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Tag Archives: Bloodwork

I Lost it Today :(

17 Wednesday Dec 2014

Posted by Tim Hughes Living with CML in Cancer, Depression, Leukemia

≈ 2 Comments

Tags

Bad Mood, Bloodwork, Blurred Vision, Cancer, Challenges, Christmas, CML, Depression, Leukemia

Today was not a good day for me.  I guess all the troubles in my life finally caught up with me.

For those just finding out about this blog, I have CML, a form of Leukemia.  I was diagnosed with it this past February.  I’ve been taking Gleevec and until last week I thought I was doing pretty good.  My BCR AbL started off at 138 and had gotten down to .134 three months ago.  My last report last week the test showed that it went up to over 2. It was a big disappointment.  I go back in six weeks.

Last week was the beginning of my trouble when my 17 yr old daughter was involved in an accident.  It seems that an 88 yr old man pulled out in front of her.  My daughter is fine with the exception of some back pain in which she is seeing a doctor about.  This was my wife’s 14 yr old van that was totaled by the insurance company.  We do not really have the funds to get another vehicle at this time especially since Christmas is just around the corner.  Just don’t know what to do at this point.

And to add to already what’s going on I’m having eye issues and I’m going to have eye surgery the first part of January.

This is the Christmas season and it’s supposed to be a happy time.  It usually is but the last few years it get’s harder and harder to get into the Christmas spirit.  With my health the way it is and not knowing what the future holds it’s easy for me to get depressed.  I’m the father of three and I’m supposed to be strong and not show emotions but I’m here to tell you that it’s difficult for me to hold it in.  Especially today.

It was while at lunch today.  We were listening to the company choir sing some Christmas songs when it hit me.  I was remembering the times when my kids were younger and times were much different.  I got to thinking just how much longer do I have?  I was doing ok until the choir started singing a song that I haven’t heard since my childhood and that’s when I started to loose it.  Not wanting to show my emotions in public I had to get up and leave the table.  It took be several hours to get my act together.

Maybe tomorrow will be a better day.

Good News for Now!

24 Wednesday Sep 2014

Posted by Tim Hughes Living with CML in Uncategorized

≈ 3 Comments

Tags

Bloodwork, Cancer, CML, Dr Appt, Leukemia, Medications, Oncologist, Test

Heard from my oncologist this afternoon. My levels has dropped down to .134%.from .734% two months ago. It’s still not zero but it’s slowly getting there. The doctor feels confidant enough to leave me on my current medication. The only thing that was discussed that I’m not to pleased with was the topic of another bone marrow biopsy. We will discuss this more in depth at my next doctor appointment in three months

Complete Shut Down

13 Thursday Feb 2014

Posted by Tim Hughes Living with CML in Uncategorized

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Tags

Bloodwork, snow

Once again snow has completely shut down one of the largest cities in Alabama, I got just over four inches of snow here while others north and east of us got upwards around seven plus inches.  Cities south of me only got anywhere from a dusting to one inch.  

It’s funny though that one inch of snow can shut this place down.  As I’ve stated in an earlier post, we are just now equipped to handle it.  Other cities north of us has salt trucks that go out and prep the roads before the snow starts falling.  We have sand trucks.  Two different things.  Salt helps to melt the snow and sand only helps get traction and usually makes for a messy vehicle after the snow is gone.  

Birmingham doesn’t see much snow.  I’m 50 years old and the most I’ve ever seen is 18 inches in March of 1993 and the city was shut down for over a week.  Temps stayed below freezing for most of the week and the snow never melted.  We lost power for the week and had no emergency power.  We do now.  We had to heat and cook our food out of our fireplace.  We took all of our perishables and put them on the deck and covered it up with snow so that we wouldn’t loose most of our food.  All of our meet and such we put in the bath tub and covered everything with snow.  That worked pretty well. We even had a water bed at the time.  Do you know what happens when you have no power on a water bed?  It get’s so cold you can’t sleep on it.  Luckily, we had a fold out couch that my wife and I slept on.  Did I mention she was GREAT with child?  I was worried the whole time we were stuck in our house thinking that she was going to go into labor.  Thank the good Lord above she didn’t.

Temps should warm up quickly tomorrow morning and the snow should start to melt early on. Either I go to my doctor appointment or I end up going to work tomorrow.  My guess is my appointment will be postponed and work will open around 10 am in the morning.  Either way I won’t be able to stay home and enjoy the snow with my girls.  I can’t really afford to take more time until I find out what is going on with my blood work.

Take care everyone and have a blessed day.

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