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~ Diabetes, Cancer Fighter, Father of Twins, Kayak Fishing, Lover of Life

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Tag Archives: Photography

365 Day Photo Challenge 204/365 “Stay Off the Internet!!”

22 Wednesday Jul 2015

Posted by Tim Hughes Living with CML in Photography

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365 Day Photo Challenge, AML, Bone Marrow Biopsy, Bone Marrow Transplant, Cancer, CML, Leukemia, Photography

https://tchphotography.smugmug.com/Botanical-Gardens/i-M8vWhDb/A

When I was diagnosed with CML, my doctor told me to stay off the internet.  What he meant was don’t do any research on my own because if I did I might get upset at what I found.  He was right.  I did my research and I did find some information that made me concerned.  That’s all in the past now.  My doctor and I are on the same page and we’ve discussed everything there is to know about CML including what could happen if I skipped or stopped taking my meds,  if the drug I’m on decides to quit working or if the cancer decides to take a different route.  I have complete faith in my doctor and I trust him implicitly.

I have the Chronic form of this type of Leukemia.  There are other, more advance forms that are more difficult to control.  Acute Myeloid Leukemia is of course the most difficult form to get under control and often times means a bone marrow transplant, chemotherapy and sometimes even death.  In fact, there is a survival rate of 65% of all AML patients.  Which is not bad considering that just about 15 years ago the survival rate on only about 2%.

Age has a lot to do with being able to survive the processes of reaching remission.  Having to go through a bone marrow transplant plus going through chemo is something that takes a lot out of the body.  The information that I read today stated that people older than 60 years of age the chances of them reaching complete remission (CR) are not very good.  For people who are diagnosed after the age 60 usually are given three to five years even if they decide to go through the bone marrow transplant and the chemo.  Not very promising.

I brought this up because yesterday while on my way home from work I got a phone call from a friend of mine.  Her ex husband’s mother who is 86 years of age was diagnosed yesterday with AML. They have done a bone marrow biopsy and the diagnosis is confirmed.  Her MIL has decided not to receive any form of treatments.  The doctors have given her two to three months to live.

When I was first diagnosed with CML I was told by many of my nurse friends that if someone had a choice as to which form of Leukemia to get, you would want the Chronic form.  After hearing the news of my friends MIL diagnosis I feel blessed to have the Chronic form.  I would rather not have cancer at all but I do and I have to deal with it the best way I know how.

“Life Goes On!”

365 Day Photo Challenge 203/365 “Health Insurance; Love it/Hate it”

21 Tuesday Jul 2015

Posted by Tim Hughes Living with CML in Photography

≈ 1 Comment

Tags

365 Day Photo Challenge, Cancer, CML, Copay, CPAP, Deductible, Drugs, Gleevec, health, Insurance, Medications, Photography

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Health Insurance can be a love/hate relationship.  I am fortunate to work for an insurance company and I get my insurance at a discounted rate but it’s still very expensive. I still have copays and I still have deductibles that I have to meet before the insurance will pick up.  I fill sorry for those that have to fork out thousands of dollars each year for insurance.

Today I had to go pick up my new CPAP machine.  When the lady called me to tell me that I now qualified for a new machine I asked her how much I owed.  She checked her computer and said that my deductible had not been met and that my payment would be around $500.00.  I don’t have $500.00 to spend right now and told her that.

I have CML, a rare form of Leukemia.  My medication is very expensive.  It averages out to be around $600.00/pill.  I take one pill a day and my prescription is for a thirty day supply.  My insurance out-of-pocket yearly deductible is $2500.00 and my prescription costs $18,000.00 a month.  That means that I would have to pay $2500.00 for the first month and the insurance company would pay the remainder.  But first, and the most important thing is that I would have to come up with $2500.00 before I could get my first prescription.  Pocket change, right?  Not for me.  Who has $2500 just laying around?  Again, not me.

