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Tag Archives: Medication

From Handy Man to Recliner Champion

05 Sunday Apr 2026

Posted by Tim Hughes Living with CML in Family, Life, Uncategorized

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adventure, Back Pain, Coffee, Easter, Family, Flashlight, Heating Pad, leak, Life, love, Medication, Over Medicated, Plumbing, Reliner, Toilet, Tools, Water Leak, writing

The beginning of my Easter weekend started out simple enough—help my son check on a leak in his slab.

Now, when someone says “just come take a look,” you picture a quick in-and-out job. Maybe a loose-fitting, maybe something obvious. Ten minutes, tops. You feel confident. Capable. Like a man who knows where his flashlight is.

What you don’t expect… is a full-blown plumbing adventure.

Since I was only supposed to be looking for a leak, I made the brilliant decision to leave all my tools at home. Normally, they live in my truck, but since I recently had some body work done, everything got unloaded—and apparently, my motivation to reload it went with it.

That decision came back to haunt me almost immediately.

Before heading to my son’s house, I had already been given my “honey-do” list for the day. My wife wanted a new overhead kitchen light installed and the handrails painted before our Easter guests arrived. So, naturally, I thought, “Let me just swing by, find this leak real quick, and get back home.”

Famous last words.

I picked up the light and paint, called my son, and headed over. When I got there, I grabbed the one and only tool I thought I’d need… my flashlight.

That flashlight and I were about to be very disappointed.

When I walked in, I found my son wrestling with a toilet. Not just any toilet—this was one of those “engineered by someone who hates plumbers” models. You know the kind. The connections are hidden, your hands don’t fit, and nothing is where it should be.

He was trying to replace the flush valve, and what should have been a simple job turned into a puzzle designed by a madman. You couldn’t even get your hand behind the tank to reach the nut. At one point, I ended up breaking the old valve just to get it out… which is always a confidence booster.

Eventually, he told me he had it under control, so I went back to my original mission: finding the world’s most elusive water leak.

About 15 minutes in, I heard some… colorful language coming from the bathroom.

That’s never a good sign.

Turns out, he was now fighting the same battle we just had—getting the new valve tight enough without being able to reach the nut. And since all my tools were sitting comfortably in my garage at home, we were working with whatever he had lying around… which wasn’t much.

After some struggling, twisting, and me contorting my body into shapes it was never designed to make, we admitted defeat and made a trip to the hardware store for some “special” wrenches.

Spoiler alert: they helped… but not much.

Eventually, through persistence, determination, and probably a little bit of stubbornness, we got the valve installed without leaks. Victory was ours… and so was the back pain.

Once I finally made it back home, it was time to tackle my original assignment. With my wife’s help, I replaced the kitchen light, then moved on to painting the handrails… along with a good portion of my shirt. Apparently, I believe in fully committing to a project—whether I mean to or not.

After finishing up, I rewarded myself the only way I know how: parked in my recliner, heating pad in place, enjoying the first of several cups of coffee like I had just completed a home improvement marathon—which, in my mind, I had.

Later that night, I took my meds as usual and noticed something looked a little off. Turns out, in the chaos of cleaning and rearranging, my medications got mixed up—and instead of taking my sodium bicarbonate, I doubled up on my muscle relaxers.

Now, if you’ve never done that before, let me tell you… It turns your entire next day into a slow-motion documentary.

I spent most of Easter in a fog.

Thankfully, it was a good kind of day. We had family over—my son and his girlfriend, my daughter and future son-in-law, and even her sister. There was food, laughter, and the added bonus of some first-time introductions.

It was one of those moments where everything just feels right.

Even if you’re slightly sedated.

After everyone left, I curled up in my recliner and took a much-needed nap.

Because sometimes the best way to end a long weekend of fixing everything for everyone else…
is to finally sit still long enough to not break anything else.

From Toughing It Out to Tapping Out by 10:30 AM

28 Saturday Mar 2026

Posted by Tim Hughes Living with CML in Life, Twins, Uncategorized, Woodworking

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Tags

adventure, Back Pain, Doctor, Drowsy, Family, health, Life, Medication, mental-health, Muscle, Pain', Reaction, Relaxer, Sleep, Tolerance, writing

I’ve always considered myself pretty good at dealing with pain. Not superhero-level or anything, but enough to where I can usually just shrug it off and keep going.

