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~ Diabetes, Cancer Fighter, Father of Twins, Kayak Fishing, Lover of Life

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Category Archives: Life

An End to an Era

07 Saturday Feb 2026

Posted by Tim Hughes Living with CML in Boy Scouts, Family, Life, Photography, Uncategorized

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adventure, Boy Scouts, Campfire, camping, core values, Cub Scouts, dues, Emotions, fees, Hiking, Memories, Money, Nature, organization, skits, stories, swimming, tents, Travel

After 25 years in the organization formerly known as the Boy Scouts of America, I am calling it quits. Tonight, I said my final farewells — not to the many friends I’ve made over the years — but to the organization itself.

Where do I even start with a post like this? After 25 years, I have so many memories, so many stories to tell, and yet I’m at a loss for words. My emotions are all over the place. On one side, there’s anger and frustration. On the other hand, there’s sadness at stepping away from something that was once a cornerstone for teaching core values to young men.

My scoutmaster when I was in scouts many years ago.

When my son crossed over from Cub Scouts into Boy Scouts, there were a lot of uncertainties. Would he enjoy the outdoors? Would he be okay spending his first night in a tent with boys he barely knew — and without his dad right beside him? Suddenly, he was under the supervision of boys — or really, young men — not much older than he was.

During those first meetings, I sat back and watched him interact with the other scouts his age. He had a great time as a Cub Scout, but there he was alongside his mom, working together to earn belt loops and awards. Scouts was different. The parents sat off to the side while the boys were taught the Pledge of Allegiance, the Scout Law, the Scout Oath, and the Outdoor Code — not by adults, but by youth leadership. I was a proud parent the day my son could recite all of them by heart.

As my son grew up in Scouts, so did I.

I was eventually asked to become a leader. At first, I was reluctant, but I quickly realized I could give back by passing on skills I had learned over the years. I taught Plumbing Merit Badge, Photography Merit Badge, and even knots I’d learned working in the HVAC industry. What amazed me most was that, without even realizing it, I was getting to spend time with my son. Maybe not one-on-one, but we were there together, learning and growing at the same time.

My son eventually earned the rank of Eagle Scout — during a time when I was serving as his Scoutmaster, a role I had stepped into years earlier. It was one of the proudest days of my life. Because he hadn’t turned eighteen yet, he stayed active and served as Senior Patrol Leader.

Then came a weeklong campout on the outskirts of the Great Smoky Mountains.

My sons troop while I was the scoutmaster. Can you pick him out?

On the final night, the boys gathered around the campfire for skits and reflections. Then it was my son’s turn to speak. He announced it would be his last campout with the troop. He would turn eighteen in a few weeks and would be aging out. His plan was to go off to college, and Scouts wasn’t part of that plan.

My heart sank.

The building where we met was torn down.

For six years, we camped, hiked, cooked, climbed — you name it. Maybe it wasn’t one-on-one, but we were together. When lights out came and I finished my rounds, I went back to my tent, and I broke down and sobbed.

But the story didn’t end there.

I stayed involved because I had completed a lot of leadership training, and I felt like I still had something to give back to the program.

One of our Cub Scouts is building a birdhouse

There was a need in our district for someone to take over Eagle Board responsibilities. This committee helps guide young men in selecting meaningful Eagle projects and conducts Eagle Boards of Review — sitting down with candidates to talk about their Scouting journey and their Eagle project. I wish I had known how long I would stay in that role, because I would have kept count of how many young men earned Eagle while I was there.

Over the years, I wore many hats in Scouting — none of which I regret.

As the organization changed, though, so did my attitude. There were changes that simply didn’t make sense to me. The main reason I stayed as long as I did was that the core program still worked, regardless of the decisions being made at higher levels.

One of the many awards that I achieved while a leader.

Apparently, I wasn’t alone in my concerns. Membership dropped like a rock. In my district, we went from twelve troops to five during the years of major changes. Tonight, that number dropped from five to three. Our two combined troops folded due to a lack of leadership and membership growth. After tonight, I don’t see how our district survives without eventually merging into another.

I’ve asked myself, “Who’s to blame?” That’s not something I really want to dive into.

Troop 322 and Troop 41 combined to form one troop

But I will say this — it wasn’t because local leaders didn’t try.

Follow the money.

Charging $120 per year just to join, plus around $325 for a week at summer camp, is a lot. Many families simply can’t afford it — especially if they have more than one child in Scouts. And that doesn’t even include troop outings, which can run anywhere from $15 to $45 per trip. Many of these kids are being raised by single parents

Just one of the many young men who achieved the rank of Eagle.

