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~ Diabetes, Cancer Fighter, Father of Twins, Kayak Fishing, Woodcrafter, Lover of Life

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Tag Archives: health

The 80/20 Decision

19 Wednesday Aug 2026

Posted by Tim Hughes Living with CML in Cancer, Leukemia, Life, Uncategorized

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Asleep, Benadryl, Cancer, Cliff Notes, Doctor, Drug, health, infusion, Iron, Kendle, Leukemia, Life, Medication, mental-health, Oncologist, Reading, Side Effects, writing

I had an iron infusion today. Before I went to the treatment room, I was unexpectedly led to an exam room, where I waited for several minutes.

I was beginning to get a little concerned because I had another doctor’s appointment later in the afternoon, and I really didn’t want to be late. My normal infusions take approximately two hours, so I had a right to be concerned.

Eventually, my doctor stuck his head in the door and told me he needed to see me, but it would have to wait until after my infusion. He assured me that the information he had for me wasn’t bad.

Of course, there’s nothing quite like a doctor telling you, “It’s not bad,” and then walking away.

That statement may be reassuring to him, but my brain immediately responded with, “Well, if it’s not bad, why can’t you tell me now?”

My infusion itself went according to plan. They gave me Benadryl as a precautionary measure, and within a few minutes, I was sound asleep.

I always bring my Kindle with me so I can read while I’m getting my infusion.

I don’t know why.

I think I have brought that Kindle to every infusion I’ve had, and I’m pretty sure the most I’ve ever accomplished was getting past the title page.

At this point, the Kindle is basically just an expensive security blanket.

I should probably start bringing a pillow instead.

Once the infusion was finished, I finally got to meet with my oncologist.

Thankfully, the meeting wasn’t nearly as bad as I had imagined.

It was about that one marker that just can’t seem to behave itself. Apparently, there is a new drug available, and my doctor would like me to consider trying it. He gave me some literature to take home and asked me to let him know by next week whether I want to give it a try.

The biggest reason he wants me to consider it is the success rate. According to what he told me, about 80 percent of the people who take this drug can be free of the cancer within five years.

Eighty percent.

That’s pretty encouraging.

Then there’s the other 20 percent.

Those are the people who will have to remain on some type of medication for the rest of their lives.

And, knowing my luck, I’ll probably be sitting in the 20 percent section.

I can see it now.

“Congratulations! You have been selected for the premium medication package. Unfortunately, there is no prize.”

Of course, I’m joking…mostly.

There are also some potential side effects that I need to consider. Upon first inspection, there are concerns about pancreatitis, heart problems, and kidney problems.

Unfortunately, those aren’t exactly unfamiliar words to me. Most of these are things that I’m already dealing with or being constantly monitored for.

Apparently, my body likes to keep my doctors employed.

That’s probably one of the reasons I’m hesitant to make a quick decision.

My doctor gave me some literature to take home and read so I can make an informed decision.

I’ll probably need the “Cliff Notes” version to fully understand what I’m reading.

Medical literature has a way of taking something that could probably be explained in three sentences and turning it into twelve pages of words that require a medical degree, a dictionary, and possibly a translator.

I’m sure somewhere in those pages it will say something like, “This medication may cause some serious side effects.”

Then I’ll spend the next three hours wondering if a headache means I’m dying.

On the other hand, the possibility of eventually being free of the cancer is hard to ignore.

I’ve been dealing with this for years, so the thought of taking a different medication with the possibility of reaching that point is certainly appealing.

Now I have a week to read through the information, think about it, and probably drive myself crazy trying to decide what I should do.

I suppose that’s the downside of being given choices.

Sometimes it’s easier when someone else just tells you what to do.

For now, I’m going to read the literature, talk to my doctor if I have questions, and try not to let my imagination get the best of me.

After all, I’ve already spent two hours today worrying about news that turned out not to be bad.

I might as well give my brain a little time off before it starts worrying about the next thing.

And if anyone needs me, I’ll be over here reading my “Cliff Notes”…

assuming I can figure out what the Cliff Notes are saying.

One Positive Result

18 Tuesday Aug 2026

Posted by Tim Hughes Living with CML in Cancer, Leukemia, Life, Uncategorized

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:Labs, Birthday, Blood Work, Cancer, CML, Doctor, Email, health, infusion, Iron, Leukemia, Life, mental-health, Positive, Rerports, Scale, Tests, writing

I got an email yesterday from the place that did my recent oncology lab work.

