• About

Grayfeathersblog

~ Diabetes, Cancer Fighter, Father of Twins, Kayak Fishing, Woodcrafter, Lover of Life

Grayfeathersblog

Category Archives: Leukemia

Insurance Knows Best… Supposedly

25 Wednesday Feb 2026

Posted by Tim Hughes Living with CML in Cancer, Diabetic, Disability, Family, Leukemia, Life, Photography, Retirement, Uncategorized

≈ 2 Comments

Tags

co-pay, cost, Diagnoses, Doctors, Drugs, health, health-insurance, healthcare, Insurance, Medicare, Medication, Pharmacy, prescriptions, rejection, research

Doctor Says Yes… Insurance Says “We’ll Think About It”

Photo by Anna Shvets on Pexels.com

Doctors, diagnoses, prescriptions, Medicare, insurance, and denial — those are words that seem to follow me around these days. Sometimes I think dealing with the medical system is almost a full-time job. If they paid by the appointment, I’d be drawing a salary by now.

One thing I’ve never quite understood is how a doctor can go to school for years, train for years more, examine you personally, and decide what medication you need — only for the insurance company to step in and say, “Nope, we don’t think so.”

Apparently, somewhere a person is sitting behind a desk who knows more about my condition than the doctor who actually saw me.

I worked for a health insurance company for 32 years before I retired. I was in the maintenance department, which meant I fixed things like doors and lights — not insurance claims. Still, people who knew where I worked would often ask me why their medication was denied even though their doctor prescribed it.

I always had to explain that just because I worked there didn’t mean I knew anything about insurance decisions.

Truth be told, I still don’t.

A good example is what happened recently with my son. He was prescribed medication for severe sleep deprivation. His previous insurance covered it, and he was happy because they had finally found something that actually worked.

Then he changed jobs.

His new insurance company now says the medication is “not medically necessary.” I guess sleeping is optional now.

The doctors now think he might have sleep apnea and ordered a sleep study. Before he even got scheduled, he got a phone call saying the test would cost over $2,000 because his insurance wouldn’t cover it.

He’s a young man with a mortgage, a car payment, and utility bills. In other words, he’s living in the real world — the one where people don’t just have $2,000 laying around for a test that might help them sleep at night.

Meanwhile, I realize I’m one of the fortunate ones. Because of my disabilities, I qualify for Medicare, and because I worked for an insurance company, I retired with a good supplemental plan. That combination gives me coverage that many people would love to have.

I don’t pay co-pays for doctor visits. I don’t pay for emergency room visits. Every time I leave the hospital, the bill says I owe exactly zero dollars, which is my favorite number.

I do pay for some medications, but not a lot.

One medication I take costs about $20,000 for a 30-day supply.

Yes, twenty thousand dollars.

For that price, I feel like it ought to come with a steak dinner and a weekend vacation.

Fortunately, the drug company offers a $0 co-pay card because they know insurance only pays part of the cost. Thanks to that program, I don’t pay a penny for a medication that costs more than some cars.

I consider myself blessed, because there are people who need this same drug and simply can’t get it because they don’t have the right insurance. That part isn’t funny at all.

When I ask why the drug costs so much, I’m told it’s because of all the research that went into developing it. I understand that research costs money, but sometimes I wonder if the scientists also built a few vacation homes along the way.

After being on this medication for a while, I feel like I’ve personally contributed a pretty fair share toward paying for that research — and I know some folks have been on it a lot longer than I have.

I don’t know what the answer is. Doctors are trying to help people. Insurance companies are trying to control costs. Drug companies are trying to recover research money.

And patients are just trying to stay alive without going broke in the process.

Maybe one day there will be a system where if your doctor says you need something, you can actually get it without filling out forms, making phone calls, and saying a small prayer first.

Until then, I guess we’ll just keep taking our prescriptions — and a healthy dose of patience right along with them.

The Number in the Corner

19 Thursday Feb 2026

Posted by Tim Hughes Living with CML in Disability, Family, Leukemia, Life, Retirement, Uncategorized

≈ Leave a comment

Tags

countdown, Employment, Family, first steps, friendships, HVAC, Job, Life, mental-health, Numbers, Retirement, School, Social Security, writing

Photo by Jan van der Wolf on Pexels.com

In 2018, at age 55, I retired after 32 years with the same company.

