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Tag Archives: Diabetes

Before the Coal Took the Mountain

28 Saturday Feb 2026

Posted by Tim Hughes Living with CML in Diabetic, Family, Fishing, Life, Uncategorized

≈ 2 Comments

Tags

airplanes, coal, Dad, Diabetes, Family, farm, farm land, father, granddad, homeplace, Life, love, Memories, Military, mountain, Navy, school house, Signal Tower, Tower, writing

The older my dad gets, the more stories seem to come out. It’s like he’s been carrying around a lifetime of memories, and every now and then he decides it’s time to unload another box. My visit this past Thursday was one of those visits where he started talking, and I realized I was hearing things I had never heard before.

Dad and his brothers and sisters grew up in a house my granddad built himself in the late 1800s. He cut the trees, milled the lumber, and built the place with his own hands. From what I remember, it had a long front porch, a kitchen with a wood stove, a den with a fireplace, and a couple of bedrooms. The outhouse sat about a hundred yards away, and the only water came from a hand pump mounted on the kitchen sink.

The house sat on top of a mountain — not exactly Everest, but high enough that you could look down over the little town below. My grandfather spent years clearing land out of the woods to make a small farm with chickens, pigs, and a few cows. Most of what they ate came from the garden or from the animals they raised. It was a hard life by today’s standards, but they made it work.

Electricity didn’t arrive until World War II, and even then, it came for an unusual reason. The government wanted to build a signal tower to help guide airplanes toward the Gulf. Dad said he used to lie awake at night listening to the aircraft passing overhead. Every time I visited the old homeplace growing up, I thought that tower was a fire tower. Turns out it had a much different purpose.

My grandparents were the only people for miles who had electricity, and even then, it was mostly used for lights. Fancy appliances were out of reach, so the wood stove and fireplace still did most of the work.

An example of what my dad’s house looked like. Sadly, there were no pictures of the original homeplace taken before a coal company came in and stripped the land for coal.

Winter was especially tough. With no insulation and only the stove and fireplace for heat, the bedrooms stayed bitterly cold. At night, the family would gather in the kitchen or den and sleep close to the warmth. It wasn’t a matter of comfort — it was a matter of getting through the night.

Dad and his siblings all attended a small schoolhouse that taught every grade. The school was a couple of miles away, and they walked there every day in all kinds of weather. Chores had to be finished before school, breakfast eaten, and everyone out the door on time — knowing there would be more chores waiting when they got home.

Dad’s Old School House after it was renovated and moved to Tannehill Historical State Park. Cane CreekSchool

The school building has since been moved to a state park. I remember seeing it years ago, sitting empty and slowly falling apart before someone finally decided it was worth saving as a piece of history.

My grandfather owned more than a hundred acres of land. Some of it was cleared for farming, but plenty remained woods for hunting and fishing. He even built a small pond where he raised catfish, bream, and a few bass. I can still remember being taken there as a kid to catch catfish.

There were always plenty of deer around, and Dad and his cousins would hunt whenever they could. Meat wasn’t something you saw every day on the dinner table, so venison was considered a special occasion.

Years later, the government came in and took over much of the property and stripped the land for coal. The mountain that my grandfather spent years clearing and farming was changed forever. The old homeplace doesn’t look anything like it once did. What was once woods, fields, and family history now bears the marks of heavy equipment and mining. It’s hard to imagine that the quiet little farm Dad grew up on once stood there.

Before he was drafted into the Army, Dad joined the Navy and served aboard an aircraft carrier. He spent most of his time between the Sea of Japan and San Diego. He doesn’t talk much about those years, but he learned electronics while serving and often worked on jet aircraft that needed repair or servicing.

The one Navy story he never gets tired of telling is how he hitchhiked all the way from San Diego to Birmingham just to see my mom before they were married. That’s a long trip even today — and I doubt many parents would approve of their daughter dating a man willing to cross the country with his thumb out.

My grandmother died when I was only four years old. Back then, they didn’t understand diabetes the way they do now. A foot injury led to an amputation, then another surgery when infection set in, and eventually, they couldn’t stop what they called “the poison” from spreading. I only have faint memories of her.

My grandfather lived into the late 1980s and died at the age of 82. Dad is now 86 and the last of his family still living — the baby of three sisters and two brothers.

Dad’s health is still fairly good. Mom lives with constant arthritis pain and severe scoliosis. She used to be nearly six feet tall; now she’s lucky to reach five feet. Time has a way of changing all of us, whether we want it to or not.

Dad has diabetes, like most of his brothers and sisters. That’s where I likely got it from, and it makes me worry a little about my kids. Some things travel through families whether we want them to or not.

