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Grayfeathersblog

~ Diabetes, Cancer Fighter, Father of Twins, Kayak Fishing, Lover of Life

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Tag Archives: Cancer

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24 Friday Jun 2016

Posted by Tim Hughes Living with CML in Cancer, Leukemia

≈ 1 Comment

Tags

Cancer, Cats, CML, Doctor's Appointment, Howard Cosell, Oncologist

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This has got to have been one of the longest weeks in history.  After being off for two weeks, one of which was spent in the hospital, the other at home recuperating, working a full week and then off for another week; it’s been difficult for me to get myself out of bed and off to work.  Motivation has been the key.  With only .086 hours of PTO (Paid Time Off) I pretty much have to go to work or else I don’t get paid and with that the possibility of being disciplined is pretty much been my motivation to go to work.

The whole month of May was pretty much filled up with doctor’s appointments.  With the fact that I knew that I was going to take off a week in June, I wanted to make sure I had plenty of time left over for a cushion just in case I had some medical issues or one of my kids or wife, for that matter, got sick.  Not knowing that I myself would have to go back into the hospital for the flu and pneumonia didn’t help matters any. So, with that thought in mind I would always work over to make up for any time that I had to take off for a doctor’s appointment.  Made for a very long month.  Anyway, one of the doctor’s appointments was with a neurophysiologist. Not by my choice but my employers. It seems that my boss wanted me to go because of some mistakes that I’ve been making at work.  Some of these mistakes were quite costly but luckily none were any danger to me or to my co workers.   The appointment lasted for four hours and I failed several tests miserably.  I talked to the doctor that performed the tests the next day and he told me that I had some sort of mental disability.  He did not give me the diagnoses but told me that he would file a report and give it to my general practitioner.  It’s been over a month and I’m still waiting for the results to come in.  Another test that was performed was done while I was home recuperating.  It was an appointment to check my feet.  I spent two hours getting my feet shocked only for them to tell me what I already knew, Diabetic Neuropathy.

Back to the mental disability.  With being diagnosed with CML and taking a form of chemotherapy, I’ve been told, not by doctors but by other people to look into Chemobrain. Personally, I don’t think I have this because I haven’t had a bone marrow transplant.  But I do have most of the symptoms though.  I have noticed that my short term memory is not as good as it used to be and while I can remember some things deep in my childhood other memories during that same time frame I can’t remember at all.  At first I just counted it as getting old but after losing several arguments with the wife I have come to the realization that maybe it’s not just about getting old any more.  And with the current result from the neurophysiologist I tend to agree that I do have some sort of mental issues.  What can be done about it remains to be seen.

A bit of good news is that while I was away on vacation my oncologist called me with the results of my last set of tests.  It seems that my Bcr-Abl tests came back any my numbers were a whole lot lower.  In his words, “the numbers bottomed out”.  He didn’t give me the exact numbers but he did say that they have not been any lower since my diagnosis.  I can’t wait to go back in two weeks to see what the numbers actually are.

With all that’s happening in my life right now, especially with my health, my friends are all concerned that I would try to end it all.  I’m not sure as to why they feel this way.  I’ve never given them any cause for concern in that area.  At least I don’t think so.  All I know, there is no way there is any possibility of that ever happening.  If someone even remotely suggests that I committed suicide someone better be on the lookout for a murderer.  I’ve got too much to live for right now for me to commit something cowardly as that.

365 Day Photo Challenge 356/365 “To Be Pain Free For a Day”

21 Monday Dec 2015

Posted by Tim Hughes Living with CML in Photography

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Tags

365 Day Photo Challenge, Cancer, Chronic Myeloid Leukemia, Chronic Pain, CML, Cycling, Diabetic Nerve Pain, Pain Relief

https://tchphotography.smugmug.com/2015-Cheaha-Challenge/i-p3mcRJb/A

I was thinking earlier this afternoon when the last time I had a day that I went pain free.  Yesterday.  I would have to say yesterday I was relatively pain free for a day.  Lately it’s been my feet giving me problems and now my kidneys.  But yesterday I was pain free because I didn’t have any pain in my feet and my kidney didn’t hurt.  Today, however, my feet were barking toward the end of the day but my kidney remained calm and pain free.

