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~ Diabetes, Cancer Fighter, Father of Twins, Kayak Fishing, Woodcrafter, Lover of Life

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Tag Archives: Life

When the Calendar Attacks

02 Monday Mar 2026

Posted by Tim Hughes Living with CML in Diabetic, Disability, Fishing, Kayaking, Leukemia, Life, Nature, Uncategorized

≈ 1 Comment

Tags

Calendar, Doctor Apptointments, Family, Friendship, health, Lab Work, Life, love, technician, writing

Photo by Yan Krukau on Pexels.com

Today has been one of those days. You know the kind. The kind where your calendar looks like it’s been attacked with a highlighter and your patience is hanging by a thread that was probably manufactured in the late 1800s.

The morning started with what should have been a routine lab appointment. Twelve hours of fasting. No coffee. No toast. No nothing. Just me and my growling stomach driving to the doctor’s office, already dreaming about bacon.

Only to be told the lab technician had a death in the family and I needed to drive to another location across town.

Forty-five minutes later, I finally gave blood. At that point I was pretty sure they could have just followed me around with a butterfly net and collected it from pure frustration.

I got home with just enough time to inhale what should have been breakfast but was technically lunch by then. If eating at warp speed becomes an Olympic sport, I’ll medal. I’m convinced my digestive system now files weekly complaints.

Meanwhile, I’d already been informed that I would be taking my wife to her doctor’s appointment later in the day—which meant I’d likely be late for my 5 p.m. meeting.

Now let me clarify something.

I volunteered to take her.

But my wife doesn’t drive. Well… she technically can. She just won’t drive on the interstate anymore. She avoids it like it’s under federal investigation. She will happily add thirty minutes to a trip just to stay on back roads. Riding with her feels like being chauffeured by a very nervous 16-year-old taking her first driver’s test.

I love her dearly. I also consider Uber a spiritual gift.

We arrived early for her 2 p.m. appointment, secretly hoping they might see her ahead of schedule. That optimism faded around 3 p.m. when she was finally called back. My meeting requires me to leave the house by 4 p.m.

At 3:45 she came out—with a nurse. I stood up, hopeful.

“Nope,” she said. “One more procedure.”

Of course.

She finally emerged again, apologizing because she knew I’d be late. It’s hard to be frustrated at someone who genuinely feels bad, especially when you know she can’t help it.

I dropped her off, drove to my meeting, and arrived thirty minutes late… only to discover the group had been deep in an off-topic rabbit trail discussion. For once in my life, being late worked in my favor.

The rest of the week doesn’t look much better. Meetings. Doctor appointments. Obligations stacked like cordwood. Meanwhile, I have a craft fair this Saturday and hardly any time to finish the projects I planned to sell. It’s looking more and more like I’ll be burning the midnight oil just to have something on the table besides a smile and a price tag.

And then there’s my fishing buddy.

I enjoy his friendship. I truly do. But I think I may be his primary source of entertainment. His wife works. He doesn’t drive outside of town. So most days he’s in his recliner watching television. Tuesday breakfasts are the highlight of his week unless we fish or wander around the tackle shop.

Now that the weather is warming up, the question has already started:

“So… when are we going fishing?”

I love fishing. I really do. But I’m not wired to sit in a recliner all day waiting for someone to rescue me from boredom. I’ve got crafts to make. Bible studies to attend. Appointments to keep. Responsibilities that don’t pause just because the fish are biting.

Having a medical condition that requires lab work or weekly-to-monthly doctor visits can be increasingly challenging. The physical part is one thing. The mental part is another. Sitting in waiting rooms gives your mind far too much freedom to wander into the land of “What will the doctor find this week?”

If I could offer one small suggestion to anyone walking that road, it would be this: bring a book. Or in my case, a Kindle. Reading helps me escape the mental spiral. It shifts my focus away from lab numbers and test results and places it somewhere far more peaceful. If you let it, the stress will take over. And some weeks—like this one—it tries really hard.

