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~ Diabetes, Cancer Fighter, Father of Twins, Kayak Fishing, Woodcrafter, Lover of Life

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Tag Archives: mental-health

The Number in the Corner

19 Thursday Feb 2026

Posted by Tim Hughes Living with CML in Disability, Family, Leukemia, Life, Retirement, Uncategorized

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Tags

countdown, Employment, Family, first steps, friendships, HVAC, Job, Life, mental-health, Numbers, Retirement, School, Social Security, writing

Photo by Jan van der Wolf on Pexels.com

In 2018, at age 55, I retired after 32 years with the same company.

Five years before that, the company decided to raise the retirement age from 55 to 65 with 25 years of service. Thankfully, I had already met the age requirement. I was “grandfathered in.”

That phrase never sounded so beautiful. I’d never been so proud to qualify for something simply because I was already old enough.

Ordinarily, I would’ve stayed until 65, so I wouldn’t mess with my Social Security. That was the responsible plan. But my body started holding meetings without my permission. Knees voting “no.” Back filing complaints. Balance requesting reassignment.

You can’t very well do HVAC work if climbing a ladder feels like you’re auditioning for a slow-motion fall.

I turned 55 on August 15, 2018. When I realized I had 42 months until I could retire, I started a quiet countdown.

Every morning, I took readings on the plant’s main HVAC equipment. On the wall was a massive 6 x 4 dry-erase board where I logged the numbers. Up in the far-left corner, I wrote one simple number:

42

On every 15th of the month, I erased it and lowered it by one.

Forty-two.
Forty-one.
Forty.

For three and a half years, that number sat there. No one ever asked what it meant. Not one person.

Either they didn’t notice… or they were silently rooting for it to hit zero.

I started that job on January 26, 1986. It was 19 degrees that morning. I know because my previous job was washing freshly painted utility trucks — outside — in January.

Whoever was lowest on the totem pole got that job.

I wasn’t just on the totem pole.

I was holding it up.

So when I walked into a heated building that morning, I felt like I’d been promoted to royalty.

I even took a two-dollar-an-hour pay cut to take the job. Two dollars an hour back then was real money. But I believed long-term it would pay off.

When I first started, I didn’t have any college education. Just a high school diploma and a willingness to work. But I kept getting passed over for promotions. One supervisor finally told me straight: “You’ll keep getting passed over unless you go back to school.”

That was hard to hear — but it was true.

An HVAC supervisor came to me and said that if I went back to school and learned the trade, he’d help me every step of the way. And he did.

So I worked full-time and went to school at night.

Those were long years.

I missed some things.

My son’s first baby steps were taken one night while I was sitting in a classroom trying to understand airflow calculations. I didn’t see them in person. I heard about them when I got home.

That part still stings a little.

You tell yourself you’re doing it for your family — and you are — but sometimes providing for them means missing moments you can’t ever get back.

I learned HVAC systems.

I just wish I’d learned how to be in two places at once.

For 32 years, I gave that place blood, sweat, and a few tears they probably didn’t log on the dry-erase board. I worked alongside some of the smartest people I’ve ever known. We solved problems together. Ate lunch together. Complained quietly together.

I went to their kids’ birthday parties. Camped with some of them. Attended funerals for their family members.

We weren’t just coworkers.

We were everyday life.

And then one day, I walked out.

Retirement is strange.

One day, you’re the guy everybody calls when something breaks.

The next day… nothing breaks that requires your number.

At first, I kept my phone close. Surely someone would need advice. Surely they’d call and say, “We can’t find this,” or “What did you do about that?”

Turns out, they figured it out.

Rude.

Before COVID, I’d stop in and have lunch with some of them. Now I mostly see them on Facebook. I still hear from a couple of guys, but it’s rare.

You work beside someone for 15 years and assume that bond is permanent. But when the daily routine disappears, you realize proximity and permanence aren’t the same thing.

I suppose I could call them. But they’re working. And when they’re home, they need family time.

And I’m retired.