Five years before that, the company decided to raise the retirement age from 55 to 65 with 25 years of service. Thankfully, I had already met the age requirement. I was “grandfathered in.”

That phrase never sounded so beautiful. I’d never been so proud to qualify for something simply because I was already old enough.

Ordinarily, I would’ve stayed until 65, so I wouldn’t mess with my Social Security. That was the responsible plan. But my body started holding meetings without my permission. Knees voting “no.” Back filing complaints. Balance requesting reassignment.

You can’t very well do HVAC work if climbing a ladder feels like you’re auditioning for a slow-motion fall.

I turned 55 on August 15, 2018. When I realized I had 42 months until I could retire, I started a quiet countdown.

Every morning, I took readings on the plant’s main HVAC equipment. On the wall was a massive 6 x 4 dry-erase board where I logged the numbers. Up in the far-left corner, I wrote one simple number:

42

On every 15th of the month, I erased it and lowered it by one.

Forty-two.
Forty-one.
Forty.

For three and a half years, that number sat there. No one ever asked what it meant. Not one person.

Either they didn’t notice… or they were silently rooting for it to hit zero.

I started that job on January 26, 1986. It was 19 degrees that morning. I know because my previous job was washing freshly painted utility trucks — outside — in January.

Whoever was lowest on the totem pole got that job.

I wasn’t just on the totem pole.

I was holding it up.

So when I walked into a heated building that morning, I felt like I’d been promoted to royalty.

I even took a two-dollar-an-hour pay cut to take the job. Two dollars an hour back then was real money. But I believed long-term it would pay off.

When I first started, I didn’t have any college education. Just a high school diploma and a willingness to work. But I kept getting passed over for promotions. One supervisor finally told me straight: “You’ll keep getting passed over unless you go back to school.”

That was hard to hear — but it was true.

An HVAC supervisor came to me and said that if I went back to school and learned the trade, he’d help me every step of the way. And he did.

So I worked full-time and went to school at night.

Those were long years.

I missed some things.

My son’s first baby steps were taken one night while I was sitting in a classroom trying to understand airflow calculations. I didn’t see them in person. I heard about them when I got home.

That part still stings a little.

You tell yourself you’re doing it for your family — and you are — but sometimes providing for them means missing moments you can’t ever get back.

I learned HVAC systems.

I just wish I’d learned how to be in two places at once.

For 32 years, I gave that place blood, sweat, and a few tears they probably didn’t log on the dry-erase board. I worked alongside some of the smartest people I’ve ever known. We solved problems together. Ate lunch together. Complained quietly together.

I went to their kids’ birthday parties. Camped with some of them. Attended funerals for their family members.

We weren’t just coworkers.

We were everyday life.

And then one day, I walked out.

Retirement is strange.

One day, you’re the guy everybody calls when something breaks.

The next day… nothing breaks that requires your number.

At first, I kept my phone close. Surely someone would need advice. Surely they’d call and say, “We can’t find this,” or “What did you do about that?”

Turns out, they figured it out.

Rude.

Before COVID, I’d stop in and have lunch with some of them. Now I mostly see them on Facebook. I still hear from a couple of guys, but it’s rare.

You work beside someone for 15 years and assume that bond is permanent. But when the daily routine disappears, you realize proximity and permanence aren’t the same thing.

I suppose I could call them. But they’re working. And when they’re home, they need family time.

And I’m retired.

Which means I now have plenty of time to think about things like dry-erase boards, 19-degree mornings, and baby steps I heard about instead of saw.

That number in the corner wasn’t just a countdown to retirement.

It was a countdown to a new season.

For 32 years, I was “the HVAC guy.” The steady one. The one who knew where everything was and how everything worked.

Now I’m the guy who drinks coffee in the morning without a time clock waiting on me.

And you know what?

That’s not a bad promotion.

I’m grateful.

Grateful for heated buildings on cold mornings.
Grateful for supervisors who pushed me.
Grateful I got to leave on my terms.

And grateful that even though I missed a few first steps…

I didn’t miss the rest of the journey.

When that number finally reached zero—

I erased it.

And walked out the door.

On my own two slightly creaky, but still standing, legs.