Truthfully, this post is simply me letting off a little steam. Sometimes writing it out is the healthiest thing I can do. It helps me process the frustration, the schedule overload, the internal pressure to be everywhere at once for everyone.

Some weeks feel balanced. Others feel like the walls are inching closer.

This is one of those weeks.

But I also know this: weeks like this pass. Meetings end. Appointments get checked off. Craft fairs come and go. Even fishing trips can wait.

For now, I’ll take a deep breath, set the alarm a little earlier, probably stay up a little later, and remind myself that hectic seasons don’t last forever.

And maybe next week… I’ll go fishing.

Before the Coal Took the Mountain

28 Saturday Feb 2026

Posted by Tim Hughes Living with CML in Diabetic, Family, Fishing, Life, Uncategorized

≈ 2 Comments

Tags

airplanes, coal, Dad, Diabetes, Family, farm, farm land, father, granddad, homeplace, Life, love, Memories, Military, mountain, Navy, school house, Signal Tower, Tower, writing

The older my dad gets, the more stories seem to come out. It’s like he’s been carrying around a lifetime of memories, and every now and then he decides it’s time to unload another box. My visit this past Thursday was one of those visits where he started talking, and I realized I was hearing things I had never heard before.

Dad and his brothers and sisters grew up in a house my granddad built himself in the late 1800s. He cut the trees, milled the lumber, and built the place with his own hands. From what I remember, it had a long front porch, a kitchen with a wood stove, a den with a fireplace, and a couple of bedrooms. The outhouse sat about a hundred yards away, and the only water came from a hand pump mounted on the kitchen sink.

The house sat on top of a mountain — not exactly Everest, but high enough that you could look down over the little town below. My grandfather spent years clearing land out of the woods to make a small farm with chickens, pigs, and a few cows. Most of what they ate came from the garden or from the animals they raised. It was a hard life by today’s standards, but they made it work.

Electricity didn’t arrive until World War II, and even then, it came for an unusual reason. The government wanted to build a signal tower to help guide airplanes toward the Gulf. Dad said he used to lie awake at night listening to the aircraft passing overhead. Every time I visited the old homeplace growing up, I thought that tower was a fire tower. Turns out it had a much different purpose.

My grandparents were the only people for miles who had electricity, and even then, it was mostly used for lights. Fancy appliances were out of reach, so the wood stove and fireplace still did most of the work.

An example of what my dad’s house looked like. Sadly, there were no pictures of the original homeplace taken before a coal company came in and stripped the land for coal.

Winter was especially tough. With no insulation and only the stove and fireplace for heat, the bedrooms stayed bitterly cold. At night, the family would gather in the kitchen or den and sleep close to the warmth. It wasn’t a matter of comfort — it was a matter of getting through the night.

Dad and his siblings all attended a small schoolhouse that taught every grade. The school was a couple of miles away, and they walked there every day in all kinds of weather. Chores had to be finished before school, breakfast eaten, and everyone out the door on time — knowing there would be more chores waiting when they got home.

Dad’s Old School House after it was renovated and moved to Tannehill Historical State Park. Cane CreekSchool

The school building has since been moved to a state park. I remember seeing it years ago, sitting empty and slowly falling apart before someone finally decided it was worth saving as a piece of history.

My grandfather owned more than a hundred acres of land. Some of it was cleared for farming, but plenty remained woods for hunting and fishing. He even built a small pond where he raised catfish, bream, and a few bass. I can still remember being taken there as a kid to catch catfish.

There were always plenty of deer around, and Dad and his cousins would hunt whenever they could. Meat wasn’t something you saw every day on the dinner table, so venison was considered a special occasion.

Years later, the government came in and took over much of the property and stripped the land for coal. The mountain that my grandfather spent years clearing and farming was changed forever. The old homeplace doesn’t look anything like it once did. What was once woods, fields, and family history now bears the marks of heavy equipment and mining. It’s hard to imagine that the quiet little farm Dad grew up on once stood there.