A little known fact is that some drug companies want you to take their drug.  So much so that they are willing to pay you to take it.  I am very fortunate to be on such a drug.  Gleevec is the manufacture of the drug that I’m on and they offer a financial assistance program to those that can’t afford the ridiculous prices of the medications. I first read about this on their website once I found out that I would be taking the drug.  At first I thought that it was only for those that didn’t have insurance but thankfully I was wrong.  I called them up and they paid all but $100.00 of the $2500.00 of my out-of-pocket deductible.  Wonderful news!!  I pay the pharmacy $100.00 at the beginning of the year and Gleevec pays the rest and I don’t pay a dime the rest of the year for this drug. That’s not the only good news that came out of this.  Remember the CPAP?  It seems that my CPAP was covered under the same plan.  Being that my deductible was indeed met I walked out with a new CPAP and a new mask for $00.00.

“Life Goes On!”

365 Day Photo Challenge 199/365 “Home and Tired”

17 Friday Jul 2015

Posted by Tim Hughes Living with CML in Photography

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365 Day Photo Challenge, Cats, Florida, Photography, Seagrove Beach, Shopping, Sunset, Travel

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I got out of bed and looked out the window to see a peaceful ocean this morning.  The past few mornings the waves had been breaking as far out as far as the eye could see but today not so.

Kids wanted to do some shopping so instead of wasting valuable beach time I told them we could go on our way home today.  For two hours I sat on an outside bench while my wife and kids went shopping at the outlet mall.  I didn’t mind one bit. I sat there a did what I like the most which is people watch.  Believe me, there were a lot of people to watch.

We arrived home to find two very angry cats.  They didn’t appreciate us leaving them to fend for themselves.  We always leave plenty of food and water for them while we’re gone.  We also allow my sister in law to come and check on them at least once a day but they always manage to get mad and leave “gifts.”  The female quickly got over it but the male still hasn’t come to terms with us being home just yet.  Come morning he’ll be ok.

365 Day Photo Challenge 198/365 “Not Ready to go Home!”

16 Thursday Jul 2015

Posted by Tim Hughes Living with CML in Photography

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365 Day Photo Challenge, Beach, Florida, HDR, Ocean, Photography, Sunset, Vacation, Waves

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Vacations are never long enough.  Even though we had two full days at the beach I could’ve used another week at the least.  Everyone had a great time and we had great weather.  The waves were a bit rough but that didn’t keep us out of the ocean.  I was able to get to the front row this morning.  I had to get up early to do so but I was there when they set out the beach chairs.

Kids are wanting to do some shopping before we actually set the gears in motion toward home.  It’s a five hour trip so I’m in no real big hurry to get home.  The girls will have to go into work Saturday morning and my wife and I will be moving our son out of one apartment and into another so Saturday will be a busy day for everyone.  Sunday will be my rest day before having to start my work week on Monday.  To be honest, I am not ready to go back into that Hell hole.

“Life Goes On!”

365 Day Photo Challenge 195/365 “Bad Day For Pictures”

13 Monday Jul 2015

Posted by Tim Hughes Living with CML in Photography

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365 Day Photo Challenge, Alabama, Model, Oak Mountain, Photography, Vacation

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I met up with the young lady at the designated spot.  The shoot location was up a dirt road behind two locked gates.  I’ve shot there many times with no problems.  But today was different.  The first gate was unlocked when I drove up to it.  I started to go through it but though differently after I checked the lock only to realize that the combination was not the same.  Someone had changed the combination.  My fear was that as soon as I got to the shoot location someone would come behind me and lock the gate while I was still in there and I would be locked in.  Not happening.  I knew of another place and off we went.

The other place was not as nice as the first but there would be some privacy.  We drove up to the entrance and there was yet another gate.  This one was shut but not locked.  I got out and opened the gate and drove on through.  Probably not one of my smarter moves of the day.  The road to the top was about five miles and most of it was a one lane road with no room to pass.  We made it to the end of the road to where we were to shoot and there were construction going on exactly where we were going to shoot.  There were bulldozers, dump trucks and front end loaders.  Not a chance to shoot there.

On the road to the top there are a couple of overlooks where one could pull over and see down below.  Pretty nice view during the fall.  We pulled over to find a hiking trail so we did what any desperate photographer would do, we went hiking.  About a mile in we found a little outcropping of rocks that overlooked down below and we decided to shoot there.  It was a nice little location.