Kayak, Quiet, and Keeping It Together; Out There, I Found Myself Again

11 Wednesday Feb 2026

Posted by Tim Hughes Living with CML in Cancer, Depression, Fishing, Kayaking, Leukemia, Life, Nature, Uncategorized

≈ 2 Comments

Tags

Cancer, Cell Service, Communication, Depression, Diabetes, Dialysis, Fishing, Garmin Mini InReach, GPS, health, kayak, Kayaking, kidney failure, Leukemia, Life, love, mental-health, Nature, religious, satellite, solitude, writing

My fishing buddy texted me Monday night asking if we were still meeting for breakfast Tuesday morning—a morning ritual we started a few months back. For the second time in two weeks, I had to tell him no because of doctor appointments. I worry that he thinks I’m brushing him off, but honestly, that’s not the case at all.

We’re both at an age—and health status—where we really shouldn’t go fishing alone. He’s 72 and has had five strokes. Thankfully, his health has improved a great deal, and I’m not overly worried about the two of us being out in an area with no cell service for hours on end. I carry a Mini InReach, a satellite communicator that allows me to send and receive text messages via satellite if things go sideways and help is needed. It even has an SOS button. If either of us were to have a medical emergency, pressing that button would send our GPS coordinates to rescuers. It might take a few hours, but help would be on the way.

I’m 62, and if you’ve read any of my posts, you already know I have my own long list of health concerns. Having a partner with you in a place where two-way communication is sketchy isn’t just a good idea—it’s warranted.

But it comes at a cost.

Sometimes, I need to be alone. I enjoy getting out in my kayak, stopping for a while, and just absorbing the sounds of nature. It’s where I have one-on-one time with my God. Rick is always nearby, as he should be, but I no longer feel like I truly get that quiet space. If I slow down to let him get ahead, he stops too, probably just to make sure nothing’s wrong.

When I first started kayak fishing, I went alone. Rick didn’t have a kayak then. Back then, my world felt like it was closing in on me. My cancer numbers were out of control, my kidneys were failing, and dialysis felt like the only road left in front of me. I was depressed, scared, and felt more lost than I ever had in my life.

Being out in the middle of nowhere—surrounded by silence, by peace, by the kind of beauty only God could create—gave me something I couldn’t find anywhere else. It gave me room to breathe. It gave me space to think. It gave me a place where I could be honest about how scared I really was. Sometimes it didn’t fix anything… but sometimes it gave me just enough strength to get through one more day.

I needed that time alone. It wasn’t about fishing. It wasn’t about getting away from people. It was survival. It was the only place where I felt I could truly talk to God and not feel like I had to be strong for anyone else.

This isn’t meant to be a religious post. I don’t use this platform for politics, religion, or controversy. This is simply how I dealt with a situation that felt completely out of my control.

I hope each of us has a place we can go—a place of solitude, reflection, prayer, or even just quiet—where we can catch our breath when life feels too heavy.

And I want to ask something, not as a writer, not as someone posting on social media, but as someone who knows what it feels like to be overwhelmed:

How do you deal with depression?
When you feel like things are getting out of control, how do you hold on?
What helps you get through the days when everything feels heavier than it should?

Because the truth is… someone reading this right now might be barely holding on.
Someone might be smiling on the outside and falling apart on the inside.
Someone might just need to know they’re not the only one fighting that battle.

If you have something that helps you keep going, share it.
You might help someone more than you will ever know.

When Your Brain Hits the Snooze Button

09 Monday Feb 2026

Posted by Tim Hughes Living with CML in Cancer, Disability, Leukemia, Life, Pets, Retirement, Uncategorized

≈ Leave a comment

Tags

argument, brain, Brain Fog, Breakfast, Chemotherapy, Devotional, Food, Forgetfulness, health, Meditation, recipe, Recipes, Sleep

Brain fog is working overtime this morning.

My cat got me up earlier than normal, so I started my day the usual way — getting my coffee going and sitting down to do my daily devotional. Afterward, I usually sit in the darkness for a bit to reflect on what I just read and mentally prepare myself for the rest of the day. That normally lasts about 15 to 20 minutes, depending on what I have planned.

Evidently, today I went into a deep sleep while doing so.
So instead of reflecting on scripture, I apparently reflected on the inside of my eyelids.

I got up, went into the kitchen, took a bowl out of the cabinet, and proceeded to pour cereal into it when my wife walked into the kitchen and asked what I was doing. I could only look at her with what I assume was a very strange look on my face — the same look Windows gives right before it crashes.

Normally, when someone is pouring cereal into a bowl, it means they’re about to eat breakfast. So I told her I was fixing breakfast.

She then informed me that I had already eaten breakfast.

