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Tag Archives: Doctor

Built with Love (and a Little Bit of Crooked Math)

30 Thursday Apr 2026

Posted by Tim Hughes Living with CML in Arts and Crafts, Cancer, Disability, Family, Fishing, Kayaking, Leukemia, Life, Nature, Retirement, Uncategorized, Woodworking

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adventure, Appointment, Back Pain, Bible Study, CML, Doctor, Family, gardening, Gift, Handmade, Leukemia, Life, love, Math, Mom, Mother's Day, Pain, Theology, Tools, Woodworking, writing

With Mother’s Day fast approaching, I decided it was time to push through the pain and make something for my mom. She loves plants—like, really loves plants—so I figured a couple of wooden planters would be the perfect gift. Plus, I’ve got a pile of scrap wood that’s been quietly judging me for months, including some cypress fencing material my wife has been not-so-subtly encouraging me to “do something with.”

So, around 9:30 this morning, I dragged all my equipment outside and got to work. By about 11:30, I had everything cut down to size and was feeling pretty good about life. That’s usually the exact moment things take a turn.

I started assembling the first planter and quickly realized something wasn’t right. The pieces weren’t lining up like the plans said they should. Now, the plans called for ¾-inch wood… and I’m working with ½-inch. Details, right? Apparently not. Turns out, those little fractions matter.

Still, I pressed on.

At this point, I’ve got one planter about 90% complete. It’s… let’s just say “custom shaped.” Not exactly square, which means putting the top boards on requires some math. And if you’ve followed me for any length of time, you already know—math and I are not on speaking terms. I’m pretty sure an angle finder is in my near future, the next time I wander into the store pretending I know what I’m doing.

After spending most of the day bending, lifting, and moving around, my back has officially filed a formal complaint. Sitting usually doesn’t bother me, but tonight I can’t seem to find a position that doesn’t make me question why I thought this was a good idea. The heating pad is doing its best, but the second I move, my back reminds me who’s really in charge. I took a pain pill earlier, but it’s apparently operating on its own schedule.

After looking at what I’ve completed on this planter, I’m not really happy with it. It’s one of those projects that looked a whole lot better in my head than it does sitting in front of me. So, there’s a good chance this one becomes a “keep it at the house” planter, and I’ll come up with something else for Mom.

I guess you could say this was my practice run… whether I planned it that way or not.

It all really depends on how I’m feeling after this upcoming pain block. If I can get a little relief and move around without feeling like my back is plotting against me, I may give it another shot and build something I’m actually proud to give her.

If not, well… Mom may be getting something a little less handmade and a little more store-bought this year—and honestly, she’ll probably love it just the same.

As for doctor updates, I’ve now got two appointments lined up—one with the orthopedic in mid-June and another with a pain specialist next Thursday. I’m hoping the pain specialist can help take the edge off until June gets here.

And yes, I’ll admit it… I probably shouldn’t have stayed out on that kayak as long as I did last Thursday. But I’ll still argue it was worth it. I needed that time on the water—maybe just not that much time.

Tomorrow looks like it’ll be a recliner day. I plan on catching up on my Bible study material for Tuesday morning. Theology isn’t exactly my strong suit, but I’m giving it my best shot—kind of like woodworking and math.

I also had a visit with my oncologist last week. My iron levels were low again, so they gave me a shot of Epoetin alfa to help boost my red blood cell production. They also ran my BCR-ABL1 test to check on my CML. The last several tests over the past six months have come back non-detectable, which is great news. I’m curious to see how this one turns out, though—it seems like those numbers like to keep me guessing. Should have results in a few days.

Other than that, things are pretty quiet around here. I’ll finish up that planter (eventually), survive the math, and hopefully have something worth showing for it.

I’ll check back in when I’ve got something else to write about… or when the second planter decides to humble me too.

Heating Pad Chronicles

26 Sunday Apr 2026

Posted by Tim Hughes Living with CML in Arts and Crafts, Family, Life, Retirement, Uncategorized, Woodworking

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adventure, Appointment, Back Pain, Cancer, Doctor, health, Healthy, Life, mental-health, Oncologist, orthopedic, Pain, Pain Management, technology, writing

I’m officially down.

This morning at church, it was all I could do just to sit there and make it through the service. I’m pretty sure I shifted positions more than a kid in a hard wooden pew for the first time. But I made it.

After church, I managed to go to lunch with my girls, which was worth pushing through the discomfort. My son was out of town, so I didn’t get to see him today, which was a little disappointing—but I’ll catch him next time.

After that, it was straight home.

Pain pill. Recliner. Heating pad on high.

(Shocking, I know.)