Which means I now have plenty of time to think about things like dry-erase boards, 19-degree mornings, and baby steps I heard about instead of saw.

That number in the corner wasn’t just a countdown to retirement.

It was a countdown to a new season.

For 32 years, I was “the HVAC guy.” The steady one. The one who knew where everything was and how everything worked.

Now I’m the guy who drinks coffee in the morning without a time clock waiting on me.

And you know what?

That’s not a bad promotion.

I’m grateful.

Grateful for heated buildings on cold mornings.
Grateful for supervisors who pushed me.
Grateful I got to leave on my terms.

And grateful that even though I missed a few first steps…

I didn’t miss the rest of the journey.

When that number finally reached zero—

I erased it.

And walked out the door.

On my own two slightly creaky, but still standing, legs.

When Life Schedules You Back-to-Back

12 Thursday Feb 2026

Posted by Tim Hughes Living with CML in Family, Fishing, Life, Photography, Uncategorized

≈ 1 Comment

Tags

appointments, Bloodwork, Doctor, Family, Financce, health, investments, Life, Medicare, mental-health, Procrit, repairs, writing

Today was one of those days where it felt like my full-time job was simply showing up somewhere else every few hours. Three appointments, three different parts of life, all packed into one long day.

I left the house around 9 a.m. for my first appointment at 10. I pulled in around 9:30 — early, I know — but I’ve always believed it’s better to be thirty minutes early than five minutes late. Plus, if something crazy happens, I’ve got buffer time. If nothing crazy happens, I get bonus time to sit in a waiting room and read my Kindle.

To my surprise, I was the only one in the waiting room, which rarely happens. I half expected someone to jump out and yell, “Just kidding, we’re running two hours behind!”

Then came the usual routine: three sticks before they finally got enough blood for testing. At this point, I think my veins hide when they see a needle coming. I’m pretty sure if they could talk, they’d be yelling, “Scatter! It’s Tuesday again!”

This visit was to my oncologist’s office to check my hemoglobin. It’s been running low for quite a while now. Normally, I go in once a month for a Procrit shot to help my body produce red blood cells and fight the anemia. Normal hemoglobin runs between about 12 and 15. Mine has been in the 6.5 to 8 range for a couple of years now — basically the bargain-bin section of hemoglobin numbers.

We tried iron infusions at first. They worked… briefly. Then it was right back to square one. When Procrit was first suggested, Medicare wouldn’t cover it. That meant $400 per shot, once a month. For that price, I feel like it should come with a steak dinner and a T-shirt.

Thankfully, Medicare eventually changed course and started covering it.

The good news today? No shot needed. My hemoglobin came in at 11.1. Still low, but close enough that the doctor decided to hold off and test again next month. I’ll take that as a small win. Around here, we celebrate small wins. Sometimes with coffee. (Which, apparently, is now under review.)

Next stop was my primary care office. I ended up seeing the nurse practitioner because my doctor was in a bad car accident several months back and is currently in rehab. His daughter, who is also a nurse practitioner, has been helping cover patients. We’re not sure whether my doctor will return to his practice. It’s a wait-and-see game for now.

Unfortunately, she can’t prescribe the narcotic meds I’m on, so I’ll have to go back next week to see another doctor just to get those refilled. Nothing like making a special trip just to prove you’re still the same person who needed the meds last week.

They were also supposed to retest my potassium levels today. That didn’t happen.

Instead, I got the lecture about my coffee habit and how high potassium can damage kidneys. Considering I’m already fighting to keep my kidney numbers where they need to be, I guess it’s time to start thinking about weaning myself off coffee.

Let me be clear: this may be the greatest personal challenge I have faced to date.

I don’t want to say coffee, and I are in a committed relationship… but we’ve definitely been exclusive for a long time.

My last appointment was with my financial adviser. He manages my retirement funds, and we meet yearly to review where everything is invested and how things are performing. Thankfully, things look solid. What he’s doing is working, and that’s a huge relief. I like the idea of continuing to eat and keep the lights on.

