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~ Diabetes, Cancer Fighter, Father of Twins, Kayak Fishing, Lover of Life

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Tag Archives: health

When Life Schedules You Back-to-Back

12 Thursday Feb 2026

Posted by Tim Hughes Living with CML in Family, Fishing, Life, Photography, Uncategorized

≈ 1 Comment

Tags

Life, Doctor, health, Bloodwork, Family, Medicare, writing, mental-health, appointments, Financce, repairs, investments, Procrit

Today was one of those days where it felt like my full-time job was simply showing up somewhere else every few hours. Three appointments, three different parts of life, all packed into one long day.

I left the house around 9 a.m. for my first appointment at 10. I pulled in around 9:30 — early, I know — but I’ve always believed it’s better to be thirty minutes early than five minutes late. Plus, if something crazy happens, I’ve got buffer time. If nothing crazy happens, I get bonus time to sit in a waiting room and read my Kindle.

To my surprise, I was the only one in the waiting room, which rarely happens. I half expected someone to jump out and yell, “Just kidding, we’re running two hours behind!”

Then came the usual routine: three sticks before they finally got enough blood for testing. At this point, I think my veins hide when they see a needle coming. I’m pretty sure if they could talk, they’d be yelling, “Scatter! It’s Tuesday again!”

This visit was to my oncologist’s office to check my hemoglobin. It’s been running low for quite a while now. Normally, I go in once a month for a Procrit shot to help my body produce red blood cells and fight the anemia. Normal hemoglobin runs between about 12 and 15. Mine has been in the 6.5 to 8 range for a couple of years now — basically the bargain-bin section of hemoglobin numbers.

We tried iron infusions at first. They worked… briefly. Then it was right back to square one. When Procrit was first suggested, Medicare wouldn’t cover it. That meant $400 per shot, once a month. For that price, I feel like it should come with a steak dinner and a T-shirt.

Thankfully, Medicare eventually changed course and started covering it.

The good news today? No shot needed. My hemoglobin came in at 11.1. Still low, but close enough that the doctor decided to hold off and test again next month. I’ll take that as a small win. Around here, we celebrate small wins. Sometimes with coffee. (Which, apparently, is now under review.)

Next stop was my primary care office. I ended up seeing the nurse practitioner because my doctor was in a bad car accident several months back and is currently in rehab. His daughter, who is also a nurse practitioner, has been helping cover patients. We’re not sure whether my doctor will return to his practice. It’s a wait-and-see game for now.

Unfortunately, she can’t prescribe the narcotic meds I’m on, so I’ll have to go back next week to see another doctor just to get those refilled. Nothing like making a special trip just to prove you’re still the same person who needed the meds last week.

They were also supposed to retest my potassium levels today. That didn’t happen.

Instead, I got the lecture about my coffee habit and how high potassium can damage kidneys. Considering I’m already fighting to keep my kidney numbers where they need to be, I guess it’s time to start thinking about weaning myself off coffee.

Let me be clear: this may be the greatest personal challenge I have faced to date.

I don’t want to say coffee, and I are in a committed relationship… but we’ve definitely been exclusive for a long time.

My last appointment was with my financial adviser. He manages my retirement funds, and we meet yearly to review where everything is invested and how things are performing. Thankfully, things look solid. What he’s doing is working, and that’s a huge relief. I like the idea of continuing to eat and keep the lights on.

We also talked about future plans — mainly selling this house and moving somewhere safer. This neighborhood just isn’t what it was 35 years ago. That’s a whole story for another day, probably involving the phrase “kids these days.”

The bigger issue right now is the house itself. There’s a long list of repairs waiting for attention.

The deck my dad and I built over 25 years ago is starting to splinter and show its age. It probably needs to be torn down and replaced completely. Part of me hates that. The other part of me hates splinters more.

There’s visible wear around the chimney. The painters we hired five years ago did a poor job — but we went cheap, and sometimes you really do get what you pay for. Apparently, we paid for “looks good from across the street.”

Both bathroom vanities need replacing. The stairs need the carpet removed and the laminate installed. The roof needs shingle work before it decides to become an indoor water feature.

My adviser’s advice was simple: get several estimates, choose the contractor we trust most, then call, and they’ll cut the check. Easy… at least on paper.