I did finally hear back from my doctor yesterday, and she gave me the rundown on my back. Turns out, there’s some pretty serious stuff going on in there. Not exactly the kind of “surprise” you’re hoping for. She’s referred me to an orthopedic doctor to talk about pain management injections and figure out what the next steps look like.

Here’s the ironic part—it’s in the same office as my Charcot doctor. At this point, I’m thinking about just asking if they offer a rewards program. Maybe after a certain number of visits, you get a free coffee or something.

Of course, scheduling the appointment isn’t as simple as picking up the phone like a normal human being. Nope. Everything has to be done online now. I had to fill out all my information just so they can call me… to set up an appointment.

So basically, I did all the work… just to wait.

Sometimes technology doesn’t make things easier—it just makes them take longer in a more complicated way. I’d much rather just call, talk to a real person, and get it handled in five minutes instead of playing this back-and-forth waiting game.

As for tomorrow, those plans are officially cancelled. I was supposed to head to the shop and do some woodworking to get ready for my next show, but there’s no way that’s happening. Right now, the only thing I’m building is a deeper relationship with this recliner.

I’m hoping I can at least make it through Tuesday.

I’ve got Bible study in the morning, an appointment with my oncologist in the afternoon, and my last CERT class that night—which includes a written test. Then Saturday is the big drill where we’re supposed to be tested on everything we’ve learned over the past eight weeks… including the physical stuff.

So yeah… no pressure.

At this point, I’m just hoping to feel human again by then.

Until I can get back on my feet, I’ll probably spend some time looking up new woodworking plans. If I can’t build anything right now, I might as well plan what I’m going to build when I can.

Other than Tuesday, it looks like me and this recliner are going to be spending a lot of quality time together until I hear from the orthopedic doctor.

Not exactly how I planned my week…

But for now, this is where I’m at.

An Expensive Day on the Water (and the Ones That Got Away)

25 Saturday Apr 2026

Posted by Tim Hughes Living with CML in Diabetic, Fishing, Kayaking, Life, Uncategorized

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Adventrue, Back Pain, Costly, Doctor, Equipment, Expensive, Experience, Fishing, kayak, Kayak Fishing, Lesson Learned, Life, MRI, Nature, Travel, writing

{Eidited:) This post was supposed to go out last night (Friday), but I had fallen asleep in my recliner while editing. I woke up at 3:30 this morning and decided it was time for me to go to bed.

I’ve been “offline” for several days now, and honestly, I think life has finally caught up with me.

Between attending both of my Bible study groups, keeping up with my Tuesday night training sessions, trying to stay on top of my craft work, and dealing with ongoing back pain, it’s been a lot. Probably more than I should’ve been trying to juggle all at once.

To make matters worse, I’ve been trying all week to get in touch with my doctor’s office. I’ve left several messages with his nurse and haven’t heard anything back. I know they’re in a tough spot—my doctor passed away, and his daughter is doing her best to keep the practice going—but at some point, I’d just like to know what my MRI results are and what the next steps look like.

This back pain? It’s not subtle.

If I sit with a heating pad or lie down, I’m fine. But standing, walking very far, or trying to get up out of a chair without armrests feels like I’m auditioning for a role in a slow-motion action movie… except there’s no action. Just pain.

Now, what I’m about to say might make you question my judgment. That’s okay—I’ve been questioning it myself.

Most of you know I have an early Bible study on Tuesday mornings. After that, I usually meet up with my fishing buddy for breakfast, and like clockwork, the conversation turns to one thing: When are we going fishing?

We both love it. Probably more than we should.

We’re also not exactly the healthiest guys around. He’s got heart trouble, and I’ve got my own collection of “maybe don’t do that alone” conditions. So, logically speaking, kayaking on a river by yourself probably shouldn’t make the list of good decisions.

But here’s the thing…

Before he ever got a kayak, I used to go fishing alone all the time and never thought twice about it. No worries. No hesitation. Just me, the water, and whatever fish were willing to cooperate—which, let’s be honest, wasn’t many.

After we started fishing together, though, I began to realize maybe going alone wasn’t the smartest idea. These days, I do carry a satellite tracking device that keeps up with me and lets me send messages, which sounds impressive until you realize it doesn’t paddle the kayak for you if something goes wrong.

There’s also something I hate to admit: I actually enjoy fishing alone.

There’s a peace to it. No talking. No coordinating. No “what spot do you want to try next?” It’s just quiet… and the occasional sound of me getting frustrated.

But I know if I go without him, it bothers him. Which makes it feel like I shouldn’t.

Well, this week gave me an opportunity.

He had a doctor’s appointment on Thursday, and I didn’t have anything planned. Wednesday and Friday were already booked, so Thursday became the perfect window.

And I took it.