Before he was drafted into the Army, Dad joined the Navy and served aboard an aircraft carrier. He spent most of his time between the Sea of Japan and San Diego. He doesn’t talk much about those years, but he learned electronics while serving and often worked on jet aircraft that needed repair or servicing.

The one Navy story he never gets tired of telling is how he hitchhiked all the way from San Diego to Birmingham just to see my mom before they were married. That’s a long trip even today — and I doubt many parents would approve of their daughter dating a man willing to cross the country with his thumb out.

My grandmother died when I was only four years old. Back then, they didn’t understand diabetes the way they do now. A foot injury led to an amputation, then another surgery when infection set in, and eventually, they couldn’t stop what they called “the poison” from spreading. I only have faint memories of her.

My grandfather lived into the late 1980s and died at the age of 82. Dad is now 86 and the last of his family still living — the baby of three sisters and two brothers.

Dad’s health is still fairly good. Mom lives with constant arthritis pain and severe scoliosis. She used to be nearly six feet tall; now she’s lucky to reach five feet. Time has a way of changing all of us, whether we want it to or not.

Dad has diabetes, like most of his brothers and sisters. That’s where I likely got it from, and it makes me worry a little about my kids. Some things travel through families whether we want them to or not.

I consider myself fortunate to still have both of my parents. At 62, many of the people I went to school with have already lost theirs. I’m one of the few who can still go sit in the living room and listen to stories from a man who grew up in a world that hardly exists anymore.

And the older he gets, the more those stories seem to matter.

Because one day, they won’t be told anymore.

The Day I Discovered I Had Volunteered 🔧💧

27 Friday Feb 2026

Posted by Tim Hughes Living with CML in Family, Life, Uncategorized

≈ 4 Comments

Tags

Dad, Elder care, Family, Life, love, Memories, Plumbing, Temper, Water Heater, writing

I took a trip to my parents’ house today, mainly to drop off some coasters I had engraved for a friend. She was going to give them to someone else as a birthday gift. It was supposed to be a simple in-and-out visit — deliver the coasters, say hello, maybe drink a cup of coffee, and head back home.

That was the plan anyway.

As soon as I walked in, Mom informed me she had left the house a mess because she’d been getting ready for my project. That was the moment I discovered I had apparently volunteered to install an instant water heater under the kitchen sink.

This was news to me.

Mom had already emptied the cabinet so I could have “easy access” to the plumbing. Nothing makes a job more official than walking in and finding the workspace already prepared. At that point, backing out wasn’t really an option — not without looking like a terrible son.

Dad and I had talked about the heater during a previous visit, but I had assumed my younger brother would be the one helping with the installation. Somewhere in the conversation timeline, it had been decided my brother wouldn’t be back for a couple of weeks, and I had mentioned that I’d probably come sooner.

Apparently, that counted as volunteering.

If you read my earlier story about the doorbell, this was more of the same. It involved an 86-year-old man explaining how something ought to be hooked up while I tried to explain how it actually needed to be hooked up. Arguments ensued. Voices got louder. Meanwhile, Mom sat in the other room working on a puzzle and laughing at the whole situation.

Honestly, it instantly brought back memories of my childhood — especially those times when Dad tried to teach me how to do something, and I didn’t fully understand. Back then, tempers flared a lot quicker. I was a hardheaded young man, and he was trying to explain things in his own way.

Those arguments used to feel different. Back then, it was more like, “I’m going to prove you wrong no matter what.” There was frustration on both sides — and probably a fair amount of stubbornness, especially on mine.

Now that I’m older, I understand something I didn’t back then: raising his voice was just Dad’s way of explaining things. He wasn’t angry or trying to intimidate me — he just wanted me to understand. Today, I could hear the frustration in his voice as he tried to explain how he thought the plumbing should work, and for the first time in my life, I was the patient one.

Eventually, he understood how everything fit together. It took a little while — and I’ll admit, I know exactly where my hardheadedness comes from. As my son likes to remind me, “The apple doesn’t fall far from the tree.”

