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Tag Archives: Cancer

The Phone Call That Changed Everything

17 Saturday Jan 2026

Posted by Tim Hughes Living with CML in Cancer, Depression, Diabetic, Disability, Leukemia, Life, Weather

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Anniversery, Cancer, Celebrate, Chemotherapy, CML, Depression, Doctor, health, Lab Work, Laughter, Leukemia, Life, Medicine, Oncologist, Weather

It’s hard to believe, but I’m coming up on my 12th anniversary of being diagnosed with CML (Chronic Myeloid Leukemia). My most recent lab work showed my cancer as undetected—which is always good news… with an asterisk. In my case, “undetected” can be a little sneaky. It can be undetected on one visit and pop back out of range on the next. I wish I could tell you why there’s such a swing, but I don’t do anything differently from month to month. Same diet. Same routine. Same bad jokes. The only thing that really changes is what the numbers decide to do.

I will never forget the day I found out. Or the days leading up to it.

I had gone in for a routine six-month checkup when my GP called and asked me to come back in for more lab work because something looked “off.” Then on February 14, 2014—Valentine’s Day—my wife and I were getting ready to meet one of my daughter’s newest boyfriends. He was coming to pick her up for a high school date, and I was in the important stage of fatherhood known as trying to find the right words to mildly terrify a teenage boy.

That’s when my phone rang.

Keep in mind, this was late on a Friday afternoon, when most doctors’ offices are already mentally in their cars. The nurse told me my white blood cell count was extremely high and that they wanted me to see an oncologist.

At that moment, I had never heard the word “oncologist.” I didn’t know what kind of doctor that was.

During the phone call, my wife quietly looked it up and said, “Tim… that’s a cancer doctor.”

Needless to say, my carefully rehearsed intimidation speech for my daughter’s boyfriend completely left the building.

My appointment was scheduled for the following Tuesday at 10 a.m., which made that weekend the longest weekend of my life. A thousand scenarios ran through my head. I didn’t sleep much. I just wanted Tuesday to get there so I could talk to someone who actually knew what was going on.

Tuesday morning arrived with snow and ice. I kept calling the office. No answer. The hospital sat on top of a steep hill, and the road was iced over. No one was going up it, including me.

Later that day, the temperatures rose, someone finally answered, and my appointment was moved to 2 p.m.

I’ll never forget meeting my oncologist. He made a lasting impression. My wife decided that day she didn’t like him from the start.

I had a thousand questions loaded and ready. I opened my mouth to ask the first one. He held up a finger and said, “I’m talking. When I’m done, I’ll answer your questions.”

And just like that, I realized I was not in charge anymore.

He’s an older doctor, and sometimes I worry that one day I’ll walk in and find out he’s retiring. I’ve been with him nearly the whole time—nearly because there was one stretch when he tried to pawn me off on another doctor at another hospital because my numbers wouldn’t behave. But that’s a story for another time.

The time after my diagnosis was one of the darkest periods of my life. I slipped into a depression I had never known before. I truly thought CML was a death sentence. I was afraid to buy anything because I figured it would just have to be sold or given away. There were days I stayed home—not because I was sick, but because I didn’t want anyone to see me fall apart.

And honestly… at that time, I didn’t care.

Through some very serious conversations with my wife, my parents, and my oncologist, I slowly crawled my way out of that hole. It didn’t happen quickly. It didn’t happen neatly. But it happened.

They say laughter is the best medicine, and while my insurance company may disagree, I’ve found it to be pretty true. If you go back and read some of my early posts, you’ll notice they don’t carry the same humor as the ones I write now. There’s a reason for that.

I still have days when the weight hits harder than others. I still have moments of fear, frustration, and fatigue. But I’ve learned that sometimes it’s better to laugh at life’s situations than to let them crush you. Humor didn’t remove cancer from my life—but it did give me a way to live with it.

So here I am, almost twelve years in. Still showing up. Still rolling the dice on lab work. Still grateful for “undetected,” even when it comes with an asterisk. Still learning. Still stumbling. Still here. And still trying to laugh whenever possible… because some days, laughter is the only thing in the room that reminds you you’re still alive.

