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~ Diabetes, Cancer Fighter, Father of Twins, Kayak Fishing, Woodcrafter, Lover of Life

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Tag Archives: Fatigue

Fishing Was a Bad Idea

16 Wednesday Sep 2026

Posted by Tim Hughes Living with CML in Cancer, Fishing, Kayaking, Leukemia, Life, Nature, Uncategorized, Weather

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adventure, CML, Dizzy, Exhausting, Fatigue, Fishing, health, Iron, Leukemia, Medication, Nature, Oncologist, Outdoors, Side Effects, Tired, Travel, Wind

I got up this morning and went fishing.

I’ll have to admit, it probably wasn’t the best decision I’ve made over the last few weeks. As I’m sitting here writing this, I’m completely exhausted.

The wind was horrible. And when I say horrible, I mean horrible. If it weren’t for someone fishing with me, I probably would have called it a day and headed home a whole lot sooner.

Once the wind picks up, fishing from a kayak stops being fun. You spend more time trying to stay in one spot than you do actually fishing. Paddle forward, drift backward. Paddle left, drift right. Before long, you start wondering if you’re actually fishing or just getting a really expensive upper-body workout.

A few weeks ago, I started taking a new CML medication. Within a few days, I was so fatigued and dizzy that I could hardly function. Since that was the only thing that had been added or changed, I naturally blamed the medication and stopped taking it.

After talking with my oncologist, he wanted me to stay off the medication for a couple of days and then start taking it again. I did that, and thankfully, the side effects weren’t nearly as bad the second time around. The fatigue is still there, but the dizziness has pretty much disappeared.

As it turns out, though, the medication may not have been the culprit after all.

My iron levels are extremely low. Low enough that I’m having to get an iron infusion once a week for the next three weeks in an effort to get my levels back up to something resembling normal.

That explains a lot.

It also explains why I’m so completely wiped out after this morning’s fishing trip. Between the low iron and that ridiculous wind, getting back to the launch took a lot longer than I had planned. I had to stop several times along the way just to rest and catch my breath.

Once I finally made it home, I was able to muster up enough energy to unload the truck and put all of my fishing gear away.

And that’s it.

That’s all I’ve got.

I’m done.

In fact, I’m so tired that I’m not even sure I have enough energy to take a nap.

Yes, you read that right. I’m too tired to nap.

I didn’t think that was possible.

Apparently, my body has decided that today is a good day to remind me who’s in charge. And after this morning, I think I’m going to listen.

The kayak can wait.

The fish can wait.

And, thankfully, the wind can wait too.

Right now, I think the best fishing strategy is going to be sitting in my recliner and trying not to move unless absolutely necessary.

Catching Up, Slowing Down, and a Growing Family

07 Monday Sep 2026

Posted by Tim Hughes Living with CML in Cancer, Family, Fishing, Kayaking, Leukemia, Life, Twins

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adventure, Alarm, Bible Study, Blogging, books, Dizziness, Family, Fatigue, Fishing, health, Heat, Holiday, In-laws, John Grisham, Kayaking, Kindle, Life, love, Reading, Weather, Weddings, writing

I’m behind on my WP blog reading. It’s been a rough couple of days with this fatigue. I’ve been doing pretty well with the dizziness, but between this extreme heat we’re having and the fatigue, life has slowed down to a crawl. I haven’t been doing much more than sleeping my life away.

Right now, I’m waiting on my phone to charge enough to last through the night so I can use it for my alarm in the morning. I’m going to try to go to bed early tonight, so once I’m done catching up, I’m calling it a night regardless of how much charge is left. 4 a.m. will come early, and I need to be up and moving so I can make it to Bible study by 6 a.m. Apparently, my body and I have different opinions about what constitutes a reasonable bedtime.

Because it’s been so hot, even in my garage, when I am awake, I’ve usually got my Kindle out, and I’m reading. I’ve started reading one of my favorite authors, John Grisham, again. I’ve read just about every book he’s written. I took inventory the other day and discovered I only have ten more books to read before I’ll be completely caught up.

He just came out with his latest book, and he already has another one scheduled to be published in 2028. Yep, I’ve already got that one on my “to read” list, too. I may be tired, but apparently I’m still organized enough to plan my reading schedule several years in advance.

