with 150 miles but it soon faded because I was plagued with complications again.  In the next two years, I was lucky to get 100 miles or less because of fatigue and weight issues.  Because of this challenge that I’ve signed up for, I’ve pretty much-given caution to the wind and I’m going to ride if it kills me.

Today I was able to ride six miles, most of it pretty well.  I did have some issues going up against some steep hills but I think once I lose some weight and get more in shape, I’ll get better with the hills.  The only way I’m going to get better is to keep doing it.  In 2013, I had worked up to 25 miles every time I got on my bike and I was riding close to four days a week during the Spring and Summer. There’s no way I can do that now but that’s my goal.

Stay safe everyone!!