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Tag Archives: Kids

No Joy for Christmas

28 Sunday Dec 2025

Posted by Tim Hughes Living with CML in Family

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Christmas, emotion, Family, Hardships, Holiday, Joy, Kids, Life, Remembering, Resentment, Tears, Tension

I want to start by apologizing for this rant. My poor wife has listened to me wrestle with this for the past week, and I still don’t feel settled. I’m honestly at the point where I’m ready to say I’m done celebrating Christmas—and maybe even Thanksgiving—with my parents and siblings altogether.

At the center of it all are my parents, my mom and dad. They’re both in their eighties now and won’t be with us forever. That fact matters, and it weighs on me more than I probably let on. Then there’s my wife and I, and our three kids—all grown, all adults, all working and living their own lives. That still feels strange to say sometimes.

I have two brothers and a sister. One brother is married with kids, two of whom are now adults with their own jobs. Watching the next generation step into adulthood really drives home how quickly time passes. My youngest brother is also married, but his family is in a completely different season—three young kids, full of noise, energy, and chaos. I recognize that life because I’ve lived it.

Then there’s my baby sister. She’s married and has a son in his twenties who is autistic. While his age says “adult,” his needs and world often look more like those of a teenager. He’s special—everyone knows it, including him—and I think he’s figured out just how wrapped around his finger the family really is.

The real issue, though, isn’t any one person. It’s the expectation that everyone must be present at every family function. My mom believes that if something is planned, everyone has to be there—no exceptions. For years, Christmas has been pure hell because of this mindset.

If someone couldn’t make it, she would get upset and cry. As the oldest, I’ve tried to talk to her calmly, suggesting she pick a date and let people work around it. But there are two things she refuses to accept. First, our family has grown, and people now have other obligations—spouses, in-laws, jobs, kids, and schedules that don’t revolve around one household. Second, if Christmas falls on a weekend, many people still have to return to work on Monday. She cannot understand why they can’t “just ask off.”

Here’s the part that still stings the most. I’ve been married since 1991, and from day one, my wife and I always gone to my parents’ house for Christmas lunch. Always. My wife’s parents also had lunch every year, but we never went there first. We would eat at my parents’ house, open gifts, then rush out and head to either her parents’ house or her brother’s—arriving late every single time. They would be waiting on us.

Year after year, this happened. And not once did my wife complain, because she understood exactly how my mom would react if she didn’t get her way.

Now things have changed. My wife’s parents have both passed away, and her family now gathers at her sister’s house. That house is in the opposite direction from where my family meets. Trying to fit both sides of the family into one day is no longer just stressful—it’s impractical. What used to be exhausting is now simply unreasonable.

About five years ago, something finally changed for the better. My mom told me she and my sister had talked and decided that the Saturday after Christmas would be our official family Christmas. It felt like a miracle. Everyone could make it. No tears. No drama. No guilt. It worked.

Until yesterday.

My youngest brother’s wife, who works as a prenatal nurse, had to work late. My mom went hysterical. Suddenly, Saturday “won’t work anymore.” According to her, the solution is that we’ll all meet the day after Christmas because she’s convinced a future executive order will make it a federal holiday.

I tried explaining—calmly—that even if something like that ever happened, it wouldn’t affect healthcare workers, and many employers wouldn’t observe it anyway. Changes like that take years, if they happen at all. None of that mattered.

And just like that, we’re back to square one.

What makes this so hard is knowing that my parents are aging. Time is limited. I don’t want resentment to be what I remember. I don’t want the holidays to feel like obligations instead of moments. Honoring our parents shouldn’t require everyone else to bend themselves into knots, sacrificing peace and fairness to avoid tears.

Wanting boundaries doesn’t mean I love them any less. It means I’m trying to protect my wife, my kids, and myself from decades of emotional strain that always seems to fall on the same shoulders.

I don’t have all the answers yet. I just know I’m exhausted. And for the first time, I’m seriously questioning whether continuing these holiday traditions—exactly as they’ve always been—is worth the emotional cost.