My wife, my twin girls, and I also met up with my son’s future in-laws. My son wanted to use today’s holiday as an opportunity for all of us to finally meet. We had a great time getting to know them. They may be a little higher class than what we’re used to, but they are really nice people and were incredibly easy to talk to. I’m hoping we’ll have more opportunities to get together before—and even after—my son’s wedding.

Oh, by the way, my son is getting engaged next week.

They’ve already set the wedding date for sometime in March of next year. So, that makes two.

My daughter, who got engaged a few months ago, will be getting married in June, and my son will be getting married in March. That means we’ll only have one more to get married off.

At this point, I’m not sure when that will happen, but we’re not in any big hurry. I’m pretty sure my daughter isn’t either.

I do have a fishing date planned for this Wednesday. It may take me a little longer to get to my fishing hole because of this fatigue, but I’ve got it on my calendar anyway. Sometimes you just have to put something on the calendar and hope your body gets the memo.

So, I guess we’ve officially entered the “planning weddings” phase of life. Between that, Bible study, reading, fishing, trying to stay cool, and trying to convince my body that sleeping all day isn’t actually a hobby, plenty is going on around here.

I just wish I had a little more energy to actually participate in it.

Medication: Round Two

04 Friday Sep 2026

Posted by Tim Hughes Living with CML in Cancer, Leukemia, Life, Uncategorized, Weather

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adventure, Cleaning, Doctor, Fatigue, garden, gardening, health, Heat, Life, Medication, Nature, Oncologist, plants, Rain, Weather, writing, Yardwork

After having a discussion with my oncologist, he wanted me to stay off the meds for a few days before starting them again. So, after being off the medication for those few days, I started back on it last Tuesday night.

The thought was that if any side effects were going to reappear after restarting the medication, they would probably show their ugly faces sometime Thursday or Friday morning. Well, it’s Friday afternoon, and so far, the only side effect I’m feeling is a little fatigue. I can handle that.

I haven’t really felt like doing much other than sitting around and reading, but I finally decided I needed to get up and start moving around.

I’ve started doing some more cleaning in the garage since I haven’t been able to do much out there with everything that’s been going on, including my daughter being in the hospital. I’ve also been trying to get a little yard work done.

Today, after breakfast, I got the hose out, hooked up the sprinkler, and started watering my front yard.

Apparently, Moses is out there somewhere with his arms stretched out, parting the rain and making sure it doesn’t fall on my yard. It’s raining everywhere else, but not here.

After securing the hose to the house and the other end to the sprinkler, I turned the water on. Then I had to sit down for a few minutes and rest up. With the heat we’re experiencing here—100 degrees plus—and the fatigue from the medication, it doesn’t take much to wear me out.

While the sprinkler was doing its thing, I stepped into the garage and started doing some much-needed cleaning. Although it’s a little bit of a “rob Peter to pay Paul” situation, I am making some progress.

I was able to make the path from my basement door to the house door much wider, so you’re a lot less likely to trip and fall. That may not sound like a major accomplishment, but when you’re trying to keep a garage organized, sometimes making a path you can actually walk through feels like a pretty big victory.

Of course, with this heat, even in the garage, it’s hard to do much without having to sit down and rest for a while.

After about three hours of watering the yard, I finally stopped the garage cleaning, turned off the water, and secured the hose.

Even with the heat and the fatigue, I managed to get a few things accomplished today. That feels pretty good.

I didn’t make it to the men’s Bible study last Saturday, so I’m looking forward to the fellowship tomorrow morning—assuming my side effects continue to cooperate.

Anytime you have a different medication introduced into your system, it’s always a good idea to pay attention to what your body is telling you and to be aware of the possible side effects. It’s also important to let your doctor know about anything unusual you’re experiencing.

One thing I learned from a lady who was part of the original clinical trial for one of the medications I was on at one time really stuck with me.

She explained that if, at any time during the study, someone came in with any kind of ailment—a headache, a stomachache, a rash, anything—it went into the report. If enough people came in reporting the same issue, regardless of whether it actually had anything to do with the medication or not, it could eventually become listed as a possible side effect.

That’s one reason it’s so important to pay attention, speak up, and keep your doctor informed.