Now comes the fun part — finding contractors.
I know of one.
Which means I am now officially accepting applications from the universe.

I was actually supposed to go fishing tomorrow, but it looks like it will be late afternoon before temperatures get comfortable enough for me to be outside for any length of time. So I decided to postpone it until spring decides to show up regularly instead of just teasing us for a few hours at a time.

The fish are safe for now… but their luck runs out the minute spring clocks in full time.

Some days are about big life moments.
Some days are about survival.
And some days are just about showing up, getting poked with needles, getting lectured about coffee, and trying to keep life moving forward one appointment at a time.

Today was one of those days.

And honestly?
I’m grateful I was able to make them all.

Even if I may have to say goodbye to coffee soon.
Please keep me in your thoughts during this difficult time.

Kayak, Quiet, and Keeping It Together; Out There, I Found Myself Again

11 Wednesday Feb 2026

Posted by Tim Hughes Living with CML in Cancer, Depression, Fishing, Kayaking, Leukemia, Life, Nature, Uncategorized

≈ 2 Comments

Tags

Cancer, Cell Service, Communication, Depression, Diabetes, Dialysis, Fishing, Garmin Mini InReach, GPS, health, kayak, Kayaking, kidney failure, Leukemia, Life, love, mental-health, Nature, religious, satellite, solitude, writing

My fishing buddy texted me Monday night asking if we were still meeting for breakfast Tuesday morning—a morning ritual we started a few months back. For the second time in two weeks, I had to tell him no because of doctor appointments. I worry that he thinks I’m brushing him off, but honestly, that’s not the case at all.

We’re both at an age—and health status—where we really shouldn’t go fishing alone. He’s 72 and has had five strokes. Thankfully, his health has improved a great deal, and I’m not overly worried about the two of us being out in an area with no cell service for hours on end. I carry a Mini InReach, a satellite communicator that allows me to send and receive text messages via satellite if things go sideways and help is needed. It even has an SOS button. If either of us were to have a medical emergency, pressing that button would send our GPS coordinates to rescuers. It might take a few hours, but help would be on the way.

I’m 62, and if you’ve read any of my posts, you already know I have my own long list of health concerns. Having a partner with you in a place where two-way communication is sketchy isn’t just a good idea—it’s warranted.

But it comes at a cost.

Sometimes, I need to be alone. I enjoy getting out in my kayak, stopping for a while, and just absorbing the sounds of nature. It’s where I have one-on-one time with my God. Rick is always nearby, as he should be, but I no longer feel like I truly get that quiet space. If I slow down to let him get ahead, he stops too, probably just to make sure nothing’s wrong.

When I first started kayak fishing, I went alone. Rick didn’t have a kayak then. Back then, my world felt like it was closing in on me. My cancer numbers were out of control, my kidneys were failing, and dialysis felt like the only road left in front of me. I was depressed, scared, and felt more lost than I ever had in my life.

Being out in the middle of nowhere—surrounded by silence, by peace, by the kind of beauty only God could create—gave me something I couldn’t find anywhere else. It gave me room to breathe. It gave me space to think. It gave me a place where I could be honest about how scared I really was. Sometimes it didn’t fix anything… but sometimes it gave me just enough strength to get through one more day.

I needed that time alone. It wasn’t about fishing. It wasn’t about getting away from people. It was survival. It was the only place where I felt I could truly talk to God and not feel like I had to be strong for anyone else.

This isn’t meant to be a religious post. I don’t use this platform for politics, religion, or controversy. This is simply how I dealt with a situation that felt completely out of my control.

I hope each of us has a place we can go—a place of solitude, reflection, prayer, or even just quiet—where we can catch our breath when life feels too heavy.

And I want to ask something, not as a writer, not as someone posting on social media, but as someone who knows what it feels like to be overwhelmed:

How do you deal with depression?
When you feel like things are getting out of control, how do you hold on?
What helps you get through the days when everything feels heavier than it should?

Because the truth is… someone reading this right now might be barely holding on.
Someone might be smiling on the outside and falling apart on the inside.
Someone might just need to know they’re not the only one fighting that battle.

If you have something that helps you keep going, share it.
You might help someone more than you will ever know.