We also talked about future plans — mainly selling this house and moving somewhere safer. This neighborhood just isn’t what it was 35 years ago. That’s a whole story for another day, probably involving the phrase “kids these days.”

The bigger issue right now is the house itself. There’s a long list of repairs waiting for attention.

The deck my dad and I built over 25 years ago is starting to splinter and show its age. It probably needs to be torn down and replaced completely. Part of me hates that. The other part of me hates splinters more.

There’s visible wear around the chimney. The painters we hired five years ago did a poor job — but we went cheap, and sometimes you really do get what you pay for. Apparently, we paid for “looks good from across the street.”

Both bathroom vanities need replacing. The stairs need the carpet removed and the laminate installed. The roof needs shingle work before it decides to become an indoor water feature.

My adviser’s advice was simple: get several estimates, choose the contractor we trust most, then call, and they’ll cut the check. Easy… at least on paper.

Now comes the fun part — finding contractors.
I know of one.
Which means I am now officially accepting applications from the universe.

I was actually supposed to go fishing tomorrow, but it looks like it will be late afternoon before temperatures get comfortable enough for me to be outside for any length of time. So I decided to postpone it until spring decides to show up regularly instead of just teasing us for a few hours at a time.

The fish are safe for now… but their luck runs out the minute spring clocks in full time.

Some days are about big life moments.
Some days are about survival.
And some days are just about showing up, getting poked with needles, getting lectured about coffee, and trying to keep life moving forward one appointment at a time.

Today was one of those days.

And honestly?
I’m grateful I was able to make them all.

Even if I may have to say goodbye to coffee soon.
Please keep me in your thoughts during this difficult time.

Kayak, Quiet, and Keeping It Together; Out There, I Found Myself Again

11 Wednesday Feb 2026

Posted by Tim Hughes Living with CML in Cancer, Depression, Fishing, Kayaking, Leukemia, Life, Nature, Uncategorized

≈ 2 Comments

Tags

Cancer, Cell Service, Communication, Depression, Diabetes, Dialysis, Fishing, Garmin Mini InReach, GPS, health, kayak, Kayaking, kidney failure, Leukemia, Life, love, mental-health, Nature, religious, satellite, solitude, writing

My fishing buddy texted me Monday night asking if we were still meeting for breakfast Tuesday morning—a morning ritual we started a few months back. For the second time in two weeks, I had to tell him no because of doctor appointments. I worry that he thinks I’m brushing him off, but honestly, that’s not the case at all.

We’re both at an age—and health status—where we really shouldn’t go fishing alone. He’s 72 and has had five strokes. Thankfully, his health has improved a great deal, and I’m not overly worried about the two of us being out in an area with no cell service for hours on end. I carry a Mini InReach, a satellite communicator that allows me to send and receive text messages via satellite if things go sideways and help is needed. It even has an SOS button. If either of us were to have a medical emergency, pressing that button would send our GPS coordinates to rescuers. It might take a few hours, but help would be on the way.

I’m 62, and if you’ve read any of my posts, you already know I have my own long list of health concerns. Having a partner with you in a place where two-way communication is sketchy isn’t just a good idea—it’s warranted.

But it comes at a cost.

Sometimes, I need to be alone. I enjoy getting out in my kayak, stopping for a while, and just absorbing the sounds of nature. It’s where I have one-on-one time with my God. Rick is always nearby, as he should be, but I no longer feel like I truly get that quiet space. If I slow down to let him get ahead, he stops too, probably just to make sure nothing’s wrong.

When I first started kayak fishing, I went alone. Rick didn’t have a kayak then. Back then, my world felt like it was closing in on me. My cancer numbers were out of control, my kidneys were failing, and dialysis felt like the only road left in front of me. I was depressed, scared, and felt more lost than I ever had in my life.