If you’re reading this and you’re walking through cancer, or any other terminal or life-altering diagnosis, let me tell you something I had to learn the hard way: don’t give up. Don’t give up on tomorrow. Don’t give up on joy. Don’t give up on the people who love you. And don’t give up on yourself.

There will be dark days. There will be scary appointments. There will be lab results that knock the wind out of you. But there will also be days you never thought you’d see. Conversations you didn’t think you’d have. Laughs, you didn’t think you were capable of anymore. Life doesn’t end when a diagnosis begins. It just changes.

Hold on. Ask questions. Lean on the people God has put in your life. Celebrate the good days. Endure the hard ones. And if all you can do on some days is get out of bed and breathe, then that is more than enough for that day.

Almost twelve years ago, I thought my story was coming to an end.

It turns out that it was just the beginning of a very different chapter.

And as long as there’s breath in your lungs, there is still a reason to keep turning the pages.

Time Doesn’t Stand Still

22 Wednesday Oct 2025

Posted by Tim Hughes Living with CML in Cancer, Depression, Family, Leukemia

≈ 1 Comment

Tags

Cancer, Classmates, CML, Dating, Depression, Family, Grandkids, Great Grandkids, Kids, Lab Results, Leukemia, Life, love, Medications, mental-health, Old Age, Parents, Worrying, writing

The older I get, the more I realize that time doesn’t stand still. It seems like almost every week I hear about someone I used to go to school with or work with who has passed away. Just the thought of it can be depressing.

This past Saturday, I did a craft fair and happened to run into one of my high school classmates and her sister. We had a chance to catch up for a bit, and somehow the conversation turned to the classmates we’ve already lost. Sadly, cancer seems to have claimed most of them.

I’m 62 now — older than many of my classmates since I was held back a year — and although my health hasn’t always been the best, I count myself lucky to still be here.

Most of my classmates already have great-grandkids. Me? None of my three kids are married yet, so I’m not even a grandparent. Only one of the three is dating anyone right now, and I’m not sure when or if the other two will. That’s okay, though. I don’t ever want them to feel pressured. Still, before I go, I’d love to see all my kids married and maybe even get the chance to hold a grandbaby or two.

My parents, who are both in their mid to upper eighties, would love to see great-grandkids too. I have to remind my mom not to put pressure on my kids — she has a way of speaking her mind about things like that.

As I’ve mentioned before, I have a form of leukemia called CML. Right now, it’s under control. Sometimes one of the markers the doctors watch goes a little wild and sends everyone into a panic, but eventually, the numbers settle back down, and all is well again. I’ve come to accept that nothing I do can change the fact that I have CML. All I can do is take my daily pill, stay consistent, and be thankful that the medicine is working. Worrying won’t change the outcome.

Are you the worrying type? What’s the main thing that weighs on your mind — your kids, your health, your future, or something else? I get my worrying honestly; my grandmother on my mom’s side was a worrier, and my mom’s the same way. I guess it just runs in the family.

Life Updates: Weight Loss, Clyde, and Cold Mornings on the River

19 Sunday Oct 2025

Posted by Tim Hughes Living with CML in bariatric-surgery, Cancer, Diabetic, diet, Fishing, Kayaking, Leukemia, Nature, Pets, Weight Loss

≈ 2 Comments

Tags

Anemic, Bariatric Surgery, Bass, Cancer, CML, Cold, Fishing, health, Hobbies, Kayacking, Leukemia, Life, Pets, Temperature, Tumor, Vlogs, Weighloss, writing

I know—it’s been a minute since I’ve posted anything. Honestly, I don’t even remember what I wrote about last time, so forgive me if I repeat myself a bit.

My weight loss journey has finally leveled out—or at least I think it has. My original goal was 190 pounds, but I’ve actually surpassed that by almost 20. I weighed in this morning at 174 pounds and have been hovering there for several weeks now. That’s over a hundred pounds lost in total, which is still hard for me to wrap my head around sometimes. I’m pretty happy with where I’m at.

