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~ Diabetes, Cancer Fighter, Photographer, Exercise, Twins, Boy Scout Leader, Kayak Fishing, Lover of Life

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Category Archives: Family

Long Overdue

10 Thursday Jan 2019

Posted by Tim Hughes Living with CML in Cancer, Family, Leukemia, Pets, Photography, Retirement

≈ 3 Comments

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Bird, Cancer, Chores, Dentist, Feeder, health, Photography, Retirement, Ulcers

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It’s been since September since I’ve posted anything so I figured I’d do a little update on what’s been going on. First of all, I went to the dentist today and had some work done and I had to take a prescription pain pill to take care of the pain that I was in.  So, if this doesn’t make sense, that’s why. As stated in my last post, I’ve retired.  I can’t begin to tell you how happy I am about that. I get updates from one of my co-workers every once in a while and let me tell you when I get off the phone with him, it makes me so happy to think that I no longer work at that place.  The management at that place has taken a turn for the worse and it seems that I left just at the right time.  The stress that I felt while I was there is no more.  That within itself is worth retiring over.

So, what is my plan since retiring?  I’ve got several irons in the fire, none of which requires getting up and going to a regular job.  I was blessed with an excellent pension and my 401k didn’t look bad at all either.  I made an appointment before retiring with a financial planner and he told me that I had nothing to worry about.  In fact, I got a little raise since retiring so I think we’re going to do just fine.

On most occasions, I get up with my wife when she gets up to get ready to go to work.  I usually sit and talk with her while she’s eating breakfast.  After she leaves, I usually take a shower and go to the garage and work on some woodworking projects.  I take care of the laundry and try to have dinner cooking when my wife gets home from work.

Other things such as setting up my camera so that it can take pictures of the bird feeder have been another little project that I’ve been working on.  It’s the simple things in life that make it interesting.  My cats and I enjoy watching the birds in the morning while we’re sitting in the kitchen spending time with the wife while she’s eating breakfast.

On another note and this will be the last of this update for now.  My cancer numbers are starting to look pretty good but on the other side of that coin, my iron levels have started to plummet.  I’ve had to do two iron transfusions and had to have a colonoscopy and an endoscopy to find out where I’m bleeding out.  Ulcers, I’ve got two bleeding ulcers.  Another pill to add to my pharmacy list.

Thanks for taking the time to read and I’ll post again soon.

Stressful Week

28 Friday Sep 2018

Posted by Tim Hughes Living with CML in Family, Photography, Retirement

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Apartment, Employment, Family, Furnature, Moving

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This has been such a stressful week for me.  It started with one of my daughters getting sick at school and having to go pick her up and take her to the doctor.  The school is an hour away so when I left at 3 pm that meant that I didn’t get home until 10 pm.  That’s picking her up at school, driving her to the doctor, driving her home to eat supper then me taking her back to school and me driving back home afterward.

The next event was having to hunt for my son’s W2.  He got a new job and was supposed to have started last Monday but things kept popping up.  They finally told him that he needed a W2 for the years 2012 and 2013.  After tearing our house apart, I found the 2013 W2 but the 2012 W2 is still elusive. My son went to the IRS website and he found his 2012 W2 but it was missing some information and therefore was rejected by the people doing the background checks.  Eventually, they compared the 2013 and the 2012 W2’s and realized that both had the information needed to confirm employment for these two years.  He starts Monday with his new job.  During all this, I was trying to finalize the paperwork for disability.

Today and tomorrow my son moves into a new apartment.  He has purchased a coffee table and a kitchen table that he had stored here.  The coffee table needed some work so I’ve been repairing, sanding and repainting.  This afternoon, my son came over and we loaded the tables up on my trailer and delivered them to his new apartment.  At least that’s two items that he doesn’t have to worry about tomorrow when the movers come. Hopefully, this move won’t take all day.