Being out in the middle of nowhere—surrounded by silence, by peace, by the kind of beauty only God could create—gave me something I couldn’t find anywhere else. It gave me room to breathe. It gave me space to think. It gave me a place where I could be honest about how scared I really was. Sometimes it didn’t fix anything… but sometimes it gave me just enough strength to get through one more day.

I needed that time alone. It wasn’t about fishing. It wasn’t about getting away from people. It was survival. It was the only place where I felt I could truly talk to God and not feel like I had to be strong for anyone else.

This isn’t meant to be a religious post. I don’t use this platform for politics, religion, or controversy. This is simply how I dealt with a situation that felt completely out of my control.

I hope each of us has a place we can go—a place of solitude, reflection, prayer, or even just quiet—where we can catch our breath when life feels too heavy.

And I want to ask something, not as a writer, not as someone posting on social media, but as someone who knows what it feels like to be overwhelmed:

How do you deal with depression?
When you feel like things are getting out of control, how do you hold on?
What helps you get through the days when everything feels heavier than it should?

Because the truth is… someone reading this right now might be barely holding on.
Someone might be smiling on the outside and falling apart on the inside.
Someone might just need to know they’re not the only one fighting that battle.

If you have something that helps you keep going, share it.
You might help someone more than you will ever know.

When a Routine Becomes a Memory

03 Tuesday Feb 2026

Posted by Tim Hughes Living with CML in Boy Scouts, Cancer, Diabetic, Disability, Life, Uncategorized

≈ 1 Comment

Tags

awards, blood, Bloodwork, Boy Scouts, camping, ceremony, Coffee, Doctor, Dutch Oven, health, labwork, leader, Life, mental-health, needles, Scouts, writing

Tuesdays are my long days.

They start at 4:00 a.m. — rolling out of bed, grabbing a shower, getting dressed, and heading straight to the kitchen for the first of what will be four cups of coffee. Tuesday mornings mean Bible study across town at 6:00 a.m., so once my first 22-ounce cup is ready, I sit at the kitchen table and go over the material we’ll be covering later that morning. Sometimes I’ll pour a bowl of cereal while I drink my coffee and wake up enough to be conversational.

This morning, though, I lost track of time. One coffee refill turned into “oh wow, I need to leave now.”

I left the house about ten minutes later than normal, thinking I could make up the time on the drive. That thought lasted right up until I hit a blocked road. Detour ahead. The detour added about twenty minutes to my drive, which pretty much killed any hope of being early. And I’m one of those people who would rather be thirty minutes early than five minutes late. I ended up pulling in right at 6:00 a.m. — which, technically, is on time… but still feels late to me.

Normally, after Bible study, I head back toward home and stop for breakfast with one of my fishing buddies. Not today. Today was lab work day, which meant going to the doctor’s office to give blood. Ever since I lost all this weight, nurses seem to have trouble getting blood from me without sticking me multiple times. Either the blood stops flowing, or my veins decide to roll out of the way like they’re dodging responsibility.

This morning was no different. Three sticks before they found a vein that cooperated long enough to get what they needed.

After lab work, I went across the street to a diner and grabbed a breakfast sandwich to go. Once I got home, I spent most of the afternoon working on Boy Scout awards. We’ve got an awards ceremony for the young men in our troop this Saturday, and everything had to be sorted and organized. Of course, I found out I’m missing some awards, so tomorrow it’s back to the Scout office to track those down.

Tuesday nights are — or maybe I should say were — Scout nights for me.

Tonight was my last regular Tuesday night with the Boy Scouts. We have the awards ceremony on Saturday, and that will be my last official night serving as a leader. I’m not going to say much more about that until after Saturday. I’ve got something in mind that I’ll be writing about and posting here once everything is finished. All I’ll say for now is… it’s bittersweet.

After the meeting, some of the leaders stayed behind talking about old times and even tossing around ideas about future camping trips. I haven’t been home long, and it’s getting late. I’m not really sure what my Tuesday evenings will look like starting next week. Part of me is a little sad… and part of me is relieved.