I consider myself fortunate to still have both of my parents. At 62, many of the people I went to school with have already lost theirs. I’m one of the few who can still go sit in the living room and listen to stories from a man who grew up in a world that hardly exists anymore.

And the older he gets, the more those stories seem to matter.

Because one day, they won’t be told anymore.

Kayak, Quiet, and Keeping It Together; Out There, I Found Myself Again

11 Wednesday Feb 2026

Posted by Tim Hughes Living with CML in Cancer, Depression, Fishing, Kayaking, Leukemia, Life, Nature, Uncategorized

≈ 2 Comments

Tags

Cancer, Cell Service, Communication, Depression, Diabetes, Dialysis, Fishing, Garmin Mini InReach, GPS, health, kayak, Kayaking, kidney failure, Leukemia, Life, love, mental-health, Nature, religious, satellite, solitude, writing

My fishing buddy texted me Monday night asking if we were still meeting for breakfast Tuesday morning—a morning ritual we started a few months back. For the second time in two weeks, I had to tell him no because of doctor appointments. I worry that he thinks I’m brushing him off, but honestly, that’s not the case at all.

We’re both at an age—and health status—where we really shouldn’t go fishing alone. He’s 72 and has had five strokes. Thankfully, his health has improved a great deal, and I’m not overly worried about the two of us being out in an area with no cell service for hours on end. I carry a Mini InReach, a satellite communicator that allows me to send and receive text messages via satellite if things go sideways and help is needed. It even has an SOS button. If either of us were to have a medical emergency, pressing that button would send our GPS coordinates to rescuers. It might take a few hours, but help would be on the way.

I’m 62, and if you’ve read any of my posts, you already know I have my own long list of health concerns. Having a partner with you in a place where two-way communication is sketchy isn’t just a good idea—it’s warranted.

But it comes at a cost.

Sometimes, I need to be alone. I enjoy getting out in my kayak, stopping for a while, and just absorbing the sounds of nature. It’s where I have one-on-one time with my God. Rick is always nearby, as he should be, but I no longer feel like I truly get that quiet space. If I slow down to let him get ahead, he stops too, probably just to make sure nothing’s wrong.

When I first started kayak fishing, I went alone. Rick didn’t have a kayak then. Back then, my world felt like it was closing in on me. My cancer numbers were out of control, my kidneys were failing, and dialysis felt like the only road left in front of me. I was depressed, scared, and felt more lost than I ever had in my life.

Being out in the middle of nowhere—surrounded by silence, by peace, by the kind of beauty only God could create—gave me something I couldn’t find anywhere else. It gave me room to breathe. It gave me space to think. It gave me a place where I could be honest about how scared I really was. Sometimes it didn’t fix anything… but sometimes it gave me just enough strength to get through one more day.

I needed that time alone. It wasn’t about fishing. It wasn’t about getting away from people. It was survival. It was the only place where I felt I could truly talk to God and not feel like I had to be strong for anyone else.

This isn’t meant to be a religious post. I don’t use this platform for politics, religion, or controversy. This is simply how I dealt with a situation that felt completely out of my control.

I hope each of us has a place we can go—a place of solitude, reflection, prayer, or even just quiet—where we can catch our breath when life feels too heavy.

And I want to ask something, not as a writer, not as someone posting on social media, but as someone who knows what it feels like to be overwhelmed:

How do you deal with depression?
When you feel like things are getting out of control, how do you hold on?
What helps you get through the days when everything feels heavier than it should?

Because the truth is… someone reading this right now might be barely holding on.
Someone might be smiling on the outside and falling apart on the inside.
Someone might just need to know they’re not the only one fighting that battle.

If you have something that helps you keep going, share it.
You might help someone more than you will ever know.

14 Months Post Op

27 Friday Jun 2025

Posted by Tim Hughes Living with CML in bariatric-surgery, Diabetic, diet, Fishing, Weight Loss

≈ Leave a comment

Tags

Bariatric, blood pressure, Diabetes, Fishing, gastric bypass, kidney function, Meds, No Regrets

I know it’s been a while, so here’s an update.

My goal was 190 lbs from 260 on my surgery date. As of today, I weigh 171 pounds. Just a little more than I had anticipated. I’m now in size 32 from size 48. The downside is that I now look 20 years older. I do not regret having the surgery, it’s just a huge adjustment with the extreme weight loss. If you’re considering having a gastric bypass, I highly recommend it.

My current A1c is 5.2, down from 8.5. I’m no longer on insulin, heart meds, or blood pressure meds. My kidney function started going down, but for some reason has started going back up again. Not too concerned about that just yet.