Sunday, we’ll be making a trip to visit my parents.  They live about an hour away so Sunday will be another long day.  I didn’t think being retired I would be this busy.  I’m looking forward to next Monday when things finally slow back down.  At least I hope.

Today’s Thoughts 3/25/2018

25 Sunday Mar 2018

Posted by Tim Hughes Living with CML in Family, Leukemia, Photography

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Aerial, Backyard, Easter, Good Friday, Weekend, Work Week, Yardwork

Hello everyone!!  I hope everyone had a great weekend and is looking forward to going back to work.  Me?  I had a great weekend but I am not looking forward to going back to work tomorrow.  I guess most of are not.

My wife is off all week next week for spring break.  I’d like to take off with her but I’m trying to save my time just in case I have to go back to the hospital.  If I have time I’ll take two weeks either in June or July to go on vacation with my family.  I could save my time and just get paid for it when I retire but my kids would be able to get out of school in August when I do retire.

This weekend was spent in my backyard doing some pruning.  I’ve let my backyard go for several years because simply I haven’t felt like doing any type of yard work.  So now I’m paying for it.  Shrubs have grown into trees so I’m back there with an electric chainsaw cutting everything down and dragging it to the street.  The chainsaw is only good for about two hours and as luck would have it, that’s about how long I can last without taking some sort of a break.  I got a lot done this weekend but I’ve still got a lot more to do.  Here’s an aerial view of my backyard.  Too bad I don’t have a before picture so you can see what I’ve done.

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There’s an area just to the right and behind the white truck that I’ve cleaned out and to the right and behind the large bush directly behind the deck. I’ve cut down the large bush after this picture was taken.  The brush people will not be happy with me when they come and pick up the pile.  It’s enormous.

I hope everyone has a great week ahead.  I’m only working four days.  I’m off Good Friday.  All my kids are coming home so I’m planning on doing something with them on Saturday.  Sunday we’re spending it with my wife’s parents.  Lovely. (Insert sarcasm here)

My meds never came this weekend.  I guess a call to my oncologist will be in order for tomorrow.

🙂

A Few Thoughts and Other Entanglements

18 Sunday Mar 2018

Posted by Tim Hughes Living with CML in Family, Photography

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Baseball, City, Drone, Footage, Football, Parks, School, Soccer, Track, Video, Wondershare

As I sit here tonight, they are predicting severe weather for tomorrow evening.  The biggest threat is north Alabama but they include large hail, strong winds, and a few strong tornados.  I can handle the severe thunderstorms but tornados is another thing.  I’m still not over the tornado outbreak of 2011 that wiped out nearly half of our town and killed eleven people in our community.

What I’m also doing is putting together a few videos that I’ve created.  Most of which have been taken to try and boost the city’s morale. We have several city FaceBook pages and each one of them consist of negativity about our community.  We lost a lot of homes and families right after the tornado.  With these homes destroyed, many of which were never rebuilt and the families moved out.  With that said, we lost a lot of tax money.  Our city doesn’t have the money for a lot of the upkeep and people are complaining about the trash, businesses closing, and crime.  What I’m trying to do is post these videos on these pages showing what we have to be proud of; A nice athletic complex, a nice school, a storm shelter, etc.

During the tornado of 2011, we thought we had lost the brand new school.  Some kids and I were on a bus with the band heading to Orlando for a school trip when the tornado hit.  There were all sorts of rumors that told of the school burning, people lying on the ground dead and many other stories.  Most of which were true but the school did not catch on fire.

The tornado hit about a half a mile from the school and the athletic complex.  Like I said, a lot of rumors floated around and we were happy that we didn’t lose either of these landmarks.  My house was also spared thankfully.  The athletic complex is one of the jewels of our community.  Between the complex and our park (I don’t have a video of it as of yet), the kids of our community wouldn’t have a place to go and play.  My kids were fortunate to be able to spend a great deal of time at the park and they couldn’t wait to go and play in the creek.