Yes, Scouts can sell popcorn to help offset costs. But it’s hard to sell a $25 box of popcorn with six bags in it when families can buy the same brand at the store for $7 and get twelve bags. And when an adult tells a scout it’s “highway robbery,” what do you say to a seven-year-old who just got scolded by a stranger? It’s not their fault. They’re just trying to raise money to help pay their dues.

The last night at one of our summer camps. The boys always had a blast.

And when only about 32% of the profit gets split among the scouts working that shift, it makes it even harder.

Meanwhile, councils raise tens of thousands of dollars — and districts often see very little of it. I know there’s overhead. But it does make you wonder where the money goes.

Sorry — not sorry — for the tangent.

That’s the angry part of this story. I try not to dwell on it, but it does get under my skin.

Because at the end of the day, the program still works. It’s just becoming a program that fewer families can afford. And if something doesn’t change, Scouting could fade away.

Not to worry, though. The boys in the two troops will be going to one of the two troops still active. With determination, I feel that all the boys will stay in it long enough to earn the rank of Eagle.

And that would be a real shame.

Just a day at Summer Camp
The last scout that my team interviewed for the rank of Eagle

Under the Microscope… Again (Apparently I’m Now 5.9% Banana)

06 Friday Feb 2026

Posted by Tim Hughes Living with CML in bariatric-surgery, Diabetic, diet, Life, Uncategorized, Weight Loss

≈ 4 Comments

Tags

addiction, Appointment, Bloodwork, Change, Coffee, craving, Doctor, Food, health, labs, labwork, Life, lifestyle, pottassium, relationships, Surgery, writing

Lab results are in, and just like that… I’m under scrutiny again.

When I got the email with the results, the first thing that jumped out at me was my potassium. High. Again.

This isn’t new. It was high before, then magically went back to normal on the retest. Go figure. But here we are again. My doctor called yesterday and told me my potassium was elevated to an “extremely high” level. Naturally, I went digging through my past labs, and I noticed a pattern — since my weight-loss surgery last April, my potassium has been slowly climbing.

And I have absolutely no explanation why.

For those who don’t live their lives waiting on lab portals to refresh, high potassium — or hyperkalemia — means there’s too much potassium in your blood. Normal is between 3.5 and 5.0 mEq/L. Mine? 5.9 mEq/L.
Apparently, that extra .9 is where doctors start using their serious voice.

Now here’s where it gets interesting.

The only real lifestyle change I’ve made since surgery is that I’ve apparently developed a full-blown relationship with coffee. Before surgery, I had never enjoyed a single cup in my life. Not one drop. Loved the smell. Hated the taste. But after surgery? My body apparently said, “You know what we need? Coffee. All of it.”

Those pre-surgery classes warned me this might happen. Foods you hate, you’ll crave. Foods you love, you might hate. They never warned me I’d wake up one day emotionally attached to a coffee mug.

I’ve asked other doctors if coffee could be the culprit. Most said, “Probably not,” though they also gently hinted that maybe I shouldn’t be drinking coffee like it’s my full-time job. This latest doctor, however, seems less convinced.

The nurse asked how much coffee I drink in a day.

I was honest.

  • 22 oz before breakfast
  • 22 oz with breakfast
  • 22 oz sometime after supper

Apparently, this is not the answer they were hoping for.

And it doesn’t stop there.

If I go somewhere, I have a freshly made 22 oz riding with me in the truck. I also have what can only be described as a coffee emergency kit — a toolbox with all the fixings — just in case I get stranded somewhere that doesn’t have a coffee shop with my brand of coffee.

Yes. I know. It’s really sick.

Some people say caffeine keeps them awake. Not me. I can drink coffee at 9 PM and be asleep by 11 like a toddler after a long day at daycare. I’m not wired all day. I’m not bouncing off walls. I’m just… caffeinated and functional.

Her suggestion?
Limit myself to one cup per day.

Not one 22 oz cup.
One. Cup.

Friends… that is simply not going to happen.

Today I tried. I drank only one 22-oz cup. And I spent the rest of the day thinking about coffee like it was an ex who still had my hoodie.

I go back to the doctor next Tuesday for more labs. Hopefully, I can make it until then. And maybe — just maybe — they’ll tell me it’s not the coffee doing this.

So now I wait. More labs. More monitoring. More trying to figure out what exactly my body is doing and why it suddenly decided potassium is its favorite hobby.