I don’t regret having the surgery one bit—if anything, I just wish I’d been able to do it sooner. That said, there are a few side effects I could do without. I get these hunger pains unlike anything I’ve ever felt before—sharp, deep aches around my stomach area that only fade after I eat. And since they removed my inflamed gallbladder during surgery, well, let’s just say I have to stay close to a restroom after meals. What goes in tends to come out quickly, and sometimes with little to no warning. Sometimes it’s 30 minutes, sometimes hours later—but when the tummy starts to rumble, it’s a do-or-die situation. I’ll let your imagination fill in the rest.

On a more personal note, my old buddy Clyde is still hanging in there. He’ll be 21 in January if he makes it that long. About a month ago, we found out he has a tumor on his liver. We don’t know if it’s cancerous, but because of his age, surgery isn’t an option. All we can do now is keep him comfortable and make sure his final days are filled with love. The vet couldn’t give us a timeframe, so we’re just taking things day by day. It’s tough to think about, and we’re trying to prepare ourselves mentally—but that’s easier said than done.

I’m still getting out on the river for some kayak fishing about once a week. I love it, but those 4 a.m. wake-up calls are brutal. I usually try to be on the water by sunrise to make the most of the day, and I’m typically done around 2 p.m. That’s a long stretch to be sitting in a kayak, but it’s peaceful out there.

As the temperatures drop, though, I’m not sure how much longer I’ll be able to keep it up. I’m chronically anemic and stay cold most of the time. Anything below 76 degrees is jacket weather for me. In fact, my thermostat is set at 76, and I still wear a jacket indoors most days. I have a trip planned for this Thursday, but the forecast says 43 degrees in the morning. I can bundle up, but once it warms up, I’ll have to stash my jacket somewhere—and space is limited in a kayak. The front compartment is out of reach when I’m seated, so it’s always a bit of a puzzle.

But hey, that’s life. I’ll enjoy it while I can—cold mornings, creaky joints, and all.

I’m also going to try to stay more active on here, share a bit more often, and hopefully regain some of my old followers—and maybe even find a few new ones along the way.

Feel free to ask me anything about my gastric bypass journey, my buddy Clyde, or my fishing trips. I’d love to share what I’ve learned and experienced. And if you’ve gone through weight loss surgery, have a special pet, or just want to chat about your own hobbies, I’d really enjoy hearing about them too.

Time for a Poll

01 Thursday Sep 2022

Posted by Tim Hughes Living with CML in Photography

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Cancer, CML, poll, Weight, Weightloss

Tomorrow is weigh-in. I’d like to see if anyone out there is willing to voice their opinion as to how much I’ve gained or lost.

Come on guys let’s play along. Did I gain weight? If so, how much? Did I lose weight? If so, how much did I lose?

I’m looking forward to seeing what you guys have to say. Remember, I lost over fifteen pounds last week. Did I lose that much again? What do you think??

Alice Fitts. One of the girls that I photographed earlier this week.

Another Year Older

20 Saturday Aug 2022

Posted by Tim Hughes Living with CML in Cancer, Weight Loss

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Birthday, Cancer, health issues, weight gain, Weight loss

A peaceful time and place

I turned 59 a few days ago. I did not go into a dark, deep depression. It was just another day for me. As many health problems as I have, I consider it a blessing just to wake up in the mornings. My wife, on the other hand, has an issue with each birthday she comes across. She’s a little over a year older than me and when she turned 60, let’s just say that she turned into a different person. It took a few days for her to get out of her slump. I’m not looking forward to next year.

I know I’ve written about it before but one of my health issues is that I’m having issues with my breathing. This has been an ongoing thing for several years. It started off as a side effect of one of my cancer medications. The medication was causing fluid to build up around my heart and lungs. I had to have fluid removed from around my lungs on four different occasions totalling up to around 5 liters. The first time I had it done they weren’t sure what was causing my breathing issue and it took several weeks of testing before they found out. During this time I wasn’t able to do much of anything without getting out of breath. Even walking a short distance became a struggle. Remember now, I was still trying to work through all of this.