I’ve started fishing again, which I thoroughly enjoy,y so be looking for posts about my adventures in my kayak.

September 6th Video Update

09 Monday Sep 2024

Posted by Tim Hughes Living with CML in bariatric-surgery, Cancer, Diabetic, Leukemia, VLog, Weight Loss

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Tags

Bariatric, bariatric-surgery, Diabetes, life changing, post-op, update, VLog, Weight loss

This Boot is Made for Walking

18 Saturday May 2024

Posted by Tim Hughes Living with CML in Diabetic

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Tags

Charcot Midfoot, crow boot, Diabetes

I’m sure I’m not the only one to have to go through the experience of trying to walk in one of these Crow Boots but let me tell you, it’s not for the weak.  I drove myself to a men’s Bible study this morning. I walked to my truck, took the boot off and put on a tennis shoe. Once at the church I replaced the shoe with the boot. With the cane in hand, I walked to the outdoor pavilion where the Bible study was held. I made it fine but this low iron condition I have didn’t make it any easier. I had visions of doing a lot of different things once I was able to walk but I’m just so fatigued. Hopefully I’ll get an iron infusion next week. That should help with the tiredness.

My boot is made of hard plastic with foam inside. It’s made of two pieces. My foot goes into the main bottom piece and the top layer snaps in place and is held together with three Velcro straps. I’m told that I have to wear it all day with the exception of taking a shower and sleeping. Should I be driving? Probably not, but, I’ve had it with my wife’s driving.

I’m really not sure just how long I’ll be in this boot but from what the doctor said I could be in this boot at least 14 months. It’s not bad considering I could be dealing with an amputated foot.

It Was A Tough Decision

17 Friday Jan 2020

Posted by Tim Hughes Living with CML in Cancer, Diabetic, Disability, Retirement

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Tags

Diabetes, Disability, Work

WD1

February 14th, 2014 was a date that I will never forget.  One reason is that it’s the date that I asked my wife of 28 years to marry me.  She said yes, obviously.  The 14th was also the date that I was diagnosed with CML, Cronic Myeloid Leukemia. My life has not been the same since.

Prior to being diagnosed, my weight had increased over the years and my diabetes had gotten out of control. My doctor sat me down and told me that I had better start doing something about it or I wouldn’t live to see my kids graduate high school.  That woke me up a bit.  I started watching what I ate, I started walking some and a friend of mine got me riding my bicycle.  In 2012 I started riding my bike religiously; up to 20 miles a day and up to 30 miles on the weekend.  Even after my diagnosis of CML I kept riding.  In 2015 I rode over 7,000 that year.  But that would soon change.

In 2016, I spent a total of four weeks in the hospital.  Not all at one time but through the year.  My cancer meds were causing fluid to be collected around my heart and lungs.  This was also the time I was diagnosed with congestive heart failure and diastolic heart failure.  This was also the time that my vision got blurry and I was diagnosed with diabetic retinopathy. I had to take injections in each eye to remove the blood that was pooling up behind my retina.  Because of all my health issues, I had to take off from work a lot because of doctor’s appointments and hospital stays.  Some of the meds I was on also caused memory loss and I started making mistakes at work.  One was a bad mistake and I was given a choice to either get fired or take a lower position.  I took the lower position which I also got lower pay.  Since 2016, I have been in the hospital at least 2 times a year spending at least 4 days each time.  I missed my daughter’s high school graduation because I was in the hospital with the flu and pneumonia.  I also missed my wife’s birthday twice because of hospital stays.

Some years back the company I worked for raised the age at which you could retire.  Because I had been there so long, I was grandfathered in and I could retire at the age of 55 because I had over 30 years of service. When I got grandfathered in, I had 42 months until I could retire.  I counted each day.  I couldn’t wait.  On August 15th, 2018 I retired.  I retired because I couldn’t do the work they were asking me to do.  My memory had gotten bad, I couldn’t walk without having to stop and take a breath and it was taking me too long to complete my jobs.  I knew if I didn’t retire I would eventually lose my job.

Since I was diagnosed in 2014 with cancer, I was asked several times why I didn’t try to file for disability. For me, disability is for someone who can’t work.  Even now I still think I can do something.  In reality, I know I can’t.  At my age, now 56, I doubt anyone will hire me with all my health issues.  It took some convincing from my wife and some of my other family members, I filed for disability in Septemeber of 2018.  Of course, with any filing, the first attempt is always denied, at least that’s what I was told.  And with that, my first filing, I was denied.