In the meantime, if you see me walking around slightly jittery but emotionally stable, just know I’m doing my best… and possibly negotiating with myself about a second cup.

February Is Confused… and Honestly, So Am I

05 Thursday Feb 2026

Posted by Tim Hughes Living with CML in Fishing, Kayaking, Life, Retirement, Uncategorized, Weather

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appointments, Bass, Fishing, Forecast, kayak, LEW's, month, temperatures, Weather, wilderness systems, Winter, Zoom baits

pxl_20251008_202145012471151304126013745

As I’ve posted before, the weather here has been anything but normal for February. Looking at next week’s forecast, it’s supposed to be in the high 60s to low 70s. That is absolutely nuts. Somewhere, winter is filing a missing person report.

Today, I got a call from one of my fishing buddies asking if I wanted to go fishing while it’s warm. Now that is the kind of phone call that usually results in me immediately looking for my tackle box, my lucky fishing hat, and trying to remember which truck door pocket I left sunflower seeds in.

Unfortunately, real life showed up and reminded me I have three appointments next week. Three. In February. During fishing weather. That just feels disrespectful.

But… if I can shuffle things around just right, there is a very real possibility of my wetting a hook or two. At minimum, I can at least drive by the water and stare at it longingly like a kid looking through a toy store window.

Honestly, if February is going to act like April, I feel like it’s my civic duty to at least attempt to catch a fish. I don’t make the rules. I just follow the weather.

And if you see me calling in “temporarily unavailable,” just know I’m conducting important seasonal research… from my kayak.

The Uninvited Tenant in the Wall

04 Wednesday Feb 2026

Posted by Tim Hughes Living with CML in Family, Life, Nature, Uncategorized

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appartment living, chewing, Dad, dad duties, daughters, Family, Food, guest, Life, love, maintenance, mouse, Nature, noise, pantry, pest, pest control, rat, scratching, short-story, squirrel, tenant, uninvited, wall, writing

About two weeks ago, one of my daughters called and told me she was hearing something in their walls. Not normal apartment noise. Not pipes. Not neighbors.

Scratching.

The kind of scratching that makes you immediately start wondering if renters insurance covers emotional trauma.

She wanted me to tell her what it was. Now, I had a pretty good idea, but knowing that even saying the words rat or mouse would send both of them into Olympic-level panic, I had to choose my words carefully… like I was negotiating with hostage takers.

Now hear me out — this gets a little technical.

If I’m not wrong, most walls are built eight feet tall using 2x4s spaced 16 inches on center. That means the inside cavity space is about 14½ inches by 3½ inches. That’s not exactly a penthouse suite. That’s more like “micro-living for something small, furry, and highly motivated.”

And if you’re hearing scratching in a space like that, chances are something is using its teeth to dig into the gypsum wallboard to gain access to either your apartment… or your neighbor’s.

And of course — and this is no coincidence — this was the closet where they store their food and snacks.

Because if you’re a wall creature, you don’t break into the linen closet. You go straight for the Doritos.

I told them to email the apartment office and create a maintenance ticket. The problem was, this was late on a Friday night. And everybody knows maintenance emails sent after 5 PM on Friday go straight into what I call the “See You Monday” folder.

Unless you call the emergency number.

Now, being two women who are convinced anything smaller than a deck of cards is capable of crawling into their apartment, creating chaos, and starring in a true crime documentary about them… they called the emergency number.

Voicemail.

They left a message… and then sat there waiting for a reply like they were waiting on lab results.

At this point, every sound in that apartment was suspicious.
Refrigerator kicked on? Suspicious.
AC made a noise? Definitely suspicious.
Ice maker dropped ice? Obviously the wall creature testing structural weaknesses.

Sometime Saturday, management finally called — only to say pest control would come Monday. After what I can only imagine was a spirited discussion, management agreed to call the maintenance man.

Moments later, their phone rang. It was the maintenance man. He had gotten the message but couldn’t help — he had been in a bad accident and was currently in the hospital.

But — and this is dedication — he said he’d call one of his buddies to check out the situation. That is the most “maintenance guy” thing I’ve ever heard. Man is in a hospital bed like, “I can’t walk, but I know a guy.”

Several days later — and after multiple calls to the apartment office — pest control finally showed up along with the maintenance buddy. Apparently coordinating schedules while my daughters believed they were under siege from a wall monster took a little time.

Now, working in maintenance for years, I learned something:
Problems disappear when maintenance shows up.

You can have water pouring from the ceiling.
You arrive.
Bone dry.
Like the house is gaslighting you.