My wife, on the other hand… well, let’s just say pain and her are not exactly best friends.

Now, before I get myself in trouble, I should point out that she did go through childbirth twice—once with twins—so when the moment calls for it, she can absolutely tough it out. She just prefers not to make a hobby out of it like I apparently do.

As for me, I’ve been dealing with this back pain for as long as I can remember. Never really complained much about it. I just chalked it up to muscle fatigue, getting older, or doing something dumb and pretending I didn’t.

Turns out… muscle fatigue was not the issue.

According to the latest X-rays, this has been something a little more “interesting” all along. And lately, just to keep things exciting, the pain decided to crank itself up over the past month.

Naturally, my pain tolerance—once my greatest ally—has started waving the white flag. So today, I finally broke down and reached for the pain meds.

At the doctor’s office the other day, they gave me a steroid shot, and I have to admit—it worked. Yesterday morning, I got out of bed without feeling like someone was stabbing me in the back. It was a beautiful, almost spiritual experience.

This morning? Not so much.

That shot wore off like a good dream, and reality came back with a vengeance.

On top of that, I was prescribed Methocarbamol—a muscle relaxer. The doctor told me, “Take it at bedtime… and during the day if you need it. Just be aware it might make you drowsy.”

Might.

Last night, I took one and thought, “This isn’t so bad.” I stayed awake for a while and figured I was in the clear.

This morning, after wrestling my way out of bed, I decided to take another before heading to Bible study.

Thirty minutes later… I was unconscious in the recliner.

Not “a little sleepy.” Not “slightly drowsy.” I mean full-on, lights out, someone-check-my-pulse kind of asleep.

My wife had to come wake me up so I could even attempt to get ready. I made it to Bible study, but staying awake was more of a suggestion than a reality.

By the time I got back home, I sat down in the recliner—and that’s about all I remember.

My day officially ended at 10:30 in the morning.

All the plans I had for the day? Gone. Completely wiped out. The only thing I accomplished was catching up on all the sleep I’ve been missing from staying up late and getting up early preparing for these craft shows.

So I guess… not a total loss?

Tomorrow is church, and after that, I’ve got a big date planned with my recliner and heating pad. We’ve grown very close lately.

With a little rest (and maybe slightly less “effective” medication), I’m hoping by Monday I can get back to working on the projects that didn’t stand a chance today.

Until then, I’ll be right here—taking it easy and trying not to accidentally time-travel to the next day every time I take my medicine.

Insurance Knows Best… Supposedly

25 Wednesday Feb 2026

Posted by Tim Hughes Living with CML in Cancer, Diabetic, Disability, Family, Leukemia, Life, Photography, Retirement, Uncategorized

≈ 2 Comments

Tags

co-pay, cost, Diagnoses, Doctors, Drugs, health, health-insurance, healthcare, Insurance, Medicare, Medication, Pharmacy, prescriptions, rejection, research

Doctor Says Yes… Insurance Says “We’ll Think About It”

Photo by Anna Shvets on Pexels.com

Doctors, diagnoses, prescriptions, Medicare, insurance, and denial — those are words that seem to follow me around these days. Sometimes I think dealing with the medical system is almost a full-time job. If they paid by the appointment, I’d be drawing a salary by now.

One thing I’ve never quite understood is how a doctor can go to school for years, train for years more, examine you personally, and decide what medication you need — only for the insurance company to step in and say, “Nope, we don’t think so.”

Apparently, somewhere a person is sitting behind a desk who knows more about my condition than the doctor who actually saw me.

I worked for a health insurance company for 32 years before I retired. I was in the maintenance department, which meant I fixed things like doors and lights — not insurance claims. Still, people who knew where I worked would often ask me why their medication was denied even though their doctor prescribed it.

I always had to explain that just because I worked there didn’t mean I knew anything about insurance decisions.

Truth be told, I still don’t.

A good example is what happened recently with my son. He was prescribed medication for severe sleep deprivation. His previous insurance covered it, and he was happy because they had finally found something that actually worked.

Then he changed jobs.

His new insurance company now says the medication is “not medically necessary.” I guess sleeping is optional now.

The doctors now think he might have sleep apnea and ordered a sleep study. Before he even got scheduled, he got a phone call saying the test would cost over $2,000 because his insurance wouldn’t cover it.

