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~ Diabetes, Cancer Fighter, Father of Twins, Kayak Fishing, Woodcrafter, Lover of Life

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Tag Archives: Pain

Needles, Nerves, and Alabama Weather

08 Friday May 2026

Posted by Tim Hughes Living with CML in Arts and Crafts, Fishing, Kayaking, Life, Photography, Retirement, Uncategorized, Weather, Woodworking

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adventure, Anesthesia, Back, Bass, Chronic Pain, Copay, Crafts, Doctor, Family, Fishing, Gift, health, kayak, Life, Medicare, mental-health, Mother's Day, Nerve Block, Pain, RFA, Sciatic Nerve, Weather, Woodworking, writing

I had a pain block in my back late this afternoon. I’ve had several pain blocks for my sciatic nerve over the years, and thankfully, they’ve worked pretty well. The doctor says it can take a day or two before you really notice the full effect, but I can already tell there’s a little improvement. At this point, I’ll take “little improvement” over “walking like a ninety-year-old penguin” any day.

I’m scheduled to go back in two weeks for another block, but apparently, Medicare has decided that anesthesia is now considered some sort of luxury item instead of a necessity. Evidently, according to someone sitting comfortably behind a desk somewhere, getting needles stuck in your spine should be considered “part of the experience.”

I’ve had sciatic nerve blocks without anesthesia before, and let me tell you, “uncomfortable” is not a strong enough word. I survived it, but I also briefly considered updating my will during the procedure. Now they want to do the back without anesthesia, too. I may discover just how brave I really am because paying $225 every visit might send me into cardiac arrest before the back pain does.

After the next pain block, the doctor wants me to have something called RFA — Radio Frequency Ablation. From what I understand, it basically involves burning the nerve endings so they stop sending pain signals. Nothing says modern medicine quite like, “Good news! We’re just going to burn part of your nerves.” I’m sure it’s perfectly safe, but the wording alone sounds like something dreamed up in a medieval torture chamber.

Apparently, though, it works well for a lot of people, so I’m trying to stay optimistic.

Of course, the moment Rick — my fishing buddy — heard I was feeling a little better, he immediately sent me a text asking if we were going fishing in the morning. That man can sense improved mobility from three counties away.

I told him no. I’m taking a day of rest and trying to finish up a couple of projects, including my mom’s Mother’s Day gift. Besides, every fish in Alabama deserves at least one day each week when they don’t have to worry about seeing my kayak floating toward them.

My Kindle still hasn’t shown up either. I’m holding off ordering another one until after Sunday, just in case some honest person found it and turns it in. I still can’t figure out how it vanished between church and home last Sunday. I’m beginning to think it either sprouted legs or was taken by the same mysterious force that steals socks out of dryers.

Thankfully, the severe storms they were predicting never really materialized around here. I’m grateful for that because storms make me extremely anxious — especially tornadic weather. I’ve never liked it, and honestly, I probably never will.

What amazes me is how some meteorologists start the “doom and gloom” forecasts ten days in advance, like they’re auditioning for an apocalypse movie. Every social media platform suddenly turns into nonstop radar screenshots, dramatic music, and phrases like “potentially catastrophic event.”

Meanwhile, the weather changes fifteen times before the storm even gets here.

Now, the meteorologist I normally watch is different. He’s a straight shooter. He doesn’t try to scare everybody half to death just to rack up clicks and views online. Some of these other weather folks act like they’ve been sitting backstage all year waiting for severe weather season so they can finally get more airtime than the sports department.

Normally, the sports guys get all the glory with football, basketball, baseball, and everything else. The weather guy usually gets about ten minutes to point at a cold front and tell us there’s a thirty percent chance of rain. But let a tornado watch pop up somewhere, and suddenly they’re on television for six straight hours living their best life.

Unfortunately, all those dramatic weather posts somehow flood my social media feeds whether I want to see them or not. And once I start seeing tornado predictions, my anxiety kicks into overdrive, and I’m ready to crawl into a hole somewhere until it all passes.

Maybe that hole needs Wi-Fi, though… especially if my Kindle never comes home.