When Your Brain Hits the Snooze Button

09 Monday Feb 2026

Posted by Tim Hughes Living with CML in Cancer, Disability, Leukemia, Life, Pets, Retirement, Uncategorized

≈ Leave a comment

Tags

argument, brain, Brain Fog, Breakfast, Chemotherapy, Devotional, Food, Forgetfulness, health, Meditation, recipe, Recipes, Sleep

Brain fog is working overtime this morning.

My cat got me up earlier than normal, so I started my day the usual way — getting my coffee going and sitting down to do my daily devotional. Afterward, I usually sit in the darkness for a bit to reflect on what I just read and mentally prepare myself for the rest of the day. That normally lasts about 15 to 20 minutes, depending on what I have planned.

Evidently, today I went into a deep sleep while doing so.
So instead of reflecting on scripture, I apparently reflected on the inside of my eyelids.

I got up, went into the kitchen, took a bowl out of the cabinet, and proceeded to pour cereal into it when my wife walked into the kitchen and asked what I was doing. I could only look at her with what I assume was a very strange look on my face — the same look Windows gives right before it crashes.

Normally, when someone is pouring cereal into a bowl, it means they’re about to eat breakfast. So I told her I was fixing breakfast.

She then informed me that I had already eaten breakfast.

A small argument began.

“No, I haven’t,” I replied, with the confidence of a man who clearly has no idea what he’s talking about.

She then pointed to the kitchen sink where an empty bowl with a spoon sat. Next to it was an empty plate with a fork — the same plate where I had apparently made myself a sausage patty earlier.

I honestly don’t remember eating breakfast this morning. But the evidence was sitting right there in the sink like a crime scene I had committed against breakfast foods.

I took the bowl of cereal, poured it back into the cereal box (because groceries are too expensive to waste), and went to sit down — feeling beaten and confused.

It made me wonder… how many times have I done something like this before and not remembered it? I think this was the first time with breakfast. Otherwise, I probably would have noticed empty dishes in the sink and wondered if we had a very polite burglar who only steals memories and leaves dishes.

What I do know is that during conversations, I can forget things right in the middle of saying them, and it’s frustrating. Sure, I know as you get older your brain starts playing games with you, but this feels different.

For as long as I can remember, I’ve done the classic “walk into a room and forget why I’m there” routine. I’ll leave one room, get halfway down the hall, and forget where I was going or what I needed. At this point, I just assume I live in the hallway now.

But lately, it feels… bigger than that.

I’ve also quit arguing with my wife about things that come up missing. I used to accuse her of moving things and not remembering where she put them — when in fact, it was me who moved them and can’t remember doing it. Turns out the call was coming from inside the house… and by house, I mean my brain.

I go back to the doctor on Tuesday, and if I can remember, this will definitely be one of the topics I bring up. I’m not sure if there’s anything they can do, but at least it will be on record.

And maybe — just maybe — tomorrow I’ll only eat breakfast once.

Under the Microscope… Again (Apparently I’m Now 5.9% Banana)

06 Friday Feb 2026

Posted by Tim Hughes Living with CML in bariatric-surgery, Diabetic, diet, Life, Uncategorized, Weight Loss

≈ 4 Comments

Tags

addiction, Appointment, Bloodwork, Change, Coffee, craving, Doctor, Food, health, labs, labwork, Life, lifestyle, pottassium, relationships, Surgery, writing

Lab results are in, and just like that… I’m under scrutiny again.

When I got the email with the results, the first thing that jumped out at me was my potassium. High. Again.

This isn’t new. It was high before, then magically went back to normal on the retest. Go figure. But here we are again. My doctor called yesterday and told me my potassium was elevated to an “extremely high” level. Naturally, I went digging through my past labs, and I noticed a pattern — since my weight-loss surgery last April, my potassium has been slowly climbing.

And I have absolutely no explanation why.

For those who don’t live their lives waiting on lab portals to refresh, high potassium — or hyperkalemia — means there’s too much potassium in your blood. Normal is between 3.5 and 5.0 mEq/L. Mine? 5.9 mEq/L.
Apparently, that extra .9 is where doctors start using their serious voice.

Now here’s where it gets interesting.

