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~ Diabetes, Cancer Fighter, Father of Twins, Kayak Fishing, Lover of Life

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Tag Archives: Cancer

365 Day Photo Challenge 44/365 “Night Out on the Town”

14 Saturday Feb 2015

Posted by Tim Hughes Living with CML in Photography

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365 Day Photo Challenge, Alabama, Aniversery, Cancer, CML, Gymnastic, Leukemia, Pep Band, Photo, Photography

_1TH1110

Went to Tuscaloosa tonight to the Gymnastics meet and also spent a few minutes with my son who played in the pep band.  Please forgive the picture as I was way up in the stands with my 70-300mm zoom lense.  Our team one which is always a good thing.

Today marks the one year anniversary since my diagnosis of CML.  I’ve got an appointment to see my oncologist in just a little over a month.  I’m still waiting on the test results that state there are no traces of the cancer in my blood.  That day will come soon enough I hope.

365 Day Photo Challenge 34/365 “Good News”

03 Tuesday Feb 2015

Posted by Tim Hughes Living with CML in Photography

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365 Photo Challenge, Alabama, Birmingham, Cancer, Chronic Myeloid Leukemia, CML, Oncologist, Photo, Photography, Railroad Park

http://tchphotography.smugmug.com/Birmingham/i-JfvvrW4/A

Good news to share tonight. I heard from my oncologist today. He said that things looked better this time around.
There are three tests that he performs. All three tests started off extremely high. Two of those test for the past few months have come back with no trace which is what we’re looking for but one of these test is being somewhat stubborn. Six weeks ago the results were .22 which had went up from .134. The last test showed .0015 which is excellent compared to 138 nearly a year ago (normal is between 5 and 10). We’re still looking for zero. I go back in 2 months for another round of tests. Thanks for all your prayers and support.

The above picture is from Railroad Park in downtown Birmingham, Alabama.

365 Day Photo Challenge 30/365 “New Beginnings”

30 Friday Jan 2015

Posted by Tim Hughes Living with CML in Photography

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365 Photo Challenge, bicycling, Cancer, Cycling, diet, goals, Photo, Photo Shoot, Photography, Pregnancy, Trainer, Tredmill, Wedding, Weight, weight gain, Weight loss

http://tchphotography.smugmug.com/Weddings-Engagements/Jeremy-JoAnna/i-bCsGkdK/A

This year has been full of “New Beginnings” and not all of them have been all that good.  I refuse to concentrate on the negatives and I’m trying to focus on all of the positives.  Last year started off really bad and I was hoping that this year would be somewhat better.

My dieting hasn’t been very productive and I haven’t started exercising like I wanted and it’s already February.  It just seems like there is always something preventing me from getting on the trainer or the treadmill.  I’m always finding excuses and it’s always “I’ll do it tomorrow.  I’ve lost 40 lbs in about four months two years ago and I know I can do it again it’s just getting started that’s the trouble.

I’ve got my first photoshoot tomorrow afternoon so my plan is to get up early, get on that treadmill for at least thirty minutes then get my day started.  I need to set up a goal to reward myself for every so many pounds I lose.  It needs to be something that I really enjoy, not food, and that it will be worth losing the weight other than my health. Any suggestions?  I was thinking that every 20 pounds I would reward myself with something.

The above picture is of a couple that I shot for their engagement.  It’s been over a year since they’ve been married and now she is currently pregnant and not doing to good. She’s in her final trimester and the poor girl has been sick since she’s gotten pregnant. She’s a sweet young lady and I’m sure she’ll be a great mother.  After this one she’ll probably not get pregnant again. lol

It’s the weekend.  I hope everyone has a great weekend and I hope you get to spend time with your loved ones.

“Life Goes On!!”

365 Photo/Weight Loss Challenge

01 Thursday Jan 2015

Posted by Tim Hughes Living with CML in Weight Loss

≈ 2 Comments

Tags

365 challenge, Barefoot, Cancer, carbs, Challenges, Weight loss

Hello.  I’ve debated whether or not to do this or not but here goes.