He’s a young man with a mortgage, a car payment, and utility bills. In other words, he’s living in the real world — the one where people don’t just have $2,000 laying around for a test that might help them sleep at night.

Meanwhile, I realize I’m one of the fortunate ones. Because of my disabilities, I qualify for Medicare, and because I worked for an insurance company, I retired with a good supplemental plan. That combination gives me coverage that many people would love to have.

I don’t pay co-pays for doctor visits. I don’t pay for emergency room visits. Every time I leave the hospital, the bill says I owe exactly zero dollars, which is my favorite number.

I do pay for some medications, but not a lot.

One medication I take costs about $20,000 for a 30-day supply.

Yes, twenty thousand dollars.

For that price, I feel like it ought to come with a steak dinner and a weekend vacation.

Fortunately, the drug company offers a $0 co-pay card because they know insurance only pays part of the cost. Thanks to that program, I don’t pay a penny for a medication that costs more than some cars.

I consider myself blessed, because there are people who need this same drug and simply can’t get it because they don’t have the right insurance. That part isn’t funny at all.

When I ask why the drug costs so much, I’m told it’s because of all the research that went into developing it. I understand that research costs money, but sometimes I wonder if the scientists also built a few vacation homes along the way.

After being on this medication for a while, I feel like I’ve personally contributed a pretty fair share toward paying for that research — and I know some folks have been on it a lot longer than I have.

I don’t know what the answer is. Doctors are trying to help people. Insurance companies are trying to control costs. Drug companies are trying to recover research money.

And patients are just trying to stay alive without going broke in the process.

Maybe one day there will be a system where if your doctor says you need something, you can actually get it without filling out forms, making phone calls, and saying a small prayer first.

Until then, I guess we’ll just keep taking our prescriptions — and a healthy dose of patience right along with them.

Five Month Post Op

28 Saturday Sep 2024

Posted by Tim Hughes Living with CML in bariatric-surgery, Diabetic, diet, Pets, Retirement, Weight Loss

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Tags

Cat, Medication, Soda, Surgery, Sweets, Vet, Weighloss

On September 24th I weighed 206.6 lbs, down 54 lbs since April and down 75 lbs since January. Things are still progressing, slow, but still progressing. I’m averaging about 10 lbs a month. It’s been five months since I’ve had any sugary drinks or sweets. I do, however, drink what I call yellow-capped Milo’s tea. It’s sweetened with Splenda I think. The money I’ve saved just by not buying the soft drinks, Little Debby cakes has helped. Also, not having to take all the extra meds has reduced my pharmacy bill greatly.

Since my surgery, my breathing has improved 100 percent. I guess my lungs were being compressed by my stomach and since the repair, I can tell the difference. I’ve been trying to walk about an hour each day. This boot does make it more difficult though. I had to make an appointment with my orthopedic doctor the other day because my left foot’s ankle had swollen. I immediately contacted my doctor and made an appointment. I was so worried that I was about to go through the same thing with my left foot that I went through on my right. It was just an aggravated tendon, and he made some adjustments to my shoe insert.

I had lunch with some of the guys that I used to work with before I retired the other day. It was good to see them. When I was signed in one of my co-workers asked what I did with the rest of my body? None of them had seen me in over two years or before COVID-19 hit.

I’d like to thank everyone who took the time to vote for the picture of my cat Clyde. He made it to the semi-finals and didn’t make the cut. Clyde has been sort of puny as of late. He spent four days at the vet trying to get rid of a UTI. We hated to have to leave him because he does not do well being boarded. We did go and visit with him every day just so that he wouldn’t think that we had abandoned him. It was really tough seeing him on that last day because all he wanted to do was find an escape route. I’m glad to have him home again with us. I know he’s nearly 20 years old and I know he won’t be with us too much longer. Every day with him is a blessing. It will be hard when he does cross that rainbow bridge.

Everyday is a Blessed Day!

11 Friday Jan 2019

Posted by Tim Hughes Living with CML in Cancer, Leukemia, Photography

≈ 2 Comments

Tags

Cancer, Drugs, Leukemia, Medication, Medicine

_3th0435-2

It’s been nearly five years since my diagnoses of CML, a form of Leukemia.  If I had received the diagnosis back in the 1990’s I would have been told to go home and make my funeral arrangements.  With today’s modern medical advancements, which I’m highly thankful for, those of us with this diagnosis are able to live a somewhat normal life for many years.