With time being what it is, I want whatever holidays we have left to be filled with meaning, not tension. Maybe stepping back isn’t giving up at all. Maybe it’s the only way to find peace while there’s still time to appreciate one another.

Holiday Doldrums

17 Wednesday Dec 2025

Posted by Tim Hughes Living with CML in Depression, Family, Pets

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Tags

books, Cats, Christmas, Doctor, emotion, Family, Gifts, Home made, Kids, Life, Ornaments, Pets, writing

Christmas is a little over a week away and as usual I’m struggling to get everything bought. This year I’ve decided to make several of my gives to my friends and family. I may end up being that person that no one wants a gift from next year but it is what it is. I made my wife and kids Christmas ornaments honoring my cat that just recently passed. I’m really hoping that everyone likes them.

My wife and I are still dealing with the loss. We’ve also noticed that our other cat, Sophie, has started acting differently. I think it’s her way of dealing with his absence and the solitude she experiences when we’re not here. We’ve talked and I’d like to go ahead and get another little kitten but we’re not sure how Sophie will respond. She “tolerated” Clyde and was not really the best of friends but they got along for the most part. I think my wife will eventually agree but it will take some time for her to come around.

This will be Clyde’s marker for his resting place. I’ve been real busy and haven’t took the time time to get the marker done. If the truth is known, every time I sat down to work on it I got upset and couldn’t bare to think about it. There is currently a little wooden cross that my wife placed there until I could get this made. Once I have the marker in place I think this will be the closure that I will need. I will place the marker tomorrow after I get home from my oncologist appointment tomorrow afternoon. Maybe the rains will have moved out by then.

I’m sure I’ll post again but in case I don’t, I hope everyone has a happy holiday and a Merry Christmas.

Time Doesn’t Stand Still

22 Wednesday Oct 2025

Posted by Tim Hughes Living with CML in Cancer, Depression, Family, Leukemia

≈ 1 Comment

Tags

Cancer, Classmates, CML, Dating, Depression, Family, Grandkids, Great Grandkids, Kids, Lab Results, Leukemia, Life, love, Medications, mental-health, Old Age, Parents, Worrying, writing

The older I get, the more I realize that time doesn’t stand still. It seems like almost every week I hear about someone I used to go to school with or work with who has passed away. Just the thought of it can be depressing.

This past Saturday, I did a craft fair and happened to run into one of my high school classmates and her sister. We had a chance to catch up for a bit, and somehow the conversation turned to the classmates we’ve already lost. Sadly, cancer seems to have claimed most of them.

I’m 62 now — older than many of my classmates since I was held back a year — and although my health hasn’t always been the best, I count myself lucky to still be here.

Most of my classmates already have great-grandkids. Me? None of my three kids are married yet, so I’m not even a grandparent. Only one of the three is dating anyone right now, and I’m not sure when or if the other two will. That’s okay, though. I don’t ever want them to feel pressured. Still, before I go, I’d love to see all my kids married and maybe even get the chance to hold a grandbaby or two.

My parents, who are both in their mid to upper eighties, would love to see great-grandkids too. I have to remind my mom not to put pressure on my kids — she has a way of speaking her mind about things like that.

As I’ve mentioned before, I have a form of leukemia called CML. Right now, it’s under control. Sometimes one of the markers the doctors watch goes a little wild and sends everyone into a panic, but eventually, the numbers settle back down, and all is well again. I’ve come to accept that nothing I do can change the fact that I have CML. All I can do is take my daily pill, stay consistent, and be thankful that the medicine is working. Worrying won’t change the outcome.

Are you the worrying type? What’s the main thing that weighs on your mind — your kids, your health, your future, or something else? I get my worrying honestly; my grandmother on my mom’s side was a worrier, and my mom’s the same way. I guess it just runs in the family.

Improving? Not so Much.