This is me with all my “glory”.  My current weight as of this morning is 300.4 and as of today I’m doing a 365 day weight loss challenge and I’m going to use the 365 Photo Challenge to help me keep track of my progress.  No, you won’t see a picture of me everyday but maybe once a month or so.  If I were to set a goal it would be about 5 lbs a month.  That’s 60 lbs in a year.  I think I can do it.

I will be taking pictures of my everyday life whether it be at work, home or at play.  I enjoy photography so there’s no telling what you might see.  I have a lot going on in my life so be prepared for some interesting stuff.

Wish Me Luck.

I Lost it Today :(

17 Wednesday Dec 2014

Posted by Tim Hughes Living with CML in Cancer, Depression, Leukemia

≈ 2 Comments

Tags

Bad Mood, Bloodwork, Blurred Vision, Cancer, Challenges, Christmas, CML, Depression, Leukemia

Today was not a good day for me.  I guess all the troubles in my life finally caught up with me.

For those just finding out about this blog, I have CML, a form of Leukemia.  I was diagnosed with it this past February.  I’ve been taking Gleevec and until last week I thought I was doing pretty good.  My BCR AbL started off at 138 and had gotten down to .134 three months ago.  My last report last week the test showed that it went up to over 2. It was a big disappointment.  I go back in six weeks.

Last week was the beginning of my trouble when my 17 yr old daughter was involved in an accident.  It seems that an 88 yr old man pulled out in front of her.  My daughter is fine with the exception of some back pain in which she is seeing a doctor about.  This was my wife’s 14 yr old van that was totaled by the insurance company.  We do not really have the funds to get another vehicle at this time especially since Christmas is just around the corner.  Just don’t know what to do at this point.

And to add to already what’s going on I’m having eye issues and I’m going to have eye surgery the first part of January.

This is the Christmas season and it’s supposed to be a happy time.  It usually is but the last few years it get’s harder and harder to get into the Christmas spirit.  With my health the way it is and not knowing what the future holds it’s easy for me to get depressed.  I’m the father of three and I’m supposed to be strong and not show emotions but I’m here to tell you that it’s difficult for me to hold it in.  Especially today.

It was while at lunch today.  We were listening to the company choir sing some Christmas songs when it hit me.  I was remembering the times when my kids were younger and times were much different.  I got to thinking just how much longer do I have?  I was doing ok until the choir started singing a song that I haven’t heard since my childhood and that’s when I started to loose it.  Not wanting to show my emotions in public I had to get up and leave the table.  It took be several hours to get my act together.

Maybe tomorrow will be a better day.

Good News for Now!

24 Wednesday Sep 2014

Posted by Tim Hughes Living with CML in Uncategorized

≈ 3 Comments

Tags

Bloodwork, Cancer, CML, Dr Appt, Leukemia, Medications, Oncologist, Test

Heard from my oncologist this afternoon. My levels has dropped down to .134%.from .734% two months ago. It’s still not zero but it’s slowly getting there. The doctor feels confidant enough to leave me on my current medication. The only thing that was discussed that I’m not to pleased with was the topic of another bone marrow biopsy. We will discuss this more in depth at my next doctor appointment in three months

No News Yet plus Furious

22 Monday Sep 2014

Posted by Tim Hughes Living with CML in Uncategorized

≈ 3 Comments

Tags

Cancer, CML, Dating, daughters, Fatherhood, Furious, Leukemia, text

There’s a saying that no news is good news.  Well, in my case that’s not necessarily so.  I started several times today to call just to see if they had come in but I refrained from doing so.

On another note.  I am so furious right now I can’t see straight.  I have never had to deal with such things until my teenage daughter turned 16 and started dating.  These boys these days are so horrible.  A few weeks ago my daughter got a dear john text.  That within it self made me furious.  What a coward.  About a week later to my disappointment they got back together.  Guess what!  He did it again.  I wished I could put my hands around his neck and teach him the necessity of breathing.  He better be glad he’s away a college right now and not down the road where his parents live.  No one hurts my daughter and gets away with it.  This is part of fatherhood that I’m not prepared for.  Ho does one prepare for such things?