That’s exactly what happened here.

They checked the apartment while my daughters were at work.
Heard nothing.
Saw nothing.
Probably left thinking, “These girls need hobbies.”

Then my daughters got home.

And… scratching.

One of my daughters did the smartest thing possible — she recorded the sound and emailed it to management. Nothing says “I am not imagining this” like audio of something trying to chew through Sheetrock like it’s a Nature Valley bar.

The next day, the manager, the maintenance buddy, and pest control all came back — this time with purpose. They had seen the video. They had heard the scratching. They knew something was living rent-free in that wall.

First, they drilled a small hole and inserted a camera. They saw insulation disturbed.

Then they decided to cut a hole in the wall.

And there she was.

A squirrel.

Just sitting there.

Not running.
Not panicking.
Not even mildly concerned.

Just sitting there like, “Oh good, maintenance is here. My sink has been dripping.”

Pest control removed the squirrel and released it outside where it belonged. The A-Team then spent the next several hours trying to figure out where she got in.

Whether they found the entry point or not, they did tape up the hole in the apartment. Which is good… but also feels like putting a Band-Aid on a submarine.

I’m hoping they permanently fix it soon. Preferably before the squirrel comes back with a lease agreement and three cousins.

Last night was the first night in a while that my daughters didn’t go to sleep listening to something chew in their walls.

What happened to the squirrel after that? Nobody knows.

Will she return? Hard to say.
It was her home for a little while.

But hopefully she decided apartment living is too expensive… and moved somewhere with trees, acorns, and zero humans.

When a Routine Becomes a Memory

03 Tuesday Feb 2026

Posted by Tim Hughes Living with CML in Boy Scouts, Cancer, Diabetic, Disability, Life, Uncategorized

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Tags

awards, blood, Bloodwork, Boy Scouts, camping, ceremony, Coffee, Doctor, Dutch Oven, health, labwork, leader, Life, mental-health, needles, Scouts, writing

Tuesdays are my long days.

They start at 4:00 a.m. — rolling out of bed, grabbing a shower, getting dressed, and heading straight to the kitchen for the first of what will be four cups of coffee. Tuesday mornings mean Bible study across town at 6:00 a.m., so once my first 22-ounce cup is ready, I sit at the kitchen table and go over the material we’ll be covering later that morning. Sometimes I’ll pour a bowl of cereal while I drink my coffee and wake up enough to be conversational.

This morning, though, I lost track of time. One coffee refill turned into “oh wow, I need to leave now.”

I left the house about ten minutes later than normal, thinking I could make up the time on the drive. That thought lasted right up until I hit a blocked road. Detour ahead. The detour added about twenty minutes to my drive, which pretty much killed any hope of being early. And I’m one of those people who would rather be thirty minutes early than five minutes late. I ended up pulling in right at 6:00 a.m. — which, technically, is on time… but still feels late to me.

Normally, after Bible study, I head back toward home and stop for breakfast with one of my fishing buddies. Not today. Today was lab work day, which meant going to the doctor’s office to give blood. Ever since I lost all this weight, nurses seem to have trouble getting blood from me without sticking me multiple times. Either the blood stops flowing, or my veins decide to roll out of the way like they’re dodging responsibility.

This morning was no different. Three sticks before they found a vein that cooperated long enough to get what they needed.

After lab work, I went across the street to a diner and grabbed a breakfast sandwich to go. Once I got home, I spent most of the afternoon working on Boy Scout awards. We’ve got an awards ceremony for the young men in our troop this Saturday, and everything had to be sorted and organized. Of course, I found out I’m missing some awards, so tomorrow it’s back to the Scout office to track those down.

Tuesday nights are — or maybe I should say were — Scout nights for me.

Tonight was my last regular Tuesday night with the Boy Scouts. We have the awards ceremony on Saturday, and that will be my last official night serving as a leader. I’m not going to say much more about that until after Saturday. I’ve got something in mind that I’ll be writing about and posting here once everything is finished. All I’ll say for now is… it’s bittersweet.

After the meeting, some of the leaders stayed behind talking about old times and even tossing around ideas about future camping trips. I haven’t been home long, and it’s getting late. I’m not really sure what my Tuesday evenings will look like starting next week. Part of me is a little sad… and part of me is relieved.

I do have a training class starting next month that will fall on Tuesdays, but it’s only for eight weeks. After that? I guess we’ll see what new routine Tuesday decides to become.