A small argument began.

“No, I haven’t,” I replied, with the confidence of a man who clearly has no idea what he’s talking about.

She then pointed to the kitchen sink where an empty bowl with a spoon sat. Next to it was an empty plate with a fork — the same plate where I had apparently made myself a sausage patty earlier.

I honestly don’t remember eating breakfast this morning. But the evidence was sitting right there in the sink like a crime scene I had committed against breakfast foods.

I took the bowl of cereal, poured it back into the cereal box (because groceries are too expensive to waste), and went to sit down — feeling beaten and confused.

It made me wonder… how many times have I done something like this before and not remembered it? I think this was the first time with breakfast. Otherwise, I probably would have noticed empty dishes in the sink and wondered if we had a very polite burglar who only steals memories and leaves dishes.

What I do know is that during conversations, I can forget things right in the middle of saying them, and it’s frustrating. Sure, I know as you get older your brain starts playing games with you, but this feels different.

For as long as I can remember, I’ve done the classic “walk into a room and forget why I’m there” routine. I’ll leave one room, get halfway down the hall, and forget where I was going or what I needed. At this point, I just assume I live in the hallway now.

But lately, it feels… bigger than that.

I’ve also quit arguing with my wife about things that come up missing. I used to accuse her of moving things and not remembering where she put them — when in fact, it was me who moved them and can’t remember doing it. Turns out the call was coming from inside the house… and by house, I mean my brain.

I go back to the doctor on Tuesday, and if I can remember, this will definitely be one of the topics I bring up. I’m not sure if there’s anything they can do, but at least it will be on record.

And maybe — just maybe — tomorrow I’ll only eat breakfast once.

When “Stable” Is a Standing Ovation

30 Friday Jan 2026

Posted by Tim Hughes Living with CML in Cancer, Diabetic, diet, Leukemia, Life, Uncategorized, Weight Loss

≈ 2 Comments

Tags

Diagnosis, Dialysis, Doctor, eGFR, energy, Flood, health, Hemoglobin, Hospital, infusion, Iron, Kidney, kidney disease, kidney failure, Kidneys, Life, Medical, Nepgrologist, Oncologist, wellness

My nephrologist called me the other day to reschedule my appointment. Apparently, the hospital had a flood on the top floor, and their offices were flooded as well. Because when you’re already dealing with kidney issues, why not throw in some surprise indoor rain?

As a result, they had to temporarily move their offices to one of their satellite locations in a nearby city. The day before my appointment, they called again and asked if we could just do a teleconference instead. Same time, same doctor, no driving, and no pants required from the waist down—absolutely.

My lab work had already been done a couple of weeks earlier, and because I like to mentally prepare myself for either good news or emotional damage, I had my results emailed directly to me. Now, I’m not a doctor, and I don’t pretend to understand every number on those reports, but there are a few that I follow very closely.

First up is eGFR, or estimated Glomerular Filtration Rate. This number tells you how well your kidneys are filtering your blood. A normal range is between 90 and 120—numbers I personally haven’t seen in a while and would probably frame if they ever showed up again.

  • 60–89 is Stage 2 kidney disease
  • 45–59 is Stage 3a
  • 30–44 is Stage 3b
  • 15–29 is Stage 4
  • Below 15 means kidney failure, and dialysis becomes a very real conversation

Then there’s Creatinine, a waste product filtered by the kidneys. In simple terms, the higher the number, the worse things are working. Think of it as your kidneys’ performance review—lower is better.

The last big number I keep an eye on is hemoglobin, the protein responsible for carrying oxygen throughout your body. This one has a direct impact on how much energy I have, which explains why some days I feel like I could conquer the world, and other days I need a nap after tying my shoes. Normal range is 13.2-17.1

So here are the numbers I focus on:

  • eGFR: 35
  • Creatinine: 2.09
  • Hemoglobin: 10.5

Now yes, an eGFR of 35 doesn’t exactly scream “picture of perfect health,” but context is everything. Last year, that number was 14. At that point, my doctor was already talking about my next visit being with a dialysis specialist. That’s not a meeting you look forward to.

So going from 14 to 35? I’ll call that a solid upgrade.

My creatinine also improved significantly—from 4.29 last year down to just over 2. Another small victory, but I’ll gladly stack those wins wherever I can get them.