He’s absolutely right. 🍎

After we finished the plumbing project, we spent the rest of the afternoon just sitting and talking — remembering stories from when I was growing up and the times we spent together as a family. We worked hard back then doing what had to be done to live the life we had chosen, but looking back now, it was worth every bit of it.

Days like today remind me how valuable this time really is. Whether it’s fixing a doorbell, installing an instant water heater, or just sitting in the living room talking about the old days, these are the moments that stay with you.

Because one day there won’t be projects waiting for me when I walk through that door, and there won’t be long conversations about the past.

And that’s why even the jobs I didn’t know I volunteered for turn out to be time well spent. ❤️

“Sir… Not in the Lobby.”

19 Thursday Feb 2026

Posted by Tim Hughes Living with CML in Boy Scouts, Diabetic, Life, Uncategorized

≈ Leave a comment

Tags

Dr Appt, Life, lobby, love, Men's room, Pee Sample, sarcasm, short-story, Specimen cup, Urologist, writing

A funny thing happened at the doctor’s office today.

And no, this isn’t the beginning of a stand-up routine — although it probably should be.

I had my annual appointment with the urologist this morning. Nothing says “good morning” quite like discussing internal plumbing before 9 a.m.

When I walked in, there was a long line to check in. Apparently, everybody else decided today was “Let’s Make Sure Everything Still Works Day.”

Last year, they had six kiosks where you checked yourself in. I loved those things. Type your name. Enter your birth year. Scan your driver’s license. Scan your insurance card. Boom. Done. No awkward eye contact. No unnecessary explanations.

But apparently, some of the older crowd didn’t appreciate technology asking them personal questions. And if they asked for help, the folks behind the glass either didn’t know how the kiosks worked… or were honoring a sacred vow to never leave their swivel chairs.

So the kiosks are gone.

Now we’re back to two humans behind glass asking the exact same questions the kiosks asked — just at dial-up speed.

I finally made it to the front, handed over my cards, and was told to sit down.

I barely had time to pull out my Kindle before my name was called. That should’ve been my first warning sign.

The nurse met me with that little plastic specimen cup in her hand.

Men everywhere know that cup.

She said, “We’re going to need a urine sample. There are long lines to the restrooms in the back, so you can fill the cup in the lobby.”

I’m sorry… what?

Fill it in the lobby.

Now, I’m not overly modest. I’ve camped with teenage boys. I’ve survived scout trips. I’ve seen things. But I didn’t think the packed waiting room — complete with elderly ladies, a coughing man, and someone flipping through a 2017 copy of Field & Stream — needed a live demonstration.

Before wisdom could tap me on the shoulder, sarcasm grabbed the microphone.

I said — and I’m not proud of the volume level —
“You want me to give you a pee sample right here in the lobby?!”

The room froze.

Then came the laughter.

You would’ve thought I’d just announced a flash mob.

The nurse’s eyes got big enough to qualify for an exam of their own. That look said, “This man is one sentence away from being escorted out by security.”

She quickly snatched the cup back, took hold of my hand like I was a toddler about to wander into traffic, and escorted me to the men’s room — which, by the way, was in the lobby the entire time.

Apparently, “fill it in the lobby” meant “there’s a bathroom in the lobby,” not “sir, make it a public event.”

Details matter.

She stood outside the restroom waiting for me like I was taking the SAT. When I came out and handed her the cup, I apologized and told her I knew she didn’t mean what she said.

She laughed. The tension broke. My medical record probably now includes the phrase: Patient displays elevated sarcasm levels.

The rest of the appointment was uneventful. Lab work looked good. Everything’s functioning as designed. I’m cleared for another year.

So today’s takeaway:

  1. Listen carefully.
  2. Don’t project your sarcasm at full stadium volume.
  3. And if someone hands you a specimen cup, clarify the location before making an announcement.

Although judging by the laughter in that waiting room, I may have provided the best entertainment they’ve had since the kiosks were removed.