The only real lifestyle change I’ve made since surgery is that I’ve apparently developed a full-blown relationship with coffee. Before surgery, I had never enjoyed a single cup in my life. Not one drop. Loved the smell. Hated the taste. But after surgery? My body apparently said, “You know what we need? Coffee. All of it.”

Those pre-surgery classes warned me this might happen. Foods you hate, you’ll crave. Foods you love, you might hate. They never warned me I’d wake up one day emotionally attached to a coffee mug.

I’ve asked other doctors if coffee could be the culprit. Most said, “Probably not,” though they also gently hinted that maybe I shouldn’t be drinking coffee like it’s my full-time job. This latest doctor, however, seems less convinced.

The nurse asked how much coffee I drink in a day.

I was honest.

  • 22 oz before breakfast
  • 22 oz with breakfast
  • 22 oz sometime after supper

Apparently, this is not the answer they were hoping for.

And it doesn’t stop there.

If I go somewhere, I have a freshly made 22 oz riding with me in the truck. I also have what can only be described as a coffee emergency kit — a toolbox with all the fixings — just in case I get stranded somewhere that doesn’t have a coffee shop with my brand of coffee.

Yes. I know. It’s really sick.

Some people say caffeine keeps them awake. Not me. I can drink coffee at 9 PM and be asleep by 11 like a toddler after a long day at daycare. I’m not wired all day. I’m not bouncing off walls. I’m just… caffeinated and functional.

Her suggestion?
Limit myself to one cup per day.

Not one 22 oz cup.
One. Cup.

Friends… that is simply not going to happen.

Today I tried. I drank only one 22-oz cup. And I spent the rest of the day thinking about coffee like it was an ex who still had my hoodie.

I go back to the doctor next Tuesday for more labs. Hopefully, I can make it until then. And maybe — just maybe — they’ll tell me it’s not the coffee doing this.

So now I wait. More labs. More monitoring. More trying to figure out what exactly my body is doing and why it suddenly decided potassium is its favorite hobby.

In the meantime, if you see me walking around slightly jittery but emotionally stable, just know I’m doing my best… and possibly negotiating with myself about a second cup.

When a Routine Becomes a Memory

03 Tuesday Feb 2026

Posted by Tim Hughes Living with CML in Boy Scouts, Cancer, Diabetic, Disability, Life, Uncategorized

≈ 1 Comment

Tags

awards, blood, Bloodwork, Boy Scouts, camping, ceremony, Coffee, Doctor, Dutch Oven, health, labwork, leader, Life, mental-health, needles, Scouts, writing

Tuesdays are my long days.

They start at 4:00 a.m. — rolling out of bed, grabbing a shower, getting dressed, and heading straight to the kitchen for the first of what will be four cups of coffee. Tuesday mornings mean Bible study across town at 6:00 a.m., so once my first 22-ounce cup is ready, I sit at the kitchen table and go over the material we’ll be covering later that morning. Sometimes I’ll pour a bowl of cereal while I drink my coffee and wake up enough to be conversational.

This morning, though, I lost track of time. One coffee refill turned into “oh wow, I need to leave now.”

I left the house about ten minutes later than normal, thinking I could make up the time on the drive. That thought lasted right up until I hit a blocked road. Detour ahead. The detour added about twenty minutes to my drive, which pretty much killed any hope of being early. And I’m one of those people who would rather be thirty minutes early than five minutes late. I ended up pulling in right at 6:00 a.m. — which, technically, is on time… but still feels late to me.

Normally, after Bible study, I head back toward home and stop for breakfast with one of my fishing buddies. Not today. Today was lab work day, which meant going to the doctor’s office to give blood. Ever since I lost all this weight, nurses seem to have trouble getting blood from me without sticking me multiple times. Either the blood stops flowing, or my veins decide to roll out of the way like they’re dodging responsibility.

This morning was no different. Three sticks before they found a vein that cooperated long enough to get what they needed.

After lab work, I went across the street to a diner and grabbed a breakfast sandwich to go. Once I got home, I spent most of the afternoon working on Boy Scout awards. We’ve got an awards ceremony for the young men in our troop this Saturday, and everything had to be sorted and organized. Of course, I found out I’m missing some awards, so tomorrow it’s back to the Scout office to track those down.