Across Oceans No Problem… But North Dakota Is Apparently Narnia

02 Monday Feb 2026

Posted by Tim Hughes Living with CML in Amateur Radio, Life, Retirement, Uncategorized

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Alaska, Amateur Radio, Antenna, antennas, Belgium, Contacts, HAM Radio, ham-radio, Hawaii, Italy, Life, long-distance, Map, North Dakota, over-seas, POTA, propagation, Radio, radio-waves, Retirement, time zone

After sharing the news about finally reaching the state of Hawaii, I decided to make a map showing all of my long-distance contacts thus far in 2026. I was pretty proud of it… right up until I realized I had to explain that it does not include my contacts inside the continental United States. If it did, the map would just look like I sneezed ink all over North America.

What really caught my attention, though, is something that makes absolutely no sense to me. I can sit down, turn on the radio, and talk to someone in Italy like they’re sitting across the street. No drama. No struggle. No begging the radio gods for mercy.

But North Dakota?
Alaska?
Hawaii (until recently)?

Apparently, those are protected by an invisible force field.

I’ve tried to come up with logical explanations for this, mostly so I don’t have to accept that radio waves are just messing with me personally.

First — The Antenna
My antenna slopes from East to West. That probably means something very scientific and important. I’m not an antenna expert, though. I’m more of a “put it up, see if it works, and if it doesn’t… stare at it like it betrayed me” kind of guy.

Second — Operator Population
Some states just don’t have as many HAM operators. That makes sense for Alaska and North Dakota. Hawaii is small, and I honestly don’t know how many operators there are. For all I know, there are a handful of guys rotating shifts between operating radios and living their best life on the beach. And honestly, if I lived there, I might not be inside talking on the radio either.

Third — Time Zones (The Real Culprit)
Most of my hunting happens in the morning. There’s about a four-hour difference between Hawaii and me, and about three hours between Alaska. So when I’m wrapping up radio time and moving on to things like work, errands, or pretending to be productive, they’re just waking up and figuring out where they left their coffee mug.

Meanwhile, when I’m making contacts in the East — Belgium, Italy, places like that — it’s the middle of the night over there. Apparently, those operators are either serious night owls, incredibly dedicated to the hobby, or avoiding sleep like it owes them money.

The longer I do this hobby, the more I realize HAM radio is this weird mix of science, timing, geography, luck, and occasionally sacrificing a little dignity while calling CQ for the tenth time in a row.

But that’s also what makes it fun.

Because at the end of the day, I can bounce a signal off the atmosphere, talk to someone on the other side of the planet…
…and still get ghosted by North Dakota.

And honestly, that feels personal.

When DIY Repairs Fight Back

31 Saturday Jan 2026

Posted by Tim Hughes Living with CML in Uncategorized, Family, Life

≈ 3 Comments

Tags

appliance, clothes washer, drain, Family, Family Time, father son, HVAC, leak, Life, love, parts, Repair, washer, Water, wet, writing

As a child, I would always watch my dad as he repaired different things around the house. In my childlike mind, he could fix anything. I remember coming home from elementary school one day and finding our television torn apart, parts scattered all over the den floor. While other kids’ dads were watching TV, mine had it in surgery.

To me, he was the ultimate jack of all trades.

Later in life, we helped him build the house we lived in—and the one my parents still live in today. I remember telling him I wanted to grow up just like him. Apparently, I took that statement way too seriously.

I did grow up, and I’m not exactly like him… but I’m close enough to make the family nervous when something breaks.

I can fix just about anything I put my mind to. I went to school for HVAC, got a state license, and still take 4 CEUs every year to keep it current. Learning that trade gave me insight into how most things work. I repair most of my own appliances, and I’ve only had to call in a professional a couple of times—and that was when my foot was in a cast and gravity was no longer my friend.

I keep my license active mainly for my parents and my kids. Recently, I replaced my dad’s heat pump after it developed a refrigerant leak. Unfortunately, thanks to government regulations, the refrigerant it needed is now apparently classified as “ancient artifact.” I’ve also worked on my daughter’s clothes dryer when it stopped heating—a simple fix that just required replacing the heating element. In most cases, troubleshooting comes naturally.

Then my son called me this past Tuesday.

He said there was water under his washing machine after he did a load of laundry. He sent me the model and serial numbers so I could start troubleshooting before we met. After some research, I narrowed it down to a few possibilities: water inlet valves, drain pump, drain hoses, or the dreaded tub seal/bearing—the washing machine equivalent of “it’s totaled.”