I was at my mom and dad’s house celebrating my birthday when the email came in. Of course, I immediately noticed it and started debating whether or not I should open it.

Part of me thought, “If it’s good news, I’ll open it and share it with everyone.”

But if it was bad news?

Well, I probably wouldn’t want to open it while I was surrounded by family. I’d probably gather everyone together, tell them what was going on, and then go home.

That may sound a little dramatic, but when you’ve been dealing with cancer for more than a decade, you learn that opening a lab report can feel a lot like opening a Christmas present from someone who doesn’t particularly like you.

You just don’t know what’s inside.

After a little discussion with my wife, I decided to bite the bullet and open the email.

For months, my test results have come back negative.

I’ve learned not to get too excited when I see those negative results, though. As much as I would love to believe that things are going to stay that way forever, I know better.

Eventually, something is going to change.

And change it did.

Of the three markers they check, one of them came back positive for BCR-ABL1.

Now, before anybody starts panicking, it’s not the end of the world.

It’s something we’ve seen before, and hopefully, when I have my labs checked again in a few months, that number will come back down.

My oncologist called me today to go over the results. He explained that I need another iron infusion, which isn’t exactly surprising considering my iron levels have been giving me fits lately.

As for the elevated BCR-ABL1 marker, we’re not going to change anything right now.

We’ll wait and see what happens.

If it continues to stay high, then we may have to look at changing medications. But for now, it’s a matter of keeping an eye on it and letting the medication continue doing what it’s supposed to do.

And honestly, this isn’t the first time we’ve been here.

We’ve seen this movie before.

I just wish they would quit making sequels.

For now, I’m going to continue taking my medication, get the iron infusion, have my labs checked again in a few months, and hopefully get another email that says everything is back where it should be.

Until then, I’m going to try not to worry about something that hasn’t happened yet.

After all, I’ve learned over the years that when it comes to my lab results, there’s not much I can do about the numbers once the blood has left my arm.

I just have to wait for the next chapter.

And hopefully, the next chapter is a little less exciting than this one.

Progress Isn’t Always a Straight Line (Especially with My Back)

06 Thursday Aug 2026

Posted by Tim Hughes Living with CML in Family, Fishing, Kayaking, Nature, Uncategorized

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adventure, Arthritis, Back, Doctor, Exercises, Fishing, Friends, health, Kayaking, Life, mental-health, Pain, Setbacks, Therapy, writing

Twice a week for the past five weeks, I’ve been going to physical therapy for my back. I’ll admit that when I first started, I didn’t think therapy would do much good for fused vertebrae and a bulging disc. I figured it was something I would just have to live with. Much to my surprise, though, therapy has been more beneficial than I ever expected.

That doesn’t mean there haven’t been a few setbacks.

This week alone, my back decided to remind me that it’s still in charge of this relationship. Apparently, I only get voting rights.

After church on Sunday, my kids and I went out to eat. The restaurant seated us in a booth with one of the strangest backrests I’ve ever encountered. Whoever designed it must have based it on someone who had never actually sat down before.

Within a few minutes, I knew it wasn’t going to work. My back was getting more uncomfortable by the second, so I finally excused myself and headed out to my truck to do some stretching.

Apparently, seeing a grown man bent, twisted, and stretched out in a restaurant parking lot gets people’s attention. Several patrons stopped to ask if I needed medical assistance. I appreciated their concern, but thankfully, all I needed was for my back to quit throwing its little temper tantrum.

The very next day, I went fishing with my friend Rick. Before we launched, I warned him that I probably wouldn’t make it through a full day on the water. My plan was to fish until about 11:30 a.m., giving us roughly five hours before heading home.

Well…my back had already looked at my schedule and crossed that out.

By 10:30, it was screaming, “We’re done!” Loud enough that I didn’t feel the need to argue. I paddled back to the launch, unloaded my gear, and before loading my kayak into the truck, I stretched out flat on my back across the tailgate for about ten minutes.

If anyone drove by, they probably thought I was either taking a nap or waiting for the coroner. Thankfully, neither was true.

That little break settled my back down enough for me to finish loading everything. Rick finally made it back around noon. He was fortunate I’d taken those few minutes to recover because otherwise he would have been loading all of his gear by himself. As much as I enjoy fishing with him, I was ready to get home and put some heat on my back.