About twenty minutes into our shoot a group of mountain bikers road by and asked if that was my truck sitting at the trailhead.  It seems that the park ranger was looking for someone to tow it away because of the heavy equipment being used on that road.  Needless to say we packed up and left.  We decided to call it quits for the day and try it again some other time.  It was a sign for us not to shoot today.  We did get a few useable shoots but to be honest, I normally get around 900 to over 1200 pictures during a two hour shoot.  Today I only got 227 pictures.  Well below my normal.

Heading to the beach tomorrow.  I’m excited.

“Life Goes On!”

365 Day Photo Challenge 194/365 “Busy Day”

12 Sunday Jul 2015

Posted by Tim Hughes Living with CML in Photography

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365 Day Photo Challenge, Alabama, Beach, Family Time, Ocean, Photography, Photoshoot, Weekend

http://tchphotography.smugmug.com/2014-Family-Beach-Trip/n-szRKS/i-nmHqzKV/A

Normally at this time I’d be trying to prepare myself for tomorrow, Monday.  Tonight I’m rejoicing the fact that I will not be going to work tomorrow.  Instead, I’ll be getting ready for the trip planned for Tuesday.  Tomorrow, I’ll have a lot going on including a small photo shoot.  Once the shoot is over with I’ll have some stuff to do but because I did most of it today it won’t be so bad.

Today, I cleaned out the back of my truck.  I’m not sure how the back gets so cluttered with junk.  Anyway, I got the back cleaned and hosed out.  I vacuumed the inside of the cab and gave her a good washing.  I then backed the truck up to my trailer and hooked up to it to pull it out to be able to work on.  I removed both tires and loaded them into the back of the truck so that I can get some new/used tires tomorrow after the shoot.  I looked like I had took a dip in a pool when I got done with all that today.

“Life Goes On!”

365 Day Photo Challenge 193/365 “Southern Vintage Fire Apparatus Association”

11 Saturday Jul 2015

Posted by Tim Hughes Living with CML in Photography

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365 Day Photo Challenge, Alabama, Car Show, Fire Engines, Fire Trucks, HDR, Heat, Photography, Vacation, Vintage, Volunteer Fire Department

http://tchphotography.smugmug.com/Fire-Truck/i-mVqR6MQ/A

I had all these plans lined up for today in preparation for our trip next week.  I have a habit of procrastinating and I’m always in a rush getting ready so I was planning on getting a lot of things done today.  It didn’t happen.

I got an invite from my uncle to go to a car show today and see some of the fire trucks that that have on display.  I couldn’t resist.  The photo above is a 1918 fire truck that has been fully restored.  It got most of the attention today.

http://tchphotography.smugmug.com/Fire-Truck/i-CmDsDhG/A

This engine was with volunteer fire dept. where I grew up.  I was involved with the department mainly because my dad volunteered.  I was able to ride in this truck to several house and brush fires.

After taking pictures of all the trucks, I took my wife out for lunch and came straight home and got out of the heat.  It was in the high 90’s today with the humidity was around 85%.  It was not comfortable outside at all.  Not even in the shade.  Tomorrow morning I will be outside cleaning my truck out and giving it a good cleaning.

I hope everyone is having a great weekend.

“Life Goes On!”365

365 Day Photo Challenge 192/365 “Officially on Vacation!!”

10 Friday Jul 2015

Posted by Tim Hughes Living with CML in Photography

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365 Day Photo Challenge, Alabama, Beach, Photography, Sand, Surf, Vacation

http://tchphotography.smugmug.com/2014-Family-Beach-Trip/n-szRKS/i-Qgz9DNJ/A

As of 16:15 hours today I am officially on vacation.  I do not return to work until next Monday.  Believe me, work will be the furthest from my mind.

I met up with a beautiful young lady tonight that, if everything goes well. I’ll be doing a photo shoot with her on Monday.  I’m really excited about working with her.  She does professional Hula Hoops.  I’ve never heard such a thing.  We’re going to see if we can’t combine her hula hoop with some of the pictures.

Got a lot to do tomorrow and Sunday, yard work is one of them.  I’ll be getting up early to get started so I can be finished with everything by Sunday evening.  It’s going to be a busy weekend.

365 Day Photo Challenge 189/365 “Chaos”

07 Tuesday Jul 2015

Posted by Tim Hughes Living with CML in Photography

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365 Day Photo Challenge, Appliance Repair, Chicago, Dryer, Insurance, Photography

http://tchphotography.smugmug.com/Chicago/i-Sp5v23W/A

Can I have a “Do Over” for today or can it just be over with.  It’s funny how you have everything planned out but the least little thing can change everything you have planned.