I do have a training class starting next month that will fall on Tuesdays, but it’s only for eight weeks. After that? I guess we’ll see what new routine Tuesday decides to become.

I Just Wanted a Burger, Not a Lecture

26 Monday Jan 2026

Posted by Tim Hughes Living with CML in Life, Uncategorized

≈ 2 Comments

Tags

blog, choices, gender, grace, identify, imperfection, lecture, Life, love, mental-health, non-binary, politics, pride, writing

Photo by Towfiqu barbhuiya on Pexels.com

I’ve been debating on posting this for a long time, and honestly, I really didn’t have a reason to—until just recently.

I was at a drive-through the other day, placing an order like I’ve done a thousand times before. When I pulled up to the window, I addressed the person there as “ma’am.” Simple. Automatic. The way I was raised.

And that’s when the wheels came off the wagon.

I had made the mistake of identifying the person at the window as the wrong gender. My mistake. I went purely by appearance. I’m one of those people who tends to call it like I see it. If it quacks like a duck, it must be a duck…right?

Apparently not.

The person at the window immediately began to chastise me for not reading their mind.

Now, let me stop right here and say this: I wasn’t trying to insult, provoke, belittle, or make a statement. I wasn’t being sarcastic. I wasn’t trying to be clever. I was just ordering food. Hungry, slightly impatient, and completely unprepared for a pop quiz on modern social navigation.

I also want to be clear about something else. I don’t do political posts. I avoid them on purpose. If someone wants to label this as political, then congratulations—this will officially be my first and last one.

Here’s where I stand, plain and simple. If you’re a man and want to be a woman, so be it. If you’re a woman and want to be a man, so be it. If you identify as non-binary, or something else entirely, that’s your life and your choice. It’s not my job to run it, and it’s not my place to stop you.

But I also don’t believe it’s reasonable to expect strangers to instantly know what’s in your head.

Somewhere along the line, something that used to be automatic—sir, ma’am, he, she—has become a minefield. And the expectation, at least in that moment, was that I should somehow know the correct answer before the question was ever asked.

That’s the part that stuck with me.

We live in a time when communication is supposedly easier than ever. We’ve got phones, apps, and watches that tell us to stand up and breathe. And yet, basic human interaction feels more complicated than ever. Instead of conversation, correction. Instead of grace, assumption.

Here’s the honest truth: I’m going to get things wrong sometimes. Not out of hate. Not out of stubbornness. Not out of disrespect. But because I’m human, I’m older than Google, and I grew up in a world where appearances usually matched labels.

And maybe the better answer—for all of us—is a little more patience.

If I misidentify you, tell me. I’ll listen. I’ll adjust. I’m not above learning. But I don’t believe shame, scolding, or public correction at a fast-food window is how understanding is built. Respect shouldn’t be a weapon; it should be a bridge.

Life’s already heavy enough. We’re all carrying something. A bad day. A loss. A diagnosis. A bill we don’t know how to pay. The last thing we need is to turn a cheeseburger exchange into a courtroom drama.

So this isn’t a rant. And it’s not a political crusade. It’s one simple request from one imperfect human to another:

If I get it wrong, tell me. Don’t try to teach a lesson. Don’t draw a line in the sand. Just tell me.

Because I’m not your enemy. I’m just a guy in a drive-through trying to buy lunch.

And if we’ve reached a point in life where a stranger deserves a public scolding instead of a quiet correction, then maybe the real thing we’ve lost isn’t proper labels.

Maybe it’s grace.

Can You Hear Me Now?

15 Thursday Jan 2026

Posted by Tim Hughes Living with CML in Family, Life

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Tags

Boredom, Cell Phone, Computer, Conversation, FaceBook, Family, mental-health, Outage, Phone Booth, Phone Call, social-media, Talk, technology, Texting, Verizon, writing

For many Americans today, the answer was a resounding “No!” Verizon Wireless went down, and just like that, millions of us were spiritually transported back to 1983. Society wobbled. Productivity plummeted. Somewhere, a teenager had to actually talk to someone.