Hemoglobin, however, continues to do whatever it wants. It fluctuates so much that I regularly need iron infusions. My oncologist thinks it’s related to my kidney function, while my nephrologist believes it’s tied to the chemo drug I’m on. At this point, I feel like the two of them should arm wrestle, and whoever wins gets to be right.

When the call wrapped up, my nephrologist said she was happy with where things are. She even used the word “stable.”

And if you’ve never dealt with chronic illness, “stable” might sound underwhelming. But when you live in this world, stable is a beautiful word.

Stable means no dialysis—for now.
Stable means nothing is getting worse.
Stable means today is better than last year.

So yeah, I’ll take stable.
No complaints.
And preferably without any more floods—indoor or otherwise.

The Phone Call That Changed Everything

17 Saturday Jan 2026

Posted by Tim Hughes Living with CML in Cancer, Depression, Diabetic, Disability, Leukemia, Life, Weather

≈ Leave a comment

Tags

Anniversery, Cancer, Celebrate, Chemotherapy, CML, Depression, Doctor, health, Lab Work, Laughter, Leukemia, Life, Medicine, Oncologist, Weather

It’s hard to believe, but I’m coming up on my 12th anniversary of being diagnosed with CML (Chronic Myeloid Leukemia). My most recent lab work showed my cancer as undetected—which is always good news… with an asterisk. In my case, “undetected” can be a little sneaky. It can be undetected on one visit and pop back out of range on the next. I wish I could tell you why there’s such a swing, but I don’t do anything differently from month to month. Same diet. Same routine. Same bad jokes. The only thing that really changes is what the numbers decide to do.

I will never forget the day I found out. Or the days leading up to it.

I had gone in for a routine six-month checkup when my GP called and asked me to come back in for more lab work because something looked “off.” Then on February 14, 2014—Valentine’s Day—my wife and I were getting ready to meet one of my daughter’s newest boyfriends. He was coming to pick her up for a high school date, and I was in the important stage of fatherhood known as trying to find the right words to mildly terrify a teenage boy.

That’s when my phone rang.

Keep in mind, this was late on a Friday afternoon, when most doctors’ offices are already mentally in their cars. The nurse told me my white blood cell count was extremely high and that they wanted me to see an oncologist.

At that moment, I had never heard the word “oncologist.” I didn’t know what kind of doctor that was.

During the phone call, my wife quietly looked it up and said, “Tim… that’s a cancer doctor.”

Needless to say, my carefully rehearsed intimidation speech for my daughter’s boyfriend completely left the building.

My appointment was scheduled for the following Tuesday at 10 a.m., which made that weekend the longest weekend of my life. A thousand scenarios ran through my head. I didn’t sleep much. I just wanted Tuesday to get there so I could talk to someone who actually knew what was going on.

Tuesday morning arrived with snow and ice. I kept calling the office. No answer. The hospital sat on top of a steep hill, and the road was iced over. No one was going up it, including me.

Later that day, the temperatures rose, someone finally answered, and my appointment was moved to 2 p.m.

I’ll never forget meeting my oncologist. He made a lasting impression. My wife decided that day she didn’t like him from the start.

I had a thousand questions loaded and ready. I opened my mouth to ask the first one. He held up a finger and said, “I’m talking. When I’m done, I’ll answer your questions.”

And just like that, I realized I was not in charge anymore.

He’s an older doctor, and sometimes I worry that one day I’ll walk in and find out he’s retiring. I’ve been with him nearly the whole time—nearly because there was one stretch when he tried to pawn me off on another doctor at another hospital because my numbers wouldn’t behave. But that’s a story for another time.

The time after my diagnosis was one of the darkest periods of my life. I slipped into a depression I had never known before. I truly thought CML was a death sentence. I was afraid to buy anything because I figured it would just have to be sold or given away. There were days I stayed home—not because I was sick, but because I didn’t want anyone to see me fall apart.

And honestly… at that time, I didn’t care.

Through some very serious conversations with my wife, my parents, and my oncologist, I slowly crawled my way out of that hole. It didn’t happen quickly. It didn’t happen neatly. But it happened.

They say laughter is the best medicine, and while my insurance company may disagree, I’ve found it to be pretty true. If you go back and read some of my early posts, you’ll notice they don’t carry the same humor as the ones I write now. There’s a reason for that.

I still have days when the weight hits harder than others. I still have moments of fear, frustration, and fatigue. But I’ve learned that sometimes it’s better to laugh at life’s situations than to let them crush you. Humor didn’t remove cancer from my life—but it did give me a way to live with it.