The simple fact that I can’t do anything but short term because I get so out of breath.  Walking, climbing stairs, going up an incline, carrying anything of any distance; things such as these I get so tired with fatigue and afterward I have to go and lay down for a while to get my energy back.  I can’t see any employer letting me go lay down after I do a job.

So, I got denied.  I immediately called a lawyer that had been highly recommended to me. When I filed for disability myself, I had to send in a lot of documents from all the doctors, the hospitals and such that I had.  It took me about two months to gather all of the information.  After about a month after I filed, they wanted more information.  Another month goes by gathering more information.  So, I had saved all of the documentation that was requested by the Social Security office and I sent all the documents I had saved to my lawyer.  After one year and six months, I had my hearing with the Social Security judge.

I met with my lawyer right before the hearing and he basically told me what not to say and what to say to the judge.  He told me to tell the truth and to tell him exactly what was going on, and I did.  They had a doctor on the phone that was representing the Social Security office.  To say that I was concerned would be an understatement.  My lawyer tried to calm me down because he could tell I was nervous.  The judge asked me a series of questions all of which I answered the best way I could.  The judge then turned to the doctor on the phone.  My anxiety levels hit the roof.  The judge asked him a series of questions regarding my work record, my work skill level and then he started asking him questions like, can he lift 50 pounds, can he crawl on his hands and knees, can I stand over thirty minutes without difficulty, can I sit for thirty minutes without difficulty.  The list went on and on.  To my surprise, the doctor said NO I can not do these things.  The Judge thanked him for his service and said I’m done.  That’s all I need to hear.  And with that he said we’re done.  I was in his chambers for less than 10 minutes.  The guy before me was in there for nearly an hour.

After I left the judge’s cambers my lawyer came and spoke to me.  He said that he felt really good about my case.  I am to call him in three months.  The decision could take up to six months.  But here is the kicker.  If I receive disability, I am supposed to get back pay from the date I filed or somewhere near that date.  He mentioned a figure of $2,100 a month for the backpay as well as my monthly payment.  I know he’s supposed to either get 25% of the back pay or $6,000, whichever is less.  I have a lot of need for this money so I hope I get it.

After all this, I still think that I don’t deserve disability.  I know a lot of people who are in worse shape than I am and they can’t get it.  The system is totally screwed up.  I know I have issues but I feel like I can still do something.  I’m not sure what but I think there is something out there that I can do.  The trouble is getting someone to hire me.

.

 

The Crossroads

31 Thursday Oct 2019

Posted by Tim Hughes Living with CML in Diabetic

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Tags

Diabetes, diet, Dieting, Exercise, Food, Grazing, Guilt, Gym, Weight loss

_3TH9581_tonemapped

Decisions, decisions.  This weather we are having doesn’t seem to know where to go.  This morning we woke to 70-degree weather, now as I’m writing this it’s close to 40 degrees and dropping.  It will be a miracle if I don’t end up sick or worse, in the hospital.

Although it rained all day, I got to spend some time with one of my daughters. The other daughter decided she wanted to go to Chicago with her boyfriend.  Their flight kept getting delayed because of the weather in Chicago.  I think their trip had a five-hour delay in getting started because of it.

I was able to take my other daughter out to lunch and we got to spend some good quality time with each other. Time flies.  She and her sister are seniors this year in college. It’s hard to believe.  It seems just like yesterday we were taking them down there. They have both grown up to be responsible adults.

Being that the weather was bad and my daughter was home, I didn’t go to the gym as planned.  My daughter will be here until Sunday and I have somewhere to be both Friday afternoon and Saturday so it may be Monday before I get to back to the gym.

I am sticking to my diet but my problem is that I still have a snacking issue.  Late at night, I get hungry and I head to the kitchen.  Now, instead of eating a bag of chips or ice cream, I’ll fix me some cheese slices with a little bit of mayo on them.  It’s not really filling but it satisfies my grazing needs. But, I feel guilty for doing it.  I shouldn’t eat that late at night.

The good thing about all this dieting is that my blood sugar has dropped somewhat. It’s still got a long way to go but at least it’s going down.

 

Day One! My Weight Loss Journey

14 Monday Oct 2019

Posted by Tim Hughes Living with CML in Weight Loss

≈ 12 Comments

Tags

Apps, Blood Sugar, Diabetes, Fitbit, goals, Insulin, Journey, Low Carb Diet, Measurements, MyNetDiary, Overweight, Weight loss

IMG_20191014_075609

Good Morning!!  Today is the day that I start my weight loss journey. Posting these pictures are the hardest thing that I’ve had to do.  I can’t stand to see myself in this shape.  What better way to start a diet right?