With our phones suddenly reduced to very expensive paperweights, many of us were forced to resort to smoke signals, carrier pigeons, and aggressively refreshing the screen like that was going to fix anything.

I was sitting in a doctor’s waiting room when it happened, and it was better than cable. People kept picking up their phones… staring at them… turning them sideways… tapping them harder… then setting them back down. Five seconds later? Same ritual. Over and over. It looked like a support group for the technologically dependent.
Full disclosure: I was absolutely one of them.

We’ve grown so accustomed to grabbing our phones to check Facebook, watch a YouTube video, text a friend or spouse, or occasionally even make an actual phone call. When that little pocket computer doesn’t work, it feels like someone unplugged part of our brain. I half expected a nurse to walk in and say, “Sir, you seem confused… do you know what year it is?”

We’ve lost the art of voice communication. Kids will sit around the breakfast table and text their friends instead of talking to the rest of the family. You can have four people in the same room, all on their phones, silently sharing videos with people who aren’t there. These little glowing rectangles have become idols that we worship. We can’t seem to live without them — not even for a couple of hours. If the Wi-Fi hiccups, we act like we’re auditioning for a survival show.

I’m old enough to remember the dark ages — before pocket computers ruled our lives. Back when a “dead zone” meant the phone cord wouldn’t reach the couch. If you were bored in a waiting room, you didn’t scroll… you committed. You read a six-year-old magazine about kitchen remodeling. You memorized a poster about heartburn. You judged people quietly.
And somehow… we lived to tell the tale.

Granted, there was a moment today when I really wished I could call or text my wife to let her know I’d be making a few stops on the way home. Instead, I found myself longing for the return of phone booths — the kind where you could pull over, squeeze inside, dig a quarter out of the cup holder, and make an honest-to-goodness phone call.

No apps.
No passwords.
No updates.
No, “your call is very important to us.”

Just a dial tone, the smell of warm plastic, and the unsettling feeling that the last person in there may have been a superhero… or a criminal.

Maybe today’s outage was a good reminder that the world won’t end if our phones stop working. Conversations still exist. Eye contact is still legal. And boredom, while uncomfortable, won’t actually kill us — though judging by that waiting room, several people were close.

So if you need me, I’ll be over here practicing my smoke signals, teaching kids how to communicate using actual words, and checking my cup holder… just in case phone booths ever make a comeback.

Please Hold…My Brain is Loading

11 Sunday Jan 2026

Posted by Tim Hughes Living with CML in bariatric-surgery, Cancer, Family, Leukemia, Weight Loss

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Tags

B12, blog, Brain Fog, Buffering, Chemotherapy, CML, Concentrating, Diary, Drugs, Forgetfulness, gastric bypass, health, Leukemia, Life, Medications, Memory, Memory Loss, Mental, mental-health, Sleep, Sticky Notes, Venting, writing

When I started this blog some years ago, it was mainly meant to be a diary of sorts — a place to vent and to voice my opinions. Gaining an audience was never part of the plan. This was more “Dear Diary” than “Dear Internet.” It wasn’t until I was diagnosed with CML that I decided to use this platform to write about my experiences with cancer and maybe, just maybe, help some other poor soul going through the same thing.

As with most things in life, plans change. Sometimes gently. Sometimes with a two-by-four.

Not only was I dealing with CML, but I also decided to write about my experiences with gastric bypass surgery. When I was doing my research, I noticed there really wasn’t much content out there. And what I did find often ended shortly after surgery, for whatever reason — almost like everyone vanished once the anesthesia wore off and nobody ever came back to update the internet.

There’s something else that’s been going on for quite some time, and I’ve finally decided to put it down on paper. I’ve been experiencing brain fog for several years, and over time, it has gotten worse. “Brain fog” is a term used to describe symptoms such as difficulty concentrating, memory problems, mental cloudiness, confusion, and trouble finding words — essentially, feeling like your brain is running Windows 95 in a world that expects fiber internet.