So here I am, almost twelve years in. Still showing up. Still rolling the dice on lab work. Still grateful for “undetected,” even when it comes with an asterisk. Still learning. Still stumbling. Still here. And still trying to laugh whenever possible… because some days, laughter is the only thing in the room that reminds you you’re still alive.

If you’re reading this and you’re walking through cancer, or any other terminal or life-altering diagnosis, let me tell you something I had to learn the hard way: don’t give up. Don’t give up on tomorrow. Don’t give up on joy. Don’t give up on the people who love you. And don’t give up on yourself.

There will be dark days. There will be scary appointments. There will be lab results that knock the wind out of you. But there will also be days you never thought you’d see. Conversations you didn’t think you’d have. Laughs, you didn’t think you were capable of anymore. Life doesn’t end when a diagnosis begins. It just changes.

Hold on. Ask questions. Lean on the people God has put in your life. Celebrate the good days. Endure the hard ones. And if all you can do on some days is get out of bed and breathe, then that is more than enough for that day.

Almost twelve years ago, I thought my story was coming to an end.

It turns out that it was just the beginning of a very different chapter.

And as long as there’s breath in your lungs, there is still a reason to keep turning the pages.

Please Hold…My Brain is Loading

11 Sunday Jan 2026

Posted by Tim Hughes Living with CML in bariatric-surgery, Cancer, Family, Leukemia, Weight Loss

≈ Leave a comment

Tags

B12, blog, Brain Fog, Buffering, Chemotherapy, CML, Concentrating, Diary, Drugs, Forgetfulness, gastric bypass, health, Leukemia, Life, Medications, Memory, Memory Loss, Mental, mental-health, Sleep, Sticky Notes, Venting, writing

When I started this blog some years ago, it was mainly meant to be a diary of sorts — a place to vent and to voice my opinions. Gaining an audience was never part of the plan. This was more “Dear Diary” than “Dear Internet.” It wasn’t until I was diagnosed with CML that I decided to use this platform to write about my experiences with cancer and maybe, just maybe, help some other poor soul going through the same thing.

As with most things in life, plans change. Sometimes gently. Sometimes with a two-by-four.

Not only was I dealing with CML, but I also decided to write about my experiences with gastric bypass surgery. When I was doing my research, I noticed there really wasn’t much content out there. And what I did find often ended shortly after surgery, for whatever reason — almost like everyone vanished once the anesthesia wore off and nobody ever came back to update the internet.

There’s something else that’s been going on for quite some time, and I’ve finally decided to put it down on paper. I’ve been experiencing brain fog for several years, and over time, it has gotten worse. “Brain fog” is a term used to describe symptoms such as difficulty concentrating, memory problems, mental cloudiness, confusion, and trouble finding words — essentially, feeling like your brain is running Windows 95 in a world that expects fiber internet.

I notice it most when I’m trying to carry on a conversation and, right in the middle of it, my mind just… leaves. Names vanish. Phone numbers disappear. Sometimes I forget what I was saying while I’m still saying it. Short-term or long-term, it doesn’t matter. It’s there… then it’s not, kind of like my car keys.

What makes this so difficult isn’t just the symptoms themselves, but how they sneak into everyday life. I’ll walk into a room and forget why I’m there. I’ll open my phone to look something up and immediately forget what I was looking for. I’ll stand in the kitchen staring into the fridge like it’s going to explain my life choices to me.

Conversations that should be easy sometimes turn into mental obstacle courses as I search for words I’ve used my entire life. It affects my confidence more than I care to admit. When you can’t trust your own memory, you start second-guessing yourself. You hesitate before speaking. You rely more on notes, reminders, and the people around you. I’m grateful for their patience, but it’s a strange feeling when your own brain doesn’t always show up prepared.

Some days are better than others. There are moments when everything feels clear and normal, and I start to think maybe I’ve turned a corner. Then there are days when my thoughts feel like they’re moving through mud, and even simple tasks take extra effort. Those are the days that wear on you — not with fireworks, but with a steady drip of “Seriously? Again?”

If you Google the term “brain fog,” you’ll find a long list of possible causes: lack of sleep, medications, chemotherapy, B12 deficiency, and even anemia. I’ve spoken to my doctor about it, and while some over-the-counter options might help, with my anemia and the chemotherapy drugs I’m on, they may not make much difference. In other words, this may just be part of my user agreement for now.