And for the record — everything’s flowing just fine.

The Number in the Corner

19 Thursday Feb 2026

Posted by Tim Hughes Living with CML in Disability, Family, Leukemia, Life, Retirement, Uncategorized

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Tags

countdown, Employment, Family, first steps, friendships, HVAC, Job, Life, mental-health, Numbers, Retirement, School, Social Security, writing

Photo by Jan van der Wolf on Pexels.com

In 2018, at age 55, I retired after 32 years with the same company.

Five years before that, the company decided to raise the retirement age from 55 to 65 with 25 years of service. Thankfully, I had already met the age requirement. I was “grandfathered in.”

That phrase never sounded so beautiful. I’d never been so proud to qualify for something simply because I was already old enough.

Ordinarily, I would’ve stayed until 65, so I wouldn’t mess with my Social Security. That was the responsible plan. But my body started holding meetings without my permission. Knees voting “no.” Back filing complaints. Balance requesting reassignment.

You can’t very well do HVAC work if climbing a ladder feels like you’re auditioning for a slow-motion fall.

I turned 55 on August 15, 2018. When I realized I had 42 months until I could retire, I started a quiet countdown.

Every morning, I took readings on the plant’s main HVAC equipment. On the wall was a massive 6 x 4 dry-erase board where I logged the numbers. Up in the far-left corner, I wrote one simple number:

42

On every 15th of the month, I erased it and lowered it by one.

Forty-two.
Forty-one.
Forty.

For three and a half years, that number sat there. No one ever asked what it meant. Not one person.

Either they didn’t notice… or they were silently rooting for it to hit zero.

I started that job on January 26, 1986. It was 19 degrees that morning. I know because my previous job was washing freshly painted utility trucks — outside — in January.

Whoever was lowest on the totem pole got that job.

I wasn’t just on the totem pole.

I was holding it up.

So when I walked into a heated building that morning, I felt like I’d been promoted to royalty.

I even took a two-dollar-an-hour pay cut to take the job. Two dollars an hour back then was real money. But I believed long-term it would pay off.

When I first started, I didn’t have any college education. Just a high school diploma and a willingness to work. But I kept getting passed over for promotions. One supervisor finally told me straight: “You’ll keep getting passed over unless you go back to school.”

That was hard to hear — but it was true.

An HVAC supervisor came to me and said that if I went back to school and learned the trade, he’d help me every step of the way. And he did.

So I worked full-time and went to school at night.

Those were long years.

I missed some things.

My son’s first baby steps were taken one night while I was sitting in a classroom trying to understand airflow calculations. I didn’t see them in person. I heard about them when I got home.

That part still stings a little.

You tell yourself you’re doing it for your family — and you are — but sometimes providing for them means missing moments you can’t ever get back.

I learned HVAC systems.

I just wish I’d learned how to be in two places at once.

For 32 years, I gave that place blood, sweat, and a few tears they probably didn’t log on the dry-erase board. I worked alongside some of the smartest people I’ve ever known. We solved problems together. Ate lunch together. Complained quietly together.

I went to their kids’ birthday parties. Camped with some of them. Attended funerals for their family members.

We weren’t just coworkers.

We were everyday life.

And then one day, I walked out.

Retirement is strange.

One day, you’re the guy everybody calls when something breaks.

The next day… nothing breaks that requires your number.

At first, I kept my phone close. Surely someone would need advice. Surely they’d call and say, “We can’t find this,” or “What did you do about that?”

Turns out, they figured it out.

Rude.

Before COVID, I’d stop in and have lunch with some of them. Now I mostly see them on Facebook. I still hear from a couple of guys, but it’s rare.

You work beside someone for 15 years and assume that bond is permanent. But when the daily routine disappears, you realize proximity and permanence aren’t the same thing.

I suppose I could call them. But they’re working. And when they’re home, they need family time.

And I’m retired.

Which means I now have plenty of time to think about things like dry-erase boards, 19-degree mornings, and baby steps I heard about instead of saw.