Tuesday nights are — or maybe I should say were — Scout nights for me.

Tonight was my last regular Tuesday night with the Boy Scouts. We have the awards ceremony on Saturday, and that will be my last official night serving as a leader. I’m not going to say much more about that until after Saturday. I’ve got something in mind that I’ll be writing about and posting here once everything is finished. All I’ll say for now is… it’s bittersweet.

After the meeting, some of the leaders stayed behind talking about old times and even tossing around ideas about future camping trips. I haven’t been home long, and it’s getting late. I’m not really sure what my Tuesday evenings will look like starting next week. Part of me is a little sad… and part of me is relieved.

I do have a training class starting next month that will fall on Tuesdays, but it’s only for eight weeks. After that? I guess we’ll see what new routine Tuesday decides to become.

When “Stable” Is a Standing Ovation

30 Friday Jan 2026

Posted by Tim Hughes Living with CML in Cancer, Diabetic, diet, Leukemia, Life, Uncategorized, Weight Loss

≈ 2 Comments

Tags

Diagnosis, Dialysis, Doctor, eGFR, energy, Flood, health, Hemoglobin, Hospital, infusion, Iron, Kidney, kidney disease, kidney failure, Kidneys, Life, Medical, Nepgrologist, Oncologist, wellness

My nephrologist called me the other day to reschedule my appointment. Apparently, the hospital had a flood on the top floor, and their offices were flooded as well. Because when you’re already dealing with kidney issues, why not throw in some surprise indoor rain?

As a result, they had to temporarily move their offices to one of their satellite locations in a nearby city. The day before my appointment, they called again and asked if we could just do a teleconference instead. Same time, same doctor, no driving, and no pants required from the waist down—absolutely.

My lab work had already been done a couple of weeks earlier, and because I like to mentally prepare myself for either good news or emotional damage, I had my results emailed directly to me. Now, I’m not a doctor, and I don’t pretend to understand every number on those reports, but there are a few that I follow very closely.

First up is eGFR, or estimated Glomerular Filtration Rate. This number tells you how well your kidneys are filtering your blood. A normal range is between 90 and 120—numbers I personally haven’t seen in a while and would probably frame if they ever showed up again.

  • 60–89 is Stage 2 kidney disease
  • 45–59 is Stage 3a
  • 30–44 is Stage 3b
  • 15–29 is Stage 4
  • Below 15 means kidney failure, and dialysis becomes a very real conversation

Then there’s Creatinine, a waste product filtered by the kidneys. In simple terms, the higher the number, the worse things are working. Think of it as your kidneys’ performance review—lower is better.

The last big number I keep an eye on is hemoglobin, the protein responsible for carrying oxygen throughout your body. This one has a direct impact on how much energy I have, which explains why some days I feel like I could conquer the world, and other days I need a nap after tying my shoes. Normal range is 13.2-17.1

So here are the numbers I focus on:

  • eGFR: 35
  • Creatinine: 2.09
  • Hemoglobin: 10.5

Now yes, an eGFR of 35 doesn’t exactly scream “picture of perfect health,” but context is everything. Last year, that number was 14. At that point, my doctor was already talking about my next visit being with a dialysis specialist. That’s not a meeting you look forward to.

So going from 14 to 35? I’ll call that a solid upgrade.

My creatinine also improved significantly—from 4.29 last year down to just over 2. Another small victory, but I’ll gladly stack those wins wherever I can get them.

Hemoglobin, however, continues to do whatever it wants. It fluctuates so much that I regularly need iron infusions. My oncologist thinks it’s related to my kidney function, while my nephrologist believes it’s tied to the chemo drug I’m on. At this point, I feel like the two of them should arm wrestle, and whoever wins gets to be right.

When the call wrapped up, my nephrologist said she was happy with where things are. She even used the word “stable.”

And if you’ve never dealt with chronic illness, “stable” might sound underwhelming. But when you live in this world, stable is a beautiful word.

Stable means no dialysis—for now.
Stable means nothing is getting worse.
Stable means today is better than last year.

So yeah, I’ll take stable.
No complaints.
And preferably without any more floods—indoor or otherwise.

