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Grayfeathersblog

~ Diabetes, Cancer Fighter, Father of Twins, Kayak Fishing, Woodcrafter, Lover of Life

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Tag Archives: appointments

Rolling With the Punches

09 Thursday Jul 2026

Posted by Tim Hughes Living with CML in Life, Uncategorized

≈ 1 Comment

Tags

adventure, appointments, Cutting Grass, Dead battery, Doctor Appointment, Family, gardening, Lawnmower, Life, Logestics, Nature, Parents, Troubleshooting, Wreck, writing, Yard Work

It’s been a few days since my last post, and it’s been a busy few days.

You never realize how much you depend on something until you suddenly don’t have it. Since my wife’s car is still with my daughter, we’re down to just one vehicle. That means choices have to be made, schedules have to be adjusted, and everything takes a little more planning. My daughter is still looking for another car, but she’s waiting on the insurance check before she can buy one.

On top of that, life doesn’t slow down. I’m going to physical therapy for my back twice a week, and my wife has therapy once a week. This coming week I also have two doctor’s appointments, and my wife has an appointment on the very same day. I think we’ve worked out the logistics, but if one appointment runs long, it could throw our whole schedule into chaos.

Today was my second physical therapy appointment. Unfortunately, I had already spent part of yesterday doing yard work, so I was pretty sore before I even walked through the door. After an hour of stretching and exercises, I’m even more sore now. The therapist warned me that I’d probably feel it for a couple of days because we stretched muscles that haven’t been worked like that in a while. My next appointment is Monday morning.

Tomorrow I’ll be heading back to my parents’ house to cut their grass again. I’ve already loaded my mower and weed trimmer onto the trailer. Last week I didn’t have time to do any trimming, so it’s really needed now. The biggest question is how my back is going to handle sitting on the mower for four hours. It may take me longer than usual because I’ll be stopping often to stretch and give my back a break. I’d rather take my time than pay for it later.

Speaking of my mower…

It’s about four years old. After I finished mowing my own yard yesterday, I drove it over to my outdoor hydrant to wash off all the grass clippings. I do that every single time I use it. I think it looks better when it’s clean, and maybe—just maybe—it’ll help it last a little longer.

When I finished spraying it off, I climbed back on, turned the key…and absolutely nothing happened.

For the next hour, I started troubleshooting everything I could think of. Eventually, I convinced myself the starter had gone bad. I began pricing replacement starters and quickly discovered they aren’t cheap. I finally found an aftermarket one that appeared to fit my mower, but something kept nagging at me.

“What if it’s not the starter?”

I’ve been down that road before—buying parts I didn’t actually need. I’d hate to spend the money, wait for the part to arrive, install it, and discover the mower still wouldn’t start.

So I called my dad.

He suggested I try one more thing before ordering a starter. I’m glad I listened.

Earlier in my troubleshooting, I had tried jump-starting the mower with my jump box, thinking the battery might be weak. It still wouldn’t even try to turn over. I checked the battery with my meter, and it showed what appeared to be enough voltage, so I ruled it out. Just to be safe, I put it on the charger while I went inside for lunch.

After lunch, I spent a few hours doing other things around the yard before checking it again.

Surprisingly, the battery voltage had actually dropped even lower than it was before I put it on the charger.

Well, there was my answer.

The starter was fine after all—it was the battery.

That meant another trip to the auto parts store for a new battery. While I’m certainly glad it wasn’t the starter, I still wasn’t thrilled about spending money on a battery that I hadn’t planned on buying.

Sometimes life has a funny way of piling things on all at once. Between juggling one vehicle, therapy appointments, doctor’s visits, back pain, cutting my parents’ grass, and now replacing a mower battery, it has definitely been one of those weeks.

Hopefully next week will be just a little less eventful…but somehow I doubt it.

A Busy Week in the Medical World

09 Tuesday Jun 2026

Posted by Tim Hughes Living with CML in Cancer, University of Alabama

≈ Leave a comment

Tags

appointments, Back Pain, Doctor, MRI, orthopedic, Pain, Pain Management, Proceedures, Treatment, X-Rays

I’ve got a couple of appointments this week. The first is with my orthopedic doctor tomorrow afternoon. I’m not exactly sure what we’re going to discuss, but whatever he has to say, I’ll be listening carefully.