Like I said, this has been an on going struggle for a couple of years now but after several medication changes it got better. Now it’s back but with a difference. There is no fluid around my lungs. X-rays have proved it. As with the other times, my weight would go up dramatically, and it’s doing the same thing now. I’ve gained upwards around 30 pounds in about a months time. That’s not normal. I’m on mediation to help relieve the fluid but I ran out last week. I had to wait until this week before I could get it refilled because of the insurance.

I think a big contributor to this is salt. I’m supposed to be on a low sodium diet but that’s hard for me to do. I’ve greatly reduced the amount of salt but I need to reduce it some more. Another thing that is not helping is, of course, my diet. I’ve got to do better. I’ve committed myself to a weightloss program for the next six months. But, until I get this fluid undercontrol, I will just continue to gain weight. Losing weight for me right now will definitely be a challenge. One, I get out of breath so easily so walking is a challenge even the treadmill will be a challenge. Two, the fluid. If I only knew the cause then I might could do something about that.2

On August 15th, my birthday, I weighed in at 287.2. On the 16th I weighed 287.4, 18th 288.5, 19th 290.5, also on the 19th I received my medication and the next day, the 20th I weighted in at 286.6. Of course I peed every thirty minutes or so. I haven’t weighed in this morning so I don’t know if I’ve lost any weight or not. BTW, I know I’m going to get some people telling me not to weigh everyday but this is what my cardiologist wants me to do. I should weigh about 275lbs once I get all the fluid off.

I’m planning on posting weekly to let everyone know how I’m doing on my weight loss.

Good Evening!!

02 Thursday Jun 2022

Posted by Tim Hughes Living with CML in Cancer, Cycling

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Tags

Bike, Breathing, Cancer, Tires

Like I said earlier today, I’m still here. I kept thinking that I needed to post something but as always, I got busy with something else. I’ve got a bit of bad news to share. The breathing problems that I’m having are not caused by my heart or fluid in my lungs. What’s worse is that they don’t know why I’m having these issues. I can’t walk into my home and climb the one flight of stairs without becoming winded.

Not so long ago I was riding my bicycle twenty miles a day. Not any more. My son now is riding my bike where he lives. At least my bike is getting some mileage on the tires.

Much Needed Update

20 Sunday Dec 2020

Posted by Tim Hughes Living with CML in Cancer

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Cancer, Doctor Appointment, Exercise, Weight loss

A lot has gone on since my last update. I’ll try to limit my discussion to one or two items as so not to bore you.

My last Oyncologist report was good but on one of the tests shows that my Creatine levels were high so off to the nephrologist I go. Wwe illinated some meds and reduced my lacix but that didn’t help. I was told to lay off my lacix altogether but when I did that I gained nearly ten pounds in a week. Cause? Fluid. Fluid has been my advasary for quite some time. I go to the gym twice a week, I diet all week long, I drink at least 64 oz of water a day but my weight remains about the same each day. As long as I’m on the lacix I’m okay but when I go off it I gain weight. But, on the other hand, while I’m on the lacix I don’t lose weight no matter how hard i try. This has been going on for a couple of months now.

I had a conversation with my cardiologist the other day and he said that he didn’t want me to get my heart rate much above 130 and I’ve been trying to abide by that. It really doesn’t take much to get my heart rate up and when it does it stays around 125 to 135 and that’s when I’m on the treadmill or spin cycle. I usually try to stay on those machines for at least thirty minutes each. When I’m working out with my trainer he has my heart rate up to nearly 120 at times.

Stay tuned and I’ll tell you about my recent eye surgery.

Made my Goal!!

06 Sunday Sep 2020

Posted by Tim Hughes Living with CML in Cancer, Cycling

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Tags

Cancer, Cycling, Kids Cancer

As part of The Great Cyclel Challange, a cycling effort to raise money to fight kids cancer, I have set myself a goal to ride 50 miles a week throughout the month of September. My goal for the event is just 100 miles because at the time I just didn’t think I could ride that much due to not riding any for about a year. It has become apparent that I may want to up my main goal to 200 miles.

