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~ Diabetes, Cancer Fighter, Father of Twins, Kayak Fishing, Lover of Life

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Tag Archives: Doctor

New Year equals New Beginnings

22 Friday Dec 2023

Posted by Tim Hughes Living with CML in Weight Loss

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Doctor, lifestyle, Weight loss

I had to wait until I got paid this month before I was able to but I signed my wife and myself up to the required class for the bariatric surgery. I also called my primary doctor and I’ve set up the first of three appointments that are also a requirement for the surgery. These appointments are to monitor how well I’m doing to adjust to my new lifestyle. The doctor will have to fill out paperwork to be turned in to the surgen after the three months. I still have no clue as to what my cost will be.

I had a visit with my phuminologist the other day and the nurse that did my trioge mentioned to me that she had the surgery about a year ago and she had lost over sixty pounds. I would be extremely happy with sixty pounds. As just so happens, my daughter worked at the same school that she did so they know each other. My daughter told me she looked huge. She still has some weight to lose but she doesn’t look nothing like she did sixty pounds ago.

I suspect April or May if I’m approved. That’s my goal.

Step Two Complete

08 Friday Dec 2023

Posted by Tim Hughes Living with CML in Photography, Weight Loss

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astrology, balance, Doctor, healthandwellness, Moon, shrink, universal-energy, weight loss surgery

The above moon shot is this month’s Beaver Moon.

Today’s appointment was with a Shrink. Supposedly, after all the weight loss, there might some be behavioral issues and they wanted to find out if I already had some issues that might need to be addressed. I had seen a shrink a couple of years ago when I was trying to get on dissability so I sort of knew what to expect. She said I passed. I had 26 out of 30 possible points. My next step is to get a chest x-ray sometime next week. I’m going to have to schedule a special class sometime in Januairy, Then it’s on to three months with my primary doctor. I have to proove to him that I can stay on some sort of program for three months before they invest in their time,

Step One Complete

07 Thursday Dec 2023

Posted by Tim Hughes Living with CML in Photography

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Bariatric, bariatric-surgery, Doctor, Exercise, gastric-sleeve, Gastrologist, Gym, health, obesity, Surgery, Weight loss, Weightloss

I spoke with the Bariatric surgeon on Monday and discussed my options. We both concluded that the gastric bypass was the way to go. She was a young doctor and my wife questioned her ability. I think she was just jealous of her looks. We talked about the class that I am going to have to take and the three visits I have to have with my general practitioner. Those will all have to be scheduled. I think I’m going to wait until the first of the year to start this because of the temptations with all the Christmas foods.

My next appointment was with my Gastrologist on the same day. I found out that my stomach ulcer had healed and I can now reduce the meds that I am taking. That’s good news because that was one of the concerns I had with the Bariatric surgery. I also found out that I had a Hiatal Hernia. This can also be taken care of during the Bariatric surgery.

The doctor visits will take three months. If I start in January, that would mean that the surgery would not be until April of next year. There is no mention of any amount of weight that has to be lost but there are several things that I have to do these three months. I have to keep a record of my meals, which I already have an app for that. I have to go to the gym or somehow show that I’m at least trying to exercise every day.

This is going to be a long drawn-out process but I’m ready for it. I’m tired of looking the way I do and feeling the way I do.

YAG Surgery

22 Tuesday Dec 2020

Posted by Tim Hughes Living with CML in Retirement

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Doctor, Eye, Eye Surgery, Lazer, YAG

Who would have thought. I’ve never heard such a thing. YAG? Evedently it’s a thing. I had cateract surgery a couple of years ago and it seems that the pocket that the new lense fits in, well, the bottom had become cloudy and the doctor needed to go in there and trim off the edges so my vision ca could be corrected.

It’s a simple process really. The waiting was the most difficlut part. I had to be there at 7:30 am but wasn’t called back until after 10:30 am. The proceedure was simple; just looking at a light for a couple of seconds and it was over. I have several floaters but they said that it will go away in a few days. I have a followup appointment this Wednesday so maybe he can get me a new script for new glasses.

3/16/2018 Oncologist Update

18 Sunday Mar 2018

Posted by Tim Hughes Living with CML in Cancer, Family, Leukemia, Photography

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Bosulif, Cancer, CML, Doctor, Drug Card, Drugs, Family, Insurance, Medication, Prayers, Test

Oncologist Update: Because of some miscommunications with the insurance company, go figure, I have not been approved to be on my new medicine yet. I may end up walking the paperwork to the department myself if they keep losing it. Anyway, it’s been six weeks or more since I’ve had any CML meds and we, more so me than the doctor it seems, are starting to get a little concerned that my numbers might get a little high. If the insurance company approves the meds, it could take up to three weeks before my meds arrive. Nothing to do but wait. But, as luck would have it, the representative for the new drug was there in his office. He gave my doctor a card for a free 30 day supply which should arrive by Tuesday of next week. This should give my insurance company time to process my approval for this drug.