When I told my physical therapist about both incidents yesterday, she decided to extend my therapy for another couple of weeks. Her goal is to add some exercises specifically designed to help reduce the pain I experience while fishing.

Normally, I probably would have complained about having to continue therapy longer than expected. But in this case, I’ll let it slide. After all, if a few more therapy sessions help me spend a few more hours fishing, that’s a trade I’m willing to make.

She also suggested replacing the seat in my kayak with one that offers better lumbar support. I’ve already started looking at a few options, and I’m planning to show her what I’ve found during tomorrow’s appointment. Who knew shopping for kayak seats would become part of my medical treatment?

If there’s one thing this experience has taught me, it’s that progress isn’t always a straight line. There are good days and bad days, victories and setbacks. But each week I’m seeing small improvements that remind me I’m moving in the right direction.

My back may still think it’s the boss, but physical therapy is slowly teaching it that it’s about to lose some of its authority.

When the Climb Feels Steeper

01 Saturday Aug 2026

Posted by Tim Hughes Living with CML in bariatric-surgery, Cancer, Depression, Disability, Family, Fishing, Kayaking, Leukemia, Life, Uncategorized, Weight Loss

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appointments, blog, Cancer, CML, Depression, Doctor, health, Life, love, mental-health, writing

There are days when I feel like I’m stuck in a rut. It seems like nothing I do matters anymore.

Lately, nothing really excites me. All I want to do is sit and do absolutely nothing. The television doesn’t interest me, so I turn it off. I tried reading, but after a sentence or two, I put the book back down.

I’m going through my daily routines simply because they’re expected of me, but I’m not getting much out of them.

If you’ve been following my journey for any length of time, you know I’ve dealt with some pretty serious health issues. Thankfully, since my gastric bypass surgery, my health has improved in several ways. But my CML is still there, and it’s something I’ll live with for the rest of my life.

I’ll be honest. It’s a constant battle not to end up in the frame of mind I’m in right now. I’m not at the point where I’d say I’m depressed, but I also can’t pretend it isn’t peeking around the corner.

I can’t tell you what triggers these episodes. They just seem to appear out of nowhere, and when they do, it usually takes me a couple of days to climb back out.

Is this just a “woe is me” moment? Maybe. I can’t completely rule that out. But even if it is, is it really so terrible that I have days like this every now and then?

I’ve been doing some yard work around the house—things that genuinely needed to be done—but my heart just wasn’t in it. I had the opportunity to go fishing on Friday, something I normally look forward to, but I made every excuse in the book not to go. Instead, I stayed home and worked in the yard.

This morning, I spent a few hours volunteering at church with some friends. While I was there, I genuinely enjoyed myself. We laughed, got some work done, and for a little while, everything felt normal.

On the drive home, I found myself thinking about all the things I wanted to do once I got back. That alone gave me hope. I thought maybe I was finally climbing out of this hole.

But as soon as I walked through the front door, that feeling disappeared. The heaviness came right back, and I honestly don’t know why.

Since getting home, I’ve done little more than sit in this recliner, not really wanting to do much of anything.

Maybe what I really need is a change of scenery. I need a break from doctor’s appointments every other day. I need to go somewhere where I don’t have to wonder what’s going to break next—or assume I’ll be the one expected to fix it.

On a brighter note, my wife’s car is finally back. That means I won’t have to chauffeur her to appointments anymore, and I can start making plans without first checking to see if she needs me somewhere else.

I’ll be okay. I’ve been through these seasons before. They come, and they go. Right now, the climb just feels a little steeper than usual.

Sometimes life is less about never falling into the hole and more about remembering that you’ve climbed out before. I’m trusting that, with God’s help, I’ll climb out again.

My Mouth Has Declared a Revolt

30 Thursday Jul 2026

Posted by Tim Hughes Living with CML in Amateur Radio, Cancer, Diabetic, Disability, Family, Fishing, Kayaking, Leukemia, Life

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adventure, Bass Fishing, Broken, Crown, Daughter, Dentist, Doctor, Drill, Fishing, health, Kayaking, Life, Novocain, Pain, teeth, writing

I believe I’ve mentioned this a couple of times before, but I have a love/hate relationship with doctors. When it comes to dentists, though, it’s a little different—I absolutely despise dentistry. Don’t get me wrong, I love my dentist, but I hate everything about going to see him.