As I sit here whining about my pain, I’m reminded that there are a lot of people that are worse off than I am.  There are days that I hurt, a lot.  But, like yesterday, I didn’t have any pain whatsoever.   Some people can’t say that.  They have to live with chronic on a day to day basis.  There is no pain medication that can give them any relief whatsoever.  Knowing this makes me feel like a heel complaining of my insignificant pain when on most cases I can take a pain pill and for the most part feel better within thirty minutes or so.  There are those that medications can’t do anything for them.  I can’t image that.

I’ll say a prayer for all those in need of pain relief and I’ll include myself in this prayer.

“Life Goes On!”

 

365 Day Photo Challenge 352/365 “New Medication”

17 Thursday Dec 2015

Posted by Tim Hughes Living with CML in Cancer, Leukemia, Photography

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Tags

365 Day Photo Challenge, Cancer, CML, Medication, Sprycel

image (1)

I heard from my oncologist today and I’ve got a new drug to take for my CML.  The survival rate is no more than the previous drug but as long as it keeps me alive I’m good. It also has about the same side effects as the other so unless there’s something I don’t know about I guess I’ll be ok with it as well.

I stayed home again today with this kidney stone that has yet to pass.  I had to get up early this morning to take a pain pill but so far today I’m moderately pain free.  I’ll be going into work tomorrow regardless if I’m pain free or not.  I’m low on time so I have to go in.

365 Day Photo Challenge 337/365 “Renewed Friendships”

02 Wednesday Dec 2015

Posted by Tim Hughes Living with CML in Photography

≈ 2 Comments

Tags

365 Day Photo Challenge, Alabama, Cancer, Friendship, Leukemia, Oncologist, Travel

DSC_8471

After my appointment with my oncologist I spent some time renewing an old friendship with a young lady from my past.  I had seen that she was in town for a few days and I called her up to see if she wanted to meet for some coffee.  She was elated to hear from me.  We met at a local coffee shop where we talked for over two hours.  I drank so much coffee I think it will be sometime next week before I get any sleep.

It’s amazing how time gets away from you.  I had no idea that it had been ten years since I’d seen her.  We had so much to talk about but so little time to catch up.  She had to hurry on to catch a flight back to where she’s now living.  It was really good to be able to spend what little time I had with her today.  I’m hoping that it won’t be another ten years before I get a chance to see her again.

“Life Goes On!”

365 Day Photo Challenge 336/365 “Me Time”

01 Tuesday Dec 2015

Posted by Tim Hughes Living with CML in Photography

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365 Day Photo Challenge, Cancer, CML, Lukemia, Me Time, Oncologist, Sick

https://tchphotography.smugmug.com/HDR/i-M4pCJfS/A

I have an oncologist appointment tomorrow afternoon.  All I’m going to do is give some blood so that they can do some more blood work to find out why my BCR abl has shot back up.  Afterwards I’m going to have some much deserved ME time.  Right now I’m fighting off a cold and I’ve got a sore throat and some congestion.  I think I’ve caught my daughter’s cold.  If I’m not much better tomorrow I may be spending my me time at the doctor’s office.

“Life Goes On”

365 Day Photo Challenge 331/365 “Happy Thanksgiving”

26 Thursday Nov 2015

Posted by Tim Hughes Living with CML in Photography

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Tags

365 Day Photo Challenge, Cancer, Cast Iron, CML, Cooking, Dutch Ovens, Family, Leukemia, Recipes, Thankfull

Thanksgiving

I’m stuffed to say the least.  I’m thankful that my family is here with me today.  With the kids getting older I’m not sure how much time we have with them.  I know that they will always try to come home for the holidays.

I’m also thankful that I’m still here to be able to spend time with my family.  With the diagnosis of CML my life was changed forever.  I’m thankful for the men and women who discovered the drug and for all those patients who did the case study that allowed the passage of this drug to take place.

We spent time with my wife’s family today.  Tomorrow I’ll be able to spend time with my mom and dad.  I’ll get up early tomorrow and cook breakfast for my family then I’ll start working on a Dutch Oven dish to take to my parents.  This will be the first time that I’ve cooked for the parents in my Dutch Ovens so I’m excited about this.

Speaking of Dutch Ovens, I have a new blog that I would like for you to check out.  It’s going to be full of different recipes that I have gathered over the past several years.  If you like cast iron cooking this will be for you.  If not, then don’t feel obligated to follow.  I posted my first post just moments ago.  https://thecastironblackpot.wordpress.com/

Again, Happy Thanksgiving everyone!

“Life Goes On!”