I was short milage last week because I had broken a spoke. I’ve never replaced a spoke nor did I have any spokes to replace it with. The guy at the bike shop stated that it would be the 9th of September before I’d get my wheel back. I told him why I needed it back sooner but he didn’t have the same concern that I had. I was able to get the wheel back a lot sooner than expected so that meant that I had at least 23 miles that I had to ride to reach my 50 mile/week goal. Yesterday I road a little over 25 miles which made my weekly goal of 51.98 miles.

The goal starts over today but I’m doing a recovery day. Yesterday came with a small price. I went to stop and I couldn’t get my left foot unclipped from my peddle and down I went. Banged up my left knee pretty bad. I’ve been hurt worse but I’m going to take it easy today. Maybe I’ll spend the afternoon cleaning the bike. It’s gotten quite dirty over the past week of riding.

https://greatcyclechallenge.com/Riders/TimHughes

Life Goes On!

17 Friday Jan 2020

Posted by Tim Hughes Living with CML in Cancer, Diabetic, diet, Leukemia, Weight Loss

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Tags

Cancer, Leukemia, Oncologist, Ulcers, Weightloss, Zantac

_1TH9138Happy belated holidays! Wow!  It’s been a rollercoaster ride for me and my family.  There is no way I can put all that’s been going on in one post.  If I did, it would be a very long post and most would not read to the end.  So, that being said I’ll probably post several topics in the next few days.  I’ll go ahead and briefly tell you what’s been going on though.

Diet  Nonexistent.  I really tired but these holidays were just too much for my weak will power.  I am back on it but and I have lost a few pounds.  I got on my treadmill the other day and I think the thing has a weak motor.  I know I weigh quite a bit but I don’t think the thing should stop suddenly like that. Maybe I’ll rejoin the gym at the local Baptist church up the street.

Dad’s Kidney Stones Dad called me up before Christmas wanting to know if I could take him to the hospital to have a kidney stone removed.  It seems that my mom, which is in her 80’s, had to take her to a clinic in the early morning hours that morning.  The doctor there said that he had a stone which was too big to pass on his own.  1.2mm x .08mm.  The clinic did not have the resources there to break up the stone.  I took him to the hospital and the doctor there said that they normally do not call in the urologist for anything that small.  My dad and I looked at each other. I looked it up and 1.2mm is nearly half an inch.  I called the doctor out on it and he reassured me that my dad could pass the stone.   The day after Christmas, which was about a week later, my sister made an appointment with a urologist and had the stone removed.  I won’t go into how they did it but from the sound of it, I wouldn’t want to have it done.  I spoke to him yesterday and all is well.

Oncologist Report  I haven’t been or heard from my oncologist since last August.  A lot of things have been going on with different meds that had me concerned about my numbers.  You see, I’m on drugs for some ulcers in my lower stomach.  One of the drugs that I’ve been on is Zantac.  This drug has been known to lower the effectiveness of my cancer drug as well as cause cancer too.  In order for the ulcer med to have minimal effect on my cancer drug, there had to be a six-hour delay before I could take my cancer drug after taking the ulcer drug.  Now, the new drug they have me on after taking me off the Zantac, they want me to take it four times a day but still keep the six-hour delay.  Can’t be done.  So far I have only figured out that I can take it in the morning and once at night before going to bed.  This is crazy. Oh, by the way, all my numbers are good.  

Ok, that’s it for tonight.  There are several more interesting items that I want to talk about so stay tuned.

 

 

Feeling Good. New Goals in Life

11 Friday Oct 2019

Posted by Tim Hughes Living with CML in Cancer, Leukemia, Photography, Weight Loss

≈ 6 Comments

Tags

Cancer, Chronic Myeloid Leukemia, Exercise, Fitbit, Leukemia, Low Carb, Weightloss

_3TH3057

As the title says I’m feeling pretty good right now.  My breathing is better, I’m taking iron infusions so my energy is better as well.  So, with that being said, I will be starting on a three month diet beginning on Monday of next week.  I have a plan, one that includes low carb, regular exercise; mental as well as physical.  I’ve joined a neighborhood gym that will help me during the cold and rainy days that are sure to be coming.  I will post regular updates here so I can keep up with my progress.  Also, I’m on Fitbit so if you would like to send me a request, you can see live results.  My email address in timhughes1963@gmail.com

See you on Monday!!!

 

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