Bloodwork. It’s been six weeks since my last lab. My last one wasn’t good at all. Every one of my numbers was either very high or very low. Yesterday’s numbers were normal for the most part. This was in large part the effect of the drug I was on. The side effects just made my daily life impossible to deal with.

New Drug: Bosulif is the name of the new drug. Right now I’ve been on two of the most common and there are only a few left that is approved by the FDA. Thanks to Karen Davis-Hudson she eased my mind about some of the side effects that were mentioned in the insert. However, Karen, I think you mentioned that 1/10 developed fluid retention, my doctor said 4/10. Not that much of a difference. The other side effects I think I can handle.

The Good News: The doctor and I both agree that the fluid in my lungs is gone and we’re going to have a positive attitude that it will not return and that this medicine will be the last one I have to be on because this one will work. I can breathe, my color is back and most importantly, I feel good. So much so, that if the weather holds, I’m going to try to get my bicycle out one day this weekend.

This is all due to all the prayers that have been lifted up for me and my family. Thank you so much.

Improving? Not so Much.

28 Sunday Aug 2016

Posted by Tim Hughes Living with CML in Cancer, Family, Leukemia, Photography

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Alabama, CML, Doctor, health, Kids, Leukemia, Million Dollar Band, Oncologist, Parents, Sick, University of Alabama

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I started back on my CML meds last Monday and to be honest I think my breathing has gotten a little worse. I’ve started climbing the steps at work a little more and trying to maintain at least 10,000 steps in a day. I spoke at length to my oncologist last Monday the day I started back on my Sprycell and he told me that the majority of the people who end up with water retention will do better at a lower dosage.  I’m now at 80 mg instead of the 100mg that I was once on.

I’ve decided not to just sit at home waiting to see if my lungs will fill back up with fluid.  I don’t really feel like getting out and doing anything but I feel that I’ve at least got to try  and get what little exercise that I can get.  I think it could only help matters if I get off the couch and do something.

Yesterday, my wife and I met our son at the university where my daughters are attending.  They’re both in the band, one plays the sax and the other is a band manager.  Yesterday was their parent preview show.  It was awesome seeing my daughter’s perform. I got to meet one of their roommates and enjoyed going out to dinner afterwards.  As usual it was hard for us to leave after visiting with them.

Today I went to my parents house to check on them as well as my bees.  It’s been at least two months since I’ve done either one.  The bee yard was grown up with weeds and it took everything I had to use my weedeater to chop down the weeds just so I could get to the beehive.  After about an hour of cleaning up I went and sat with my parents for a couple of hours.

It was hard to leave my parents. They are both getting up in age and their health is not as good as it used to be.  My mom had to have more surgery a couple of weeks ago on her diaphragm due to finding a hole where her colon and her intestine were coming through.  The doctors seem to think that this was caused by the accident they had back in February.

The above picture is of the band managers.  The young lady is my daughter.  What a  trooper.

It Sucks Getting Old :(

08 Friday Jul 2016

Posted by Tim Hughes Living with CML in Cancer, Leukemia, Photography

≈ 1 Comment

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Cancer, CML, Doctor, Leukemia, Oncologist

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For several months now I have been undergoing a barrage of test by one doctor or another. If you’ve ever seen the movie National Treasure, it’s like one clue leads to another clue.  It all started with a personal evaluation that was performed on me back in March from my boss.  In the months prior to my evaluation I had made several costly mistakes.  Luckily they were all monetary and not personal injury.  During my evaluation my boss discussed with me that he was worried that either I would be harmed by my actions or the person I was working with would be harmed.  He also stated that until I was checked out by my physician I would be temporarily placed on light duty with any safety related responsibilities.   At first I was furious as you can imagine but the more I thought about it the more I realized he may be right.  Although I didn’t want to admit it I had been experiencing some forgetfulness but I had chalked it up to getting old.

The first test was with a neuropsychologist.  I failed miserably.  One test consisted of the nurse reciting a list of paired words, about 50 I think, that after she recited the list I was supposed to repeat to her one of the words that was paired too.  Example; Truck-Bread, Dog-Umbrella.  She would read Truck and I was supposed to tell her Bread.  I failed at this test.  There were several other tests that I failed at.  The results that were given to my primary care doctor was that I had three areas of disabilities, motor control, memory loss and multitasking.