I know how important it is to take care of my teeth. I’ve also been told—although I’m not sure how much truth there is to it—that having CML can affect your dental health. Whether that’s the culprit or not, my teeth seem determined to keep my dentist in business.

About two weeks ago, I noticed what I thought was a missing filling. I already had an appointment scheduled to have my teeth cleaned, so I called the office to see if they could replace the filling during the same visit. When I got there, my dentist took one look and informed me that it wasn’t a missing filling at all—it was a broken tooth. That meant scheduling yet another appointment to get it fixed.

Then, last Friday, while I was out fishing with my daughter, I bit into a peanut butter cracker and heard that dreaded little crunch. Sure enough, I had managed to break another tooth. Because apparently my teeth have a flair for dramatic timing, this one was on the opposite side of my mouth… and my appointment to fix the first tooth was the following Tuesday.

On Monday morning, I called the dentist’s office to let them know I’d added another broken tooth to my collection. I figured if they were already going to be working in my mouth, they might as well fix both while they had me in the chair.

I’ve been going to the same dentist for more than forty years, so we’ve developed a pretty good rapport. Naturally, his first question was whether I’d been eating rocks again.

Before long, he had both sides of my jaw full of the magic juice that makes you feel like your face is sliding off your skull. He drilled both teeth and fitted them with temporary crowns.

About an hour after I got home, the numbness started to wear off. The right side of my mouth seemed perfectly fine, but the left side was a completely different story. I’m not sure why, but even two days later it’s still pretty sore.

Then this morning, while eating a bowl of Cheerios, I felt something strange. Sure enough, the temporary crown on my right side had come loose. It’s currently sitting on the table beside my recliner, patiently waiting for me to throw it in the trash.

I go back to the dentist on August 5th to have the permanent crowns installed, so I think I’m just going to wait. Knowing my luck, they’d put another temporary crown on, and I’d probably find a way to break that one too.

Have I mentioned lately just how much I despise going to the dentist?

At this point, I wouldn’t be surprised if my dentist sends me a Christmas card thanking me for helping put one of his kids through college.

Benadryl, Broken Noses, and a Busy Day

20 Monday Jul 2026

Posted by Tim Hughes Living with CML in Boy Scouts, Family, Leukemia, Life, Uncategorized

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adventure, Appointment, Benadryl, Calendar, Cancer, CML, Doctor, Drugs, Family, health, infusion, Kindle, Life, Nose, Reading, Therapist, writing

Today started out busy, and judging by my calendar, it’s only the beginning.

I had two doctor appointments today—one at 10:00 a.m. and another at 3:00 p.m.

My first stop was my oncologist’s office for an iron infusion. They usually take about two hours, so I figured I’d have plenty of time to get home, eat lunch, and make it to my physical therapy appointment.

Well… that was the plan.

The infusion ended up lasting nearly three hours, which turned my carefully planned schedule into a race against the clock.

Before the infusion, they always draw blood to check my iron levels and determine if—and when—I’ll need another treatment. Then comes the fun part. They hook me up to a small IV bag of Benadryl.

They use Benadryl to offset any reaction I may have to the infusion.

I don’t know about everyone else, but Benadryl absolutely knocks me out. I’m talking “you could redecorate the room around me, and I’d never know it” kind of asleep.

I had brought my Kindle to pass the time, but after the Benadryl started flowing, I don’t remember making it past the second page.

A lady sitting next to me was receiving three bags of chemotherapy. I knew I’d been asleep for quite a while when I woke up, and she was already on her third bag.

When I finally came to, my iron infusion was almost finished. I did my best to stay awake long enough for the nurse to remove the IV. Truthfully, I could have happily curled up in that recliner and taken another nap, but I had places to be.

Downstairs, I stopped to pay for parking. An elderly lady ahead of me was having trouble with the payment machine. Her card wouldn’t work, and she didn’t have another card or any cash. I asked her to cancel the transaction, scan her ticket again, and I paid for her parking.

Four dollars wasn’t going to make me go broke.

My good deed for today.

She thanked me several times before heading on her way, and then I paid for my own parking.

My physical therapy appointment went well, although concentrating wasn’t exactly easy with all that Benadryl still floating through my system. I think my therapist took one look at me, decided I wasn’t going to set any personal records that afternoon, and let me go home about ten minutes early.

