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Category Archives: Leukemia

The Phone Call That Changed Everything

17 Saturday Jan 2026

Posted by Tim Hughes Living with CML in Cancer, Depression, Diabetic, Disability, Leukemia, Life, Weather

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Anniversery, Cancer, Celebrate, Chemotherapy, CML, Depression, Doctor, health, Lab Work, Laughter, Leukemia, Life, Medicine, Oncologist, Weather

It’s hard to believe, but I’m coming up on my 12th anniversary of being diagnosed with CML (Chronic Myeloid Leukemia). My most recent lab work showed my cancer as undetected—which is always good news… with an asterisk. In my case, “undetected” can be a little sneaky. It can be undetected on one visit and pop back out of range on the next. I wish I could tell you why there’s such a swing, but I don’t do anything differently from month to month. Same diet. Same routine. Same bad jokes. The only thing that really changes is what the numbers decide to do.

I will never forget the day I found out. Or the days leading up to it.

I had gone in for a routine six-month checkup when my GP called and asked me to come back in for more lab work because something looked “off.” Then on February 14, 2014—Valentine’s Day—my wife and I were getting ready to meet one of my daughter’s newest boyfriends. He was coming to pick her up for a high school date, and I was in the important stage of fatherhood known as trying to find the right words to mildly terrify a teenage boy.

That’s when my phone rang.

Keep in mind, this was late on a Friday afternoon, when most doctors’ offices are already mentally in their cars. The nurse told me my white blood cell count was extremely high and that they wanted me to see an oncologist.

At that moment, I had never heard the word “oncologist.” I didn’t know what kind of doctor that was.

During the phone call, my wife quietly looked it up and said, “Tim… that’s a cancer doctor.”

Needless to say, my carefully rehearsed intimidation speech for my daughter’s boyfriend completely left the building.

My appointment was scheduled for the following Tuesday at 10 a.m., which made that weekend the longest weekend of my life. A thousand scenarios ran through my head. I didn’t sleep much. I just wanted Tuesday to get there so I could talk to someone who actually knew what was going on.

Tuesday morning arrived with snow and ice. I kept calling the office. No answer. The hospital sat on top of a steep hill, and the road was iced over. No one was going up it, including me.

Later that day, the temperatures rose, someone finally answered, and my appointment was moved to 2 p.m.

I’ll never forget meeting my oncologist. He made a lasting impression. My wife decided that day she didn’t like him from the start.

I had a thousand questions loaded and ready. I opened my mouth to ask the first one. He held up a finger and said, “I’m talking. When I’m done, I’ll answer your questions.”

And just like that, I realized I was not in charge anymore.

He’s an older doctor, and sometimes I worry that one day I’ll walk in and find out he’s retiring. I’ve been with him nearly the whole time—nearly because there was one stretch when he tried to pawn me off on another doctor at another hospital because my numbers wouldn’t behave. But that’s a story for another time.

The time after my diagnosis was one of the darkest periods of my life. I slipped into a depression I had never known before. I truly thought CML was a death sentence. I was afraid to buy anything because I figured it would just have to be sold or given away. There were days I stayed home—not because I was sick, but because I didn’t want anyone to see me fall apart.

And honestly… at that time, I didn’t care.

Through some very serious conversations with my wife, my parents, and my oncologist, I slowly crawled my way out of that hole. It didn’t happen quickly. It didn’t happen neatly. But it happened.

They say laughter is the best medicine, and while my insurance company may disagree, I’ve found it to be pretty true. If you go back and read some of my early posts, you’ll notice they don’t carry the same humor as the ones I write now. There’s a reason for that.

I still have days when the weight hits harder than others. I still have moments of fear, frustration, and fatigue. But I’ve learned that sometimes it’s better to laugh at life’s situations than to let them crush you. Humor didn’t remove cancer from my life—but it did give me a way to live with it.

So here I am, almost twelve years in. Still showing up. Still rolling the dice on lab work. Still grateful for “undetected,” even when it comes with an asterisk. Still learning. Still stumbling. Still here. And still trying to laugh whenever possible… because some days, laughter is the only thing in the room that reminds you you’re still alive.

If you’re reading this and you’re walking through cancer, or any other terminal or life-altering diagnosis, let me tell you something I had to learn the hard way: don’t give up. Don’t give up on tomorrow. Don’t give up on joy. Don’t give up on the people who love you. And don’t give up on yourself.