Thanks for following me!!

21 Sunday Sep 2014

Posted by Tim Hughes Living with CML in Uncategorized

≈ 3 Comments

Tags

BCR ABL, Blogging, Blood Cancer, Cancer, CML, Leukemia, Oncologist

Went to the my oncologist last Wednesday.  He was not happy with my last results that was taken over two months ago. BCR ABl test results was .73% which I thought was pretty good until he told me it HAD to be down to zero and had to be within the first six months.  I was diagnosed in February so six months would make it in July.  I’m currently waiting for the doctor to call me to tell me what my results were last week.  If it’s not zero then I’m going to have to get on some other type of meds.

I don’t do this or any other blog for followers but just to be able to get things off my chest.  As I am honored to have each of you follow me I am somewhat surprised to see some what I would call super bloggers that are following me.  I’m really glad to have each and everyone of you on board.

Looking for a stress free zone.

29 Thursday May 2014

Posted by Tim Hughes Living with CML in Uncategorized

≈ 1 Comment

Tags

Cancer, CML, Cycling, Leukemia, Stress, Vision, Weight loss

The last month has been one of those months where nothing seemed to go right.  The last few weeks has just topped it all off.  

I had to have laser treatments in both my eyes and boy let me tell you what an experience that was.  Before my first treatment the doctor told me that there was no words in the English dictionary that would describe just how bright the laser was.  He was right.  I’ve never experienced anything like that before and I hope I don’t have to go through that again any time soon.

All the doctors seem to agree that the CML was the cause of my vision problems and not the Gleevec.  I am now back on my medications.  Although, I do believe my vision is getting a little worse as the time passes.  I don’t go back to either of my doctors until mid July.  

The weather here has been nice enough to ride my bicycle and I’m really glad.  It’s really been nice to be able to get out and do some riding to get rid of some of this stress that I’ve been having to deal with.  My job has really got me to a point where I’m counting the days until I can retire; 4 years, 2 months and 15 days.  In the last nine days I’ve been able to ride seven of those days at at least twenty miles each day.  I’ll be traveling to Dothan, Alabama on the sixth of June to ride in the Tri States Ride on the seventh of June.  I’ll be riding the 45 mile loop.

A lot of changes at work within the past month.  The manager we had resigned and now we have a new manager.  He’s got a military background and is very strict on policies and procedures.  Right now I don’t know if I like him or not.  I’ll have to give him another week or so.

The last two weeks I’ve been repairing air conditioning units on the roof of a warehouse.  Fifteen units to be exact.  Most has had bad compressors and or bad condenser fan motors.  It’s been a real hot job and we’re finally beginning to see the light at the end of the tunnel.  However, rain has entered the equation and the lack of parts so we’ve had to put the repairs on hold until next week.  At least we’ll get a break for a couple of days.  

People keep asking me how I’m doing with my CML.  I’m doing good I guess.  Other than the eye problems and the leg cramps I’ve had no other symptoms of either the CML or the Gleevec.  I’m finally able to see some results of my bike riding plus the dehydration factor of being on the roof for two weeks has really helped out as well.  

Day 30 All is Well

15 Saturday Mar 2014

Posted by Tim Hughes Living with CML in Uncategorized

≈ 2 Comments

Tags

Cancer, Cycling, Dieting, Gleevec, Leukemia, Weight

So far only minimal side effects with my Gleevec.  I feel a little fatigued but that can be related to a lot of other things such as staying up too late and the time change. i am also experiencing some bone pain in my right hip.  Again, this could be related to a number of other circumstances.  It’s not as bad today as I got a chance to ride another 20 miles this afternoon.  

I’ve got to get a hold on my dieting.  I got on my scales this morning and I’ve gained nearly all my weight back.  This is not good.  I am determined to do better.  I’ve got a meeting tomorrow at 1:30 pm so I’m planning on getting up early and doing a 20 mile loop.  That is if ‘it’s not raining.  

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