Tomorrow will be another busy day. I’ll have to miss my Tuesday morning Bible study because I’m taking my dad to the doctor to have his broken nose checked after his fall.

He’s already informed me that he has no intention of letting them reset it.

According to him, he broke it as a kid, it’s been crooked ever since, and he doesn’t see much point in making it straight now.

At 87 years old, I guess he’s decided that a crooked nose has become part of his identity. Who am I to argue with that?

If the Shoe Doesn’t Fit… Send It Back!

14 Tuesday Jul 2026

Posted by Tim Hughes Living with CML in Diabetic, Disability

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Bigfoot, Blisters, Bone Condidtion, Charcot, Fashion, fitness, health, Life, Medicall, Pain, Shoe Store, Shoes

Going to the shoe store has become one of my worst nightmares. Not everyone sells the shoes in the width that I need. In fact, there are only two stores in the Birmingham metro area that sell shoes in my size.

For those who are new here, I have Charcot. Charcot is a condition that makes my bones brittle. Two years ago, I unknowingly broke my right foot. It couldn’t be a normal break; it had to be broken in several places. What makes it worse, I didn’t know that it was broken for a couple of weeks. I have neuropathy in both feet, so I have no feeling. I only noticed when my foot was swollen so bad that my foot no longer fit in the shoe.

To make a long story short, I was in a splint for 3 weeks, a cast for eight weeks, and a boot for another ten weeks. My right foot is a 10.5 6E, and my left foot is a 9.5 3E. No, I don’t purchase two separate shoe sizes. I just purchase the larger size, and the orthotics take care of the fitting in my left foot.

So far, I’ve only found one store that sells the shoe that really fits me. It’s a New Balance style 907. They only make that shoe in one color: white. After about a month, the shoes are no longer white but a dingy gray.

Last year we tried to purchase a different-style shoe, same size and width, only to find that it caused massive blisters. I had to send the shoes back.

I went to the shoe store yesterday to purchase some new shoes because the others were falling apart. I purchased another style of shoe because I wanted a color other than white. I finally got around to putting them on a couple of hours ago, and I already know that these will be going back because they hurt my feet.

After spending nearly $200 on these shoes, I expect them to fit a little better and not hurt my feet. They act like they are simply not wide enough. I’m not sure if they make a 7E or not.

I guess I’ll be finding out tomorrow when I take these shoes back.

B

One Day at a Time with Mom and Dad

11 Saturday Jul 2026

Posted by Tim Hughes Living with CML in Family, Life, Uncategorized

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Ageing, Arthritis, Dad, elder, Family, gardening, Grass, health, Lawn Mower, Life, Mom, Nature, Pain, Parents, Scoliosis, writing, Yard, Yard Work

Yesterday I got off to a later start than I had planned. I rolled up to my parents’ house a few minutes before 9:00 a.m. My goal had been to get there by 8:00, but I just couldn’t get moving. By the time I had eaten breakfast and made my second round of coffee, I was already running behind.

When I arrived, I didn’t see my parents’ car. Sometimes they park inside the garage, but most of the time it’s sitting just outside.

I unloaded the lawnmower, which takes a few minutes since it’s on a trailer. Once it was off, I moved it onto the driveway to make a few adjustments to the mower deck and ensure it was level.

Normally, by this point, Dad is already outside with me because his driveway alarm lets him know whenever someone pulls up. Since I hadn’t seen either of them, I figured one of them must have had a doctor’s appointment and had forgotten to tell me.

I started the mower and began cutting the grass. About thirty minutes later, I spotted Dad. Evidently, he had been outside the whole time working somewhere in the backyard. He was soaked with sweat. He had been picking up limbs to clear the way so I could mow the yard.

I immediately stopped the mower and told him he had done enough. I made him go inside where it was cool. I stood there and watched until I saw him walk across the deck and into the house. It was simply too hot for him to be outside doing that kind of work.

I mowed for a little over an hour before taking a break. When I went inside, Dad was sitting on the couch. He had changed shirts, but I could still tell he was overheated from being outside. I fussed at him a little for staying out there long enough to get that hot.

My poor mother was sitting on the other side of the room, bent over from the arthritis pain in her neck. She’s been dealing with that pain for several years now, and it just keeps getting worse. Unfortunately, there’s really nothing that can be done. She’s been rubbing Hemp cream on her neck, and it seems to help for a couple of hours, but the pain always returns.