When Plans Change, and Priorities Don’t

02 Saturday May 2026

Posted by Tim Hughes Living with CML in Family, Life, Uncategorized

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Tags

Family, Fuse, health, Heating, HVAC, Life, Medication, mental-health, No AC, No Heat, Pain, Pain pill, Parents, Transformer, Troubleshooting, Wireing, writing

There comes a time in your life when you realize things don’t always go according to plan. Life has a way of stepping in, throwing a wrench into your day, and reminding you that some things matter more than whatever you had written on your to-do list.

I’m not sure if I’m making myself clear, but let me try to explain.

Growing up, my parents were the kind of people who would drop everything to help their kids. It didn’t matter what they had going on, how they felt, or what time it was—if we needed them, they were there.

My dad worked evening and late shifts most of my childhood, so I didn’t see him much during the week. He spent most of his days sleeping so he could work through the night. But even then, if I needed him, he showed up. The same goes for my mom. Between the two of them, there was never a moment when I felt like I had to figure things out alone.

Well… now it’s my turn.

Today wasn’t exactly a great day for me physically. When I woke up at 5:30 this morning, my back pain was already making its presence known. I rolled over and went back to sleep, hoping for some relief. By 9:30, I had no choice but to get up—and it hurt. A lot.

I had taken a pain pill the night before, which is probably the only reason I slept that long. After getting dressed and making some coffee, I sat down to start my morning devotion. That’s when my dad called.

His brand-new HVAC unit wasn’t working. The thermostat was completely blank. No heat, no air—nothing.

On a pain scale, I was sitting at a solid 8. I seriously considered taking another pain pill after breakfast, but I knew that if I did, I wouldn’t be in any condition to drive. And at that moment, my dad needed help.

So I skipped the pill.

I scarfed down a bowl of cereal, grabbed what tools I thought I’d need, and headed out the door. I called my wife as I pulled onto the main road to let her know what was going on.

When I got there, the first thing I checked was the thermostat… and of course, it was working perfectly. Lit up, responsive, doing exactly what it was supposed to do. I switched it to cool—worked fine. Switched it to heat—no problem.

You can’t fix what isn’t broken… at least not right away.

After some troubleshooting, I narrowed it down to a possible issue with the condensate pump—one of the few things that could interrupt power to the low-voltage system.

Sure enough, the pump was full of buildup from years of use. I disconnected it and took it to the sink to clean it out.

That’s when things got interesting.

As I was reconnecting the wiring, one of the low-voltage wires brushed against the unit… and sparks flew.

If there wasn’t a problem before, there definitely was now.

I had officially upgraded the situation from “simple service call” to “well… that escalated quickly.”

Now the real fun began—finding that fuse.

There was a resettable fuse on the transformer, but it hadn’t tripped. Which meant one thing: somewhere inside that unit was a tiny little 3-amp fuse… hiding… laughing… probably calling its fuse friends to come watch.

And let me tell you, whoever designed that unit clearly never had to actually work on it.

This thing was tucked behind the control board in a spot that required either:

  1. Much smaller hands
  2. A double-jointed wrist
  3. Or a strong prayer life

I tried reaching it from one angle—nope. Another angle—still nope. At one point, I’m pretty sure I invented two brand-new yoga poses that will never make it into a class.

After what felt like an episode of “HVAC: Mission Impossible”, I finally laid eyes on it.

Victory… briefly.

Because of course… I didn’t have a spare.

Naturally.

So off I went to the auto parts store, where I got to buy an entire assortment pack of fuses—ranging from “barely useful” to “I may never need this in my lifetime”—just to get that one tiny 3-amp fuse.

But hey, if anyone within a 5-mile radius blows a fuse anytime soon, I’m officially their guy.

Before putting the new fuse in, I double-checked everything to make sure I hadn’t accidentally created a bigger problem (because at this point, that felt like a real possibility).

Once I was confident, I slid the fuse into place…

And just like that—it worked.

Like nothing had ever happened.

By this point, my back was absolutely screaming. There was no time for small talk or hanging around. I packed up my tools, said my goodbyes, and made my way back home—straight to my recliner.

I did what needed to be done.

I pushed through the pain because that’s exactly what my parents would have done for me.

Funny how life comes full circle like that.

Tomorrow’s Bible study has been canceled since everyone’s out of town, so I’ll be taking that as a sign to rest.