There will be dark days. There will be scary appointments. There will be lab results that knock the wind out of you. But there will also be days you never thought you’d see. Conversations you didn’t think you’d have. Laughs, you didn’t think you were capable of anymore. Life doesn’t end when a diagnosis begins. It just changes.

Hold on. Ask questions. Lean on the people God has put in your life. Celebrate the good days. Endure the hard ones. And if all you can do on some days is get out of bed and breathe, then that is more than enough for that day.

Almost twelve years ago, I thought my story was coming to an end.

It turns out that it was just the beginning of a very different chapter.

And as long as there’s breath in your lungs, there is still a reason to keep turning the pages.

Please Hold…My Brain is Loading

11 Sunday Jan 2026

Posted by Tim Hughes Living with CML in bariatric-surgery, Cancer, Family, Leukemia, Weight Loss

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Tags

B12, blog, Brain Fog, Buffering, Chemotherapy, CML, Concentrating, Diary, Drugs, Forgetfulness, gastric bypass, health, Leukemia, Life, Medications, Memory, Memory Loss, Mental, mental-health, Sleep, Sticky Notes, Venting, writing

When I started this blog some years ago, it was mainly meant to be a diary of sorts — a place to vent and to voice my opinions. Gaining an audience was never part of the plan. This was more “Dear Diary” than “Dear Internet.” It wasn’t until I was diagnosed with CML that I decided to use this platform to write about my experiences with cancer and maybe, just maybe, help some other poor soul going through the same thing.

As with most things in life, plans change. Sometimes gently. Sometimes with a two-by-four.

Not only was I dealing with CML, but I also decided to write about my experiences with gastric bypass surgery. When I was doing my research, I noticed there really wasn’t much content out there. And what I did find often ended shortly after surgery, for whatever reason — almost like everyone vanished once the anesthesia wore off and nobody ever came back to update the internet.

There’s something else that’s been going on for quite some time, and I’ve finally decided to put it down on paper. I’ve been experiencing brain fog for several years, and over time, it has gotten worse. “Brain fog” is a term used to describe symptoms such as difficulty concentrating, memory problems, mental cloudiness, confusion, and trouble finding words — essentially, feeling like your brain is running Windows 95 in a world that expects fiber internet.

I notice it most when I’m trying to carry on a conversation and, right in the middle of it, my mind just… leaves. Names vanish. Phone numbers disappear. Sometimes I forget what I was saying while I’m still saying it. Short-term or long-term, it doesn’t matter. It’s there… then it’s not, kind of like my car keys.

What makes this so difficult isn’t just the symptoms themselves, but how they sneak into everyday life. I’ll walk into a room and forget why I’m there. I’ll open my phone to look something up and immediately forget what I was looking for. I’ll stand in the kitchen staring into the fridge like it’s going to explain my life choices to me.

Conversations that should be easy sometimes turn into mental obstacle courses as I search for words I’ve used my entire life. It affects my confidence more than I care to admit. When you can’t trust your own memory, you start second-guessing yourself. You hesitate before speaking. You rely more on notes, reminders, and the people around you. I’m grateful for their patience, but it’s a strange feeling when your own brain doesn’t always show up prepared.

Some days are better than others. There are moments when everything feels clear and normal, and I start to think maybe I’ve turned a corner. Then there are days when my thoughts feel like they’re moving through mud, and even simple tasks take extra effort. Those are the days that wear on you — not with fireworks, but with a steady drip of “Seriously? Again?”

If you Google the term “brain fog,” you’ll find a long list of possible causes: lack of sleep, medications, chemotherapy, B12 deficiency, and even anemia. I’ve spoken to my doctor about it, and while some over-the-counter options might help, with my anemia and the chemotherapy drugs I’m on, they may not make much difference. In other words, this may just be part of my user agreement for now.

I don’t share any of this for sympathy. I share it because this blog has always been about honesty — the good, the bad, and the occasionally forget-why-I-walked-in-here. Brain fog may be part of my story right now, but it’s not the whole story. I still laugh, I still enjoy life, and I still manage to function… even if I need a few more sticky notes than the average person.

I’ve learned to adapt. I write more things down. I set reminders. I give myself a little more grace than I used to. And when I lose my train of thought mid-sentence, I’ve decided it’s perfectly acceptable to blame the fog, shrug, and move on. If nothing else, it gives the people around me a chuckle — and honestly, some days I’m laughing right along with them.

And if you ever see me standing in a room staring off into space like I’m waiting on divine revelation, don’t worry. I’m probably just buffering.