Seeing my elderly parents in this condition always weighs heavily on my heart because I know the day will eventually come when they won’t be with us anymore.

Mom has been living with one kind of pain or another ever since they were involved in that terrible head-on collision back in 2014. She used to stand nearly six feet tall. Today, she’s barely five feet because of scoliosis and arthritis. She’s so hunched over and in so much pain. She refuses to just sit still. She wants to tend to her flowers and keep the house clean, but she’s reached the point where she simply can’t do those things anymore. Most days she ends up sitting in her recliner in the den, wishing she could still do what she once did.

Dad keeps talking about buying a new lawnmower. The truth is, he doesn’t need another mower because he doesn’t need to be cutting the grass anymore. But he refuses to slow down. He’s always got to be working on something. No one can convince him otherwise.

He’s a smart man. There’s a lifetime of knowledge locked away in that brain of his, and every now and then I still have to make a phone call and dig some of that knowledge out. I’ll definitely miss that someday.

After I finished cutting the grass, we were sitting on the back deck when I told him he didn’t need to worry about buying another mower. I told him I’d be more than happy to come up every couple of weeks and cut the grass for him. He seemed to appreciate that… right up until he asked if he could sit on my mower and drive it around to compare it to his old one. Before long, we were right back to talking about buying a new mower.

After everything was finished, Dad and I sat on the back deck talking for several hours before Mom joined us. A cool breeze had started blowing, making it comfortable enough to just sit and enjoy each other’s company.

We talked about life and the choices we’ve made over the years. We talked about my kids and the possibility of grandchildren someday since two of my three children are talking about getting married.

Mom quietly said she hopes she’ll still be around when my children become parents, but she isn’t sure that will happen.

To be honest, I have my doubts too.

But I’m still praying we’re both wrong.

Thunderstorms, Traffic Jams, and Heating Pads

18 Monday May 2026

Posted by Tim Hughes Living with CML in Amateur Radio, Cancer, Cycling, Life, Uncategorized, Weather

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Bicycle, Cheaha Challenge, Dermatologist, Doctor Appointment, Early Bird, Family, health, Life, Race, Skin Cancer, Sleep, Thunder, Thunderstorms, Travel, Weather, writing

Yesterday started way earlier than any sane person should be awake. My alarm went off at 4 am, so I could head out and set up my communications station before the Cheaha Challenge bicycle ride began. I left with plenty of time to spare and figured I’d be sitting there relaxed and ready by 7 am.

Well… that didn’t exactly happen.

About halfway there, traffic on the interstate came to a complete stop. Not just eastbound traffic either — westbound traffic was stopped too. Since there were no warning signs or construction notices heading east, I naturally assumed there had been a major accident somewhere ahead.

After sitting there long enough to question every life decision that led me to that interstate at 5-something in the morning, traffic finally started moving. A mile or so ahead, I spotted three state troopers slowly leading traffic and preventing anyone from passing them. Later, I found out the state had scheduled paving work between 6 am and 8 am.

Because apparently that sounded like a wonderful idea.

By the time I finally arrived, I was an hour and a half late. Thankfully, the folks working with me had already set everything up and had the station ready to go before the race started. That was a huge relief.

The ride itself actually went very smoothly. Considering the number of riders spread out across those routes, that’s always good news. We had only a couple of reports of cramps and dehydration. Usually, there are at least a few wrecks or injuries somewhere along the route, so we were fortunate not to have any serious incidents this year.

Today was a completely different kind of long day.

I had another doctor’s appointment to have more cancer removed from the side of my back. The doctor gave me strict instructions to take it easy for the rest of the day. After several mornings of getting up before daylight, I wasn’t exactly heartbroken to hear those words.

So I obeyed the doctor’s orders perfectly.

I came home, got settled into my recliner, turned the heating pad on high, and took a long nap. Right now, I’m starting to feel a little more pain creeping in, so I’ll probably take some pain medication before heading to bed tonight.

At the moment, I’m also keeping an eye on the weather radar. We’ve got several thunderstorms moving through the area. Nothing severe, but some of them are putting on a pretty decent lightning show.

