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~ Diabetes, Cancer Fighter, Father of Twins, Kayak Fishing, Woodcrafter, Lover of Life

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Author Archives: Tim Hughes Living with CML

365 Photo/Weight Loss Challenge

01 Thursday Jan 2015

Posted by Tim Hughes Living with CML in Weight Loss

≈ 2 Comments

Tags

365 challenge, Barefoot, Cancer, carbs, Challenges, Weight loss

Hello.  I’ve debated whether or not to do this or not but here goes.

This is me with all my “glory”.  My current weight as of this morning is 300.4 and as of today I’m doing a 365 day weight loss challenge and I’m going to use the 365 Photo Challenge to help me keep track of my progress.  No, you won’t see a picture of me everyday but maybe once a month or so.  If I were to set a goal it would be about 5 lbs a month.  That’s 60 lbs in a year.  I think I can do it.

I will be taking pictures of my everyday life whether it be at work, home or at play.  I enjoy photography so there’s no telling what you might see.  I have a lot going on in my life so be prepared for some interesting stuff.

Wish Me Luck.

Happy New Year!!!

31 Wednesday Dec 2014

Posted by Tim Hughes Living with CML in Uncategorized

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I hope everyone has a Happy New Year.  May your new year be blessed with happiness and love.

Zuzu’s Petals

20 Saturday Dec 2014

Posted by Tim Hughes Living with CML in Uncategorized

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I really needed this today. Maybe someone else does as well.

Caroline's avatarBeautiful Life with Cancer

Desperate Jimmy Stewart runs down the bridge, I grasp my heart, he has my complete attention. It is coming, my favorite part of the movie, so much emotion. He cries out to God, “I want to live again!” The snow begins to fall and he finds Zuzu’s petals in his pocket. I love the scene so much that my heart swells. It is ok that his bills aren’t paid. It doesn’t matter that he is headed to jail. He doesn’t care anymore that his dreams never came true, he never traveled the world, and he never became a millionaire. He has his life back. He has his wife, his children. He has his God.

Just a few more days until Christmas. It is coming as quickly as the movie playing and my favorite scene approaching. In the blink of an eye, I will be holding my heart and fighting back…

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I Lost it Today :(

17 Wednesday Dec 2014

Posted by Tim Hughes Living with CML in Cancer, Depression, Leukemia

≈ 2 Comments

Tags

Bad Mood, Bloodwork, Blurred Vision, Cancer, Challenges, Christmas, CML, Depression, Leukemia

Today was not a good day for me.  I guess all the troubles in my life finally caught up with me.

For those just finding out about this blog, I have CML, a form of Leukemia.  I was diagnosed with it this past February.  I’ve been taking Gleevec and until last week I thought I was doing pretty good.  My BCR AbL started off at 138 and had gotten down to .134 three months ago.  My last report last week the test showed that it went up to over 2. It was a big disappointment.  I go back in six weeks.

Last week was the beginning of my trouble when my 17 yr old daughter was involved in an accident.  It seems that an 88 yr old man pulled out in front of her.  My daughter is fine with the exception of some back pain in which she is seeing a doctor about.  This was my wife’s 14 yr old van that was totaled by the insurance company.  We do not really have the funds to get another vehicle at this time especially since Christmas is just around the corner.  Just don’t know what to do at this point.

And to add to already what’s going on I’m having eye issues and I’m going to have eye surgery the first part of January.

This is the Christmas season and it’s supposed to be a happy time.  It usually is but the last few years it get’s harder and harder to get into the Christmas spirit.  With my health the way it is and not knowing what the future holds it’s easy for me to get depressed.  I’m the father of three and I’m supposed to be strong and not show emotions but I’m here to tell you that it’s difficult for me to hold it in.  Especially today.

It was while at lunch today.  We were listening to the company choir sing some Christmas songs when it hit me.  I was remembering the times when my kids were younger and times were much different.  I got to thinking just how much longer do I have?  I was doing ok until the choir started singing a song that I haven’t heard since my childhood and that’s when I started to loose it.  Not wanting to show my emotions in public I had to get up and leave the table.  It took be several hours to get my act together.

Maybe tomorrow will be a better day.