I found parts for everything except the tub seal/bearing. It wasn’t listed anywhere. Not even on the manufacturer’s website. I emailed the manufacturer and got their incredibly helpful response: “Call a professional service technician.”

In other words, “Good luck, buddy.”

That was not happening.

We met today to work on the washer. I stopped at a hardware store and bought some cinder blocks so we could raise the machine, and I could crawl underneath it like a mechanic working on a car with no jack. The wash cycle took fifty-six minutes, which meant I spent forty-four of those minutes lying on a cold garage floor underneath a running washing machine, questioning my life choices.

Nothing leaked.

The hoses were dry. The pump was dry. No water around the tub seal or bearing. Everything looked perfect. This was confusing, suspicious, and mildly insulting to my troubleshooting skills.

Just as I was starting to think maybe the washer was mocking me, water suddenly began pouring directly onto my face. I was instantly soaked—like someone had turned on a shower labeled “Idiot Under Washer.” Before my son could shut the machine off, I was already rethinking every decision that led me to that moment.

The water wasn’t coming from anywhere I expected.

It was coming from the top of the washer—from the spray nozzle.

My son has very hard water in his area. He’s constantly using CLR on showerheads and faucets to fight calcium buildup. Turns out, that same calcium had slowly clogged the washer’s nozzle until, when it finally activated, it shot water clear past the tub and straight down the side—right onto me.

The fix?

A small cup of CLR mixed with water, an old toothbrush, and a pocketknife.

Five minutes. No parts. No service call. No $120-per-hour technician.

And best of all, we got some quality father-and-son time out of it—although next time, I might bring a poncho.

I’d say we came out ahead.

When “Stable” Is a Standing Ovation

30 Friday Jan 2026

Posted by Tim Hughes Living with CML in Cancer, Diabetic, diet, Leukemia, Life, Uncategorized, Weight Loss

≈ 2 Comments

Tags

Diagnosis, Dialysis, Doctor, eGFR, energy, Flood, health, Hemoglobin, Hospital, infusion, Iron, Kidney, kidney disease, kidney failure, Kidneys, Life, Medical, Nepgrologist, Oncologist, wellness

My nephrologist called me the other day to reschedule my appointment. Apparently, the hospital had a flood on the top floor, and their offices were flooded as well. Because when you’re already dealing with kidney issues, why not throw in some surprise indoor rain?

As a result, they had to temporarily move their offices to one of their satellite locations in a nearby city. The day before my appointment, they called again and asked if we could just do a teleconference instead. Same time, same doctor, no driving, and no pants required from the waist down—absolutely.

My lab work had already been done a couple of weeks earlier, and because I like to mentally prepare myself for either good news or emotional damage, I had my results emailed directly to me. Now, I’m not a doctor, and I don’t pretend to understand every number on those reports, but there are a few that I follow very closely.

First up is eGFR, or estimated Glomerular Filtration Rate. This number tells you how well your kidneys are filtering your blood. A normal range is between 90 and 120—numbers I personally haven’t seen in a while and would probably frame if they ever showed up again.

  • 60–89 is Stage 2 kidney disease
  • 45–59 is Stage 3a
  • 30–44 is Stage 3b
  • 15–29 is Stage 4
  • Below 15 means kidney failure, and dialysis becomes a very real conversation

Then there’s Creatinine, a waste product filtered by the kidneys. In simple terms, the higher the number, the worse things are working. Think of it as your kidneys’ performance review—lower is better.

The last big number I keep an eye on is hemoglobin, the protein responsible for carrying oxygen throughout your body. This one has a direct impact on how much energy I have, which explains why some days I feel like I could conquer the world, and other days I need a nap after tying my shoes. Normal range is 13.2-17.1

So here are the numbers I focus on:

  • eGFR: 35
  • Creatinine: 2.09
  • Hemoglobin: 10.5

Now yes, an eGFR of 35 doesn’t exactly scream “picture of perfect health,” but context is everything. Last year, that number was 14. At that point, my doctor was already talking about my next visit being with a dialysis specialist. That’s not a meeting you look forward to.

So going from 14 to 35? I’ll call that a solid upgrade.

My creatinine also improved significantly—from 4.29 last year down to just over 2. Another small victory, but I’ll gladly stack those wins wherever I can get them.

Hemoglobin, however, continues to do whatever it wants. It fluctuates so much that I regularly need iron infusions. My oncologist thinks it’s related to my kidney function, while my nephrologist believes it’s tied to the chemo drug I’m on. At this point, I feel like the two of them should arm wrestle, and whoever wins gets to be right.