And hopefully… just hopefully… the phone stays quiet.

Built with Love (and a Little Bit of Crooked Math)

30 Thursday Apr 2026

Posted by Tim Hughes Living with CML in Arts and Crafts, Cancer, Disability, Family, Fishing, Kayaking, Leukemia, Life, Nature, Retirement, Uncategorized, Woodworking

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adventure, Appointment, Back Pain, Bible Study, CML, Doctor, Family, gardening, Gift, Handmade, Leukemia, Life, love, Math, Mom, Mother's Day, Pain, Theology, Tools, Woodworking, writing

With Mother’s Day fast approaching, I decided it was time to push through the pain and make something for my mom. She loves plants—like, really loves plants—so I figured a couple of wooden planters would be the perfect gift. Plus, I’ve got a pile of scrap wood that’s been quietly judging me for months, including some cypress fencing material my wife has been not-so-subtly encouraging me to “do something with.”

So, around 9:30 this morning, I dragged all my equipment outside and got to work. By about 11:30, I had everything cut down to size and was feeling pretty good about life. That’s usually the exact moment things take a turn.

I started assembling the first planter and quickly realized something wasn’t right. The pieces weren’t lining up like the plans said they should. Now, the plans called for ¾-inch wood… and I’m working with ½-inch. Details, right? Apparently not. Turns out, those little fractions matter.

Still, I pressed on.

At this point, I’ve got one planter about 90% complete. It’s… let’s just say “custom shaped.” Not exactly square, which means putting the top boards on requires some math. And if you’ve followed me for any length of time, you already know—math and I are not on speaking terms. I’m pretty sure an angle finder is in my near future, the next time I wander into the store pretending I know what I’m doing.

After spending most of the day bending, lifting, and moving around, my back has officially filed a formal complaint. Sitting usually doesn’t bother me, but tonight I can’t seem to find a position that doesn’t make me question why I thought this was a good idea. The heating pad is doing its best, but the second I move, my back reminds me who’s really in charge. I took a pain pill earlier, but it’s apparently operating on its own schedule.

After looking at what I’ve completed on this planter, I’m not really happy with it. It’s one of those projects that looked a whole lot better in my head than it does sitting in front of me. So, there’s a good chance this one becomes a “keep it at the house” planter, and I’ll come up with something else for Mom.

I guess you could say this was my practice run… whether I planned it that way or not.

It all really depends on how I’m feeling after this upcoming pain block. If I can get a little relief and move around without feeling like my back is plotting against me, I may give it another shot and build something I’m actually proud to give her.

If not, well… Mom may be getting something a little less handmade and a little more store-bought this year—and honestly, she’ll probably love it just the same.

As for doctor updates, I’ve now got two appointments lined up—one with the orthopedic in mid-June and another with a pain specialist next Thursday. I’m hoping the pain specialist can help take the edge off until June gets here.

And yes, I’ll admit it… I probably shouldn’t have stayed out on that kayak as long as I did last Thursday. But I’ll still argue it was worth it. I needed that time on the water—maybe just not that much time.

Tomorrow looks like it’ll be a recliner day. I plan on catching up on my Bible study material for Tuesday morning. Theology isn’t exactly my strong suit, but I’m giving it my best shot—kind of like woodworking and math.

I also had a visit with my oncologist last week. My iron levels were low again, so they gave me a shot of Epoetin alfa to help boost my red blood cell production. They also ran my BCR-ABL1 test to check on my CML. The last several tests over the past six months have come back non-detectable, which is great news. I’m curious to see how this one turns out, though—it seems like those numbers like to keep me guessing. Should have results in a few days.

Other than that, things are pretty quiet around here. I’ll finish up that planter (eventually), survive the math, and hopefully have something worth showing for it.

I’ll check back in when I’ve got something else to write about… or when the second planter decides to humble me too.

Heating Pad Chronicles

26 Sunday Apr 2026

Posted by Tim Hughes Living with CML in Arts and Crafts, Family, Life, Retirement, Uncategorized, Woodworking

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Tags

adventure, Appointment, Back Pain, Cancer, Doctor, health, Healthy, Life, mental-health, Oncologist, orthopedic, Pain, Pain Management, technology, writing

I’m officially down.

