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Tag Archives: Challenges

365 Day Photo Challenge 137/365 “Please Help Find a Cure for Kids’ Cancer”

19 Tuesday May 2015

Posted by Tim Hughes Living with CML in Photography

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Tags

365 Day Photo Challenge, Alabama, Cancer, Challenges, CML, Cycling, Fundraising, Great Cycle Challenge, June, Photography

https://greatcyclechallenge.com/Riders/TimHughesOLYMPUS DIGITAL CAMERA

I’ve signed up to ride in the 2015 Great Cycle Challenge this June. My goals are to ride 500 miles in the month of June to help raise money to fight Kids Cancer. I also have a goal to raise $1000.00 between now and the end of June. Both goals will be a challenge but I honestly think that they are achievable. If you would like to donate please follow the link.

I am fortunate to have kids who were born healthy and cancer free. I can’t imagine what a parent goes through hearing the words that their son or daughter has cancer. Great advances have been made in the medical field to help those with cancer, I know, I’m one of those patients. However, there are some types of cancer that they are still still learning about. I’m hoping and praying that with these funds a cure will be found.

365 Photo/Weight Loss Challenge

01 Thursday Jan 2015

Posted by Tim Hughes Living with CML in Weight Loss

≈ 2 Comments

Tags

365 challenge, Barefoot, Cancer, carbs, Challenges, Weight loss

Hello.  I’ve debated whether or not to do this or not but here goes.

This is me with all my “glory”.  My current weight as of this morning is 300.4 and as of today I’m doing a 365 day weight loss challenge and I’m going to use the 365 Photo Challenge to help me keep track of my progress.  No, you won’t see a picture of me everyday but maybe once a month or so.  If I were to set a goal it would be about 5 lbs a month.  That’s 60 lbs in a year.  I think I can do it.

I will be taking pictures of my everyday life whether it be at work, home or at play.  I enjoy photography so there’s no telling what you might see.  I have a lot going on in my life so be prepared for some interesting stuff.

Wish Me Luck.

I Lost it Today :(

17 Wednesday Dec 2014

Posted by Tim Hughes Living with CML in Cancer, Depression, Leukemia

≈ 2 Comments

Tags

Bad Mood, Bloodwork, Blurred Vision, Cancer, Challenges, Christmas, CML, Depression, Leukemia

Today was not a good day for me.  I guess all the troubles in my life finally caught up with me.

For those just finding out about this blog, I have CML, a form of Leukemia.  I was diagnosed with it this past February.  I’ve been taking Gleevec and until last week I thought I was doing pretty good.  My BCR AbL started off at 138 and had gotten down to .134 three months ago.  My last report last week the test showed that it went up to over 2. It was a big disappointment.  I go back in six weeks.

Last week was the beginning of my trouble when my 17 yr old daughter was involved in an accident.  It seems that an 88 yr old man pulled out in front of her.  My daughter is fine with the exception of some back pain in which she is seeing a doctor about.  This was my wife’s 14 yr old van that was totaled by the insurance company.  We do not really have the funds to get another vehicle at this time especially since Christmas is just around the corner.  Just don’t know what to do at this point.

And to add to already what’s going on I’m having eye issues and I’m going to have eye surgery the first part of January.

This is the Christmas season and it’s supposed to be a happy time.  It usually is but the last few years it get’s harder and harder to get into the Christmas spirit.  With my health the way it is and not knowing what the future holds it’s easy for me to get depressed.  I’m the father of three and I’m supposed to be strong and not show emotions but I’m here to tell you that it’s difficult for me to hold it in.  Especially today.

It was while at lunch today.  We were listening to the company choir sing some Christmas songs when it hit me.  I was remembering the times when my kids were younger and times were much different.  I got to thinking just how much longer do I have?  I was doing ok until the choir started singing a song that I haven’t heard since my childhood and that’s when I started to loose it.  Not wanting to show my emotions in public I had to get up and leave the table.  It took be several hours to get my act together.

Maybe tomorrow will be a better day.

Feeling Discouraged

26 Saturday Oct 2013

Posted by Tim Hughes Living with CML in Uncategorized

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Tags

Aggravated, Bad Mood, Challenges, Discouraged, Life, Upset, Work

Today was horrible.  It started at 6:30 this morning when my phone rang.  It was my coordinator calling me to tell me that there was a problem at one of our buildings.  One of my computer room units had gone into alarm.  Every four months I have to go on call for the entire month.  Some months I don’t get called while others, well let’s just say that I don’t get much sleep.  This has been one of those months.

It wouldn’t be so bad if my co workers would do what they’re supposed to do and order replacement parts when they use a part  It seems that it always shows up when I’m on call and I have to replace a part.  I am tired of spending time searching for parts that are supposed to be there but are not because someone didn’t order a replacement part.  It’s not so bad during the week because all you have to do is go to the supply house and get what you need,  What pisses me off is when I’m called out on weekends or in the middle of the night and don’t have the part.  I’m screwed.  

I get to work at 7:30 am, find the unit that’s in alarm.  I reset the unit and check out the unit.  Everything checks out fine.  I work on HVAC equipment and it was 36 degrees outside this morning.  I won’t bore everyone even further with all the mechanical details but everything checked out ok.  Got into my truck to head home and got called again by my coordinator.  This time I have some issues in another building.  There are four buildings that we have and we have to drive to them because they’re to far to walk.  I drive to that building, check everything out, reset some equipment and all is good.  We always have issues with our equipment needing to be reset during cold snaps and this is our first one.

I log three hours this morning and I am home, with clothes changed and about to watch some TV when my phone rings again.  I have more equipment in alarm and I change clothes again back into my work clothes.  It’s 10:30 am by this time. I arrive at work at 11:15 AM, this time it’s software issues and My coordinator is there to take care of that problem.  In the mean time another alarm goes off at yet another building so off I go.  This is where I start to get upset.

I have a bad fan motor.  No problem, I’ll grab the replacement from downstairs and I’ll change it.  Wrong, because we don’t have a replacement.  I look for over thirty minutes with no luck.  I call our supply house and they have a replacement but guess what, they’re closed.  It’s after 12 noon and they close at noon on Saturdays.  They agree to open back up but they’re going to charge me another $50 for opening the store back up.  It’s ok, it’s not my money.  

Normally, I can change a fan motor in thirty minutes.  This one took me and my coordinator three hours to change.  Different motor with different mounting brackets.  Basically a pain in the butt.

We’re putting our tools up and another call comes in.  A furnace in our child care center is not working.  We found a couple of bad parts plus another fan motor bad.  You guessed it, no parts and by this time all the supply houses are closed and my coordinator doesn’t want to spend the extra $50.  I’ve got to be at work early on Monday to get to the supply house and get these parts before these kids come in and complain that it’s cold.

I finally get home at 6:30 pm.  A long day for me which, if I had all the parts, the correct parts, I would have been home long before then.

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