There is a “go-to drug” called Glevic that is prescribed to most all new patients.  This drug worked for me for a while but stopped and I had to find something else.  The next drug caused more problems than the actual cancer did.  This new drug I’m on is working for now but is causing fluid around my heart and lungs but not as bad as the previous drug.

Is my life back to normal, no.  There have been many changes that had to be made to make my life a little better.  Because of the fluid around my heart and lungs, I’m no longer able to do a lot of the things I used to do.  Basically, I had to stop anything that would cause me to get out of breath with exertion.  That doesn’t mean I’ve given up.  I still try to walk and stay active. Every morning that I wake up I feel blessed to still be here. I’ve got a lot to live for and I hope I’m here for a while to come.

Today’s Thoughts 4/10/2018

10 Tuesday Apr 2018

Posted by Tim Hughes Living with CML in Cycling, Leukemia, Weight Loss

≈ 3 Comments

Tags

Cancer, carbs, Compitition, Cycling, diet, Life, Medication, Side Effects

It’s been seven days since I started my new medication.  At this time there hasn’t been any noticeable side effects.  I’ve had the pharmacist from the drug company call me twice to check on me.  Like I said in my last post, this is a fairly new drug so they’re just concerned about me I guess.

On April 21st, there is a city-wide competition with some of the business in town called The Birmingham Challenge.  I have signed up with my employer to ride in a 10k bike stroll.  The bike stroll is not a competition within itself but we get points as to how many cyclists we get to ride in the event.  It’s the same way with the walking event.  We do, however, have other events that are competitions, such as the tug a war, dodgeball, corn-hole, golf, home-run hitting, and a couple more events.  Last year our company came in 2nd overall.  I’ve signed up for the cycling event.  I haven’t been on my bike for nearly a year, until this evening. I know it’s not much but I rode a whole 2.4 miles.  I could’ve ridden further but both my headlight and taillight were not charged and I didn’t want to ride without them.  I really surprised myself.  I actually dreaded getting back on my bike and tackling the hill in front of my house.  I got a little winded but I made it with no problems.

I’m back on my low carb diet.  I blew it this weekend.  Those Little Debbie cakes ought to be illegal.  I’ve finally got my wife on board with me with her cooking and she’s not giving me bread or potatoes so the failure this weekend is all on me.  I just “grazed” all weekend.  I had lost seven but on Monday, I gained five.  I hate losing the same weight that I had already lost before.  Today I did great though.  We’ll see when I check the scales in the morning.

I check in again in a couple of days.  In the meantime, enjoy your week.18157141_10154580034993946_3844449760811629204_n

From last years event.

 

3/16/2018 Oncologist Update

18 Sunday Mar 2018

Posted by Tim Hughes Living with CML in Cancer, Family, Leukemia, Photography

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Tags

Bosulif, Cancer, CML, Doctor, Drug Card, Drugs, Family, Insurance, Medication, Prayers, Test

Oncologist Update: Because of some miscommunications with the insurance company, go figure, I have not been approved to be on my new medicine yet. I may end up walking the paperwork to the department myself if they keep losing it. Anyway, it’s been six weeks or more since I’ve had any CML meds and we, more so me than the doctor it seems, are starting to get a little concerned that my numbers might get a little high. If the insurance company approves the meds, it could take up to three weeks before my meds arrive. Nothing to do but wait. But, as luck would have it, the representative for the new drug was there in his office. He gave my doctor a card for a free 30 day supply which should arrive by Tuesday of next week. This should give my insurance company time to process my approval for this drug.

Bloodwork. It’s been six weeks since my last lab. My last one wasn’t good at all. Every one of my numbers was either very high or very low. Yesterday’s numbers were normal for the most part. This was in large part the effect of the drug I was on. The side effects just made my daily life impossible to deal with.

New Drug: Bosulif is the name of the new drug. Right now I’ve been on two of the most common and there are only a few left that is approved by the FDA. Thanks to Karen Davis-Hudson she eased my mind about some of the side effects that were mentioned in the insert. However, Karen, I think you mentioned that 1/10 developed fluid retention, my doctor said 4/10. Not that much of a difference. The other side effects I think I can handle.

The Good News: The doctor and I both agree that the fluid in my lungs is gone and we’re going to have a positive attitude that it will not return and that this medicine will be the last one I have to be on because this one will work. I can breathe, my color is back and most importantly, I feel good. So much so, that if the weather holds, I’m going to try to get my bicycle out one day this weekend.