I went fishing alone.

Now let me tell you… It was peaceful. It was quiet. It was relaxing.

It was also expensive.

Not “grabbed breakfast on the way” is expensive. I’m talking, watch your money sink into the river while you sit there helplessly, expensive.

First to go was my measuring board—about a $40 piece of equipment that decided it no longer wanted to live on this earth. One small slip, and it vanished into about 10 feet of murky water like it had been training for this moment its entire life.

I barely had time to process that loss before my brand-new fishing reel—yes, the one I had just received the day before and proudly put on my rod—decided to malfunction.

So there I am, sitting in a kayak, performing what I can only describe as back-alley surgery on a fishing reel, when suddenly the drag knob pops off.

Time slowed down.

It slipped out of my hands…
bounced once on the side of the kayak…
and with perfect aim… dropped straight into the water.

Gone.

Just like that.

I sat there for a second, staring into the water, thinking, “Did that really just happen?” Followed immediately by, “That was expensive.”

At that point, I hadn’t caught a single fish. Not even a bite.

To say I was discouraged would be an understatement. I seriously considered paddling back to the launch and calling it quits. In my mind, catching a fish had become less about enjoyment and more about trying to justify the expense of being out there.

So I stayed.

And eventually, I started catching fish.

I officially brought four bass to the boat. It took from about 6:30 in the morning until 3:45 in the afternoon—but who’s counting? (Me. I was definitely counting.)

Now, unofficially… that number should be higher.

I had several fish on the line that apparently took one look at the kayak and decided, “Yeah, I’m not doing this today.”

One by one, they shook loose like they had somewhere better to be. No goodbye. No apology. Just gone.

Honestly, my total would be a whole lot higher if I could count the ones that “got away.” But as every fisherman knows, those are always the biggest ones anyway. If you ask me tomorrow, I’m pretty sure at least two of them will have been record-breakers.

By the end of the day, I was worn out, a little sore, and slightly poorer than when I started.

Was it worth it?

Financially? Not even close.

Physically? My back has been filing complaints ever since.

But somehow… I still had a good time.

I’ve already ordered a new measuring board, and it should be here before my next trip. The reel? Well, we’ll just say I learned some valuable lessons about fixing things over open water.

I’m not entirely sure there’s a clear moral to this story.

Maybe it’s that sometimes things don’t go your way. Sometimes they go really wrong. And sometimes they cost you more than you planned.

But even then, you can still find a way to enjoy the day.

Or maybe the lesson is this:

If you’re going to lose expensive equipment… at least catch a few fish to make yourself feel better about it.

And maybe—just maybe—next time I’ll tie everything down.

…or bring my buddy so he can watch it happen.

Grace Through the Chaos

08 Wednesday Apr 2026

Posted by Tim Hughes Living with CML in Family, Life, Uncategorized

≈ 1 Comment

Tags

Back Pain, Coffee, Death, Doctor, Family, health, Heating Pad, Insurance, Life, love, Shower, Water Leak, writing

Currently, I’m in my recliner—coffee in hand, heating pad doing its best to negotiate peace with my back. And as I sit here, I can honestly say this past weekend is one I wouldn’t care to repeat anytime soon.

The emotional rollercoaster alone was enough to wear me out.

A few months ago, my doctor of 40 years was involved in a near-fatal car accident. For four decades, this man has been more than just a doctor—he’s been a steady presence in my life. The kind of doctor who knows you, not just your chart.

Since the accident, his daughter—a nurse practitioner—has been stepping in and taking care of his patients. The last I heard, he was in rehab and making progress. There was hope. Even with the complications from his pancreas injury, things seemed to be heading in the right direction.

Then Easter weekend came.

We had family over and made a conscious decision to set aside the plumbing chaos and focus on what Easter is really about. For a little while, everything felt normal again. Laughing, eating, spending time together—it was a much-needed pause.

But Monday morning had other plans.

Like I usually do, I started my day with a devotion and then sat down to scroll through Facebook. That’s when everything shifted.

Right there on the screen was the news—my doctor of 40 years had passed away due to complications from his pancreas.

Just like that… he was gone.

It’s hard to explain the weight of that kind of loss. It’s not just losing a doctor—it’s losing someone who has walked alongside you through so many seasons of life. Someone you trusted without question.

And in the middle of processing that, reality didn’t pause.

I had been waiting on MRI results from the previous week, and now I’m left wondering how—or when—I’ll even receive them. It’s a strange feeling… needing answers, but suddenly not knowing where they’ll come from.

Then there’s my son’s situation.

After all the speculation and stress, we finally got to the root of the plumbing issue. It turns out the culprit was a mixing valve in the guest bathroom shower. It had been leaking hot water for quite some time, and the damage… well, let’s just say it didn’t hold back.