I think we take for granted these places that our city has supplied for us. We always focus on the negativity instead of the positive.  I’m really hoping these storms that are predicted for tomorrow will pass us by. I’m really hoping!!  I’ll let you guys know how we faired tomorrow night.

3/16/2018 Oncologist Update

18 Sunday Mar 2018

Posted by Tim Hughes Living with CML in Cancer, Family, Leukemia, Photography

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Bosulif, Cancer, CML, Doctor, Drug Card, Drugs, Family, Insurance, Medication, Prayers, Test

Oncologist Update: Because of some miscommunications with the insurance company, go figure, I have not been approved to be on my new medicine yet. I may end up walking the paperwork to the department myself if they keep losing it. Anyway, it’s been six weeks or more since I’ve had any CML meds and we, more so me than the doctor it seems, are starting to get a little concerned that my numbers might get a little high. If the insurance company approves the meds, it could take up to three weeks before my meds arrive. Nothing to do but wait. But, as luck would have it, the representative for the new drug was there in his office. He gave my doctor a card for a free 30 day supply which should arrive by Tuesday of next week. This should give my insurance company time to process my approval for this drug.

Bloodwork. It’s been six weeks since my last lab. My last one wasn’t good at all. Every one of my numbers was either very high or very low. Yesterday’s numbers were normal for the most part. This was in large part the effect of the drug I was on. The side effects just made my daily life impossible to deal with.

New Drug: Bosulif is the name of the new drug. Right now I’ve been on two of the most common and there are only a few left that is approved by the FDA. Thanks to Karen Davis-Hudson she eased my mind about some of the side effects that were mentioned in the insert. However, Karen, I think you mentioned that 1/10 developed fluid retention, my doctor said 4/10. Not that much of a difference. The other side effects I think I can handle.

The Good News: The doctor and I both agree that the fluid in my lungs is gone and we’re going to have a positive attitude that it will not return and that this medicine will be the last one I have to be on because this one will work. I can breathe, my color is back and most importantly, I feel good. So much so, that if the weather holds, I’m going to try to get my bicycle out one day this weekend.

This is all due to all the prayers that have been lifted up for me and my family. Thank you so much.

2018 Pinewood Derby

12 Monday Mar 2018

Posted by Tim Hughes Living with CML in Family, Photography

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Boy Scouts of America, Cub Scouts, Drone, Family, Pinewood Derby, Race, Son

I remember going to these things when my boy was in cub scouts. I would always end up working on the car because he would never do it the way I wanted him to do it.  We had fun working together anyway.  It was a good time for us.  He was at the, what I would like to call, the fun age.  We would always find something to do together.  He loved the scouts as did I.  This gave us a wonderful opportunity to be together plus it gave him an opportunity for him to be around kids his own age.  I really miss those days.  He’s grown now, moved out of the house not long ago and into an apartment not far from here.

Boy Scouts has changed somewhat since I was a boy scout those many years ago.  One thing that hasn’t changed is the program and what they have to offer.  You may not like what’s happened within the past few years, neither do I in some aspects but there’s one thing they still offer, and that’s a program that keeps the boys out of trouble and in doing so they have the opportunity to learn something.

I digress.  This article was supposed to be about the Pinewood Derby which was held yesterday.  Eighteen cars were entered from all over our district.  Nearly all the boys won some sort of trophy.  They had to win their division just be able to race their car in this race so they had to win something before they got there.  Everyone had a great time.  Hope you enjoy the video.

https://www.youtube.com/watch?v=6UJSSxS0kB0

Another One Got Their Wings

11 Sunday Mar 2018

Posted by Tim Hughes Living with CML in Cancer, Family, Photography

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Death, Funeral, Life, Wings

Today I got the news that a co-worker passed away.  We were kind of expecting it but still, nonetheless.  He’s had kidney problems most of his adult life and has had two transplants.  This wasn’t what he died of though.  He had a stroke during Christmas and never really got over it.  He’s had several mini strokes since then.  He left his daughter of 21 years.