Birmingham Botanical Gardens

28 Tuesday Oct 2014

Posted by Tim Hughes Living with CML in Uncategorized

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Tags

Alabama, Birmingham, Botanical, Flowers, Gardens, Japanese, Nature, Statue

Birmingham Botanical Gardens is Alabama’s largest living museum with more than 12,000 different plants in its living collections. The Gardens’ 67.5 acres contains 25+ unique gardens, 30+ works of original outdoor sculpture and miles of serene paths.

The Gardens features the largest public horticulture library in the U.S., conservatories, a wildflower garden, two rose gardens, the Southern Living garden, and Japanese Gardens with a traditionally crafted tea house. Education programs run year round and over 10,000 school children enjoy free science-curriculum based field trips annually.

Birmingham Botanical Gardens, the most visited free attraction in Alabama, is open daily, offering free admission to more than 350,000 yearly visitors. (Copied from the Birmingham Botanical Garden’s website).

I’ve been going to this place for years and over the years I can tell that this place has lost a little of it’s luster.  I imagine that the economy has made a huge impact on the finances this place gets.  Don’t get me wrong, this place is still beautiful and full of life.  But to be honest, there’s a lot of maintenance that needs to be done.  The maintenance staff was working hard while I was there this past week and I guess it takes time to bring everything up to date.  Then again, they may just be trying to get everything ready for winter.

If you’re ever in the Birmingham area I would highly recommend spending a couple of hours in this place.  You can sit on one of the many benches and listen to the sound of chipmunks playing around in the leaves.  Of course, right now with the constructions going on across the street you can also hear the sound of jackhammers off in the distance. You can also hear the sound of the train whistle located nearby at the Birmingham Zoo.

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My Whole Body is Sore

26 Sunday Oct 2014

Posted by Tim Hughes Living with CML in Cycling

≈ 2 Comments

Tags

Bicycle, bicycling, Cycling, Silver Comet Trail

http://www.mapmyride.com/workout/776383875#

I took a trip to Dallas Georgia yesterday to ride a few miles on the Silver Comet. Fifty to be exact I haven’t ridden by bicycle since the end of June and I believe I did too much yesterday.  The back of my neck and shoulders are feeling the worst and my legs come in a close second.

It was a beautiful day yesterday with the temps being in the sixties to start off with and the high in the mid 70’s by the end of my ride.  I started off with a hoodie but had to take it off about midday.  I am so bad out of shape that it took me longer than I had expected but I didn’t have any problems until about mile 40 when I started having leg cramps.  I slowed down and started taking mini breaks.  I was in no hurry so I just took my time getting back.

The Silver Comet Trail is 61.5 miles long, and starts at the Mavell Road Trailhead in Smyrna, Georgia. It ends at the Georgia/Alabama state line, near Cedartown and The Esom Hill Trailhead.

At the Georgia/Alabama state line, the Silver Comet connects to the 33-mile long Chief Ladiga Trail. Plans are underway to extend the Chief Ladiga an additional 7 miles. Both the Silver Comet Trail and Chief Ladiga are fully paved rail-trails built on abandoned railroad lines. The combined Silver Comet and Chief Ladiga trail length is estimated to be 94.5 paved miles from Smyrna, Georgia to Anniston, Alabama. (Copied from the Silver Comet Website.)

Riding on the trail is very pleasant and you can meet a lot of nice people along the way.  In fact yesterday I had a chance to give a helping hand.  About 14 miles from the trail head in Dallas, I ran across an elderly couple walking their bikes.  I stopped to see if they needed help.  They told me that he had a flat and his hand pump wouldn’t work  Just so happens that I carry two tubes and two CO2 cartridges with me on any trip.  He borrowed one of my CO2 cartridges and he was on his way.  He did say thanks and offered to pay but I declined payment.  I just hope someone is as nice to me as I was to him if I’m ever in his shoes.

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Good News for Now!