28 Sunday Aug 2016

Posted by Tim Hughes Living with CML in Cancer, Family, Leukemia, Photography

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Tags

Alabama, CML, Doctor, health, Kids, Leukemia, Million Dollar Band, Oncologist, Parents, Sick, University of Alabama

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I started back on my CML meds last Monday and to be honest I think my breathing has gotten a little worse. I’ve started climbing the steps at work a little more and trying to maintain at least 10,000 steps in a day. I spoke at length to my oncologist last Monday the day I started back on my Sprycell and he told me that the majority of the people who end up with water retention will do better at a lower dosage.  I’m now at 80 mg instead of the 100mg that I was once on.

I’ve decided not to just sit at home waiting to see if my lungs will fill back up with fluid.  I don’t really feel like getting out and doing anything but I feel that I’ve at least got to try  and get what little exercise that I can get.  I think it could only help matters if I get off the couch and do something.

Yesterday, my wife and I met our son at the university where my daughters are attending.  They’re both in the band, one plays the sax and the other is a band manager.  Yesterday was their parent preview show.  It was awesome seeing my daughter’s perform. I got to meet one of their roommates and enjoyed going out to dinner afterwards.  As usual it was hard for us to leave after visiting with them.

Today I went to my parents house to check on them as well as my bees.  It’s been at least two months since I’ve done either one.  The bee yard was grown up with weeds and it took everything I had to use my weedeater to chop down the weeds just so I could get to the beehive.  After about an hour of cleaning up I went and sat with my parents for a couple of hours.

It was hard to leave my parents. They are both getting up in age and their health is not as good as it used to be.  My mom had to have more surgery a couple of weeks ago on her diaphragm due to finding a hole where her colon and her intestine were coming through.  The doctors seem to think that this was caused by the accident they had back in February.

The above picture is of the band managers.  The young lady is my daughter.  What a  trooper.

Negativity Gets You Nowhere!

26 Sunday Jun 2016

Posted by Tim Hughes Living with CML in Cancer, Depression, Photography

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Tags

Anniversary, Beach, Condo, Doctor, Down, Family, Heat, Humidity, Kids, Sand, Steakhouse, Sunset, Vacation, Water, Waves

th I _1TH7349_50_51_tonemapped

I’ve been down on myself the last few weeks. I thought being on vacation would snap me out of it but the whole time I was gone I kept thinking of the time lost that I would have when I returned back to work.  The exciting news that I got from my doctor while I was away seemed to have helped but now that I have my doubts about the results I just can’t help but feel down again.

The heat has a lot to do with it I feel because I wanted to do something with my kids today being that they were home and not working but everytime I went outside I was just drained from the heat and humidity.  Plus, with all this humidity, it makes it difficult for me to breath.  The next two days the rain chances has increased to 70% so maybe after the storms roll in here at least it will cool things off a bit.

This coming Thursday, June 29th, I will have been married for 25 years.  I have already made reservations for Saturday at a place called Perry’s Steakhouse.  It’s a bit pricey but my wife is worth it.  Putting up with me and all my ailments; she deserves more than a pricey steak and a night on the town.  She’s going to flip when she sees the prices on the menu though. But maybe the flowers that I have ordered that will be sitting on the table when we arrive will take away some of the shock.  We don’t usually go out on the town like this.  It’s usually places like Logan’s steakhouse where you pay $12 to $15 for a steak or go to Cracker Barrel.  Those places are more to our taste.  If I get out of Perry’s for less than $200 I’ll be lucky.

July 4th is coming up in a week and I have that day off which means a three day weekend.  If I can just make it through this week.  So you see, I have a couple of things to look forward too.  With this in mind maybe I can get out of this slump that I’m in and I can have a brighter outlook.  It’s going to take me some time for me to build up more vacation time but at least my doctor’s appointments are down to a minimum right now.  That’s another thing that has me upset is the fact that right now if I have a family emergency I can’t do anything about it.  I can’t take off right now if I had too.  Tomorrow, if I’m not wrong, I should have 10 hours built up.  That’s not much but it’s a start.

I hope everyone has a great week ahead.

 

 

Vacation to Walt Disney World Parks

19 Sunday Jun 2016

Posted by Tim Hughes Living with CML in Photography

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Crowds, Epcot, Florida, Fort Wilderness Cabins and Campgrounds, Graduation, High Price Foods, Kids, Long Lines, Orlando, Vacation, Walt Disney World

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My first day back to work from a week long vacation is tomorrow and I should be going to bed but as luck would have it I’m waiting for a video to render on my computer.  Once that’s done I’ll eventually go on to bed.