The Phone Call That Changed Everything

17 Saturday Jan 2026

Posted by Tim Hughes Living with CML in Cancer, Depression, Diabetic, Disability, Leukemia, Life, Weather

≈ Leave a comment

Tags

Anniversery, Cancer, Celebrate, Chemotherapy, CML, Depression, Doctor, health, Lab Work, Laughter, Leukemia, Life, Medicine, Oncologist, Weather

It’s hard to believe, but I’m coming up on my 12th anniversary of being diagnosed with CML (Chronic Myeloid Leukemia). My most recent lab work showed my cancer as undetected—which is always good news… with an asterisk. In my case, “undetected” can be a little sneaky. It can be undetected on one visit and pop back out of range on the next. I wish I could tell you why there’s such a swing, but I don’t do anything differently from month to month. Same diet. Same routine. Same bad jokes. The only thing that really changes is what the numbers decide to do.

I will never forget the day I found out. Or the days leading up to it.

I had gone in for a routine six-month checkup when my GP called and asked me to come back in for more lab work because something looked “off.” Then on February 14, 2014—Valentine’s Day—my wife and I were getting ready to meet one of my daughter’s newest boyfriends. He was coming to pick her up for a high school date, and I was in the important stage of fatherhood known as trying to find the right words to mildly terrify a teenage boy.

That’s when my phone rang.

Keep in mind, this was late on a Friday afternoon, when most doctors’ offices are already mentally in their cars. The nurse told me my white blood cell count was extremely high and that they wanted me to see an oncologist.

At that moment, I had never heard the word “oncologist.” I didn’t know what kind of doctor that was.

During the phone call, my wife quietly looked it up and said, “Tim… that’s a cancer doctor.”

Needless to say, my carefully rehearsed intimidation speech for my daughter’s boyfriend completely left the building.

My appointment was scheduled for the following Tuesday at 10 a.m., which made that weekend the longest weekend of my life. A thousand scenarios ran through my head. I didn’t sleep much. I just wanted Tuesday to get there so I could talk to someone who actually knew what was going on.

Tuesday morning arrived with snow and ice. I kept calling the office. No answer. The hospital sat on top of a steep hill, and the road was iced over. No one was going up it, including me.

Later that day, the temperatures rose, someone finally answered, and my appointment was moved to 2 p.m.

I’ll never forget meeting my oncologist. He made a lasting impression. My wife decided that day she didn’t like him from the start.

I had a thousand questions loaded and ready. I opened my mouth to ask the first one. He held up a finger and said, “I’m talking. When I’m done, I’ll answer your questions.”

And just like that, I realized I was not in charge anymore.

He’s an older doctor, and sometimes I worry that one day I’ll walk in and find out he’s retiring. I’ve been with him nearly the whole time—nearly because there was one stretch when he tried to pawn me off on another doctor at another hospital because my numbers wouldn’t behave. But that’s a story for another time.

The time after my diagnosis was one of the darkest periods of my life. I slipped into a depression I had never known before. I truly thought CML was a death sentence. I was afraid to buy anything because I figured it would just have to be sold or given away. There were days I stayed home—not because I was sick, but because I didn’t want anyone to see me fall apart.

And honestly… at that time, I didn’t care.

Through some very serious conversations with my wife, my parents, and my oncologist, I slowly crawled my way out of that hole. It didn’t happen quickly. It didn’t happen neatly. But it happened.

They say laughter is the best medicine, and while my insurance company may disagree, I’ve found it to be pretty true. If you go back and read some of my early posts, you’ll notice they don’t carry the same humor as the ones I write now. There’s a reason for that.

I still have days when the weight hits harder than others. I still have moments of fear, frustration, and fatigue. But I’ve learned that sometimes it’s better to laugh at life’s situations than to let them crush you. Humor didn’t remove cancer from my life—but it did give me a way to live with it.

So here I am, almost twelve years in. Still showing up. Still rolling the dice on lab work. Still grateful for “undetected,” even when it comes with an asterisk. Still learning. Still stumbling. Still here. And still trying to laugh whenever possible… because some days, laughter is the only thing in the room that reminds you you’re still alive.

If you’re reading this and you’re walking through cancer, or any other terminal or life-altering diagnosis, let me tell you something I had to learn the hard way: don’t give up. Don’t give up on tomorrow. Don’t give up on joy. Don’t give up on the people who love you. And don’t give up on yourself.

