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Grayfeathersblog

~ Diabetes, Cancer Fighter, Father of Twins, Kayak Fishing, Lover of Life

Grayfeathersblog

Tag Archives: health

Improving? Not so Much.

28 Sunday Aug 2016

Posted by Tim Hughes Living with CML in Cancer, Family, Leukemia, Photography

≈ Leave a comment

Tags

Alabama, CML, Doctor, health, Kids, Leukemia, Million Dollar Band, Oncologist, Parents, Sick, University of Alabama

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I started back on my CML meds last Monday and to be honest I think my breathing has gotten a little worse. I’ve started climbing the steps at work a little more and trying to maintain at least 10,000 steps in a day. I spoke at length to my oncologist last Monday the day I started back on my Sprycell and he told me that the majority of the people who end up with water retention will do better at a lower dosage.  I’m now at 80 mg instead of the 100mg that I was once on.

I’ve decided not to just sit at home waiting to see if my lungs will fill back up with fluid.  I don’t really feel like getting out and doing anything but I feel that I’ve at least got to try  and get what little exercise that I can get.  I think it could only help matters if I get off the couch and do something.

Yesterday, my wife and I met our son at the university where my daughters are attending.  They’re both in the band, one plays the sax and the other is a band manager.  Yesterday was their parent preview show.  It was awesome seeing my daughter’s perform. I got to meet one of their roommates and enjoyed going out to dinner afterwards.  As usual it was hard for us to leave after visiting with them.

Today I went to my parents house to check on them as well as my bees.  It’s been at least two months since I’ve done either one.  The bee yard was grown up with weeds and it took everything I had to use my weedeater to chop down the weeds just so I could get to the beehive.  After about an hour of cleaning up I went and sat with my parents for a couple of hours.

It was hard to leave my parents. They are both getting up in age and their health is not as good as it used to be.  My mom had to have more surgery a couple of weeks ago on her diaphragm due to finding a hole where her colon and her intestine were coming through.  The doctors seem to think that this was caused by the accident they had back in February.

The above picture is of the band managers.  The young lady is my daughter.  What a  trooper.

365 Day Photo Challenge 203/365 “Health Insurance; Love it/Hate it”

21 Tuesday Jul 2015

Posted by Tim Hughes Living with CML in Photography

≈ 1 Comment

Tags

365 Day Photo Challenge, Cancer, CML, Copay, CPAP, Deductible, Drugs, Gleevec, health, Insurance, Medications, Photography

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Health Insurance can be a love/hate relationship.  I am fortunate to work for an insurance company and I get my insurance at a discounted rate but it’s still very expensive. I still have copays and I still have deductibles that I have to meet before the insurance will pick up.  I fill sorry for those that have to fork out thousands of dollars each year for insurance.

Today I had to go pick up my new CPAP machine.  When the lady called me to tell me that I now qualified for a new machine I asked her how much I owed.  She checked her computer and said that my deductible had not been met and that my payment would be around $500.00.  I don’t have $500.00 to spend right now and told her that.

I have CML, a rare form of Leukemia.  My medication is very expensive.  It averages out to be around $600.00/pill.  I take one pill a day and my prescription is for a thirty day supply.  My insurance out-of-pocket yearly deductible is $2500.00 and my prescription costs $18,000.00 a month.  That means that I would have to pay $2500.00 for the first month and the insurance company would pay the remainder.  But first, and the most important thing is that I would have to come up with $2500.00 before I could get my first prescription.  Pocket change, right?  Not for me.  Who has $2500 just laying around?  Again, not me.

A little known fact is that some drug companies want you to take their drug.  So much so that they are willing to pay you to take it.  I am very fortunate to be on such a drug.  Gleevec is the manufacture of the drug that I’m on and they offer a financial assistance program to those that can’t afford the ridiculous prices of the medications. I first read about this on their website once I found out that I would be taking the drug.  At first I thought that it was only for those that didn’t have insurance but thankfully I was wrong.  I called them up and they paid all but $100.00 of the $2500.00 of my out-of-pocket deductible.  Wonderful news!!  I pay the pharmacy $100.00 at the beginning of the year and Gleevec pays the rest and I don’t pay a dime the rest of the year for this drug. That’s not the only good news that came out of this.  Remember the CPAP?  It seems that my CPAP was covered under the same plan.  Being that my deductible was indeed met I walked out with a new CPAP and a new mask for $00.00.

“Life Goes On!”

365 Day Photo Challenge 37/365 “Reflections”

06 Friday Feb 2015

Posted by Tim Hughes Living with CML in Photography

≈ 4 Comments

Tags

365 Photo Challenge, Alabama, Chicago, health, Photo, Photography, Retirement

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Well, we’ve made it to Friday.  I spent the day doing what I had to do to get the job done.  I’m 51 years old and I can retire with full post retirement benefits at age 55.  The way things are going right now with my health you had better believe that I won’t let the door hit me on my way out.  It hadn’t always been as stressful as it is now.  I’ve been at this company 29 years and I used to love doing what I do.  Now with new management with a different viewpoints make my job and everyone elses job a lot more stressful.  I’ll be lucky to survive the 3 plus years I have left.

On a much brighter note, the above picture was taken in Chicago at the Giant Bean.  I went on a band trip with my two daughters and we spent a few days there.  We had a great time.  I’ve never been to a city as large as Chicago before and unless something happens I guess I never will again.  The architecture there was simply amazing.

As I said before, today is Friday.  I hope everyone has a fantastic weekend.  I know I am.

“Life Goes On!”

Down Right Scary Part 2

11 Tuesday Feb 2014

Posted by Tim Hughes Living with CML in Uncategorized

≈ Leave a comment

Tags

Cancer, health, Oncologist, worried

Finally got a call from a Dr. Barton, an Oncologist at one of our local hospitals.  I’ve got an appointment at 9:30 am on Thursday of this week.  Now I am a very impatient man and the thought of having to wait until Thursday is about to drive me nuts.

We’ve been having some crazy weather.  We were supposed to get some ice and snow today but it was a no show but now they are predicting more ice and snow for tomorrow night and I’m willing to bet that my appointment will be cancelled due to the weather.

I’m trying not to worry about what could be wrong with me and the thoughts of me having some sort of cancer is scaring me to death.  I’ve got two beautiful teenage daughters and a 20 year old son that I’d like to see grow up.  I’m beginning to doubt that now. Don’t know why because all I’m going on is speculation.  I’ve got a lot of people praying for me so I hope nothing is seriously wrong.

More to come when I know something.

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