The family and I  drove the ten hours back from Orlando on Friday.  We spent four days there and I must say we had a pretty good time.  Because of some breathing issues I had to cut my days a little short the last two days we were there.

We drove down on Sunday and if you’ve been following the news that’s when Orlando had the nightclub shooting which killed those 49 people.  Security was beefed up a bit and it took longer to get in so I’m told. And of course, we also learned of the tragic death of the two year old boy that got drug into the water and died.  Orlando had a trying week last week.

Like I said earlier, we had a pretty good time.  The lines were long, temps were high, food prices were high, some of the patrons were rude and the security was tight.  Nearly every ride my wife went on broke down at least twice during the ride.  Fast Trac was the only ride that offered another ride without having to start back at the beginning.

This trip was a graduation gift to my three kids.  Our son graduated from college and my two daughters graduated high school.  Taking three kids means that you have three opinions at which time caused problems within itself.  They either all wanted to do something different or just one wanted to something different.  I tried to stay neutral because this was their trip and I wanted to do what they wanted to do.  By Thursday afternoon I was tired of all the bickering I went back to the cabins so they would work it out themselves with me interfering.

We did encounter a couple of problems.  With the alligator incident Disney decided to close down all the beachfront activities which included the boat that left out of Fort Wilderness where we were staying.  If you stayed at Fort Wilderness Campgrounds the only transportation to the Magic Kingdom was to take the boat.  When the boy was attacked the transportation department didn’t realize this and stranded many guests.  Of course, you could hop a bus and go to another resort and catch another bus to Disney but that would take a lot of time and most likely they would lose their “Fastpass” time slot.  Communication between transportation and the resorts were non existent during this time and neither knew the answers to the questions being asked.  On Thursday I had a backstage pass to the steam locomotives and had to call many people just to get a ride from the campgrounds to the Magic Kingdom.  I made it just in time not to be late.

Most of the problems we had were personal and had to deal with it our own way.  When I say personal I mean being raised differently I guess.  An example;  When standing in line for a ride I would always give the person in front of me their “personal space”.  Meaning, I don’t want people breathing down my neck when we stopped or not bumping into me every time I stopped. Cutting in line.  We actually had adults send their kids in front of us and cut in line and once they were in place the adults would come up and join them.  I watched them do this several times by several different families.  Maybe that’s what they do in their countries but I have a problem with it.  Dress, or should I say lack of.  I saw teen girls wearing outfits that should only be worn in the presence of their own mother and no one else.  And another thing.  Just because you own the outfit doesn’t mean that you should wear it in public.  My kids are nearly grown and they were even embarrassed by them.

Well, the video is finished so I guess I’ll take my meds and go to bed.  All in all a good trip and would do it again if I had the money.  Next year will be a nice relaxing trip to the beach which is a lot closer and a lot less crowded.  I just hope my kids can work around their schedules and go with us.  They’re getting to the age now where they may not can go with us.

365 Day Photo Challenge 355/365 “Another Good Day, Sort of”

20 Sunday Dec 2015

Posted by Tim Hughes Living with CML in Photography

≈ 1 Comment

Tags

365 Day Photo Challenge, Alabama, Cabin Fever, College, Cycling, Kidney Stones, Kids, Pain, Pain Free, Pain Meds

https://tchphotography.smugmug.com/2015-Cheaha-Challenge/i-Mh4RqHf/A

I have had all my kids here for the past few days.  My son left earlier this afternoon to go back to school to play at a basketball playoff game but he’ll be back tomorrow night.  Anyway, I got up early and cooked breakfast for everyone and spent the remainder of the day relaxing and spending time with the family.

All in all a pretty good day without much pain.  I did get out for a little while with the wife when cabin fever kicked in and I couldn’t stand being inside any longer. You got to remember I’ve been cooped up in this house since Tuesday of last week with the exception of the half an hour I spent attempting to go to work.  It felt good just being outside if only for a little while.