I notice it most when I’m trying to carry on a conversation and, right in the middle of it, my mind just… leaves. Names vanish. Phone numbers disappear. Sometimes I forget what I was saying while I’m still saying it. Short-term or long-term, it doesn’t matter. It’s there… then it’s not, kind of like my car keys.

What makes this so difficult isn’t just the symptoms themselves, but how they sneak into everyday life. I’ll walk into a room and forget why I’m there. I’ll open my phone to look something up and immediately forget what I was looking for. I’ll stand in the kitchen staring into the fridge like it’s going to explain my life choices to me.

Conversations that should be easy sometimes turn into mental obstacle courses as I search for words I’ve used my entire life. It affects my confidence more than I care to admit. When you can’t trust your own memory, you start second-guessing yourself. You hesitate before speaking. You rely more on notes, reminders, and the people around you. I’m grateful for their patience, but it’s a strange feeling when your own brain doesn’t always show up prepared.

Some days are better than others. There are moments when everything feels clear and normal, and I start to think maybe I’ve turned a corner. Then there are days when my thoughts feel like they’re moving through mud, and even simple tasks take extra effort. Those are the days that wear on you — not with fireworks, but with a steady drip of “Seriously? Again?”

If you Google the term “brain fog,” you’ll find a long list of possible causes: lack of sleep, medications, chemotherapy, B12 deficiency, and even anemia. I’ve spoken to my doctor about it, and while some over-the-counter options might help, with my anemia and the chemotherapy drugs I’m on, they may not make much difference. In other words, this may just be part of my user agreement for now.

I don’t share any of this for sympathy. I share it because this blog has always been about honesty — the good, the bad, and the occasionally forget-why-I-walked-in-here. Brain fog may be part of my story right now, but it’s not the whole story. I still laugh, I still enjoy life, and I still manage to function… even if I need a few more sticky notes than the average person.

I’ve learned to adapt. I write more things down. I set reminders. I give myself a little more grace than I used to. And when I lose my train of thought mid-sentence, I’ve decided it’s perfectly acceptable to blame the fog, shrug, and move on. If nothing else, it gives the people around me a chuckle — and honestly, some days I’m laughing right along with them.

And if you ever see me standing in a room staring off into space like I’m waiting on divine revelation, don’t worry. I’m probably just buffering.

Unwelcomed Alarm

10 Saturday Jan 2026

Posted by Tim Hughes Living with CML in Weather

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Tags

Alarm, Challenges, Coffee, health, Life, mental-health, National Weather Service, Production, Rain, Sleep, Storms, Thunder, Weather, writing

I wrote in my last post about how crazy our weather has been. Apparently, the weather department took that as a challenge.

Last night, it decided to toss in another curveball — a cold front pushing through, dragging thunderstorms along with it. We spent most of the day and evening under a tornado watch. By bedtime, we had already picked up nearly three inches of rain, and the storms were still rolling in. The thunder wasn’t rumbling anymore; it was auditioning for a demolition crew.

Before going to sleep, I set my phone alarm for 5:30 a.m. so I could get up and get ready for men’s Bible study at 8. Responsible. Mature. Clearly overconfident.

Sometime later, I heard an alarm and woke up. I didn’t question it. I just accepted my fate. I took a long, hot shower, shaved, got dressed, and headed to the kitchen. I started the coffee and even remember thinking, “Tracy should be getting up soon. It’s got to be around six.”

The first pod finished, and I glanced at the stove clock.

4:10 a.m.

I stared at it, waiting for it to blink and say “Just kidding.”

It didn’t.

I checked my watch. Same time. That’s when it hit me — I hadn’t been woken up by my phone alarm. I’d been summoned by the weather radio.

I sat down in my recliner with my coffee and pulled up the radar. Sure enough, the National Weather Service had issued a flash flood warning at 3:45 a.m. That alert was the “alarm” that launched me into full morning-person cosplay.

So there I was — clean, dressed, caffeinated, and absolutely betrayed — living in a time slot meant only for bakers, farmers, and people who lost a bet.