There will be dark days. There will be scary appointments. There will be lab results that knock the wind out of you. But there will also be days you never thought you’d see. Conversations you didn’t think you’d have. Laughs, you didn’t think you were capable of anymore. Life doesn’t end when a diagnosis begins. It just changes.

Hold on. Ask questions. Lean on the people God has put in your life. Celebrate the good days. Endure the hard ones. And if all you can do on some days is get out of bed and breathe, then that is more than enough for that day.

Almost twelve years ago, I thought my story was coming to an end.

It turns out that it was just the beginning of a very different chapter.

And as long as there’s breath in your lungs, there is still a reason to keep turning the pages.

Please Hold…My Brain is Loading

11 Sunday Jan 2026

Posted by Tim Hughes Living with CML in bariatric-surgery, Cancer, Family, Leukemia, Weight Loss

≈ Leave a comment

Tags

B12, blog, Brain Fog, Buffering, Chemotherapy, CML, Concentrating, Diary, Drugs, Forgetfulness, gastric bypass, health, Leukemia, Life, Medications, Memory, Memory Loss, Mental, mental-health, Sleep, Sticky Notes, Venting, writing

When I started this blog some years ago, it was mainly meant to be a diary of sorts — a place to vent and to voice my opinions. Gaining an audience was never part of the plan. This was more “Dear Diary” than “Dear Internet.” It wasn’t until I was diagnosed with CML that I decided to use this platform to write about my experiences with cancer and maybe, just maybe, help some other poor soul going through the same thing.

As with most things in life, plans change. Sometimes gently. Sometimes with a two-by-four.

Not only was I dealing with CML, but I also decided to write about my experiences with gastric bypass surgery. When I was doing my research, I noticed there really wasn’t much content out there. And what I did find often ended shortly after surgery, for whatever reason — almost like everyone vanished once the anesthesia wore off and nobody ever came back to update the internet.

There’s something else that’s been going on for quite some time, and I’ve finally decided to put it down on paper. I’ve been experiencing brain fog for several years, and over time, it has gotten worse. “Brain fog” is a term used to describe symptoms such as difficulty concentrating, memory problems, mental cloudiness, confusion, and trouble finding words — essentially, feeling like your brain is running Windows 95 in a world that expects fiber internet.

I notice it most when I’m trying to carry on a conversation and, right in the middle of it, my mind just… leaves. Names vanish. Phone numbers disappear. Sometimes I forget what I was saying while I’m still saying it. Short-term or long-term, it doesn’t matter. It’s there… then it’s not, kind of like my car keys.

What makes this so difficult isn’t just the symptoms themselves, but how they sneak into everyday life. I’ll walk into a room and forget why I’m there. I’ll open my phone to look something up and immediately forget what I was looking for. I’ll stand in the kitchen staring into the fridge like it’s going to explain my life choices to me.

Conversations that should be easy sometimes turn into mental obstacle courses as I search for words I’ve used my entire life. It affects my confidence more than I care to admit. When you can’t trust your own memory, you start second-guessing yourself. You hesitate before speaking. You rely more on notes, reminders, and the people around you. I’m grateful for their patience, but it’s a strange feeling when your own brain doesn’t always show up prepared.

Some days are better than others. There are moments when everything feels clear and normal, and I start to think maybe I’ve turned a corner. Then there are days when my thoughts feel like they’re moving through mud, and even simple tasks take extra effort. Those are the days that wear on you — not with fireworks, but with a steady drip of “Seriously? Again?”

If you Google the term “brain fog,” you’ll find a long list of possible causes: lack of sleep, medications, chemotherapy, B12 deficiency, and even anemia. I’ve spoken to my doctor about it, and while some over-the-counter options might help, with my anemia and the chemotherapy drugs I’m on, they may not make much difference. In other words, this may just be part of my user agreement for now.

I don’t share any of this for sympathy. I share it because this blog has always been about honesty — the good, the bad, and the occasionally forget-why-I-walked-in-here. Brain fog may be part of my story right now, but it’s not the whole story. I still laugh, I still enjoy life, and I still manage to function… even if I need a few more sticky notes than the average person.