That number in the corner wasn’t just a countdown to retirement.

It was a countdown to a new season.

For 32 years, I was “the HVAC guy.” The steady one. The one who knew where everything was and how everything worked.

Now I’m the guy who drinks coffee in the morning without a time clock waiting on me.

And you know what?

That’s not a bad promotion.

I’m grateful.

Grateful for heated buildings on cold mornings.
Grateful for supervisors who pushed me.
Grateful I got to leave on my terms.

And grateful that even though I missed a few first steps…

I didn’t miss the rest of the journey.

When that number finally reached zero—

I erased it.

And walked out the door.

On my own two slightly creaky, but still standing, legs.

Fifteen Years, Thirteen Lives, Countless Memories

16 Monday Feb 2026

Posted by Tim Hughes Living with CML in Family, Nature, Photography, Weather

≈ 1 Comment

Tags

Anniversary, Damage, Family, fear, Life, Son, Storms, tornado, Weather, writing

April 11, 2026, will mark 15 years since theF5 tornado that forever changed Pleasant Grove, a small but strong community in Alabama. Fifteen years sounds like a long time — until you realize grief, memories, and fear don’t really follow a calendar.

Shortly after the tornado struck, I wrote about what we experienced. Back then, everything was raw. The sights, the sounds, the loss — it all felt like it was happening in slow motion. Today, the emotions are different, but they are still there. Some wounds don’t close completely. They just learn how to live beside you.

That day, 13 people in our community lost their lives. Thirteen families had their worlds shattered. Homes were gone. Landmarks were gone. In many ways, a sense of security was gone, too. When people talk about storms, they often talk about property damage and wind speeds. But storms leave something else behind — memories you never asked for.

Even now, when the weather forecast mentions a tornado watch, my body notices before my mind does. The tension creeps in. The sky looks different. The air feels heavier. And if I’m being honest, I still have nightmares sometimes. The kind where you wake up and have to remind yourself that the walls are still standing and the roof is still overhead.

Our city is still rebuilding — not just buildings, but hearts. New homes have gone up. Businesses have reopened. New families have moved in. But there are empty places that will never be filled the same way again. And yet, if there’s one thing I’ve seen over the last 15 years, it’s resilience. Neighbors helping neighbors. Churches opening doors. Strangers becoming family overnight.

Anniversaries like this are strange. They hurt, but they also remind us of how far we’ve come. They remind us to say names out loud. To remember stories. To check on each other when the sky turns gray. And to never take an ordinary, boring, peaceful day for granted.

Fifteen years later, we remember.
We honor.
And we keep rebuilding — together.

The Day the Sky Took Aim at Home

Our little community was hit by an EF-4 tornado, and as most of you know, it destroyed much of our great city. Thirteen people lost their lives a few weeks ago. That same day, 64 tornadoes were recorded across Alabama, with 250 lives lost statewide. Numbers like that are hard to wrap your mind around… until one of those storms is headed straight for your front door.

That morning, my son and I woke up to news reports of a tornado hitting Pell City, a town east of us. It caused major damage, including to my sister-in-law’s house. It was shocking, but at the time it still felt like “someone else’s tragedy.” We were getting ready to leave with the high school band for a trip to Orlando, Florida. We kissed my wife and our young twin daughters goodbye and headed out, thinking about theme parks and music competitions.

I had no idea that just hours later, I would be terrified. I had just said goodbye to them for the last time.

We were on the bus near Tallahassee, Florida, when messages started coming in. An EF-5 tornado had hit Tuscaloosa and was moving toward Pleasant Grove — my hometown. Everyone on the bus started watching the live coverage as the radar showed the storm was inching closer to home.

I called my wife and told her to take cover. The radar program on my computer showed the path heading dead center toward our house. When I hung up the phone, I didn’t know if I would ever hear her voice again.

On the bus, the TV reports started rolling in. Then the phone calls and messages. Friends. Neighbors. Homes destroyed. Fires. Injuries. Deaths. It felt like the world was collapsing in real time — and I couldn’t reach my wife.