Walls will have to be removed.
Flooring in the living room—gone.
Parts of the kitchen tile are also coming out.

It’s one of those situations where the problem hides quietly until it decides to introduce itself in a big way.

The repair itself was handled today, and the water mitigation crew has already started their work—cutting into walls, setting up fans and dehumidifiers, and beginning the long process of drying everything out.

Now comes the part nobody enjoys—dealing with the insurance company.

So far, they’ve been less than eager to step up. If it were up to them, I’m pretty sure they’d prefer to pretend the whole thing never happened. Thankfully, the mitigation team has experience dealing with this kind of pushback and has assured us they’ll fight to make sure the necessary repairs are covered.

We’ll see how that plays out.

But if there’s any silver lining in all of this, it’s this:

At least we didn’t have to tear up the living room slab chasing a mystery leak.
He’ll end up with a new wood floor.
And he has people in place who know how to handle the construction—and the insurance headaches that come with it.

Sometimes, that’s about as good as it gets.

This weekend was a reminder of how quickly things can change. One moment you’re celebrating with family, and the next you’re dealing with loss, uncertainty, and unexpected challenges.

But through it all, one thing remains the same—faith, family, and the strength to take the next step forward… even when you’d rather just stay in the recliner a little longer.

And for now, that’s exactly where I’ll be.

Coffee in hand. Heating pad on.
Taking it one moment at a time.

From Toughing It Out to Tapping Out by 10:30 AM

28 Saturday Mar 2026

Posted by Tim Hughes Living with CML in Life, Twins, Uncategorized, Woodworking

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adventure, Back Pain, Doctor, Drowsy, Family, health, Life, Medication, mental-health, Muscle, Pain', Reaction, Relaxer, Sleep, Tolerance, writing

I’ve always considered myself pretty good at dealing with pain. Not superhero-level or anything, but enough to where I can usually just shrug it off and keep going.

My wife, on the other hand… well, let’s just say pain and her are not exactly best friends.

Now, before I get myself in trouble, I should point out that she did go through childbirth twice—once with twins—so when the moment calls for it, she can absolutely tough it out. She just prefers not to make a hobby out of it like I apparently do.

As for me, I’ve been dealing with this back pain for as long as I can remember. Never really complained much about it. I just chalked it up to muscle fatigue, getting older, or doing something dumb and pretending I didn’t.

Turns out… muscle fatigue was not the issue.

According to the latest X-rays, this has been something a little more “interesting” all along. And lately, just to keep things exciting, the pain decided to crank itself up over the past month.

Naturally, my pain tolerance—once my greatest ally—has started waving the white flag. So today, I finally broke down and reached for the pain meds.

At the doctor’s office the other day, they gave me a steroid shot, and I have to admit—it worked. Yesterday morning, I got out of bed without feeling like someone was stabbing me in the back. It was a beautiful, almost spiritual experience.

This morning? Not so much.

That shot wore off like a good dream, and reality came back with a vengeance.

On top of that, I was prescribed Methocarbamol—a muscle relaxer. The doctor told me, “Take it at bedtime… and during the day if you need it. Just be aware it might make you drowsy.”

Might.

Last night, I took one and thought, “This isn’t so bad.” I stayed awake for a while and figured I was in the clear.

This morning, after wrestling my way out of bed, I decided to take another before heading to Bible study.

Thirty minutes later… I was unconscious in the recliner.

Not “a little sleepy.” Not “slightly drowsy.” I mean full-on, lights out, someone-check-my-pulse kind of asleep.

My wife had to come wake me up so I could even attempt to get ready. I made it to Bible study, but staying awake was more of a suggestion than a reality.

By the time I got back home, I sat down in the recliner—and that’s about all I remember.

My day officially ended at 10:30 in the morning.

All the plans I had for the day? Gone. Completely wiped out. The only thing I accomplished was catching up on all the sleep I’ve been missing from staying up late and getting up early preparing for these craft shows.

So I guess… not a total loss?

Tomorrow is church, and after that, I’ve got a big date planned with my recliner and heating pad. We’ve grown very close lately.

With a little rest (and maybe slightly less “effective” medication), I’m hoping by Monday I can get back to working on the projects that didn’t stand a chance today.

Until then, I’ll be right here—taking it easy and trying not to accidentally time-travel to the next day every time I take my medicine.