I don’t share any of this for sympathy. I share it because this blog has always been about honesty — the good, the bad, and the occasionally forget-why-I-walked-in-here. Brain fog may be part of my story right now, but it’s not the whole story. I still laugh, I still enjoy life, and I still manage to function… even if I need a few more sticky notes than the average person.

I’ve learned to adapt. I write more things down. I set reminders. I give myself a little more grace than I used to. And when I lose my train of thought mid-sentence, I’ve decided it’s perfectly acceptable to blame the fog, shrug, and move on. If nothing else, it gives the people around me a chuckle — and honestly, some days I’m laughing right along with them.

And if you ever see me standing in a room staring off into space like I’m waiting on divine revelation, don’t worry. I’m probably just buffering.

A Little Health Update (Spoiler: I’m Still Kicking)

11 Thursday Dec 2025

Posted by Tim Hughes Living with CML in Cancer, Leukemia

≈ 2 Comments

Tags

health, Iron, Kidney, Life, Melanoma, mental-health, Oncology, Pain, Potassium, update

I haven’t posted about my health in a while, so here’s your semi-regular episode of “What’s My Body Doing Now?”

First up, the oncology report: still no detectable blast cells for about eight months. 🎉 I’m not throwing a party just yet, because last time I got excited, my labs basically said, “Surprise!” and did their own thing. But for now, we’ll call it a win.

Iron levels? Yeah… those are still on strike. I’ve officially been diagnosed with chronic anemia, which explains why I’m always freezing and walking around the house like it’s January in Alaska. I’ve had so many iron infusions I’m pretty sure I’m 3% metal at this point. Waiting on Marvel to call.

And then there’s the potassium situation. Apparently my potassium levels have been creeping up. My oncologist thinks it’s tied to the kidney failure. Meanwhile, I barely eat any high-potassium foods, so my best guess is that my body is just freelancing at this point.

Skin cancer update: I had a melanoma spot and another bonus cancer removed from my left arm a little over a month ago. They left some lovely scars, which I now refer to as battle wounds because that sounds way cooler than “my dermatologist wanted a closer look.”

Now they’ve moved on to my back. I had a spot removed Tuesday that they think might also be melanoma. We’ll know more when the biopsy comes back, but let me tell you… back pain is a whole different universe. I slept approximately 12 minutes that night because I couldn’t get comfortable. Tylenol and I are in a committed relationship now.

Anyway, that’s the latest episode. Thanks for tuning in. Same time next month for whatever plot twist my body decides to add next. 😅

Time Doesn’t Stand Still

22 Wednesday Oct 2025

Posted by Tim Hughes Living with CML in Cancer, Depression, Family, Leukemia

≈ 1 Comment

Tags

Cancer, Classmates, CML, Dating, Depression, Family, Grandkids, Great Grandkids, Kids, Lab Results, Leukemia, Life, love, Medications, mental-health, Old Age, Parents, Worrying, writing

The older I get, the more I realize that time doesn’t stand still. It seems like almost every week I hear about someone I used to go to school with or work with who has passed away. Just the thought of it can be depressing.

This past Saturday, I did a craft fair and happened to run into one of my high school classmates and her sister. We had a chance to catch up for a bit, and somehow the conversation turned to the classmates we’ve already lost. Sadly, cancer seems to have claimed most of them.

I’m 62 now — older than many of my classmates since I was held back a year — and although my health hasn’t always been the best, I count myself lucky to still be here.

Most of my classmates already have great-grandkids. Me? None of my three kids are married yet, so I’m not even a grandparent. Only one of the three is dating anyone right now, and I’m not sure when or if the other two will. That’s okay, though. I don’t ever want them to feel pressured. Still, before I go, I’d love to see all my kids married and maybe even get the chance to hold a grandbaby or two.

My parents, who are both in their mid to upper eighties, would love to see great-grandkids too. I have to remind my mom not to put pressure on my kids — she has a way of speaking her mind about things like that.

As I’ve mentioned before, I have a form of leukemia called CML. Right now, it’s under control. Sometimes one of the markers the doctors watch goes a little wild and sends everyone into a panic, but eventually, the numbers settle back down, and all is well again. I’ve come to accept that nothing I do can change the fact that I have CML. All I can do is take my daily pill, stay consistent, and be thankful that the medicine is working. Worrying won’t change the outcome.