It started last night when I had made plans to go bike riding today when I got home from work.  I got everything ready last night before I went to bed so that once home I could change clothes and go.  Didn’t quite work that way.

Item 1.  At about 2pm I got a phone call from my wife telling me that the dryer had quit working.  Luckily I know a little about appliance repair so when I got home I immediately started trying to figure out what the problem was that was keeping my dryer from doing it’s main job.   Burnt wire on the thermostat plus the thermostat looks burnt.  I’ve got to call the supplyhouse in the morning to see if they have the parts if not I’ll have to order them online.

Item 2.  Once the dryer was looked at and all my tools were put away I looked at the clock and decided that I still had enough time to go for a ride but my wife had something she wanted to discuss with me.  It seems that my soon to be 22 year old son has been found to be driving reckless and driving too fast in and around the neighborhood.  He’s already had one speeding ticket and our insurance skyrocketed so we really can’t afford another rate hike.  My wife and I decided to tell our son that if he gets another ticket that he will be removed from our policy and he will have to pay for his own insurance.  At an estimated $1000/per six months, I don’t think he can afford that.  Maybe that will slow him down knowing that he may have to pay $150 a month to drive his car.

Item 3  After my meeting with the wife I had just enough time for a half loop.  That’s 15 miles.  It’s better than nothing so I go and start changing clothes.  The phone rings. The wife answers, “What’s Wrong”.  Two words that you don’t want to hear when all three of your kids are supposed to be on their way home from work. Keep in mind that all three of my kids work at the same water park. One daughter is upset from something that happened at work and now she’s quitting.  The other daughter says she’s going to quit if this superviser that made the first daughter so mad she’s going to quit is not fired.  Still with me?  Now my son arrives at home just as my wife is trying to tell me what is going on.  My wife stops in mid sentence and starts asking my son what happened.  Without going into great detail it seems that they have a problem with a supervisor and my son, who is about 4 years older than that of this supervisor, got caught in the middle. My son is supposed to see if he can talk to the supervisor’s boss in the morning to see if he can sort this whole mess out.  If not, someone will face the wrath of my wife tomorrow I can assure you.

Item 4 I quit looking at the clock at this point.  My girls come home.  We go over the entire events of the afternoon again with little to no resolve.  Again, my son says that he will talk to the boss in the morning when he gets to his training session.  If there is a solution my girls will go to work at 10 am as scheduled.  If no resolve, they will all quit I’m guessing.

I decided to take this opportunity to discuss the lead foot my son has with him.  I tell him of the $150 a month insurance plan, he’s not impressed with having to pay that amount.  Will it work, I doubt it. We shall see!

No riding for me today.  Going on vacation next week but will I have any money left to go after the repair work on my dryer?  This is only Tuesday and we still have three more days remaining in this week. The weekend can’t come soon enough.

“Life Goes On!”

365 Day Photo Challenge 187/365 “Did a Little Riding Today”

05 Sunday Jul 2015

Posted by Tim Hughes Living with CML in Photography

≈ 1 Comment

Tags

365 Day Photo Challenge, Alabama, Bike Riding, Cleats, Clipless Pedals, Cycling, Photography, Shoes

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And I do mean little.  A little over 14 miles to be exact.  I road to a friends house which lives about 7 miles from me in another city and we had a small meeting.  After about 45 minutes or so I left and went to another friends house and stayed about the same amount of time.  I left there, got about half a mile up the road and then the bottom fell out.  Stormed all the way home.

I got new pedals, cleats and new shoes.  I’m not sure if I have the cleats set just right but so far I’m not having any issues.  I am having issues with clipping in on my left pedal.  I’m sure it will come with time but I had a lot of trouble and in the most inopportune time.  I stopped at a traffic light and unclipped.  After the light changed to green I had to start up this steep hill.  I never did get that left foot clipped in until after I got up that hill.  I was wore out.  I stopped a couple of times trying to practice but it seemed to do no good.  I can do if fine while stopped but while riding it’s another story.  Like I said, I’m sure it will come with time.

“Life Goes On!”

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