 

365 Day Photo Challenge 322/365 “Day 17”

17 Tuesday Nov 2015

Posted by Tim Hughes Living with CML in Photography

≈ 5 Comments

Tags

365 Day Photo Challenge, Cancer, CML, Exercise, Leukemia, treadmill, weight gain, Weightloss

https://tchphotography.smugmug.com/Botanical-Gardens/i-GdvLpxK/A

Have you ever have one of those days where you just wanted to go back to bed and crawl under the covers and hide from the world hoping that no one would find you?  Today was one of those days for me.

It started when I got on the scales this morning.  Another 2 pounds gained.  It’s tough seeing weight that you’ve already lost appear back on the scale.  Where’s the encouragement to keep going if all you do is see is weight added back to the scale even making sure that you’ve stuck to your exercise program and your diet.  Oh well, I’m going to keep going.  Don’t really have a choice but to keep going.

What really made me want to hide from the world was the phone call I got from my oncologist this morning.  If you’ve been following this blog long you will remember that I’ve got CML, a form of Leukemia.  When I was first diagnosed my blood levels were at 133%.  Six months ago at my last appointment my blood levels were down to .05%.  A very good report indeed.  Not today however, my levels went up to .65%.  I go back to my oncologist in two weeks for more blood work then after that blood work comes back the doctor will make his decision as to what my next step will be.

“Life Goes On!”

365 Day Photo Challenge 273/365 “Half Day Tomorrow”

29 Tuesday Sep 2015

Posted by Tim Hughes Living with CML in Photography

≈ 3 Comments

Tags

365 Day Photo Challenge, Appointment, Cancer, Cats, CML, Diabeties, Doctor, Leukemia, PTO

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I have a doctors appointment tomorrow with my general practitioner.  I see him every six months and have been every since I’ve been diagnosed with Diabetes.   If you don’t have a regular doctor I would highly suggest that you get one.  If it wasn’t for my biannual checkups my CML would not have been diagnosed until it was too late.

I’ve got to talk to him about several items that I’m having problems with so it might be a longer visit than normal.  I will not be going back to work after my appointment.  I’m sort of looking forward to a little time off.

365 Day Photo Challenge 220/365 “Oncologist Report”

06 Thursday Aug 2015

Posted by Tim Hughes Living with CML in Photography

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Tags

365 Day Photo Challenge, Cancer, CML, daughters, Good Report, Life Is Good, Oncologist, Twins

https://tchphotography.smugmug.com/Botanical-Gardens/i-VHCv9xc/A

Today was my day.  It’s been so long since I’ve had a day when most things went without having a problem.  I even had a civil conversation with my boss this morning.  My day was pretty well planned out so I went straight to it.  I stayed pretty busy and the day went by pretty quick.  About 2 pm the receptionist from my oncologist called and said that the doctor wanted to speak to me.  My results weren’t due in until next week so I immediately went into panic mode.  The doctor came on line and told me that my levels were lower than they had been since my diagnoses.  That was exactly what I was needing to round out my day.

I had a meeting after work so I got in really late but both my daughters were still up and they both had a great first day back to school.  That made me happy too.  Maybe this will keep going at least one more day until the weekend.

“Life Goes On!”

365 Day Photo Challenge 217/365 “Oncologist Appointment Today”

03 Monday Aug 2015

Posted by Tim Hughes Living with CML in Photography

≈ Leave a comment

Tags

365 Day Photo Challenge, Alabama, Bike Ride, Cancer, Chemotherapy, CML, Cycling, Eye appointment, Eye Surgery, Oncologist, Photography, Waterfall

https://tchphotography.smugmug.com/Botanical-Gardens/i-LpJ69bk/A

I spent the afternoon at my oncologist today.  I never really like going there because it breaks my heart seeing all those people sitting on those recliners getting their chemo treatments.  Not knowing their situation I always fear the worse for them.  My blood work for the most part turned out ok.  However, they won’t get the results from the main test for at least a week or more.  The toughest part is the waiting.

Going to the eye doctor tomorrow to get a new prescription for new glasses.  Since my eye surgery my eyesight has diminished quite a bit so I’m actually looking forward to being able to see again.

I was not able to ride tonight due to a scout meeting I had to attend.  With tomorrow’s eye appointment I’m not sure if I’ll be able to ride or not.  Wednesday looks good but Thursday is out because of another meeting after work.  The weekend looks good but there is a waterfall I want to find and photograph so getting a ride in on Saturday may not happen.  We shall see.

“Life Goes On!”

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