This is all due to all the prayers that have been lifted up for me and my family. Thank you so much.

Have I Told You Lately How Much I Hate Hospitals??

15 Tuesday Nov 2016

Posted by Tim Hughes Living with CML in Cancer, Photography

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Tags

Breathing, Cancer, Diastolic Heart Failure, Fluid Retintion, Hosptials, Lungs, Medication

_2th2015-2

To get it out of the way and I know everyone is tired of seeing pictures of the “Super Moon”,  here is the one that I spent over an hour trying to get the exposure correct.  Not exactly happy with it because it’s still a little out of focus.

A lot has happened since my last post and I’ll try to make it short as to not bore anyone.  But a brief recap is in order.  Back in August I had major breathing issues and I checked myself into the hospital thinking it was my heart.  They did a stress test, an echo-cardiogram and a heart heart cath. and found that I had 70% blockage in one of my arteries where they placed two stents.  My breathing had not improved any.

They then decided to do some breathing tests and ordered a CT scan.  They found fluid in my lungs.  They drew out 2 liters of fluid from my right lung.  I felt great afterwards.  They think that it’s my CML meds causing the fluid retention.

Two months later, in October, my breathing started getting bad again. My pulmonary doctor ordered another CT scan and found more fluid in my lungs.  He pulled just over a liter of fluid off my right lung.  Keep in mind that they haven’t touched my left lung.

Since all the fluid has started building up in my lungs, all three of my doctors (cardiologist, pulmonary and oncologist) agreed that a reduction of dosage in my CML meds.  It was reduced from 100 mg to 80 mg.  But my problem returned even quicker after my last fluid withdrawal.

Last Monday, November 7th, I couldn’t take it any longer.  I had to get some relief.  I couldn’t do anything without stopping and catching my breath.  Tuesday, after I voted, I went to the emergency room. I told them what I wanted them to do and they proceeded to do x rays. X rays showed nothing so they proceed to do another stress test and echo cardiogram.  But not after I sat in the emergency room all day on Tuesday.  I was finally admitted late Tuesday evening and they started doing the tests on Wednesday. Wasted a full day on Tuesday.

I was released on Friday evening but not after having another liter and a half removed from my lungs and another diagnosis of diastolic heart failure.  So, I’m on nitroglycerin patches to help me breathe and a whole lot of other meds as well.

 

365 Day Photo Challenge 352/365 “New Medication”

17 Thursday Dec 2015

Posted by Tim Hughes Living with CML in Cancer, Leukemia, Photography

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Tags

365 Day Photo Challenge, Cancer, CML, Medication, Sprycel

image (1)

I heard from my oncologist today and I’ve got a new drug to take for my CML.  The survival rate is no more than the previous drug but as long as it keeps me alive I’m good. It also has about the same side effects as the other so unless there’s something I don’t know about I guess I’ll be ok with it as well.

I stayed home again today with this kidney stone that has yet to pass.  I had to get up early this morning to take a pain pill but so far today I’m moderately pain free.  I’ll be going into work tomorrow regardless if I’m pain free or not.  I’m low on time so I have to go in.

365 Day Photo Challenge Day Twenty “The Straight and Narrow”

20 Tuesday Jan 2015

Posted by Tim Hughes Living with CML in Uncategorized

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365 Photo Challenge, anxiety, Depression, HDR, Medication, Photography

_1TH0542_3_4_tonemapped

Some may disagree with me but I think we have all chosen the path we travel.  At some point in out lives we made a decision that eventually made us into what we are today.  I made several “wrong turns” in my life that I now regret now that I have had a chance to look back.  Some of which I knew once I made the decision I would live to regret it and it would have dire consequences.

It’s how we handle these “wrong turns” in out lives that really matter.  Although I have not been diagnosed but I know I have bouts with depression and severe anxiety attacks.  I guess I should talk to my doctor about it but I really don’t need any more meds.  I try talking to my wife about some of the issues I’m having but she doesn’t understand.  She says she does but there’s really no way she could.

I know ignoring the problems isn’t healthy and I don’t really ignore them.  When ever things get tough at work I try to face the problems head on and deal with them but my question is, am I really handling the problem in the right way? Is there a different way I should be dealing with the problem.

Sorry for the rambling but it’s something that I had to get off my chest.

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