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Grayfeathersblog

~ Diabetes, Cancer Fighter, Father of Twins, Kayak Fishing, Woodcrafter, Lover of Life

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Tag Archives: Medication

Have I Told You Lately How Much I Hate Hospitals??

15 Tuesday Nov 2016

Posted by Tim Hughes Living with CML in Cancer, Photography

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Tags

Breathing, Cancer, Diastolic Heart Failure, Fluid Retintion, Hosptials, Lungs, Medication

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To get it out of the way and I know everyone is tired of seeing pictures of the “Super Moon”,  here is the one that I spent over an hour trying to get the exposure correct.  Not exactly happy with it because it’s still a little out of focus.

A lot has happened since my last post and I’ll try to make it short as to not bore anyone.  But a brief recap is in order.  Back in August I had major breathing issues and I checked myself into the hospital thinking it was my heart.  They did a stress test, an echo-cardiogram and a heart heart cath. and found that I had 70% blockage in one of my arteries where they placed two stents.  My breathing had not improved any.

They then decided to do some breathing tests and ordered a CT scan.  They found fluid in my lungs.  They drew out 2 liters of fluid from my right lung.  I felt great afterwards.  They think that it’s my CML meds causing the fluid retention.

Two months later, in October, my breathing started getting bad again. My pulmonary doctor ordered another CT scan and found more fluid in my lungs.  He pulled just over a liter of fluid off my right lung.  Keep in mind that they haven’t touched my left lung.

Since all the fluid has started building up in my lungs, all three of my doctors (cardiologist, pulmonary and oncologist) agreed that a reduction of dosage in my CML meds.  It was reduced from 100 mg to 80 mg.  But my problem returned even quicker after my last fluid withdrawal.

Last Monday, November 7th, I couldn’t take it any longer.  I had to get some relief.  I couldn’t do anything without stopping and catching my breath.  Tuesday, after I voted, I went to the emergency room. I told them what I wanted them to do and they proceeded to do x rays. X rays showed nothing so they proceed to do another stress test and echo cardiogram.  But not after I sat in the emergency room all day on Tuesday.  I was finally admitted late Tuesday evening and they started doing the tests on Wednesday. Wasted a full day on Tuesday.

I was released on Friday evening but not after having another liter and a half removed from my lungs and another diagnosis of diastolic heart failure.  So, I’m on nitroglycerin patches to help me breathe and a whole lot of other meds as well.

 

365 Day Photo Challenge 352/365 “New Medication”

17 Thursday Dec 2015

Posted by Tim Hughes Living with CML in Cancer, Leukemia, Photography

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365 Day Photo Challenge, Cancer, CML, Medication, Sprycel

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I heard from my oncologist today and I’ve got a new drug to take for my CML.  The survival rate is no more than the previous drug but as long as it keeps me alive I’m good. It also has about the same side effects as the other so unless there’s something I don’t know about I guess I’ll be ok with it as well.

I stayed home again today with this kidney stone that has yet to pass.  I had to get up early this morning to take a pain pill but so far today I’m moderately pain free.  I’ll be going into work tomorrow regardless if I’m pain free or not.  I’m low on time so I have to go in.

365 Day Photo Challenge Day Twenty “The Straight and Narrow”

20 Tuesday Jan 2015

Posted by Tim Hughes Living with CML in Uncategorized

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365 Photo Challenge, anxiety, Depression, HDR, Medication, Photography

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Some may disagree with me but I think we have all chosen the path we travel.  At some point in out lives we made a decision that eventually made us into what we are today.  I made several “wrong turns” in my life that I now regret now that I have had a chance to look back.  Some of which I knew once I made the decision I would live to regret it and it would have dire consequences.

It’s how we handle these “wrong turns” in out lives that really matter.  Although I have not been diagnosed but I know I have bouts with depression and severe anxiety attacks.  I guess I should talk to my doctor about it but I really don’t need any more meds.  I try talking to my wife about some of the issues I’m having but she doesn’t understand.  She says she does but there’s really no way she could.

I know ignoring the problems isn’t healthy and I don’t really ignore them.  When ever things get tough at work I try to face the problems head on and deal with them but my question is, am I really handling the problem in the right way? Is there a different way I should be dealing with the problem.

Sorry for the rambling but it’s something that I had to get off my chest.

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