A Little Health Update (Spoiler: I’m Still Kicking)

11 Thursday Dec 2025

Posted by Tim Hughes Living with CML in Cancer, Leukemia

≈ 2 Comments

Tags

health, Iron, Kidney, Life, Melanoma, mental-health, Oncology, Pain, Potassium, update

I haven’t posted about my health in a while, so here’s your semi-regular episode of “What’s My Body Doing Now?”

First up, the oncology report: still no detectable blast cells for about eight months. 🎉 I’m not throwing a party just yet, because last time I got excited, my labs basically said, “Surprise!” and did their own thing. But for now, we’ll call it a win.

Iron levels? Yeah… those are still on strike. I’ve officially been diagnosed with chronic anemia, which explains why I’m always freezing and walking around the house like it’s January in Alaska. I’ve had so many iron infusions I’m pretty sure I’m 3% metal at this point. Waiting on Marvel to call.

And then there’s the potassium situation. Apparently my potassium levels have been creeping up. My oncologist thinks it’s tied to the kidney failure. Meanwhile, I barely eat any high-potassium foods, so my best guess is that my body is just freelancing at this point.

Skin cancer update: I had a melanoma spot and another bonus cancer removed from my left arm a little over a month ago. They left some lovely scars, which I now refer to as battle wounds because that sounds way cooler than “my dermatologist wanted a closer look.”

Now they’ve moved on to my back. I had a spot removed Tuesday that they think might also be melanoma. We’ll know more when the biopsy comes back, but let me tell you… back pain is a whole different universe. I slept approximately 12 minutes that night because I couldn’t get comfortable. Tylenol and I are in a committed relationship now.

Anyway, that’s the latest episode. Thanks for tuning in. Same time next month for whatever plot twist my body decides to add next. 😅

Time Doesn’t Stand Still

22 Wednesday Oct 2025

Posted by Tim Hughes Living with CML in Cancer, Depression, Family, Leukemia

≈ 1 Comment

Tags

Cancer, Classmates, CML, Dating, Depression, Family, Grandkids, Great Grandkids, Kids, Lab Results, Leukemia, Life, love, Medications, mental-health, Old Age, Parents, Worrying, writing

The older I get, the more I realize that time doesn’t stand still. It seems like almost every week I hear about someone I used to go to school with or work with who has passed away. Just the thought of it can be depressing.

This past Saturday, I did a craft fair and happened to run into one of my high school classmates and her sister. We had a chance to catch up for a bit, and somehow the conversation turned to the classmates we’ve already lost. Sadly, cancer seems to have claimed most of them.

I’m 62 now — older than many of my classmates since I was held back a year — and although my health hasn’t always been the best, I count myself lucky to still be here.

Most of my classmates already have great-grandkids. Me? None of my three kids are married yet, so I’m not even a grandparent. Only one of the three is dating anyone right now, and I’m not sure when or if the other two will. That’s okay, though. I don’t ever want them to feel pressured. Still, before I go, I’d love to see all my kids married and maybe even get the chance to hold a grandbaby or two.

My parents, who are both in their mid to upper eighties, would love to see great-grandkids too. I have to remind my mom not to put pressure on my kids — she has a way of speaking her mind about things like that.

As I’ve mentioned before, I have a form of leukemia called CML. Right now, it’s under control. Sometimes one of the markers the doctors watch goes a little wild and sends everyone into a panic, but eventually, the numbers settle back down, and all is well again. I’ve come to accept that nothing I do can change the fact that I have CML. All I can do is take my daily pill, stay consistent, and be thankful that the medicine is working. Worrying won’t change the outcome.

Are you the worrying type? What’s the main thing that weighs on your mind — your kids, your health, your future, or something else? I get my worrying honestly; my grandmother on my mom’s side was a worrier, and my mom’s the same way. I guess it just runs in the family.

Life Updates: Weight Loss, Clyde, and Cold Mornings on the River

19 Sunday Oct 2025

Posted by Tim Hughes Living with CML in bariatric-surgery, Cancer, Diabetic, diet, Fishing, Kayaking, Leukemia, Nature, Pets, Weight Loss

≈ 2 Comments

Tags

Anemic, Bariatric Surgery, Bass, Cancer, CML, Cold, Fishing, health, Hobbies, Kayacking, Leukemia, Life, Pets, Temperature, Tumor, Vlogs, Weighloss, writing

I know—it’s been a minute since I’ve posted anything. Honestly, I don’t even remember what I wrote about last time, so forgive me if I repeat myself a bit.