Are you the worrying type? What’s the main thing that weighs on your mind — your kids, your health, your future, or something else? I get my worrying honestly; my grandmother on my mom’s side was a worrier, and my mom’s the same way. I guess it just runs in the family.

Life Updates: Weight Loss, Clyde, and Cold Mornings on the River

19 Sunday Oct 2025

Posted by Tim Hughes Living with CML in bariatric-surgery, Cancer, Diabetic, diet, Fishing, Kayaking, Leukemia, Nature, Pets, Weight Loss

≈ 2 Comments

Tags

Anemic, Bariatric Surgery, Bass, Cancer, CML, Cold, Fishing, health, Hobbies, Kayacking, Leukemia, Life, Pets, Temperature, Tumor, Vlogs, Weighloss, writing

I know—it’s been a minute since I’ve posted anything. Honestly, I don’t even remember what I wrote about last time, so forgive me if I repeat myself a bit.

My weight loss journey has finally leveled out—or at least I think it has. My original goal was 190 pounds, but I’ve actually surpassed that by almost 20. I weighed in this morning at 174 pounds and have been hovering there for several weeks now. That’s over a hundred pounds lost in total, which is still hard for me to wrap my head around sometimes. I’m pretty happy with where I’m at.

I don’t regret having the surgery one bit—if anything, I just wish I’d been able to do it sooner. That said, there are a few side effects I could do without. I get these hunger pains unlike anything I’ve ever felt before—sharp, deep aches around my stomach area that only fade after I eat. And since they removed my inflamed gallbladder during surgery, well, let’s just say I have to stay close to a restroom after meals. What goes in tends to come out quickly, and sometimes with little to no warning. Sometimes it’s 30 minutes, sometimes hours later—but when the tummy starts to rumble, it’s a do-or-die situation. I’ll let your imagination fill in the rest.

On a more personal note, my old buddy Clyde is still hanging in there. He’ll be 21 in January if he makes it that long. About a month ago, we found out he has a tumor on his liver. We don’t know if it’s cancerous, but because of his age, surgery isn’t an option. All we can do now is keep him comfortable and make sure his final days are filled with love. The vet couldn’t give us a timeframe, so we’re just taking things day by day. It’s tough to think about, and we’re trying to prepare ourselves mentally—but that’s easier said than done.

I’m still getting out on the river for some kayak fishing about once a week. I love it, but those 4 a.m. wake-up calls are brutal. I usually try to be on the water by sunrise to make the most of the day, and I’m typically done around 2 p.m. That’s a long stretch to be sitting in a kayak, but it’s peaceful out there.

As the temperatures drop, though, I’m not sure how much longer I’ll be able to keep it up. I’m chronically anemic and stay cold most of the time. Anything below 76 degrees is jacket weather for me. In fact, my thermostat is set at 76, and I still wear a jacket indoors most days. I have a trip planned for this Thursday, but the forecast says 43 degrees in the morning. I can bundle up, but once it warms up, I’ll have to stash my jacket somewhere—and space is limited in a kayak. The front compartment is out of reach when I’m seated, so it’s always a bit of a puzzle.

But hey, that’s life. I’ll enjoy it while I can—cold mornings, creaky joints, and all.

I’m also going to try to stay more active on here, share a bit more often, and hopefully regain some of my old followers—and maybe even find a few new ones along the way.

Feel free to ask me anything about my gastric bypass journey, my buddy Clyde, or my fishing trips. I’d love to share what I’ve learned and experienced. And if you’ve gone through weight loss surgery, have a special pet, or just want to chat about your own hobbies, I’d really enjoy hearing about them too.

← Older posts
Newer posts →

Blog Stats

  • 17,382 hits

Enter your email address to follow this blog and receive notifications of new posts by email.

Join 50 other subscribers
Follow Grayfeathersblog on WordPress.com

2015

August 2026
M T W T F S S
 12
3456789
10111213141516
17181920212223
24252627282930
31  
« Jul    

Blog at WordPress.com.

  • Subscribe Subscribed
    • Grayfeathersblog
    • Join 50 other subscribers
    • Already have a WordPress.com account? Log in now.
    • Grayfeathersblog
    • Subscribe Subscribed
    • Sign up
    • Log in
    • Report this content
    • View site in Reader
    • Manage subscriptions
    • Collapse this bar
Loading Comments...