When the call wrapped up, my nephrologist said she was happy with where things are. She even used the word “stable.”

And if you’ve never dealt with chronic illness, “stable” might sound underwhelming. But when you live in this world, stable is a beautiful word.

Stable means no dialysis—for now.
Stable means nothing is getting worse.
Stable means today is better than last year.

So yeah, I’ll take stable.
No complaints.
And preferably without any more floods—indoor or otherwise.

The Day a Scoutmaster “Didn’t Get Lost” (But Absolutely Did)

27 Tuesday Jan 2026

Posted by Tim Hughes Living with CML in Amateur Radio, Boy Scouts, Life, Uncategorized

≈ 2 Comments

Tags

adventure, Amateur Radio, backpacking, base camp, Boy Scouts, camping, Charcot, compass, Cooking, CPAP, Hiking, lost, Nature, Outdoors, overnight, scoutmaster, Scouts, shelter, trail, trailhead, Travel, Trip, trouble

Photo by Valentin Antonucci on Pexels.com

The story you’re about to read is 100% true. Every embarrassing second of it. It’s a little long, but if you hang in there, I promise the ending is worth it. It wasn’t funny at the time, but years later it has become one of my favorite stories to tell — mostly because I survived it and now get to pretend it was all intentional. Feel free to share it if you want a good laugh at my expense.

Before I developed Charcot in my right foot, I was pretty active outdoors. I loved hiking. As a kid, I’d throw random “essentials” into a backpack and disappear into the woods for hours. As an adult… those “essentials” eventually included a CPAP machine and a battery roughly the size of a car engine. Overnight hikes became less “Boy Scout” and more “mobile medical unit.”

So on troop outings, I usually stayed at base camp while the boys went on two- or three-day hikes. Someone had to guard the coolers, make sure nothing caught fire, and most importantly, be available if things went sideways.

Luckily, our troop had a couple of HAM radio operators — me being one of them. We always brought radios so the hiking group could stay in touch with base camp. If something went wrong, I could meet them at a trailhead, resupply, or help with medical needs.

It was a perfect plan.

Which should’ve been my first warning.

One fall morning, we drove about two hours to Cheaha State Park, home of the tallest mountain in Alabama — Mount Cheaha, standing a mighty 2,407 feet above sea level. Not Everest, but tall enough to make you question your life choices halfway up.

The plan was simple: the boys would hike to a shelter, stay the night, then finish the trail in the morning and meet me at the campground. Since the shelter was only a couple of miles from the campground, I decided I’d hike in later, eat supper with them, then hike back out before dark.

What could possibly go wrong?

I packed my meal, stove, fuel, water, snacks, electronic compass, hiking stick, and my brand-new handheld HAM radio. I crossed the road to the trailhead and hiked about half a mile before realizing I never turned on my GPS.

Already off to a strong start.

I stopped, turned it on, and waited several minutes for it to find satellites. This tiny decision — made by a man who thought he was prepared — would later become very important.

I reached the shelter without any trouble and, to my surprise, beat the troop there. Since there was no campfire planned, I picked up trash, did a little cleaning, and eventually lay down for a nap.

I woke up to the sound of teenage boys… which is about as subtle as a herd of raccoons falling down a metal staircase.

They set up tents, cooked supper (some of them apparently training for MasterChef: Backcountry Edition, others surviving exclusively on PB&J and processed sugar), and after everything was cleaned to my Scoutmaster standards, I realized it was getting late. Later than I wanted.

But I wasn’t worried.

I had a headlamp.
I had a GPS.
I had a radio.
I had confidence.

Nature loves confidence.

That weekend, the Penhoti 100-mile challenge was happening. Runners were everywhere, and HAM operators were stationed at checkpoints along the trails. I’d spent part of the afternoon listening to them check runners in.

Dark came fast, but I made it back to the road with no problem. I crossed it, expecting the campground to be right there.

It was not.

I walked… and walked… and walked… until I came to a creek. A wide one. A deep one. A very “this creek was absolutely NOT in the brochure” kind of creek.

The other leaders knew when I left and when I should’ve been back. I was supposed to radio in when I arrived.

That time had come and gone.

I didn’t want to admit I hadn’t made it back. Not because I was in danger — but because Scoutmasters don’t get lost.

I wasn’t lost.

I just had absolutely no idea where I was.

Then my radio crackled.

“Break… break…”

“We have a lost Scoutmaster somewhere between the Chenebee Silent Trail shelter and Turnipseed Campground.”

There are moments in life when your soul leaves your body.

