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~ Diabetes, Cancer Fighter, Father of Twins, Kayak Fishing, Woodcrafter, Lover of Life

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Tag Archives: Dizziness

Catching Up, Slowing Down, and a Growing Family

07 Monday Sep 2026

Posted by Tim Hughes Living with CML in Cancer, Family, Fishing, Kayaking, Leukemia, Life, Twins

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adventure, Alarm, Bible Study, Blogging, books, Dizziness, Family, Fatigue, Fishing, health, Heat, Holiday, In-laws, John Grisham, Kayaking, Kindle, Life, love, Reading, Weather, Weddings, writing

I’m behind on my WP blog reading. It’s been a rough couple of days with this fatigue. I’ve been doing pretty well with the dizziness, but between this extreme heat we’re having and the fatigue, life has slowed down to a crawl. I haven’t been doing much more than sleeping my life away.

Right now, I’m waiting on my phone to charge enough to last through the night so I can use it for my alarm in the morning. I’m going to try to go to bed early tonight, so once I’m done catching up, I’m calling it a night regardless of how much charge is left. 4 a.m. will come early, and I need to be up and moving so I can make it to Bible study by 6 a.m. Apparently, my body and I have different opinions about what constitutes a reasonable bedtime.

Because it’s been so hot, even in my garage, when I am awake, I’ve usually got my Kindle out, and I’m reading. I’ve started reading one of my favorite authors, John Grisham, again. I’ve read just about every book he’s written. I took inventory the other day and discovered I only have ten more books to read before I’ll be completely caught up.

He just came out with his latest book, and he already has another one scheduled to be published in 2028. Yep, I’ve already got that one on my “to read” list, too. I may be tired, but apparently I’m still organized enough to plan my reading schedule several years in advance.

My wife, my twin girls, and I also met up with my son’s future in-laws. My son wanted to use today’s holiday as an opportunity for all of us to finally meet. We had a great time getting to know them. They may be a little higher class than what we’re used to, but they are really nice people and were incredibly easy to talk to. I’m hoping we’ll have more opportunities to get together before—and even after—my son’s wedding.

Oh, by the way, my son is getting engaged next week.

They’ve already set the wedding date for sometime in March of next year. So, that makes two.

My daughter, who got engaged a few months ago, will be getting married in June, and my son will be getting married in March. That means we’ll only have one more to get married off.

At this point, I’m not sure when that will happen, but we’re not in any big hurry. I’m pretty sure my daughter isn’t either.

I do have a fishing date planned for this Wednesday. It may take me a little longer to get to my fishing hole because of this fatigue, but I’ve got it on my calendar anyway. Sometimes you just have to put something on the calendar and hope your body gets the memo.

So, I guess we’ve officially entered the “planning weddings” phase of life. Between that, Bible study, reading, fishing, trying to stay cool, and trying to convince my body that sleeping all day isn’t actually a hobby, plenty is going on around here.

I just wish I had a little more energy to actually participate in it.

Listen to What Your Body is Telling You.

30 Sunday Aug 2026

Posted by Tim Hughes Living with CML in Cancer, Kayaking, Leukemia, Life, Uncategorized

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Body, CML, Dizziness, Doctor, Family, Fatigue, Fishing, health, Kayaking, Life, Medication, Mental, mental-health, Reaction, writing

I was reminded of that today while reading a blog post I follow. Hazel reminded me that no matter what I’m doing, I need to listen to what my body is telling me. Sometimes we have a tendency to push through things, thinking we’ll be okay. Other times, our bodies have a way of making it very clear that we need to slow down.

Mine has been doing a pretty good job of getting my attention lately.

I started a new medication for my CML last Thursday. I’m taking two tablets, 40 mg each. I’m supposed to take them on an empty stomach, with no food for two hours before and at least one hour after taking them. I took them at bedtime both Thursday and Friday.

Friday night was rough.

I had a very restless night and finally decided to get out of bed around 3 a.m.—or at least I attempted to.

I sat up and immediately became dizzy. I sat there for a few minutes and waited for it to pass. When I finally stood up, the dizziness returned, and I nearly hit the floor. I grabbed the wall to keep myself upright and waited another couple of minutes before attempting to move.

Eventually, I made it to the den and collapsed into my recliner. I was exhausted. I felt like I had absolutely nothing left in the tank.

I tried going back to sleep, but I couldn’t get comfortable. I decided I would read for a while, but, of course, my glasses were in the bedroom.

I really, really didn’t want to get back up.

I knew what was probably going to happen.

Sure enough, when I stood up, the dizziness hit again. I nearly fell backward into the recliner. I grabbed hold of something and waited for it to subside. After a minute or so, I was able to make my way to the bedroom, retrieve my glasses and return to the den.

By the time I got back to my chair, I was wondering if I had enough energy to make the trip again if I had forgotten something.

Around 5 a.m., I finally decided I needed to find out exactly what might be going on. I made my way to the kitchen and retrieved the medication information packet that came with the prescription.

I started reading through the list of possible side effects.

Number three was dizziness and feeling faint.

Bingo.

Unfortunately, there was nothing listed specifically about fatigue. Later, I learned that fatigue is a side effect associated with many cancer medications, so apparently I managed to get a two-for-one special.

Dizziness and fatigue.

Just what I was hoping for.

I texted the guys in our Saturday morning Bible study group and told them not to expect me. I explained that I believed I was experiencing side effects from the new medication and that I simply wasn’t feeling well.

I spent most of the rest of the day in my recliner, getting up only when I absolutely had to.

I slept a little better Saturday night, but I’m still dealing with the fatigue and dizziness when I stand. Because of that, I didn’t go to church this morning either. Thankfully, I was able to watch the service on YouTube.

I had been thinking about going fishing Monday.

I’ve changed my mind.

At this point, I seriously doubt I’ll feel up to it. And honestly, I don’t think getting into a kayak while I’m dizzy is exactly what my doctor would recommend. Besides, I’m pretty sure the fish would take advantage of the situation and laugh at me.

I don’t have any appointments until Tuesday morning Bible study, and I’m really hoping I’ll be feeling better by then.

I’m also not taking any more of this medication until I speak with my oncologist on Monday. I want to talk with him about what happened and see what my options are. Maybe there is a way to adjust the dosage so that the medication can still do what it’s supposed to do without making me feel like I’m one wrong step away from becoming a human tumbleweed.

I’ve spent a lot of years dealing with CML and everything that comes with it. I know how important it is to take the medication and follow the treatment plan.

But I’m also learning that following the plan doesn’t mean ignoring what my body is telling me.

Sometimes you have to stop, pay attention and say, “Something isn’t right.”

That’s where I am right now.

So, for the moment, I’m going to listen to my body, stay in my recliner, and let my oncologist help me figure out what comes next.

Maybe the fishing rod can wait a few more days.

The fish aren’t going anywhere.

Well… at least I hope they aren’t.

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