Another test that was performed was on my feet.  I had been put in the hospital with influenza A and pneumonia.  After spending a week there I was released to spend another week at home.  While I was off I had an appointment with a neurologist in which I spent over an hour being hooked to electrodes that shocked my feet to find out just how numb they really were.  After the tests were performed I was given the diagnoses of diabetic neuropathy.  Hell, I already knew that.

During one of my visits with my oncologist I was given a test to check out my immunity because being admitted twice to the hospital in less than six months set off a couple of alarms.  He did a preliminary test and it came back showing signs of IgG deficiency (immunoglobulin G). I went back on Wednesday of this week to let them do a more thorough test.  I’ll find out the results of those test sometime next week.

Today I went to another neurologist that all i did was talk and answer a few questions.  A small word association test was performed and again I failed.  He asked me to remember three words and he would ask me later on to recite these words back to him. When asked a few minutes later I couldn’t remember the three words.  I saw the doctor for only a few minutes after which he wanted to do a blood test and an MRI.  The blood test was done downstairs but the MRI will have to be scheduled once the insurance company approves the test.

So, as you see I’m falling apart.  I’m not letting it get me down.  Just living day to day right now.

Patience is Not One of my Virtues!!

28 Tuesday Jun 2016

Posted by Tim Hughes Living with CML in Cancer, Photography

≈ 3 Comments

Tags

Cancer, CML, Doctor, Lab Result, Oncologist

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I called my oncologist twice yesterday and didn’t hear a word from him.  I know Monday’s is his busy days so I didn’t get too upset but when he didn’t call me back first thing this morning I decided to give his office a call again.  I again left word with his receptionist and waited for his phone call.  He finally called me back about an hour later and after I told him what I wanted and why I was calling he sounded offended that I would question his earlier report.   Anyway, the information that is posted on the website is wrong.  The correct result is 0.0001% which is the lowest it’s ever been since my diagnoses.  The website has it listed as 1.0%, which is quite a bit different.

No News is Good News?

27 Monday Jun 2016

Posted by Tim Hughes Living with CML in Cancer, Photography

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Doctor, Test Resuts

DSCN1984

I called the doctor today, twice, with no response.  Once first thing as his office was opening and second about 4 pm this afternoon.  Monday’s is usually busy so I’ll keep that in consideration as to the reasoning why he didn’t call me back.  Maybe tomorrow.

Negativity Gets You Nowhere!

26 Sunday Jun 2016

Posted by Tim Hughes Living with CML in Cancer, Depression, Photography

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Anniversary, Beach, Condo, Doctor, Down, Family, Heat, Humidity, Kids, Sand, Steakhouse, Sunset, Vacation, Water, Waves

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I’ve been down on myself the last few weeks. I thought being on vacation would snap me out of it but the whole time I was gone I kept thinking of the time lost that I would have when I returned back to work.  The exciting news that I got from my doctor while I was away seemed to have helped but now that I have my doubts about the results I just can’t help but feel down again.

The heat has a lot to do with it I feel because I wanted to do something with my kids today being that they were home and not working but everytime I went outside I was just drained from the heat and humidity.  Plus, with all this humidity, it makes it difficult for me to breath.  The next two days the rain chances has increased to 70% so maybe after the storms roll in here at least it will cool things off a bit.

This coming Thursday, June 29th, I will have been married for 25 years.  I have already made reservations for Saturday at a place called Perry’s Steakhouse.  It’s a bit pricey but my wife is worth it.  Putting up with me and all my ailments; she deserves more than a pricey steak and a night on the town.  She’s going to flip when she sees the prices on the menu though. But maybe the flowers that I have ordered that will be sitting on the table when we arrive will take away some of the shock.  We don’t usually go out on the town like this.  It’s usually places like Logan’s steakhouse where you pay $12 to $15 for a steak or go to Cracker Barrel.  Those places are more to our taste.  If I get out of Perry’s for less than $200 I’ll be lucky.

July 4th is coming up in a week and I have that day off which means a three day weekend.  If I can just make it through this week.  So you see, I have a couple of things to look forward too.  With this in mind maybe I can get out of this slump that I’m in and I can have a brighter outlook.  It’s going to take me some time for me to build up more vacation time but at least my doctor’s appointments are down to a minimum right now.  That’s another thing that has me upset is the fact that right now if I have a family emergency I can’t do anything about it.  I can’t take off right now if I had too.  Tomorrow, if I’m not wrong, I should have 10 hours built up.  That’s not much but it’s a start.

I hope everyone has a great week ahead.

 

 

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