A Car Accident, Too Many Phone Calls, and a Future Son-in-Law

04 Wednesday Mar 2026

Posted by Tim Hughes Living with CML in bariatric-surgery, Boy Scouts, diet, Family, Fishing, Kayaking, Life, Retirement, Twins, Uncategorized, Weight Loss, Woodworking

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accident, Alarm, Appointment, Bible Study, Boy Scouts, Breakfast, Car, Coffee, Daughter, Doctor, Engraver, Family, fault, Fishing, health, Interruption, Kayaking, Laser, Life, Marriage, mental-health, Phone, Police, Woodworking, writing

Tomorrow is Thursday, and this week has gone from bad to worse.

My 4 a.m. alarm didn’t go off Tuesday morning, which meant I missed my Tuesday Bible study. That may not sound like a big deal to most people, but it is to me. I haven’t missed one since I started going nearly six months ago.

I woke up around 5 a.m. and immediately realized it was too late to rush around and try to make it on time. The real sign that I wasn’t rushing anywhere was that I didn’t even make coffee first thing. Anyone who knows me knows that’s a sure sign something is off.

After getting cleaned up and eating breakfast, I headed out to the shop and started working on some crafts with my laser. I’ve got a craft fair coming up, and every spare minute seems to be dedicated to getting items ready for it. My breakfast appointment wasn’t until 8 a.m., so I had some time to kill.

I met my friend Rick for breakfast, and of course, the first thing he asked was when we were going fishing. I told him “Soon,” but explained that I had some projects I needed to finish before the craft show. I could tell he wasn’t thrilled with that answer.

During breakfast, my phone kept ringing. No fewer than four people called wanting to talk about Scout-related matters. Even though I consider myself no longer involved in Scouts, apparently, the news hasn’t fully spread yet.

Once I got back home, I went right back to working on my crafts. Before long, the phone started ringing again. More Scout calls.

Running a laser in the shop requires attention. It’s essentially a controlled fire, and if you’re not careful, things can go wrong in a hurry. After trying to juggle phone calls and watch the laser at the same time, I finally decided it wasn’t worth the risk. I shut the laser down.

At 1 p.m., I had a dentist’s appointment.

I have a love-hate relationship with my dentist. I’ve been seeing him for over 30 years, and I trust him completely. But that doesn’t mean I enjoy what he does. I absolutely cannot stand the sound of a dental drill.

Thankfully, I haven’t had a cavity in years, but every now and then, he has to replace a filling that he put in decades ago. Yesterday was one of those days.

After leaving the dentist, things took a turn for the worse.

While merging into another lane, I was hit by a car. The driver had been turning left onto the roadway and collided with me. Before the police arrived, he admitted to me that it was his fault. But when the officers got there, his story had changed. Suddenly, he was telling them that I ran into him because I wasn’t paying attention.

There had been a witness who told me he saw the young man hit me. Unfortunately, by the time I tried to get his information, he had already left. Now I’ll have to wait five to seven business days to pick up the police report and see what it says.

Today was my bariatric appointment.

At one point, my lowest weight was 165 pounds. To be honest, I didn’t look very healthy at that weight. I had gotten too thin. People were quietly asking others if I had some sort of serious illness and wasn’t telling anyone.

My scale at home said 185 pounds this morning. I knew the doctor’s office scale would be a little heavier because of shoes and clothes. Sure enough, it read 191. Still, that’s lower than my last reading at the doctor’s office a year ago.

My doctor would like me to get down to about 175 pounds. He thinks that’s my ideal weight. Personally, I’m pretty comfortable where I am now, but I wouldn’t mind getting down to 175. I just don’t want to go much lower than that.

The next couple of days will be catch-up days.

I have projects cut out that still need sanding. Items that are sanded but need painting. And pieces that are painted but still need to be glued together and assembled.

But even with all the chaos this week, there has been a bright moment.

My wife and I had dinner with one of my daughter’s boyfriends. During dinner, he asked us for permission to ask my daughter to marry him.

It felt strange even writing that sentence.

I can hardly believe that soon I may have a married daughter and gain a son-in-law. He’s a good young man, and I truly believe he cares deeply about her. I know she feels the same way about him.

She had been worried that I might not give my permission. But I would never stand in the way of my daughter’s happiness.

That moment was a candle in what had otherwise been a pretty dark and stressful week.

Now I’m hoping the rest of the week goes by quietly and uneventfully.

After all the doctor’s appointments, the phone calls, and a car accident, I think I’ve earned a couple of calm days.

When Life Schedules You Back-to-Back

12 Thursday Feb 2026

Posted by Tim Hughes Living with CML in Family, Fishing, Life, Photography, Uncategorized

≈ 1 Comment

Tags

appointments, Bloodwork, Doctor, Family, Financce, health, investments, Life, Medicare, mental-health, Procrit, repairs, writing

Today was one of those days where it felt like my full-time job was simply showing up somewhere else every few hours. Three appointments, three different parts of life, all packed into one long day.

