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Grayfeathersblog

~ Diabetes, Cancer Fighter, Father of Twins, Kayak Fishing, Woodcrafter, Lover of Life

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Tag Archives: Reaction

Listen to What Your Body is Telling You.

30 Sunday Aug 2026

Posted by Tim Hughes Living with CML in Cancer, Kayaking, Leukemia, Life, Uncategorized

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Body, CML, Dizziness, Doctor, Family, Fatigue, Fishing, health, Kayaking, Life, Medication, Mental, mental-health, Reaction, writing

I was reminded of that today while reading a blog post I follow. Hazel reminded me that no matter what I’m doing, I need to listen to what my body is telling me. Sometimes we have a tendency to push through things, thinking we’ll be okay. Other times, our bodies have a way of making it very clear that we need to slow down.

Mine has been doing a pretty good job of getting my attention lately.

I started a new medication for my CML last Thursday. I’m taking two tablets, 40 mg each. I’m supposed to take them on an empty stomach, with no food for two hours before and at least one hour after taking them. I took them at bedtime both Thursday and Friday.

Friday night was rough.

I had a very restless night and finally decided to get out of bed around 3 a.m.—or at least I attempted to.

I sat up and immediately became dizzy. I sat there for a few minutes and waited for it to pass. When I finally stood up, the dizziness returned, and I nearly hit the floor. I grabbed the wall to keep myself upright and waited another couple of minutes before attempting to move.

Eventually, I made it to the den and collapsed into my recliner. I was exhausted. I felt like I had absolutely nothing left in the tank.

I tried going back to sleep, but I couldn’t get comfortable. I decided I would read for a while, but, of course, my glasses were in the bedroom.

I really, really didn’t want to get back up.

I knew what was probably going to happen.

Sure enough, when I stood up, the dizziness hit again. I nearly fell backward into the recliner. I grabbed hold of something and waited for it to subside. After a minute or so, I was able to make my way to the bedroom, retrieve my glasses and return to the den.

By the time I got back to my chair, I was wondering if I had enough energy to make the trip again if I had forgotten something.

Around 5 a.m., I finally decided I needed to find out exactly what might be going on. I made my way to the kitchen and retrieved the medication information packet that came with the prescription.

I started reading through the list of possible side effects.

Number three was dizziness and feeling faint.

Bingo.

Unfortunately, there was nothing listed specifically about fatigue. Later, I learned that fatigue is a side effect associated with many cancer medications, so apparently I managed to get a two-for-one special.

Dizziness and fatigue.

Just what I was hoping for.

I texted the guys in our Saturday morning Bible study group and told them not to expect me. I explained that I believed I was experiencing side effects from the new medication and that I simply wasn’t feeling well.

I spent most of the rest of the day in my recliner, getting up only when I absolutely had to.

I slept a little better Saturday night, but I’m still dealing with the fatigue and dizziness when I stand. Because of that, I didn’t go to church this morning either. Thankfully, I was able to watch the service on YouTube.

I had been thinking about going fishing Monday.

I’ve changed my mind.

At this point, I seriously doubt I’ll feel up to it. And honestly, I don’t think getting into a kayak while I’m dizzy is exactly what my doctor would recommend. Besides, I’m pretty sure the fish would take advantage of the situation and laugh at me.

I don’t have any appointments until Tuesday morning Bible study, and I’m really hoping I’ll be feeling better by then.

I’m also not taking any more of this medication until I speak with my oncologist on Monday. I want to talk with him about what happened and see what my options are. Maybe there is a way to adjust the dosage so that the medication can still do what it’s supposed to do without making me feel like I’m one wrong step away from becoming a human tumbleweed.

I’ve spent a lot of years dealing with CML and everything that comes with it. I know how important it is to take the medication and follow the treatment plan.

But I’m also learning that following the plan doesn’t mean ignoring what my body is telling me.

Sometimes you have to stop, pay attention and say, “Something isn’t right.”

That’s where I am right now.

So, for the moment, I’m going to listen to my body, stay in my recliner, and let my oncologist help me figure out what comes next.

Maybe the fishing rod can wait a few more days.

The fish aren’t going anywhere.

Well… at least I hope they aren’t.

From Toughing It Out to Tapping Out by 10:30 AM

28 Saturday Mar 2026

Posted by Tim Hughes Living with CML in Life, Twins, Uncategorized, Woodworking

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adventure, Back Pain, Doctor, Drowsy, Family, health, Life, Medication, mental-health, Muscle, Pain', Reaction, Relaxer, Sleep, Tolerance, writing

I’ve always considered myself pretty good at dealing with pain. Not superhero-level or anything, but enough to where I can usually just shrug it off and keep going.

My wife, on the other hand… well, let’s just say pain and her are not exactly best friends.

Now, before I get myself in trouble, I should point out that she did go through childbirth twice—once with twins—so when the moment calls for it, she can absolutely tough it out. She just prefers not to make a hobby out of it like I apparently do.

As for me, I’ve been dealing with this back pain for as long as I can remember. Never really complained much about it. I just chalked it up to muscle fatigue, getting older, or doing something dumb and pretending I didn’t.

Turns out… muscle fatigue was not the issue.

According to the latest X-rays, this has been something a little more “interesting” all along. And lately, just to keep things exciting, the pain decided to crank itself up over the past month.

Naturally, my pain tolerance—once my greatest ally—has started waving the white flag. So today, I finally broke down and reached for the pain meds.

At the doctor’s office the other day, they gave me a steroid shot, and I have to admit—it worked. Yesterday morning, I got out of bed without feeling like someone was stabbing me in the back. It was a beautiful, almost spiritual experience.

This morning? Not so much.

That shot wore off like a good dream, and reality came back with a vengeance.

On top of that, I was prescribed Methocarbamol—a muscle relaxer. The doctor told me, “Take it at bedtime… and during the day if you need it. Just be aware it might make you drowsy.”

Might.

Last night, I took one and thought, “This isn’t so bad.” I stayed awake for a while and figured I was in the clear.

This morning, after wrestling my way out of bed, I decided to take another before heading to Bible study.

Thirty minutes later… I was unconscious in the recliner.

Not “a little sleepy.” Not “slightly drowsy.” I mean full-on, lights out, someone-check-my-pulse kind of asleep.

My wife had to come wake me up so I could even attempt to get ready. I made it to Bible study, but staying awake was more of a suggestion than a reality.

By the time I got back home, I sat down in the recliner—and that’s about all I remember.

My day officially ended at 10:30 in the morning.

All the plans I had for the day? Gone. Completely wiped out. The only thing I accomplished was catching up on all the sleep I’ve been missing from staying up late and getting up early preparing for these craft shows.

So I guess… not a total loss?

Tomorrow is church, and after that, I’ve got a big date planned with my recliner and heating pad. We’ve grown very close lately.

With a little rest (and maybe slightly less “effective” medication), I’m hoping by Monday I can get back to working on the projects that didn’t stand a chance today.

Until then, I’ll be right here—taking it easy and trying not to accidentally time-travel to the next day every time I take my medicine.

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