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Tag Archives: ER

I Hate Hospitals

24 Monday Aug 2026

Posted by Tim Hughes Living with CML in Family, Life

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Tags

Bloodwork, Complications, Daughter, Doctor, ER, Family, health, Hospital, Irritated, labs, Life, love, Mono, Scans, Sick, Sickness, Tests, writing

Hospitals are not my thing.

I ought to know. I’ve spent my fair share of time in them over the past several years.

For the last few years, it’s been my mom who has had to spend time in the hospital for one reason or another, and my siblings and I have spent plenty of days sitting beside her during her stays.

And honestly, it’s one of the worst things I’ve ever had to do.

Not because I don’t want to be there for my family—I absolutely do. But sitting in a hospital room all day trying to make small talk is just not my idea of a good time.

When I’m the one in the hospital, I’d much rather be left alone. Give me a book, a television, and a pillow, and I’ll be perfectly happy to entertain myself. When people come to visit me, I feel like I have to entertain them, and that’s the last thing I want to worry about when I’m sick.

Unfortunately, for the past few days, I’ve found myself spending quite a bit of time in a hospital.

This time, it wasn’t for me or even for one of my parents.

It was for one of my daughters.

She has been in the hospital because of complications from mononucleosis—Mono, for short. Her spleen is enlarged, and she developed an infection that the doctors wanted to make sure wasn’t being caused by something other than the Mono.

Exactly why it took several days to figure all of this out is still beyond me.

Her boyfriend took her to the ER Thursday afternoon around 2:00. She wasn’t seen until sometime after 6:00 and wasn’t admitted to the hospital until the following day.

Four hours just to be seen, and then another night before they decided to admit her. Maybe I’m just impatient, but that seemed a little ridiculous to me.

They did scans. They drew blood. Tests were run. Promises were made—and apparently forgotten.

Once she was finally admitted, it seemed like the hospital had no idea what the ER had already done. So, they started doing tests all over again.

It was almost like she had checked into the hospital and said, “Hi, I’m here. Let’s start from the beginning.”

On Saturday afternoon, the hospitalist came in and said she wanted to keep my daughter one more night for observation. She assured us that, barring any problems, she should be able to go home the next day.

The next morning, my other daughter said she could stay a little longer so she could take her home when she was discharged.

My wife and I went to church and then went out to eat afterward. We hadn’t planned on going to the hospital that afternoon, but eventually made our way there so we could relieve my other daughter.

Several hours passed.

Still no word about my daughter going home.

Finally, I went to the nurses’ station and asked what was going on.

That’s when we found out the doctor had actually decided earlier that my daughter was NOT going home.

Wait… what?

When exactly were we going to be told this?

If I hadn’t gone to the nurses’ station and asked, there’s no telling when we would have found out.

Needless to say, I was livid.

The doctor finally made her way into the room about three hours after I had made my inquiry. After expressing my disappointment that no one had bothered to keep us informed, she explained that she was trying to consult an infectious disease doctor to make sure there wasn’t something else going on.

That’s when my wife pointed out that an infectious disease doctor was already supposed to be involved.

Apparently, the hospitalist wasn’t aware of that.

The ER doctor was supposed to have already ordered the consultation, but somewhere along the way, someone dropped the ball.

And unfortunately, my daughter was the one lying in that hospital bed while everyone tried to figure out whose ball it was.

This morning, the infectious disease doctor finally reviewed her bloodwork and assured my daughter that there was nothing else going on. Everything she was experiencing was related to the Mono.

Her instructions?

Go home.

Rest.

Give it a week or so.

That’s exactly what she’s doing now.

She’s home, resting, and hopefully on the road to recovery from what has been a pretty debilitating illness.

I know hospitals and healthcare workers are dealing with tremendous workloads, and I appreciate the people who take care of us when we need them.

But sometimes I really do wonder how we’ve managed to make it this far in our healthcare system.

Maybe I’m just getting old.

Or maybe I’ve spent enough time in hospitals to know that sometimes the biggest challenge isn’t figuring out what’s wrong with the patient.

It’s figuring out what everyone else is supposed to be doing.

For now, though, I’m just thankful my daughter is home.

And I think we’ll all sleep a little better knowing she’s there.

January 28th A Huge Setback

28 Sunday Jan 2024

Posted by Tim Hughes Living with CML in Photography

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Tags

amputate, broken foot, CAT Scan, Charcot Midfoot, Doctor, ER, fitness, gout, health, healthcare, MRI, osteomyelitis, splint

I’ve had neuropathy in both of my feet for several years. I can stump my toe and never know it.  It is a blessing and a curse.  I’ve had blisters on my toes and feet so bad that it would take months to heal. The bad part is that I never knew I had these blisters until it was too late.  I have tried to check my feet several times a day since then.  I wasn’t too surprised when they told me that I had broken a bone in my foot as well as having several fractures on the top of my foot.  The scary part is that I don’t know how I did it.

Two weeks ago, I woke up to get ready to go to church and noticed my right foot had swelled badly. I first thought of gout.  I treated my foot for gout for a couple of days and when it didn’t get any better, I made an appointment to see a doctor.

The doctor took X-rays and took bloodwork. The doctor told me that I had osteomyelitis, an infection in the bones of my foot, and that I needed to go straight to the ER.  Fortunately, I live on the way to my hospital, so I stopped and packed a bag grabbed my wife, and went to the ER. Nine hours later I was finally seen by a doctor. A CAT scan and more bloodwork were performed.  I was seen by no less than five different doctors, and all speculated the same thing. It all depended on a scheduled MRI that didn’t happen for another two days.  Yes, I was finally admitted and had to wait until an MRI was performed.

I had an orthopedic surgeon come see me and he was the only one who offered another scenario.  All the other doctors were saying the only way to stop the infection was to amputate my leg. The orthopedic surgeon suggested that I had Charcot Midfoot, a rare occurrence that diabetics with severe neuropathy can get.  Basically, it makes your bones brittle and if not treated can cause amputation of a limb or two. If the MRI showed infection that would mean several months of heavy antibiotics with the possibility of amputation of my foot to start off with.  If the MRI showed no infection, my foot would be put in a splint and I could go home and schedule an appointment with an orthopedic surgeon for follow-up appointments.

At approximately 11 am I was wheeled off for my MRI.  At approximately 2 pm I was told that there was no infection, and I was cleared to go home once my foot was put in a brace. At that time I was told that transport had been called and should be there within the hour. At 8:15 pm the transport finally arrived but not after my daughter called the hospital and complained.

Once home there had to be several changes.  A knee scooter, a shower stool, and a toilet rail had to be ordered to make my life a little easier.  I’ll be laid up for at least six weeks, maybe longer.  I’ve called and left a message with one of the doctors.  Hopefully, they’ll call me tomorrow to set up a follow-up appointment.  I’ve also got several other doctors to call tomorrow to reschedule appointments.  Oh, one other thing.  I live in a house with stairs leading to my living area.  I’ll have to call the fire department to get me in and out of my house.  This should be fun.

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