For now, I’m taking things one day at a time, trying to stay active when I can, and being thankful that the dizziness hasn’t returned. Hopefully, things will continue moving in the right direction.

Listen to What Your Body is Telling You.

30 Sunday Aug 2026

Posted by Tim Hughes Living with CML in Cancer, Kayaking, Leukemia, Life, Uncategorized

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Tags

Body, CML, Dizziness, Doctor, Family, Fatigue, Fishing, health, Kayaking, Life, Medication, Mental, mental-health, Reaction, writing

I was reminded of that today while reading a blog post I follow. Hazel reminded me that no matter what I’m doing, I need to listen to what my body is telling me. Sometimes we have a tendency to push through things, thinking we’ll be okay. Other times, our bodies have a way of making it very clear that we need to slow down.

Mine has been doing a pretty good job of getting my attention lately.

I started a new medication for my CML last Thursday. I’m taking two tablets, 40 mg each. I’m supposed to take them on an empty stomach, with no food for two hours before and at least one hour after taking them. I took them at bedtime both Thursday and Friday.

Friday night was rough.

I had a very restless night and finally decided to get out of bed around 3 a.m.—or at least I attempted to.

I sat up and immediately became dizzy. I sat there for a few minutes and waited for it to pass. When I finally stood up, the dizziness returned, and I nearly hit the floor. I grabbed the wall to keep myself upright and waited another couple of minutes before attempting to move.

Eventually, I made it to the den and collapsed into my recliner. I was exhausted. I felt like I had absolutely nothing left in the tank.

I tried going back to sleep, but I couldn’t get comfortable. I decided I would read for a while, but, of course, my glasses were in the bedroom.

I really, really didn’t want to get back up.

I knew what was probably going to happen.

Sure enough, when I stood up, the dizziness hit again. I nearly fell backward into the recliner. I grabbed hold of something and waited for it to subside. After a minute or so, I was able to make my way to the bedroom, retrieve my glasses and return to the den.

By the time I got back to my chair, I was wondering if I had enough energy to make the trip again if I had forgotten something.

Around 5 a.m., I finally decided I needed to find out exactly what might be going on. I made my way to the kitchen and retrieved the medication information packet that came with the prescription.

I started reading through the list of possible side effects.

Number three was dizziness and feeling faint.

Bingo.

Unfortunately, there was nothing listed specifically about fatigue. Later, I learned that fatigue is a side effect associated with many cancer medications, so apparently I managed to get a two-for-one special.

Dizziness and fatigue.

Just what I was hoping for.

I texted the guys in our Saturday morning Bible study group and told them not to expect me. I explained that I believed I was experiencing side effects from the new medication and that I simply wasn’t feeling well.

I spent most of the rest of the day in my recliner, getting up only when I absolutely had to.

I slept a little better Saturday night, but I’m still dealing with the fatigue and dizziness when I stand. Because of that, I didn’t go to church this morning either. Thankfully, I was able to watch the service on YouTube.

I had been thinking about going fishing Monday.

I’ve changed my mind.

At this point, I seriously doubt I’ll feel up to it. And honestly, I don’t think getting into a kayak while I’m dizzy is exactly what my doctor would recommend. Besides, I’m pretty sure the fish would take advantage of the situation and laugh at me.

I don’t have any appointments until Tuesday morning Bible study, and I’m really hoping I’ll be feeling better by then.

I’m also not taking any more of this medication until I speak with my oncologist on Monday. I want to talk with him about what happened and see what my options are. Maybe there is a way to adjust the dosage so that the medication can still do what it’s supposed to do without making me feel like I’m one wrong step away from becoming a human tumbleweed.

I’ve spent a lot of years dealing with CML and everything that comes with it. I know how important it is to take the medication and follow the treatment plan.

But I’m also learning that following the plan doesn’t mean ignoring what my body is telling me.

Sometimes you have to stop, pay attention and say, “Something isn’t right.”

That’s where I am right now.

So, for the moment, I’m going to listen to my body, stay in my recliner, and let my oncologist help me figure out what comes next.

Maybe the fishing rod can wait a few more days.

The fish aren’t going anywhere.

Well… at least I hope they aren’t.

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