I’ve already seen the X-rays and MRI images. To be honest, I’m not entirely sure what I’m looking at, but it doesn’t look good to me.

I also have an appointment with my pain management doctor on Thursday. I’m scheduled to undergo an RFA, or Radiofrequency Ablation. That’s the procedure where they go in and burn the nerve endings that are believed to be causing the pain.

I’m not sure how this procedure will fit into the overall treatment plan with my orthopedic doctor, but I suppose I’ll find out soon enough. We’ll see what happens.

A Father’s Heart Isn’t Always Easy to Explain

31 Sunday May 2026

Posted by Tim Hughes Living with CML in Family, Fishing, Kayaking, Life, Twins, Uncategorized

≈ Leave a comment

Tags

appointments, Daughter, Doctor, Emototions, Engagement, Family, father, Fishing, Happiness, Heart, Kayaking, Life, love, MRI, Parent, Parenting, writing

I’m fortunate that I don’t have any doctor’s appointments this week. That doesn’t mean I’m completely free from medical matters, though. I still need to drive across town to one of my labs to pick up a copy of the results from my latest MRI, so I can take them to an orthopedic doctor next week and have him take a look at my back.

Earlier this afternoon, I received a text inviting me to go fishing tomorrow. Under normal circumstances, I probably would have jumped at the opportunity, but I had already made plans to pick up my medical records. I politely declined and told him I’d try to make it another time.

The good news is that I had already told my wife I wanted to go fishing at least a couple of times this week. I mentioned that to my daughter today, and while she has commitments every morning, she does have one afternoon available. The plan now is to spend an afternoon fishing with her and then head back out the next morning on my own. One advantage is that I’ll be able to leave all my fishing gear in the truck overnight and won’t have to unload everything until the following day.

Saturday will be spent giving my truck a thorough cleaning. I don’t want my parents riding across town in a dirty truck when we take them out to dinner that evening.

As of right now, my parents have no idea why they’ve been invited to a nice Italian restaurant. To the best of my knowledge, the daughter who’s getting engaged is still somewhat in the dark as well. She believes it’s all going to happen on the 13th. The ring won’t be a surprise—they picked that out together—but walking into a restaurant filled with family and friends who have gathered to celebrate with her afterward certainly will be.

I’m very happy for my daughter, but if I’m being honest, I’m a little scared for her too. Marriage is a life-changing step, and like every parent, I wonder if she’s ready.

She left the nest several years ago when she and her sister moved into an apartment together. At the time, it felt like a major milestone. This feels different. More permanent. More final.

I’m having a hard time putting my feelings into words. There’s joy because I’m proud of the woman she has become. There’s excitement because a new chapter of her life is about to begin. But there’s also a touch of sadness because another chapter is closing.

Maybe that’s just part of being a parent. We spend years teaching our children to become independent adults, and then one day they do exactly that. We celebrate their success while quietly realizing that they no longer need us in quite the same way they once did.

I suppose that’s what I’m feeling tonight—a mixture of happiness, pride, excitement, and just a little bit of melancholy. It’s not a bad feeling. It’s simply the realization that life keeps moving forward, whether we’re ready for it or not.

It’s Not the End of the Road

27 Monday Apr 2026

Posted by Tim Hughes Living with CML in Cancer, Depression, Family, Fishing, Kayaking, Leukemia, Life, Uncategorized

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Tags

adventure, Anger, appointments, Babies, Blogging, Cancer, CML, Depression, Diagnosis, Dreams, Emotions, Family, Help, Journey, Kids, Leukemia, Life, love, Medications, mental-health, Support, writing

Just a quick post.

I have Chronic Myeloid Leukemia (CML). I was diagnosed back in 2014. I’m not going to lie—when I first heard those words, I thought my world had come to an end.

I was devastated.
I got depressed.
I was angry at everything and everyone.

I couldn’t even carry on a simple conversation without it turning into something it didn’t need to be. In short, I wasn’t exactly easy to live with.