There was no going back to bed. And even if I tried, I’d probably sleep right through the real 5:30 alarm just to complete the joke.

Moral of the story: I don’t need an alarm clock. I need a personal meteorologist who knows when to mind his business.

A Little Health Update (Spoiler: I’m Still Kicking)

11 Thursday Dec 2025

Posted by Tim Hughes Living with CML in Cancer, Leukemia

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Tags

health, Iron, Kidney, Life, Melanoma, mental-health, Oncology, Pain, Potassium, update

I haven’t posted about my health in a while, so here’s your semi-regular episode of “What’s My Body Doing Now?”

First up, the oncology report: still no detectable blast cells for about eight months. 🎉 I’m not throwing a party just yet, because last time I got excited, my labs basically said, “Surprise!” and did their own thing. But for now, we’ll call it a win.

Iron levels? Yeah… those are still on strike. I’ve officially been diagnosed with chronic anemia, which explains why I’m always freezing and walking around the house like it’s January in Alaska. I’ve had so many iron infusions I’m pretty sure I’m 3% metal at this point. Waiting on Marvel to call.

And then there’s the potassium situation. Apparently my potassium levels have been creeping up. My oncologist thinks it’s tied to the kidney failure. Meanwhile, I barely eat any high-potassium foods, so my best guess is that my body is just freelancing at this point.

Skin cancer update: I had a melanoma spot and another bonus cancer removed from my left arm a little over a month ago. They left some lovely scars, which I now refer to as battle wounds because that sounds way cooler than “my dermatologist wanted a closer look.”

Now they’ve moved on to my back. I had a spot removed Tuesday that they think might also be melanoma. We’ll know more when the biopsy comes back, but let me tell you… back pain is a whole different universe. I slept approximately 12 minutes that night because I couldn’t get comfortable. Tylenol and I are in a committed relationship now.

Anyway, that’s the latest episode. Thanks for tuning in. Same time next month for whatever plot twist my body decides to add next. 😅

Hospital Visits, Craft Fairs, and Nine Hours of News

07 Friday Nov 2025

Posted by Tim Hughes Living with CML in Family

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Tags

Calendar, Craft Fair, Family, Hospital Stay, Life, love, mental-health, News, Siblings, Stress, writing

Patriotic Black Slate Coaster

If you’ve known me for more than five minutes, you know I live by my calendar. It’s not just a planner — it’s my Bible, my life map, and my emotional support spreadsheet. I color-code, I plan ahead, and if something’s not on the schedule, it’s basically not real.

So imagine my stress level when my mom landed in the hospital and my siblings decided we all need to “take turns sitting with her.”

Now, before anyone clutches their pearls — she’s fine. She’s getting great care from an entire team of professionals who actually know what they’re doing. The woman is being treated better than most people at a five-star resort.

Meanwhile, my siblings and I are out here acting like we need to take shifts in case she suddenly decides to join the Hospital Olympics. Spoiler alert: she’s not going anywhere.

The thing is, I’ve got a craft fair coming up next weekend, and that means I need to be creating — not sitting in a hospital room pretending to enjoy watching nine hours of nonstop news coverage. Nine. Hours. I don’t even like watching nine minutes of the news. I can only listen to so many “breaking” stories about things that broke three days ago before I start questioning my life choices.

But there I sit, smiling, nodding, pretending I’m not slowly dying inside while she argues with the TV. I could be home making candles, painting signs, or doing literally anything that doesn’t involve election updates.

And when I say, “Hey, my schedule’s packed,” my siblings look at me like I just said I’m skipping Christmas. Listen, I love Mom. I’ll visit. I’ll call. I’ll even bring snacks. But she’s being well cared for — by actual trained professionals — while I’m over here trying to figure out if I can make fifty more gnomes before Friday.

So no, I’m not heartless. I’m just scheduled. And if loving my mom and respecting my calendar at the same time is wrong, then I don’t want to be right.

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