I left the house around 9 a.m. for my first appointment at 10. I pulled in around 9:30 — early, I know — but I’ve always believed it’s better to be thirty minutes early than five minutes late. Plus, if something crazy happens, I’ve got buffer time. If nothing crazy happens, I get bonus time to sit in a waiting room and read my Kindle.

To my surprise, I was the only one in the waiting room, which rarely happens. I half expected someone to jump out and yell, “Just kidding, we’re running two hours behind!”

Then came the usual routine: three sticks before they finally got enough blood for testing. At this point, I think my veins hide when they see a needle coming. I’m pretty sure if they could talk, they’d be yelling, “Scatter! It’s Tuesday again!”

This visit was to my oncologist’s office to check my hemoglobin. It’s been running low for quite a while now. Normally, I go in once a month for a Procrit shot to help my body produce red blood cells and fight the anemia. Normal hemoglobin runs between about 12 and 15. Mine has been in the 6.5 to 8 range for a couple of years now — basically the bargain-bin section of hemoglobin numbers.

We tried iron infusions at first. They worked… briefly. Then it was right back to square one. When Procrit was first suggested, Medicare wouldn’t cover it. That meant $400 per shot, once a month. For that price, I feel like it should come with a steak dinner and a T-shirt.

Thankfully, Medicare eventually changed course and started covering it.

The good news today? No shot needed. My hemoglobin came in at 11.1. Still low, but close enough that the doctor decided to hold off and test again next month. I’ll take that as a small win. Around here, we celebrate small wins. Sometimes with coffee. (Which, apparently, is now under review.)

Next stop was my primary care office. I ended up seeing the nurse practitioner because my doctor was in a bad car accident several months back and is currently in rehab. His daughter, who is also a nurse practitioner, has been helping cover patients. We’re not sure whether my doctor will return to his practice. It’s a wait-and-see game for now.

Unfortunately, she can’t prescribe the narcotic meds I’m on, so I’ll have to go back next week to see another doctor just to get those refilled. Nothing like making a special trip just to prove you’re still the same person who needed the meds last week.

They were also supposed to retest my potassium levels today. That didn’t happen.

Instead, I got the lecture about my coffee habit and how high potassium can damage kidneys. Considering I’m already fighting to keep my kidney numbers where they need to be, I guess it’s time to start thinking about weaning myself off coffee.

Let me be clear: this may be the greatest personal challenge I have faced to date.

I don’t want to say coffee, and I are in a committed relationship… but we’ve definitely been exclusive for a long time.

My last appointment was with my financial adviser. He manages my retirement funds, and we meet yearly to review where everything is invested and how things are performing. Thankfully, things look solid. What he’s doing is working, and that’s a huge relief. I like the idea of continuing to eat and keep the lights on.

We also talked about future plans — mainly selling this house and moving somewhere safer. This neighborhood just isn’t what it was 35 years ago. That’s a whole story for another day, probably involving the phrase “kids these days.”

The bigger issue right now is the house itself. There’s a long list of repairs waiting for attention.

The deck my dad and I built over 25 years ago is starting to splinter and show its age. It probably needs to be torn down and replaced completely. Part of me hates that. The other part of me hates splinters more.

There’s visible wear around the chimney. The painters we hired five years ago did a poor job — but we went cheap, and sometimes you really do get what you pay for. Apparently, we paid for “looks good from across the street.”

Both bathroom vanities need replacing. The stairs need the carpet removed and the laminate installed. The roof needs shingle work before it decides to become an indoor water feature.

My adviser’s advice was simple: get several estimates, choose the contractor we trust most, then call, and they’ll cut the check. Easy… at least on paper.

Now comes the fun part — finding contractors.
I know of one.
Which means I am now officially accepting applications from the universe.

I was actually supposed to go fishing tomorrow, but it looks like it will be late afternoon before temperatures get comfortable enough for me to be outside for any length of time. So I decided to postpone it until spring decides to show up regularly instead of just teasing us for a few hours at a time.

The fish are safe for now… but their luck runs out the minute spring clocks in full time.

Some days are about big life moments.
Some days are about survival.
And some days are just about showing up, getting poked with needles, getting lectured about coffee, and trying to keep life moving forward one appointment at a time.

Today was one of those days.

And honestly?
I’m grateful I was able to make them all.

Even if I may have to say goodbye to coffee soon.
Please keep me in your thoughts during this difficult time.

Under the Microscope… Again (Apparently I’m Now 5.9% Banana)

06 Friday Feb 2026

Posted by Tim Hughes Living with CML in bariatric-surgery, Diabetic, diet, Life, Uncategorized, Weight Loss

≈ 4 Comments

Tags

addiction, Appointment, Bloodwork, Change, Coffee, craving, Doctor, Food, health, labs, labwork, Life, lifestyle, pottassium, relationships, Surgery, writing

Lab results are in, and just like that… I’m under scrutiny again.