24 Wednesday Sep 2014

Posted by Tim Hughes Living with CML in Uncategorized

≈ 3 Comments

Tags

Bloodwork, Cancer, CML, Dr Appt, Leukemia, Medications, Oncologist, Test

Heard from my oncologist this afternoon. My levels has dropped down to .134%.from .734% two months ago. It’s still not zero but it’s slowly getting there. The doctor feels confidant enough to leave me on my current medication. The only thing that was discussed that I’m not to pleased with was the topic of another bone marrow biopsy. We will discuss this more in depth at my next doctor appointment in three months

No News Yet plus Furious

22 Monday Sep 2014

Posted by Tim Hughes Living with CML in Uncategorized

≈ 3 Comments

Tags

Cancer, CML, Dating, daughters, Fatherhood, Furious, Leukemia, text

There’s a saying that no news is good news.  Well, in my case that’s not necessarily so.  I started several times today to call just to see if they had come in but I refrained from doing so.

On another note.  I am so furious right now I can’t see straight.  I have never had to deal with such things until my teenage daughter turned 16 and started dating.  These boys these days are so horrible.  A few weeks ago my daughter got a dear john text.  That within it self made me furious.  What a coward.  About a week later to my disappointment they got back together.  Guess what!  He did it again.  I wished I could put my hands around his neck and teach him the necessity of breathing.  He better be glad he’s away a college right now and not down the road where his parents live.  No one hurts my daughter and gets away with it.  This is part of fatherhood that I’m not prepared for.  Ho does one prepare for such things?

Thanks for following me!!

21 Sunday Sep 2014

Posted by Tim Hughes Living with CML in Uncategorized

≈ 3 Comments

Tags

BCR ABL, Blogging, Blood Cancer, Cancer, CML, Leukemia, Oncologist

Went to the my oncologist last Wednesday.  He was not happy with my last results that was taken over two months ago. BCR ABl test results was .73% which I thought was pretty good until he told me it HAD to be down to zero and had to be within the first six months.  I was diagnosed in February so six months would make it in July.  I’m currently waiting for the doctor to call me to tell me what my results were last week.  If it’s not zero then I’m going to have to get on some other type of meds.

I don’t do this or any other blog for followers but just to be able to get things off my chest.  As I am honored to have each of you follow me I am somewhat surprised to see some what I would call super bloggers that are following me.  I’m really glad to have each and everyone of you on board.

Life Does Have a Purpose

14 Sunday Sep 2014

Posted by Tim Hughes Living with CML in Uncategorized

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Tags

Alabama, Band, CML, College, Diabeties, Million Dollar Band, Old Age, Parents

Life has been busy and full of activities.  Work still sucks but I only have 3 yrs 11 months and 15 days left before I can retire at 55.  But who’s counting?

My health hasn’t changed much.  My eyesight has not improved much and I’m still taking ejections every month.  My CML is still not under control yet but I’m hopping that by my next doctor’s visit that will change.  When I was diagnosed my levels were at 138%.  At my last visit two months ago it had dropped to .73%.  0% is where it needs to be.  My next visit will be this Tuesday so I’m hopping for the best.

I turned 51 one month ago tomorrow.  For my birthday my son gave me two sets of tickets to a couple of Alabama games.  What is so special about this is that my son plays for the Million Dollar Band.  He is a senior this year and we have not been to a game with ticket prices being as high as they are we just couldn’t afford for the rest of the family to go.

My wife and one of my daughters went to a wedding while my parents, my other daughter and I went to the game.  Needless to say getting to our seats was an adventure within itself. Both my parents are in their early to mid 70’s.  The tickets we had were in the highest portion of the stadium that you could be.  I was really worried for my mom who has trouble walking long distances.  Once we finally made it to our seats we all had a great time watching the game as well as watching our son march on the field.  Couldn’t see him but I know he was down there somewhere.

As l’m going through the pictures of yesterday, I am reminded that life moves quickly.  It seems just like yesterday that my son and I was playing catch in our back yard.  Now I’m seeing him in full uniform marching in a college band.  Where does the time go.  I took a picture of my parents with my son and daughter.  As I’m sitting here in front of the computer editing the picture I realize that life does have a purpose.  My parents had a purpose raising me and now it’s my turn to raise my kids.  I think my parents did an outstanding job with me and I’m hopping I’m doing the same with my kids.  So far no arrest records have been made on either of my kids so apparently I’m doing a fair job.

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