The truth is, everything I felt is something a lot of people experience when they hear the word “cancer.” That flood of emotions hits hard. But what I’ve learned since then is this—there is always hope, no matter the diagnosis.

I follow several CML groups online, and I try to help people who are just starting this journey and struggling to process it all.

Last night, I came across a post from a young woman who had just been diagnosed with CML. She was going through the same emotions I went through—fear, anger, and the overwhelming feeling that her life was over. She had just gotten married and was planning to start a family, but now she was ready to give up on that dream. Her husband, loving her the way he does, was willing to give that up, too.

That hit me.

So I reached out to her privately.

I told her what I wish someone had made crystal clear to me in the beginning: things have changed. Years ago, this diagnosis looked very different. Today, it’s not the same story.

There are medications now that can control this disease. It may not be something that just disappears, but it’s something many people live with—and live well with.

I also told her I understood exactly what she was feeling, because I had been there—the anger, the depression, the uncertainty. And I let her know she didn’t have to go through it alone.

And I told her about this blog—about my life after diagnosis, the ups and downs, the fishing trips, the everyday moments. I wanted her to see that there is still a life to live after hearing those words.

Honestly, I didn’t expect a response.

But she wrote back.

And after several messages, I could tell something had shifted. Knowing that someone else had been walking this road since 2014—and is still here—gave her a different perspective. It even made her reconsider the idea that her future, including having a family, might not be over after all.

That right there is why I share my story.

CML is not a death sentence. It’s a bump in the road. A big one sometimes—but not a roadblock.

My numbers still go up and down like a rollercoaster. Some months are good, some aren’t. But it’s been that way long enough that it doesn’t shake me like it used to.

Life goes on.

And that’s exactly what I told her—live your life. Keep your appointments. Take your medication. Listen to your doctor.

But don’t stop living.

Because this diagnosis doesn’t mean the end of your story.

When Life Schedules You Back-to-Back

12 Thursday Feb 2026

Posted by Tim Hughes Living with CML in Family, Fishing, Life, Photography, Uncategorized

≈ 1 Comment

Tags

appointments, Bloodwork, Doctor, Family, Financce, health, investments, Life, Medicare, mental-health, Procrit, repairs, writing

Today was one of those days where it felt like my full-time job was simply showing up somewhere else every few hours. Three appointments, three different parts of life, all packed into one long day.

I left the house around 9 a.m. for my first appointment at 10. I pulled in around 9:30 — early, I know — but I’ve always believed it’s better to be thirty minutes early than five minutes late. Plus, if something crazy happens, I’ve got buffer time. If nothing crazy happens, I get bonus time to sit in a waiting room and read my Kindle.

To my surprise, I was the only one in the waiting room, which rarely happens. I half expected someone to jump out and yell, “Just kidding, we’re running two hours behind!”

Then came the usual routine: three sticks before they finally got enough blood for testing. At this point, I think my veins hide when they see a needle coming. I’m pretty sure if they could talk, they’d be yelling, “Scatter! It’s Tuesday again!”

This visit was to my oncologist’s office to check my hemoglobin. It’s been running low for quite a while now. Normally, I go in once a month for a Procrit shot to help my body produce red blood cells and fight the anemia. Normal hemoglobin runs between about 12 and 15. Mine has been in the 6.5 to 8 range for a couple of years now — basically the bargain-bin section of hemoglobin numbers.

We tried iron infusions at first. They worked… briefly. Then it was right back to square one. When Procrit was first suggested, Medicare wouldn’t cover it. That meant $400 per shot, once a month. For that price, I feel like it should come with a steak dinner and a T-shirt.

Thankfully, Medicare eventually changed course and started covering it.

The good news today? No shot needed. My hemoglobin came in at 11.1. Still low, but close enough that the doctor decided to hold off and test again next month. I’ll take that as a small win. Around here, we celebrate small wins. Sometimes with coffee. (Which, apparently, is now under review.)

Next stop was my primary care office. I ended up seeing the nurse practitioner because my doctor was in a bad car accident several months back and is currently in rehab. His daughter, who is also a nurse practitioner, has been helping cover patients. We’re not sure whether my doctor will return to his practice. It’s a wait-and-see game for now.