Oddly enough, I’ve always loved listening to distant thunderstorms. It reminds me of being a kid when summertime storms were just… storms. Back then, nobody seemed to classify them in three different ways or warn us about them two weeks in advance. They would roll in during the afternoon, cool things off for a while, and move on.

Tomorrow will be another early morning with yet another doctor’s appointment around 11:30. Then, Thursday brings another pain block procedure. I’m really hoping this one works better than the last one did.

Until then, I’ll probably remain parked right here in my recliner with the heating pad doing most of the heavy lifting.

Screwed up Appointments, Making Sawdust, The Fish are Waiting, Meeting Boyfriends, 100 Miles of 1000 Bicycle Riders

12 Tuesday May 2026

Posted by Tim Hughes Living with CML in Amateur Radio, Arts and Crafts, Cancer, Family, Fishing, Kayaking, Life, Nature, Retirement, Uncategorized, Woodworking

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adventure, Amateur Radio, Appointment, Bicycle, BoyFriend, Cancer, Cheaha Challenge, Dad, Daughter, 🚴 Doctor Appointment, Engagement, Family, Fishing, health, kayak, Life, River Life, Skin Cancer, Surgery, writing

The title should say it all. It’s already been a busy week, and it’s just getting started. Read on if you want to know more.

My appointment with the dermatologist didn’t exactly go as planned.

Late Friday night, I received the automated reminder call about my surgery appointment at a completely different location. Naturally, that raised a few questions. So first thing Monday morning, I called the office to confirm everything.

The receptionist confidently informed me that my appointment was for a skin check and not surgery.

I questioned her ability to read the schedule correctly, only for her to double down and assure me that she was absolutely correct.

At that point, I had a feeling this was going to become one of those “well, this ought to be interesting” kind of days.

So, despite my suspicions, I drove the thirty minutes to the appointment. Once I got called back, I explained to the nurse that I thought there had been some kind of mistake. I told her I had previously rescheduled my surgery, and somehow the purpose of the visit had gotten mixed up.

She looked at my chart for about ten seconds before agreeing with me.

That was both satisfying and aggravating.

I told her that I had tried explaining that to the receptionist earlier, but apparently my medical degree from the University of Common Sense wasn’t enough to override the computer screen.

The nurse then informed me that if I wanted to reschedule surgery, I would have to speak with the surgery team.

That was the moment I realized surgery was definitely not happening that day.

Nothing brightens your morning quite like driving thirty minutes, burning expensive gas, and finding out you basically took a scenic tour of Alabama for no reason.

After I got home and cooled down a bit, I decided to spend some time in the workshop. I built another planter similar to the one I made for my mother. This one still needs a finish, but I’m thinking about just using shellac and letting the wood speak for itself.

Of course, now I’m already thinking about building a few more. Maybe some of the same size and a couple of larger ones, so I’ll have a little variety. I’ve also got plans for a few different planter designs I want to try.

That’s the problem with woodworking. One project turns into six more before the sawdust settles.

Tomorrow, however, is fishing day. 🐠 🎣

The kayak is loaded up and ready to go. I even modified my new measuring board by adding foam underneath it so it’ll float.

At least that’s the theory.

I also attached a cord to it because experience has taught me that “floating” and “recoverable” are two completely different things when something goes overboard in twelve feet of water.

The replacement part for my reel finally came in, so it’s fixed and ready to go, too. I’m looking forward to getting back on the water.

The rest of the week should be fairly uneventful… or at least I thought so until one of my daughters informed my wife and me that she wants us to meet her boyfriend.

That usually means things are getting serious.

For years, she was the daughter who always had a boyfriend, while my other daughter played the role of the “third wheel.” Now the tables have turned a bit since my other daughter seems to be heading toward engagement territory herself.

As a dad, it’s strange watching all this happen. One minute they’re asking for Happy Meals, and the next minute you’re evaluating boyfriends like you’re conducting job interviews.

And finally, Sunday is the annual Cheaha Challenge bicycle ride. Riders will be taking on routes exceeding 100 miles. I’ll be stationed at Rest Stop #2, handling communications via ham radio, coordinating assistance with bike repairs, and helping ensure riders can get back to the start line if necessary

There are already over 1,000 riders registered, so it’s going to be a long day. We’ll start around 7 a.m. and hopefully wrap up around 4 p.m.

Most years it’s fairly uneventful… but every now and then things can get exciting.

Let’s pray everyone stays safe and upright.

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