When I got the email with the results, the first thing that jumped out at me was my potassium. High. Again.

This isn’t new. It was high before, then magically went back to normal on the retest. Go figure. But here we are again. My doctor called yesterday and told me my potassium was elevated to an “extremely high” level. Naturally, I went digging through my past labs, and I noticed a pattern — since my weight-loss surgery last April, my potassium has been slowly climbing.

And I have absolutely no explanation why.

For those who don’t live their lives waiting on lab portals to refresh, high potassium — or hyperkalemia — means there’s too much potassium in your blood. Normal is between 3.5 and 5.0 mEq/L. Mine? 5.9 mEq/L.
Apparently, that extra .9 is where doctors start using their serious voice.

Now here’s where it gets interesting.

The only real lifestyle change I’ve made since surgery is that I’ve apparently developed a full-blown relationship with coffee. Before surgery, I had never enjoyed a single cup in my life. Not one drop. Loved the smell. Hated the taste. But after surgery? My body apparently said, “You know what we need? Coffee. All of it.”

Those pre-surgery classes warned me this might happen. Foods you hate, you’ll crave. Foods you love, you might hate. They never warned me I’d wake up one day emotionally attached to a coffee mug.

I’ve asked other doctors if coffee could be the culprit. Most said, “Probably not,” though they also gently hinted that maybe I shouldn’t be drinking coffee like it’s my full-time job. This latest doctor, however, seems less convinced.

The nurse asked how much coffee I drink in a day.

I was honest.

  • 22 oz before breakfast
  • 22 oz with breakfast
  • 22 oz sometime after supper

Apparently, this is not the answer they were hoping for.

And it doesn’t stop there.

If I go somewhere, I have a freshly made 22 oz riding with me in the truck. I also have what can only be described as a coffee emergency kit — a toolbox with all the fixings — just in case I get stranded somewhere that doesn’t have a coffee shop with my brand of coffee.

Yes. I know. It’s really sick.

Some people say caffeine keeps them awake. Not me. I can drink coffee at 9 PM and be asleep by 11 like a toddler after a long day at daycare. I’m not wired all day. I’m not bouncing off walls. I’m just… caffeinated and functional.

Her suggestion?
Limit myself to one cup per day.

Not one 22 oz cup.
One. Cup.

Friends… that is simply not going to happen.

Today I tried. I drank only one 22-oz cup. And I spent the rest of the day thinking about coffee like it was an ex who still had my hoodie.

I go back to the doctor next Tuesday for more labs. Hopefully, I can make it until then. And maybe — just maybe — they’ll tell me it’s not the coffee doing this.

So now I wait. More labs. More monitoring. More trying to figure out what exactly my body is doing and why it suddenly decided potassium is its favorite hobby.

In the meantime, if you see me walking around slightly jittery but emotionally stable, just know I’m doing my best… and possibly negotiating with myself about a second cup.

When a Routine Becomes a Memory

03 Tuesday Feb 2026

Posted by Tim Hughes Living with CML in Boy Scouts, Cancer, Diabetic, Disability, Life, Uncategorized

≈ 1 Comment

Tags

awards, blood, Bloodwork, Boy Scouts, camping, ceremony, Coffee, Doctor, Dutch Oven, health, labwork, leader, Life, mental-health, needles, Scouts, writing

Tuesdays are my long days.

They start at 4:00 a.m. — rolling out of bed, grabbing a shower, getting dressed, and heading straight to the kitchen for the first of what will be four cups of coffee. Tuesday mornings mean Bible study across town at 6:00 a.m., so once my first 22-ounce cup is ready, I sit at the kitchen table and go over the material we’ll be covering later that morning. Sometimes I’ll pour a bowl of cereal while I drink my coffee and wake up enough to be conversational.

This morning, though, I lost track of time. One coffee refill turned into “oh wow, I need to leave now.”

I left the house about ten minutes later than normal, thinking I could make up the time on the drive. That thought lasted right up until I hit a blocked road. Detour ahead. The detour added about twenty minutes to my drive, which pretty much killed any hope of being early. And I’m one of those people who would rather be thirty minutes early than five minutes late. I ended up pulling in right at 6:00 a.m. — which, technically, is on time… but still feels late to me.

Normally, after Bible study, I head back toward home and stop for breakfast with one of my fishing buddies. Not today. Today was lab work day, which meant going to the doctor’s office to give blood. Ever since I lost all this weight, nurses seem to have trouble getting blood from me without sticking me multiple times. Either the blood stops flowing, or my veins decide to roll out of the way like they’re dodging responsibility.