My weight loss journey has finally leveled out—or at least I think it has. My original goal was 190 pounds, but I’ve actually surpassed that by almost 20. I weighed in this morning at 174 pounds and have been hovering there for several weeks now. That’s over a hundred pounds lost in total, which is still hard for me to wrap my head around sometimes. I’m pretty happy with where I’m at.

I don’t regret having the surgery one bit—if anything, I just wish I’d been able to do it sooner. That said, there are a few side effects I could do without. I get these hunger pains unlike anything I’ve ever felt before—sharp, deep aches around my stomach area that only fade after I eat. And since they removed my inflamed gallbladder during surgery, well, let’s just say I have to stay close to a restroom after meals. What goes in tends to come out quickly, and sometimes with little to no warning. Sometimes it’s 30 minutes, sometimes hours later—but when the tummy starts to rumble, it’s a do-or-die situation. I’ll let your imagination fill in the rest.

On a more personal note, my old buddy Clyde is still hanging in there. He’ll be 21 in January if he makes it that long. About a month ago, we found out he has a tumor on his liver. We don’t know if it’s cancerous, but because of his age, surgery isn’t an option. All we can do now is keep him comfortable and make sure his final days are filled with love. The vet couldn’t give us a timeframe, so we’re just taking things day by day. It’s tough to think about, and we’re trying to prepare ourselves mentally—but that’s easier said than done.

I’m still getting out on the river for some kayak fishing about once a week. I love it, but those 4 a.m. wake-up calls are brutal. I usually try to be on the water by sunrise to make the most of the day, and I’m typically done around 2 p.m. That’s a long stretch to be sitting in a kayak, but it’s peaceful out there.

As the temperatures drop, though, I’m not sure how much longer I’ll be able to keep it up. I’m chronically anemic and stay cold most of the time. Anything below 76 degrees is jacket weather for me. In fact, my thermostat is set at 76, and I still wear a jacket indoors most days. I have a trip planned for this Thursday, but the forecast says 43 degrees in the morning. I can bundle up, but once it warms up, I’ll have to stash my jacket somewhere—and space is limited in a kayak. The front compartment is out of reach when I’m seated, so it’s always a bit of a puzzle.

But hey, that’s life. I’ll enjoy it while I can—cold mornings, creaky joints, and all.

I’m also going to try to stay more active on here, share a bit more often, and hopefully regain some of my old followers—and maybe even find a few new ones along the way.

Feel free to ask me anything about my gastric bypass journey, my buddy Clyde, or my fishing trips. I’d love to share what I’ve learned and experienced. And if you’ve gone through weight loss surgery, have a special pet, or just want to chat about your own hobbies, I’d really enjoy hearing about them too.

September 6th Video Update

09 Monday Sep 2024

Posted by Tim Hughes Living with CML in bariatric-surgery, Cancer, Diabetic, Leukemia, VLog, Weight Loss

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Tags

Bariatric, bariatric-surgery, Diabetes, life changing, post-op, update, VLog, Weight loss

Four Month Post Op

24 Saturday Aug 2024

Posted by Tim Hughes Living with CML in bariatric-surgery, Diabetic, diet, Disability, Leukemia, Retirement, Weight Loss

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bariatric-surgery, crow boot, Doctor, orthopedic, post-op, Weight loss

July 24th 2024 226lbs
August 24th 216 lbs

Lost ten pounds this month. Everything is progressing nicely. The doctor wants me to lose thirty more pounds. If this keeps going the way they have, that should take another three months. I’m in no hurry. Just as long as I lose what I need to lose to get my BMI to a healthy range.

I go to my orthopedic Dr on Monday. I should know more when I get this boot off and in a regular shoe. Hope it will be in the next six weeks or so. The first thing I’m going to do is get my kayak out and go fishing.

Update: May 26th One Month Post-op

26 Sunday May 2024

Posted by Tim Hughes Living with CML in bariatric-surgery, Boy Scouts, Cancer, Diabetic, diet, Disability, Leukemia, Weight Loss

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bariatric-surgery, Boy Scouts, Charcot Midfoot, gastric bypass, mobility scooter, Summer Camp

Thursday, May 24th was one month since my gastric bypass surgery. I’ve lost 35 pounds. I’m eating way less than before surgery which is to be expected. So far, I’ve not experienced any sickness.

