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~ Diabetes, Cancer Survivor, Cycling, Photographer, Exercise, College Parent, Twins, Boy Scout Leader, Life

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Tag Archives: BCR ABL

Oncologist Update; 3/21/2018

21 Wednesday Mar 2018

Posted by Tim Hughes Living with CML in Cancer, Leukemia

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Tags

BCR ABL, Bosulif, Cancer, Fluid Retintion, Liver Problems, Medicine, Oncologist, Side Effects, Sprycel

My oncologist called this evening wanting to know if my new meds had come in.  They had not.  He told me that my BCR-Abl numbers had greatly improved which is very surprising being that I’ve been off my Sprycel for nearly two months.  Too bad my body can’t handle the medicine any longer.  Once my new meds get here, which should be within a few days, I’ll start taking it.  The side effects looks pretty bad, diarrhea, fluid retention in both the heart and lungs, low red blood counts, liver problems and multiple other issues.  Bosulif will be the third medication that I will be on.  There are only a couple more that is out there that is approved by the FDA.  I’m hoping this works with minimal side effects402d22500b1841198233ebb8058faf26-bosulif_200_312

Confusing News!

25 Saturday Jun 2016

Posted by Tim Hughes Living with CML in Cancer, Photography

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Tags

BCR ABL, Confusion, Doctor's, Misinformation, Numbers, Oncologist

_2TH1080

During my week off on vacation I received a phone call from my oncologist saying that my numbers were at the lowest since my diagnoses nearly three years ago.  He was really excited to tell me the news.  Today, I got an email from my health insurance company stating that my numbers has went up to the highest that my numbers have been since 2014.  I’m really hoping that my doctor is right and my numbers has indeed went down and not up.  I guess I need to call him on Monday to confirm.

6/7/2016 1 Data SourceBCBSAL none
4/6/2016 0.1 Data SourceBCBSAL none
1/27/2016 0.55 Data SourceBCBSAL none
12/2/2015 0.32 Data SourceBCBSAL none
11/11/2015 0.63 Data SourceBCBSAL none
8/3/2015 0.05 Data SourceBCBSAL none
4/7/2015 0.08 Data SourceBCBSAL none
1/27/2015 0.1 Data SourceBCBSAL none
12/9/2014 0.22 Data SourceBCBSAL none
7/14/2014 0.73 Data SourceBCBSAL none
5/12/2014 27.71 Data SourceBCBSAL none
2/13/2014 133.48 Data SourceHealth plan Provider

Thanks for following me!!

21 Sunday Sep 2014

Posted by Tim Hughes Living with CML in Uncategorized

≈ 3 Comments

Tags

BCR ABL, Blogging, Blood Cancer, Cancer, CML, Leukemia, Oncologist

Went to the my oncologist last Wednesday.  He was not happy with my last results that was taken over two months ago. BCR ABl test results was .73% which I thought was pretty good until he told me it HAD to be down to zero and had to be within the first six months.  I was diagnosed in February so six months would make it in July.  I’m currently waiting for the doctor to call me to tell me what my results were last week.  If it’s not zero then I’m going to have to get on some other type of meds.

I don’t do this or any other blog for followers but just to be able to get things off my chest.  As I am honored to have each of you follow me I am somewhat surprised to see some what I would call super bloggers that are following me.  I’m really glad to have each and everyone of you on board.

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