I have weighed and taken my measurements this morning. I’m not too surprised at what I see.  It could and has been worse.  I’ll post everything later on in this post. My plan is to weigh every day and take my measurements once a month.

The Plan

I have been on hundreds of diets in my lifetime.  The only one that really works for me is the low carb diet along with exercise.  Another thing that I have found that works is being able to track my intake as well as my exercise.  One of the best ways is through some apps that I can  use on my phone. I have a couple of apps that I like. One is Fitbit and the other is MyNetDiary.  Both of which have similarities but differences as well. The MyNetDiary app allows me to track my insulin and my blood sugar as well.

Fitbit offers a way to track your exercise on a daily basis.  It counts your steps for which you can set different daily goals.  The default is 10,000 steps. It counts stairs or sets of stairs should I say, it counts the total miles that you’ve walked in a day, it counts the calories that you’ve burnt or used and if you want, it will even count the hours of sleep you had the night before.  Each one of these have a goal that you can set.

So, let’s get into the plan a little deeper.  Like I said earlier, I will be on a low carb diet.  I will stay at or below 2,000 calories/day. And by way of the Fitbit, I will try to get at least 10,000 steps per day and at least if not more than 30 minutes of exercise per day.

I will log everyday but not necessarily on here. You can though, expect a weekly report.  If you would like to track my progress more closely then you can request to join my Fitbit group.  To do so all you have to do is send me an email at timhughes1963@gmail.com and I”ll hook you up.

As promised, and I’m embarrassed to say, here are my measurements.

  • Waist  43.5
  • Chest  45
  • Thigh  23
  • Calf  17.5
  • Neck  18
  • Weight 280

IMG_20191014_075625

Well, there you have it. Like I said, I’ll post updated pictures about once a month to see if you can see any changes and I might post some weekly stuff as well but I’ll try not to make them boring.

I hope some will follow this journey with me.  I really think this will help me to stay on track.  I nearly forgot, my weight loss goal for the three month time period is 15 pounds.  I have no doubt in my mind that I will be able to reach this goal.  I will have to stay on my diet in order to reach it though.

Wish me luck.

 

Today’s Thoughts 3/22/2018

22 Thursday Mar 2018

Posted by Tim Hughes Living with CML in Cancer, Leukemia, Photography, Weight Loss

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Tags

A1c, Cancer, Diabetes, diet, Food, Meds, Sugar, Weightloss

My new CML meds have not arrived as promised.  They were supposed to have arrived on Tuesday but alas, not here yet.  My oncologist called this morning to see if I had started taken them yet.  He was not happy that they had not arrived.  He said that he was going to find out where my meds are at and let me know.

I’ve attempted to start dieting again.  It’s been a tough couple of days.  I’m doing the low carb diet.  I lost 60 lbs on it last time I was on it and I’ve still got that and many more to go.  I’m trying to limit my carbs to 35 a day.  Today and yesterday I have gone way over.  Today was better than yesterday and I’m hoping that tomorrow will be even better.  I want to get down to 255 by August 15th and I’m 276 now.  I don’t think I”ll have a problem reaching it if I can gain the willpower to stick with it.  In 2009, I weighed the most I’ve ever weighed. At 346, I came to the realization that I had to do something.  Especially since my doctor told me that I wouldn’t see my kids graduate college if I didn’t do something.

The other reason I’m on the low carb diet is that of my sugar.  My body can’t handle carbs.  I can drink a cup of milk and my sugar will jump from 159 to over 250.  I did well all day today until I got home.  I checked my sugar around 5:30pm and it was 185.  I had a cup of milk, exactly 1 cup, not a glass full, and when I checked it just now, 10:35pm, it was 325.  The last time I did the low carb diet I pretty much did away with carbs altogether.  I went from a 9.6 A1c to 6.7 A1c in six months.  Now that I’ve gotten off my diet, my sugar has gone out of control.

Tomorrow is another day!!

365 Day Photo Challenge 329/365 “Day 24”

24 Tuesday Nov 2015

Posted by Tim Hughes Living with CML in Photography

≈ Leave a comment

Tags

365 Day Photo Challenge, Diabetes, Doctor, Exercise, neuropathy, treadmill, Weight loss

https://tchphotography.smugmug.com/Birmingham/i-JfvvrW4/A

Today was a bust.  I spoke with my doctor and he advised me to not get on my treadmill for a few more days.  If it’s not any better by next week I’m to come to him for some x rays.  With that said I guess I’ll wait until the weekend to try it again.

“Life Goes On!”

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