The doctor has taken me off of all my insulin and put me on mounjuro. (Sp) It’s a once per week injection of 2.5 mg for 4 weeks. I’m not sure if they’re going to up the dosage after that or not.

If I’m still in my boot and not in a cast, I’m planning on going to Summer camp with the Boy Scouts. There is no way I can hobble around the campgrounds in this boot so I’ve purchased a used mobility scooter. I had to drive 3.5 hours one-way to get it. I just couldn’t pass up the good deal. I’ll find other uses for it I’m sure.

It’s a Beginning

19 Wednesday Aug 2020

Posted by Tim Hughes Living with CML in Cancer, Cycling, Diabetic, Leukemia, Weight Loss

≈ 1 Comment

Tags

Cycling, goals, Weight loss

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When I started riding back in 2013, I rode a total of 1700 miles.  I know, to some of you that’s a drop in a bucket but I was pretty proud of my accomplishment.  2014 is when I was diagnosed and because of my health issues, I was only able to ride 530 miles.  I was able to increase my mileage somewhat to 890 miles in 2015.  2016 was a different story.  I stayed in the hospital for several weeks because of complications and I never had the energy nor the strength to ride therefore I rode zero miles that year.  In 2017, I was determined to start again and I did get a decent start with 150 miles but it soon faded because I was plagued with complications again.  In the next two years, I was lucky to get 100 miles or less because of fatigue and weight issues.  Because of this challenge that I’ve signed up for, I’ve pretty much-given caution to the wind and I’m going to ride if it kills me.

Today I was able to ride six miles, most of it pretty well.  I did have some issues going up against some steep hills but I think once I lose some weight and get more in shape, I’ll get better with the hills.  The only way I’m going to get better is to keep doing it.  In 2013, I had worked up to 25 miles every time I got on my bike and I was riding close to four days a week during the Spring and Summer. There’s no way I can do that now but that’s my goal.

Stay safe everyone!!

Life Goes On!

17 Friday Jan 2020

Posted by Tim Hughes Living with CML in Cancer, Diabetic, diet, Leukemia, Weight Loss

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Tags

Cancer, Leukemia, Oncologist, Ulcers, Weightloss, Zantac

_1TH9138Happy belated holidays! Wow!  It’s been a rollercoaster ride for me and my family.  There is no way I can put all that’s been going on in one post.  If I did, it would be a very long post and most would not read to the end.  So, that being said I’ll probably post several topics in the next few days.  I’ll go ahead and briefly tell you what’s been going on though.

Diet  Nonexistent.  I really tired but these holidays were just too much for my weak will power.  I am back on it but and I have lost a few pounds.  I got on my treadmill the other day and I think the thing has a weak motor.  I know I weigh quite a bit but I don’t think the thing should stop suddenly like that. Maybe I’ll rejoin the gym at the local Baptist church up the street.

Dad’s Kidney Stones Dad called me up before Christmas wanting to know if I could take him to the hospital to have a kidney stone removed.  It seems that my mom, which is in her 80’s, had to take her to a clinic in the early morning hours that morning.  The doctor there said that he had a stone which was too big to pass on his own.  1.2mm x .08mm.  The clinic did not have the resources there to break up the stone.  I took him to the hospital and the doctor there said that they normally do not call in the urologist for anything that small.  My dad and I looked at each other. I looked it up and 1.2mm is nearly half an inch.  I called the doctor out on it and he reassured me that my dad could pass the stone.   The day after Christmas, which was about a week later, my sister made an appointment with a urologist and had the stone removed.  I won’t go into how they did it but from the sound of it, I wouldn’t want to have it done.  I spoke to him yesterday and all is well.

Oncologist Report  I haven’t been or heard from my oncologist since last August.  A lot of things have been going on with different meds that had me concerned about my numbers.  You see, I’m on drugs for some ulcers in my lower stomach.  One of the drugs that I’ve been on is Zantac.  This drug has been known to lower the effectiveness of my cancer drug as well as cause cancer too.  In order for the ulcer med to have minimal effect on my cancer drug, there had to be a six-hour delay before I could take my cancer drug after taking the ulcer drug.  Now, the new drug they have me on after taking me off the Zantac, they want me to take it four times a day but still keep the six-hour delay.  Can’t be done.  So far I have only figured out that I can take it in the morning and once at night before going to bed.  This is crazy. Oh, by the way, all my numbers are good.  

Ok, that’s it for tonight.  There are several more interesting items that I want to talk about so stay tuned.

 

 

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