This morning at church, it was all I could do just to sit there and make it through the service. I’m pretty sure I shifted positions more than a kid in a hard wooden pew for the first time. But I made it.

After church, I managed to go to lunch with my girls, which was worth pushing through the discomfort. My son was out of town, so I didn’t get to see him today, which was a little disappointing—but I’ll catch him next time.

After that, it was straight home.

Pain pill. Recliner. Heating pad on high.

(Shocking, I know.)

I did finally hear back from my doctor yesterday, and she gave me the rundown on my back. Turns out, there’s some pretty serious stuff going on in there. Not exactly the kind of “surprise” you’re hoping for. She’s referred me to an orthopedic doctor to talk about pain management injections and figure out what the next steps look like.

Here’s the ironic part—it’s in the same office as my Charcot doctor. At this point, I’m thinking about just asking if they offer a rewards program. Maybe after a certain number of visits, you get a free coffee or something.

Of course, scheduling the appointment isn’t as simple as picking up the phone like a normal human being. Nope. Everything has to be done online now. I had to fill out all my information just so they can call me… to set up an appointment.

So basically, I did all the work… just to wait.

Sometimes technology doesn’t make things easier—it just makes them take longer in a more complicated way. I’d much rather just call, talk to a real person, and get it handled in five minutes instead of playing this back-and-forth waiting game.

As for tomorrow, those plans are officially cancelled. I was supposed to head to the shop and do some woodworking to get ready for my next show, but there’s no way that’s happening. Right now, the only thing I’m building is a deeper relationship with this recliner.

I’m hoping I can at least make it through Tuesday.

I’ve got Bible study in the morning, an appointment with my oncologist in the afternoon, and my last CERT class that night—which includes a written test. Then Saturday is the big drill where we’re supposed to be tested on everything we’ve learned over the past eight weeks… including the physical stuff.

So yeah… no pressure.

At this point, I’m just hoping to feel human again by then.

Until I can get back on my feet, I’ll probably spend some time looking up new woodworking plans. If I can’t build anything right now, I might as well plan what I’m going to build when I can.

Other than Tuesday, it looks like me and this recliner are going to be spending a lot of quality time together until I hear from the orthopedic doctor.

Not exactly how I planned my week…

But for now, this is where I’m at.

A Little Health Update (Spoiler: I’m Still Kicking)

11 Thursday Dec 2025

Posted by Tim Hughes Living with CML in Cancer, Leukemia

≈ 2 Comments

Tags

health, Iron, Kidney, Life, Melanoma, mental-health, Oncology, Pain, Potassium, update

I haven’t posted about my health in a while, so here’s your semi-regular episode of “What’s My Body Doing Now?”

First up, the oncology report: still no detectable blast cells for about eight months. 🎉 I’m not throwing a party just yet, because last time I got excited, my labs basically said, “Surprise!” and did their own thing. But for now, we’ll call it a win.

Iron levels? Yeah… those are still on strike. I’ve officially been diagnosed with chronic anemia, which explains why I’m always freezing and walking around the house like it’s January in Alaska. I’ve had so many iron infusions I’m pretty sure I’m 3% metal at this point. Waiting on Marvel to call.

And then there’s the potassium situation. Apparently my potassium levels have been creeping up. My oncologist thinks it’s tied to the kidney failure. Meanwhile, I barely eat any high-potassium foods, so my best guess is that my body is just freelancing at this point.

Skin cancer update: I had a melanoma spot and another bonus cancer removed from my left arm a little over a month ago. They left some lovely scars, which I now refer to as battle wounds because that sounds way cooler than “my dermatologist wanted a closer look.”

Now they’ve moved on to my back. I had a spot removed Tuesday that they think might also be melanoma. We’ll know more when the biopsy comes back, but let me tell you… back pain is a whole different universe. I slept approximately 12 minutes that night because I couldn’t get comfortable. Tylenol and I are in a committed relationship now.

Anyway, that’s the latest episode. Thanks for tuning in. Same time next month for whatever plot twist my body decides to add next. 😅

My Goal For Today

05 Saturday Sep 2020

Posted by Tim Hughes Living with CML in Photography

≈ 2 Comments

Tags

25 Miles, Cycling, goals, Pain

My goal for today is 25 miles. The most I’ve done since I’ve started back riding is 17 miles. I’m behind in my 50 mile per week goal of 50 miles due to a breakdown on my bike. Hopefully I can make it.

