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Grayfeathersblog

~ Diabetes, Cancer Fighter, Father of Twins, Kayak Fishing, Woodcrafter, Lover of Life

Grayfeathersblog

Tag Archives: Journey

It’s Not the End of the Road

27 Monday Apr 2026

Posted by Tim Hughes Living with CML in Cancer, Depression, Family, Fishing, Kayaking, Leukemia, Life, Uncategorized

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Tags

adventure, Anger, appointments, Babies, Blogging, Cancer, CML, Depression, Diagnosis, Dreams, Emotions, Family, Help, Journey, Kids, Leukemia, Life, love, Medications, mental-health, Support, writing

Just a quick post.

I have Chronic Myeloid Leukemia (CML). I was diagnosed back in 2014. I’m not going to lie—when I first heard those words, I thought my world had come to an end.

I was devastated.
I got depressed.
I was angry at everything and everyone.

I couldn’t even carry on a simple conversation without it turning into something it didn’t need to be. In short, I wasn’t exactly easy to live with.

The truth is, everything I felt is something a lot of people experience when they hear the word “cancer.” That flood of emotions hits hard. But what I’ve learned since then is this—there is always hope, no matter the diagnosis.

I follow several CML groups online, and I try to help people who are just starting this journey and struggling to process it all.

Last night, I came across a post from a young woman who had just been diagnosed with CML. She was going through the same emotions I went through—fear, anger, and the overwhelming feeling that her life was over. She had just gotten married and was planning to start a family, but now she was ready to give up on that dream. Her husband, loving her the way he does, was willing to give that up, too.

That hit me.

So I reached out to her privately.

I told her what I wish someone had made crystal clear to me in the beginning: things have changed. Years ago, this diagnosis looked very different. Today, it’s not the same story.

There are medications now that can control this disease. It may not be something that just disappears, but it’s something many people live with—and live well with.

I also told her I understood exactly what she was feeling, because I had been there—the anger, the depression, the uncertainty. And I let her know she didn’t have to go through it alone.

And I told her about this blog—about my life after diagnosis, the ups and downs, the fishing trips, the everyday moments. I wanted her to see that there is still a life to live after hearing those words.

Honestly, I didn’t expect a response.

But she wrote back.

And after several messages, I could tell something had shifted. Knowing that someone else had been walking this road since 2014—and is still here—gave her a different perspective. It even made her reconsider the idea that her future, including having a family, might not be over after all.

That right there is why I share my story.

CML is not a death sentence. It’s a bump in the road. A big one sometimes—but not a roadblock.

My numbers still go up and down like a rollercoaster. Some months are good, some aren’t. But it’s been that way long enough that it doesn’t shake me like it used to.

Life goes on.

And that’s exactly what I told her—live your life. Keep your appointments. Take your medication. Listen to your doctor.

But don’t stop living.

Because this diagnosis doesn’t mean the end of your story.

Day One! My Weight Loss Journey

14 Monday Oct 2019

Posted by Tim Hughes Living with CML in Weight Loss

≈ 12 Comments

Tags

Apps, Blood Sugar, Diabetes, Fitbit, goals, Insulin, Journey, Low Carb Diet, Measurements, MyNetDiary, Overweight, Weight loss

IMG_20191014_075609

Good Morning!!  Today is the day that I start my weight loss journey. Posting these pictures are the hardest thing that I’ve had to do.  I can’t stand to see myself in this shape.  What better way to start a diet right?

I have weighed and taken my measurements this morning. I’m not too surprised at what I see.  It could and has been worse.  I’ll post everything later on in this post. My plan is to weigh every day and take my measurements once a month.

The Plan

I have been on hundreds of diets in my lifetime.  The only one that really works for me is the low carb diet along with exercise.  Another thing that I have found that works is being able to track my intake as well as my exercise.  One of the best ways is through some apps that I can  use on my phone. I have a couple of apps that I like. One is Fitbit and the other is MyNetDiary.  Both of which have similarities but differences as well. The MyNetDiary app allows me to track my insulin and my blood sugar as well.

Fitbit offers a way to track your exercise on a daily basis.  It counts your steps for which you can set different daily goals.  The default is 10,000 steps. It counts stairs or sets of stairs should I say, it counts the total miles that you’ve walked in a day, it counts the calories that you’ve burnt or used and if you want, it will even count the hours of sleep you had the night before.  Each one of these have a goal that you can set.

So, let’s get into the plan a little deeper.  Like I said earlier, I will be on a low carb diet.  I will stay at or below 2,000 calories/day. And by way of the Fitbit, I will try to get at least 10,000 steps per day and at least if not more than 30 minutes of exercise per day.

I will log everyday but not necessarily on here. You can though, expect a weekly report.  If you would like to track my progress more closely then you can request to join my Fitbit group.  To do so all you have to do is send me an email at timhughes1963@gmail.com and I”ll hook you up.

As promised, and I’m embarrassed to say, here are my measurements.

  • Waist  43.5
  • Chest  45
  • Thigh  23
  • Calf  17.5
  • Neck  18
  • Weight 280

IMG_20191014_075625

Well, there you have it. Like I said, I’ll post updated pictures about once a month to see if you can see any changes and I might post some weekly stuff as well but I’ll try not to make them boring.

I hope some will follow this journey with me.  I really think this will help me to stay on track.  I nearly forgot, my weight loss goal for the three month time period is 15 pounds.  I have no doubt in my mind that I will be able to reach this goal.  I will have to stay on my diet in order to reach it though.

Wish me luck.

 

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