This morning was no different. Three sticks before they found a vein that cooperated long enough to get what they needed.

After lab work, I went across the street to a diner and grabbed a breakfast sandwich to go. Once I got home, I spent most of the afternoon working on Boy Scout awards. We’ve got an awards ceremony for the young men in our troop this Saturday, and everything had to be sorted and organized. Of course, I found out I’m missing some awards, so tomorrow it’s back to the Scout office to track those down.

Tuesday nights are — or maybe I should say were — Scout nights for me.

Tonight was my last regular Tuesday night with the Boy Scouts. We have the awards ceremony on Saturday, and that will be my last official night serving as a leader. I’m not going to say much more about that until after Saturday. I’ve got something in mind that I’ll be writing about and posting here once everything is finished. All I’ll say for now is… it’s bittersweet.

After the meeting, some of the leaders stayed behind talking about old times and even tossing around ideas about future camping trips. I haven’t been home long, and it’s getting late. I’m not really sure what my Tuesday evenings will look like starting next week. Part of me is a little sad… and part of me is relieved.

I do have a training class starting next month that will fall on Tuesdays, but it’s only for eight weeks. After that? I guess we’ll see what new routine Tuesday decides to become.

When “Stable” Is a Standing Ovation

30 Friday Jan 2026

Posted by Tim Hughes Living with CML in Cancer, Diabetic, diet, Leukemia, Life, Uncategorized, Weight Loss

≈ 2 Comments

Tags

Diagnosis, Dialysis, Doctor, eGFR, energy, Flood, health, Hemoglobin, Hospital, infusion, Iron, Kidney, kidney disease, kidney failure, Kidneys, Life, Medical, Nepgrologist, Oncologist, wellness

My nephrologist called me the other day to reschedule my appointment. Apparently, the hospital had a flood on the top floor, and their offices were flooded as well. Because when you’re already dealing with kidney issues, why not throw in some surprise indoor rain?

As a result, they had to temporarily move their offices to one of their satellite locations in a nearby city. The day before my appointment, they called again and asked if we could just do a teleconference instead. Same time, same doctor, no driving, and no pants required from the waist down—absolutely.

My lab work had already been done a couple of weeks earlier, and because I like to mentally prepare myself for either good news or emotional damage, I had my results emailed directly to me. Now, I’m not a doctor, and I don’t pretend to understand every number on those reports, but there are a few that I follow very closely.

First up is eGFR, or estimated Glomerular Filtration Rate. This number tells you how well your kidneys are filtering your blood. A normal range is between 90 and 120—numbers I personally haven’t seen in a while and would probably frame if they ever showed up again.

  • 60–89 is Stage 2 kidney disease
  • 45–59 is Stage 3a
  • 30–44 is Stage 3b
  • 15–29 is Stage 4
  • Below 15 means kidney failure, and dialysis becomes a very real conversation

Then there’s Creatinine, a waste product filtered by the kidneys. In simple terms, the higher the number, the worse things are working. Think of it as your kidneys’ performance review—lower is better.

The last big number I keep an eye on is hemoglobin, the protein responsible for carrying oxygen throughout your body. This one has a direct impact on how much energy I have, which explains why some days I feel like I could conquer the world, and other days I need a nap after tying my shoes. Normal range is 13.2-17.1

So here are the numbers I focus on:

  • eGFR: 35
  • Creatinine: 2.09
  • Hemoglobin: 10.5

Now yes, an eGFR of 35 doesn’t exactly scream “picture of perfect health,” but context is everything. Last year, that number was 14. At that point, my doctor was already talking about my next visit being with a dialysis specialist. That’s not a meeting you look forward to.

So going from 14 to 35? I’ll call that a solid upgrade.

My creatinine also improved significantly—from 4.29 last year down to just over 2. Another small victory, but I’ll gladly stack those wins wherever I can get them.

Hemoglobin, however, continues to do whatever it wants. It fluctuates so much that I regularly need iron infusions. My oncologist thinks it’s related to my kidney function, while my nephrologist believes it’s tied to the chemo drug I’m on. At this point, I feel like the two of them should arm wrestle, and whoever wins gets to be right.

When the call wrapped up, my nephrologist said she was happy with where things are. She even used the word “stable.”

And if you’ve never dealt with chronic illness, “stable” might sound underwhelming. But when you live in this world, stable is a beautiful word.

Stable means no dialysis—for now.
Stable means nothing is getting worse.
Stable means today is better than last year.

So yeah, I’ll take stable.
No complaints.
And preferably without any more floods—indoor or otherwise.

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