365 Day Photo Challenge 362/365 “Feeling Side Effects”

27 Sunday Dec 2015

Posted by Tim Hughes Living with CML in Photography

≈ 2 Comments

Tags

365 Day Photo Challenge, Head Ache, Pain, Side Effects

https://tchphotography.smugmug.com/Botanical-Gardens/i-VHCv9xc/A

I’m going to make an early night.  For the fourth day in a row I’ve been dealing with a headache that I can’t get rid of.  It’s not a migraine but a dull pain across my shoulders and around the back of the head.   Although it is one of the side effects of the new meds I’m not going to condemn the meds just yet.  It could be a sinus headache but I seriously doubt it.

“Life Goes On!”

365 Day Photo Challenge 355/365 “Another Good Day, Sort of”

20 Sunday Dec 2015

Posted by Tim Hughes Living with CML in Photography

≈ 1 Comment

Tags

365 Day Photo Challenge, Alabama, Cabin Fever, College, Cycling, Kidney Stones, Kids, Pain, Pain Free, Pain Meds

https://tchphotography.smugmug.com/2015-Cheaha-Challenge/i-Mh4RqHf/A

I have had all my kids here for the past few days.  My son left earlier this afternoon to go back to school to play at a basketball playoff game but he’ll be back tomorrow night.  Anyway, I got up early and cooked breakfast for everyone and spent the remainder of the day relaxing and spending time with the family.

All in all a pretty good day without much pain.  I did get out for a little while with the wife when cabin fever kicked in and I couldn’t stand being inside any longer. You got to remember I’ve been cooped up in this house since Tuesday of last week with the exception of the half an hour I spent attempting to go to work.  It felt good just being outside if only for a little while.

I share a lot on here and maybe a little too much.  That is why I won’t go into detail as to what I’m going to say next.  I stayed in the bathroom for nearly two hours tonight.  Everything finally passed and I felt like I gave birth to twins.  I’ll find it hard to walk in the morning.  I guess all the meds are making me dry up.  Even with that I think I’ve shared too much.  Oh well.

“Life Goes On!”

365 Day Photo Challenge 354/365 “It Was a Better Day”

19 Saturday Dec 2015

Posted by Tim Hughes Living with CML in Cycling, Photography

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365 Day Photo Challenge, Christmas Dinner, Kidney Stones, Pain, Pain Meds

https://tchphotography.smugmug.com/2015-Cheaha-Challenge/i-wh67MV6/A

Compared to yesterday, today was  like a breath of fresh air.  The kidney stone still has not passed as far as I know.  I’ve been drinking plenty of water and going to the bathroom more times that I care to count.  I still have a little pain in my lower back but I can deal with that as long as it doesn’t get any worse.  I’m hoping to go to the store tomorrow and get some stuff together for our upcoming Christmas dinner.

“Life Goes On!”

365 Day Photo Challenge 351/365 “Lazy Day”

16 Wednesday Dec 2015

Posted by Tim Hughes Living with CML in Photography

≈ Leave a comment

Tags

365 Day Photo Challenge, Alabama, Botanical Gardens, Kidney Stones, Pain, Rose, Sleep

https://tchphotography.smugmug.com/Botanical-Gardens/i-LpJ69bk/A

Before I went to bed last night at 10:30 pm along with my regular diabetic meds, I took my pain meds and two ibuprofen PM pills.  I woke up around 2 am hurting like I’ve not hurt before so I got up and took another pain pill and another ibuprofen PM.  At 6:30 my wife woke me up so that I could text my boss and let him know that I wasn’t coming in.  I also took another pain pill and yet another ibuprofen PM and went right back to bed. I didn’t wake up until nearly 2pm.  I don’t recall ever sleeping that late ever.  The best thing is that I’ve been somewhat pain free since I woke up.  I haven’t had to have a pain pill since I’ve been up.  I’ve been using the strainer that the doctor gave me but I haven’t seen anything in the cup so I’m not sure if I’ve passed anything or not.  Kidney stones are not something to laugh about.  They hurt.

“Life Goes On!”

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