This was the third one in about a month.  My 80-year-old aunt died from complications from diabetes, my bothers mother in law died from bone cancer and now my co-worker.  I hope this will be the last one for a while.

Update 2/19/17

19 Sunday Feb 2017

Posted by Tim Hughes Living with CML in Cancer, Cycling, Depression, Family, Leukemia, Twins

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My health has steadily improved over the past several months with the exception of a sciatic nerve pain issue in my right hip.  I’ve been dealing with it since right before Christmas.  It has gotten better but I did end up getting a pain block this past Friday.  Not sure if it worked or not.

A couple of nights before Christmas, one of my daughters and I had a fallen  out.  Because of my health there were some changes made with my job.  One of which was a huge pay cut.  This daughter of mine loves to go out and shop when ever she’s home.  I’ve tried talking to her about my job status but it still didn’t matter.  I cut lose on her, which I now regret.  I left the house upset, jumped into my truck and didn’t make it far before I parked into a parking lot and lost it.  I guess it had been building up for a long time and I just couldn’t hold it in any longer.  I’m doing better now I guess.  I haven’t had an episode like that since but I do miss my girls tremendously when they’re away at school.

Got plans to start riding my bicycle next week.  Found a couple of small groups that don’t go too far and are easy rides.  I think I’ll do better riding with someone else verses riding by myself at least till my health really improves.

That’s it for now.

 

 

Update 12/17/2016

17 Saturday Dec 2016

Posted by Tim Hughes Living with CML in Cancer, Family, Photography

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Chronic Myeloid Leukemia, Hospital, Leukemia, Merry Christmas, Sickness

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It’s been over a month since I’ve been in the hospital.  I count that as a good thing.  I’m still very fatigued, short of breath, these nitro patches are giving me headaches and I get fairly dizzy when I stand up from a sitting position but other than that I’m feeling pretty good.  I have all my kids home at least for a little while so that’s making me real happy.

MERRY CHRISTMAS EVERYONE.

Improving? Not so Much.

28 Sunday Aug 2016

Posted by Tim Hughes Living with CML in Cancer, Family, Leukemia, Photography

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Tags

Alabama, CML, Doctor, health, Kids, Leukemia, Million Dollar Band, Oncologist, Parents, Sick, University of Alabama

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I started back on my CML meds last Monday and to be honest I think my breathing has gotten a little worse. I’ve started climbing the steps at work a little more and trying to maintain at least 10,000 steps in a day. I spoke at length to my oncologist last Monday the day I started back on my Sprycell and he told me that the majority of the people who end up with water retention will do better at a lower dosage.  I’m now at 80 mg instead of the 100mg that I was once on.

I’ve decided not to just sit at home waiting to see if my lungs will fill back up with fluid.  I don’t really feel like getting out and doing anything but I feel that I’ve at least got to try  and get what little exercise that I can get.  I think it could only help matters if I get off the couch and do something.

Yesterday, my wife and I met our son at the university where my daughters are attending.  They’re both in the band, one plays the sax and the other is a band manager.  Yesterday was their parent preview show.  It was awesome seeing my daughter’s perform. I got to meet one of their roommates and enjoyed going out to dinner afterwards.  As usual it was hard for us to leave after visiting with them.

Today I went to my parents house to check on them as well as my bees.  It’s been at least two months since I’ve done either one.  The bee yard was grown up with weeds and it took everything I had to use my weedeater to chop down the weeds just so I could get to the beehive.  After about an hour of cleaning up I went and sat with my parents for a couple of hours.

It was hard to leave my parents. They are both getting up in age and their health is not as good as it used to be.  My mom had to have more surgery a couple of weeks ago on her diaphragm due to finding a hole where her colon and her intestine were coming through.  The doctors seem to think that this was caused by the accident they had back in February.

The above picture is of the band managers.  The young lady is my daughter.  What a  trooper.

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