Unfortunately, she can’t prescribe the narcotic meds I’m on, so I’ll have to go back next week to see another doctor just to get those refilled. Nothing like making a special trip just to prove you’re still the same person who needed the meds last week.

They were also supposed to retest my potassium levels today. That didn’t happen.

Instead, I got the lecture about my coffee habit and how high potassium can damage kidneys. Considering I’m already fighting to keep my kidney numbers where they need to be, I guess it’s time to start thinking about weaning myself off coffee.

Let me be clear: this may be the greatest personal challenge I have faced to date.

I don’t want to say coffee, and I are in a committed relationship… but we’ve definitely been exclusive for a long time.

My last appointment was with my financial adviser. He manages my retirement funds, and we meet yearly to review where everything is invested and how things are performing. Thankfully, things look solid. What he’s doing is working, and that’s a huge relief. I like the idea of continuing to eat and keep the lights on.

We also talked about future plans — mainly selling this house and moving somewhere safer. This neighborhood just isn’t what it was 35 years ago. That’s a whole story for another day, probably involving the phrase “kids these days.”

The bigger issue right now is the house itself. There’s a long list of repairs waiting for attention.

The deck my dad and I built over 25 years ago is starting to splinter and show its age. It probably needs to be torn down and replaced completely. Part of me hates that. The other part of me hates splinters more.

There’s visible wear around the chimney. The painters we hired five years ago did a poor job — but we went cheap, and sometimes you really do get what you pay for. Apparently, we paid for “looks good from across the street.”

Both bathroom vanities need replacing. The stairs need the carpet removed and the laminate installed. The roof needs shingle work before it decides to become an indoor water feature.

My adviser’s advice was simple: get several estimates, choose the contractor we trust most, then call, and they’ll cut the check. Easy… at least on paper.

Now comes the fun part — finding contractors.
I know of one.
Which means I am now officially accepting applications from the universe.

I was actually supposed to go fishing tomorrow, but it looks like it will be late afternoon before temperatures get comfortable enough for me to be outside for any length of time. So I decided to postpone it until spring decides to show up regularly instead of just teasing us for a few hours at a time.

The fish are safe for now… but their luck runs out the minute spring clocks in full time.

Some days are about big life moments.
Some days are about survival.
And some days are just about showing up, getting poked with needles, getting lectured about coffee, and trying to keep life moving forward one appointment at a time.

Today was one of those days.

And honestly?
I’m grateful I was able to make them all.

Even if I may have to say goodbye to coffee soon.
Please keep me in your thoughts during this difficult time.

February Is Confused… and Honestly, So Am I

05 Thursday Feb 2026

Posted by Tim Hughes Living with CML in Fishing, Kayaking, Life, Retirement, Uncategorized, Weather

≈ Leave a comment

Tags

appointments, Bass, Fishing, Forecast, kayak, LEW's, month, temperatures, Weather, wilderness systems, Winter, Zoom baits

pxl_20251008_202145012471151304126013745

As I’ve posted before, the weather here has been anything but normal for February. Looking at next week’s forecast, it’s supposed to be in the high 60s to low 70s. That is absolutely nuts. Somewhere, winter is filing a missing person report.

Today, I got a call from one of my fishing buddies asking if I wanted to go fishing while it’s warm. Now that is the kind of phone call that usually results in me immediately looking for my tackle box, my lucky fishing hat, and trying to remember which truck door pocket I left sunflower seeds in.

Unfortunately, real life showed up and reminded me I have three appointments next week. Three. In February. During fishing weather. That just feels disrespectful.

But… if I can shuffle things around just right, there is a very real possibility of my wetting a hook or two. At minimum, I can at least drive by the water and stare at it longingly like a kid looking through a toy store window.

Honestly, if February is going to act like April, I feel like it’s my civic duty to at least attempt to catch a fish. I don’t make the rules. I just follow the weather.

And if you see me calling in “temporarily unavailable,” just know I’m conducting important seasonal research… from my kayak.

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