I’ve learned to adapt. I write more things down. I set reminders. I give myself a little more grace than I used to. And when I lose my train of thought mid-sentence, I’ve decided it’s perfectly acceptable to blame the fog, shrug, and move on. If nothing else, it gives the people around me a chuckle — and honestly, some days I’m laughing right along with them.

And if you ever see me standing in a room staring off into space like I’m waiting on divine revelation, don’t worry. I’m probably just buffering.

Unwelcomed Alarm

10 Saturday Jan 2026

Posted by Tim Hughes Living with CML in Weather

≈ Leave a comment

Tags

Alarm, Challenges, Coffee, health, Life, mental-health, National Weather Service, Production, Rain, Sleep, Storms, Thunder, Weather, writing

I wrote in my last post about how crazy our weather has been. Apparently, the weather department took that as a challenge.

Last night, it decided to toss in another curveball — a cold front pushing through, dragging thunderstorms along with it. We spent most of the day and evening under a tornado watch. By bedtime, we had already picked up nearly three inches of rain, and the storms were still rolling in. The thunder wasn’t rumbling anymore; it was auditioning for a demolition crew.

Before going to sleep, I set my phone alarm for 5:30 a.m. so I could get up and get ready for men’s Bible study at 8. Responsible. Mature. Clearly overconfident.

Sometime later, I heard an alarm and woke up. I didn’t question it. I just accepted my fate. I took a long, hot shower, shaved, got dressed, and headed to the kitchen. I started the coffee and even remember thinking, “Tracy should be getting up soon. It’s got to be around six.”

The first pod finished, and I glanced at the stove clock.

4:10 a.m.

I stared at it, waiting for it to blink and say “Just kidding.”

It didn’t.

I checked my watch. Same time. That’s when it hit me — I hadn’t been woken up by my phone alarm. I’d been summoned by the weather radio.

I sat down in my recliner with my coffee and pulled up the radar. Sure enough, the National Weather Service had issued a flash flood warning at 3:45 a.m. That alert was the “alarm” that launched me into full morning-person cosplay.

So there I was — clean, dressed, caffeinated, and absolutely betrayed — living in a time slot meant only for bakers, farmers, and people who lost a bet.

There was no going back to bed. And even if I tried, I’d probably sleep right through the real 5:30 alarm just to complete the joke.

Moral of the story: I don’t need an alarm clock. I need a personal meteorologist who knows when to mind his business.

A Little Health Update (Spoiler: I’m Still Kicking)

11 Thursday Dec 2025

Posted by Tim Hughes Living with CML in Cancer, Leukemia

≈ 2 Comments

Tags

health, Iron, Kidney, Life, Melanoma, mental-health, Oncology, Pain, Potassium, update

I haven’t posted about my health in a while, so here’s your semi-regular episode of “What’s My Body Doing Now?”

First up, the oncology report: still no detectable blast cells for about eight months. 🎉 I’m not throwing a party just yet, because last time I got excited, my labs basically said, “Surprise!” and did their own thing. But for now, we’ll call it a win.

Iron levels? Yeah… those are still on strike. I’ve officially been diagnosed with chronic anemia, which explains why I’m always freezing and walking around the house like it’s January in Alaska. I’ve had so many iron infusions I’m pretty sure I’m 3% metal at this point. Waiting on Marvel to call.

And then there’s the potassium situation. Apparently my potassium levels have been creeping up. My oncologist thinks it’s tied to the kidney failure. Meanwhile, I barely eat any high-potassium foods, so my best guess is that my body is just freelancing at this point.

Skin cancer update: I had a melanoma spot and another bonus cancer removed from my left arm a little over a month ago. They left some lovely scars, which I now refer to as battle wounds because that sounds way cooler than “my dermatologist wanted a closer look.”

Now they’ve moved on to my back. I had a spot removed Tuesday that they think might also be melanoma. We’ll know more when the biopsy comes back, but let me tell you… back pain is a whole different universe. I slept approximately 12 minutes that night because I couldn’t get comfortable. Tylenol and I are in a committed relationship now.

Anyway, that’s the latest episode. Thanks for tuning in. Same time next month for whatever plot twist my body decides to add next. 😅

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