That was one of them.

I keyed my mic and gave my call sign.

Nothing.

Tried again.

Still nothing.

That’s when I realized the problem. I had the right frequency… but forgot to set the correct PL tone. Without it, my radio might as well have been a walkie-talkie from the dollar store.

So there I stood, alone in the woods, listening to a search for myself… while being completely unable to tell anyone that I was, in fact, the idiot they were discussing.

I decided my best option was to retrace my steps back to the road and follow it to the campground entrance. It took nearly an hour — an hour during which I listened to HAM operators coordinate efforts to locate… me.

I eventually reached my truck and immediately found the nearest checkpoint. The operator was mid-conversation with the shelter when I broke in.

I have never heard relief like that come through a radio.

The next morning, when the troop arrived, there were many questions. And for years afterward, there were many reminders.

Ironically, that HAM operator later became one of my closest friends. Another story for another time.

Looking back, I learned a few things.

As a Scoutmaster, I broke the most basic rule: never go alone. Always have a buddy.

As a HAM radio operator, I failed to check my equipment before leaving home.

And because of that, I earned a title that will follow me forever:

“The lost Scoutmaster… who absolutely, positively, was not lost.”

I Just Wanted a Burger, Not a Lecture

26 Monday Jan 2026

Posted by Tim Hughes Living with CML in Life, Uncategorized

≈ 2 Comments

Tags

blog, choices, gender, grace, identify, imperfection, lecture, Life, love, mental-health, non-binary, politics, pride, writing

Photo by Towfiqu barbhuiya on Pexels.com

I’ve been debating on posting this for a long time, and honestly, I really didn’t have a reason to—until just recently.

I was at a drive-through the other day, placing an order like I’ve done a thousand times before. When I pulled up to the window, I addressed the person there as “ma’am.” Simple. Automatic. The way I was raised.

And that’s when the wheels came off the wagon.

I had made the mistake of identifying the person at the window as the wrong gender. My mistake. I went purely by appearance. I’m one of those people who tends to call it like I see it. If it quacks like a duck, it must be a duck…right?

Apparently not.

The person at the window immediately began to chastise me for not reading their mind.

Now, let me stop right here and say this: I wasn’t trying to insult, provoke, belittle, or make a statement. I wasn’t being sarcastic. I wasn’t trying to be clever. I was just ordering food. Hungry, slightly impatient, and completely unprepared for a pop quiz on modern social navigation.

I also want to be clear about something else. I don’t do political posts. I avoid them on purpose. If someone wants to label this as political, then congratulations—this will officially be my first and last one.

Here’s where I stand, plain and simple. If you’re a man and want to be a woman, so be it. If you’re a woman and want to be a man, so be it. If you identify as non-binary, or something else entirely, that’s your life and your choice. It’s not my job to run it, and it’s not my place to stop you.

But I also don’t believe it’s reasonable to expect strangers to instantly know what’s in your head.

Somewhere along the line, something that used to be automatic—sir, ma’am, he, she—has become a minefield. And the expectation, at least in that moment, was that I should somehow know the correct answer before the question was ever asked.

That’s the part that stuck with me.

We live in a time when communication is supposedly easier than ever. We’ve got phones, apps, and watches that tell us to stand up and breathe. And yet, basic human interaction feels more complicated than ever. Instead of conversation, correction. Instead of grace, assumption.

Here’s the honest truth: I’m going to get things wrong sometimes. Not out of hate. Not out of stubbornness. Not out of disrespect. But because I’m human, I’m older than Google, and I grew up in a world where appearances usually matched labels.

And maybe the better answer—for all of us—is a little more patience.

If I misidentify you, tell me. I’ll listen. I’ll adjust. I’m not above learning. But I don’t believe shame, scolding, or public correction at a fast-food window is how understanding is built. Respect shouldn’t be a weapon; it should be a bridge.

Life’s already heavy enough. We’re all carrying something. A bad day. A loss. A diagnosis. A bill we don’t know how to pay. The last thing we need is to turn a cheeseburger exchange into a courtroom drama.

So this isn’t a rant. And it’s not a political crusade. It’s one simple request from one imperfect human to another:

If I get it wrong, tell me. Don’t try to teach a lesson. Don’t draw a line in the sand. Just tell me.

Because I’m not your enemy. I’m just a guy in a drive-through trying to buy lunch.

And if we’ve reached a point in life where a stranger deserves a public scolding instead of a quiet correction, then maybe the real thing we’ve lost isn’t proper labels.

Maybe it’s grace.

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