I share a lot on here and maybe a little too much.  That is why I won’t go into detail as to what I’m going to say next.  I stayed in the bathroom for nearly two hours tonight.  Everything finally passed and I felt like I gave birth to twins.  I’ll find it hard to walk in the morning.  I guess all the meds are making me dry up.  Even with that I think I’ve shared too much.  Oh well.

“Life Goes On!”

365 Day Photo Challenge 349/365 “‘Tis the Season but I’m Not Feeling it”

14 Monday Dec 2015

Posted by Tim Hughes Living with CML in Photography

≈ 2 Comments

Tags

365 Day Photo Challenge, Christmas, CML, College, Kids, Leukemia, Medications, Twins

https://tchphotography.smugmug.com/Botanical-Gardens/i-ZK8ZW7w/A

I go through this every year.  It’s nearly Christmas and I’m just not in the mood for it.  It’s not that I’m depressed; it’s more of disappointment that I can’t afford to more for my kids.  The older they get the more expensive their needs or wants get and we can’t afford to get everything they ask for.

This year my wife and I discussed the fact that the girls will be going off to college next year so we’re going to make sure that we help them with things like laptops and other necessities for college.  With that said, that will be two of everything.  One of the things that we will be trying to get them within the next few months is a car.  This brings up another problem.  The girls haven’t decided on where they want to go to school.  Each one has stated that they want to go to separate schools and if they do go to different schools then we’re going to have a huge problem.  We can only afford one car.  I want the girls to make their own decision on where they want to go to school but in reality they will have to go to the same school or else one will be walking.

And of course I’m somewhat concerned about my CML levels going up the way they have.  I’ve been back to the oncologist and they’ve done more blood work to determine what the next step will be as far as the medications that I will be on, being that the ones that I’m on isn’t working anymore.  I’m hoping to hear back from him this week.

“Life Goes On!”

365 Day Photo Challenge 303/365 “She Misses Her Girls”

29 Thursday Oct 2015

Posted by Tim Hughes Living with CML in Photography

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Tags

365 Day Photo Challenge, Cats, Dedication, Friendship, Girls, Kids, Twins

005

I know I’ve posted this picture before but this one fits tonight’s topic so well.  Every time my girls leave the house, whether it’s going to school, to church or just going out to the store with their mom, Sophie will either sit by the door or sit on the back of the couch looking outside waiting on her girls to come home.  Most of the day while the girls are away at school both of our cats will stay on the foot of my bed but when it gets close to the time for the girls to get home Sophie will take her place on the back of the couch and wait for her girls to come home.  Once the girls are home she stays by their side until they go to bed.  I’ve never owned a cat that was so dedicated to any of my kids as she is.  The other cat is just happy that we feed him and keep his food dish completely ful.

“Life Goes On!”

365 Day Photo Challenge 302/365 “Today’s Ramblings”

28 Wednesday Oct 2015

Posted by Tim Hughes Living with CML in Photography

≈ 1 Comment

Tags

365 Day Photo Challenge, Church, Dutch Oven, Fall Festival, Halloween, Kids, Outdoor Cooking, Twin girls

https://tchphotography.smugmug.com/Botanical-Gardens/i-h3jFmjc/A

Had a rough day at work but I won’t go there.  The good news is that my son is home from college for a few days and I’m going to enjoy his time with us.  Tonight we’re watching the World Series which we always like to do since he was a little boy.  The cats seem to even enjoy his company since they won’t leave his side since he’s been home.

The girls went to a church fall festival tonight dressed as Thing 1 and Thing 2.  They looked adorable when they left the house.  I believe they would have won the costume contest if it wasn’t for the judges being related to them.

Two more days until the weekend and Halloween.  I’ve been asked to go to a local state park and do some Dutch Oven cooking for a small group.  This park does a huge trick or treating.  It’s been estimated at over 30,000 kids come to this park just for this.  My kids are excited about going and seeing all the excitement.  It’s supposed to rain about the time the trick or treating starts so I’m hoping all the kids have fun.

“Life Goes On!”

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