I tried her cell. The house phone. The neighbors. Nothing. Not even a ring. Just busy signals everywhere.

I couldn’t text her either. She never wanted to pay extra for texting. I’ll be honest… in that moment, I was mad about that. Funny the things your brain latches onto when you’re scared to death.

After about fifteen minutes, that sinking feeling set in — the one that tells you life might never be the same again.

All around me, parents were crying. People were getting news about loved ones being hurt… or worse. The lady behind me saw I was coming apart and tried to calm me down. I went and found my son. He had been trying to call his mom, too. I could tell he’d been crying. We just held onto each other for a few minutes.

Other parents tried calling our numbers. Same result.

Then finally… after what felt like a lifetime… I got a ring.

I remember thinking: Just because it rings doesn’t mean she’s alive.

Then I heard the most beautiful sound I’ve ever heard in my life.

My wife’s voice.

The tornado missed our house by about half a mile. She had stepped outside afterward and didn’t see much damage. A few limbs down. Insulation is scattered across the yard. She wouldn’t realize until the next day just how close we had come to losing everything.

We were — and still are — truly blessed.

The buses stopped at the next rest area. Parents and band leaders met to figure out what to do. Some parents chose to head home. The decision was made to continue to Orlando and let parents make their own travel arrangements if they needed to return.

The kids all stayed. Some didn’t like it at the time, but they needed to stay out of the way of the emergency response and cleanup. Looking back, I think they understood.

We stayed in Orlando until Sunday. The ride home was quiet. Reality had set in. We were about to see firsthand what had happened to our homes, our friends, and our community.

Even today, our city is still rebuilding. Many families left and never came back. Our band went from nearly 100 students to 20 in less than a year. The high school felt it too. We’re slowly rebuilding — not just buildings, but people, memories, and hope.

It’s going to take time.

But we’re still here.

And that means everything.

When Life Schedules You Back-to-Back

12 Thursday Feb 2026

Posted by Tim Hughes Living with CML in Family, Fishing, Life, Photography, Uncategorized

≈ 1 Comment

Tags

appointments, Bloodwork, Doctor, Family, Financce, health, investments, Life, Medicare, mental-health, Procrit, repairs, writing

Today was one of those days where it felt like my full-time job was simply showing up somewhere else every few hours. Three appointments, three different parts of life, all packed into one long day.

I left the house around 9 a.m. for my first appointment at 10. I pulled in around 9:30 — early, I know — but I’ve always believed it’s better to be thirty minutes early than five minutes late. Plus, if something crazy happens, I’ve got buffer time. If nothing crazy happens, I get bonus time to sit in a waiting room and read my Kindle.

To my surprise, I was the only one in the waiting room, which rarely happens. I half expected someone to jump out and yell, “Just kidding, we’re running two hours behind!”

Then came the usual routine: three sticks before they finally got enough blood for testing. At this point, I think my veins hide when they see a needle coming. I’m pretty sure if they could talk, they’d be yelling, “Scatter! It’s Tuesday again!”

This visit was to my oncologist’s office to check my hemoglobin. It’s been running low for quite a while now. Normally, I go in once a month for a Procrit shot to help my body produce red blood cells and fight the anemia. Normal hemoglobin runs between about 12 and 15. Mine has been in the 6.5 to 8 range for a couple of years now — basically the bargain-bin section of hemoglobin numbers.

We tried iron infusions at first. They worked… briefly. Then it was right back to square one. When Procrit was first suggested, Medicare wouldn’t cover it. That meant $400 per shot, once a month. For that price, I feel like it should come with a steak dinner and a T-shirt.

Thankfully, Medicare eventually changed course and started covering it.

The good news today? No shot needed. My hemoglobin came in at 11.1. Still low, but close enough that the doctor decided to hold off and test again next month. I’ll take that as a small win. Around here, we celebrate small wins. Sometimes with coffee. (Which, apparently, is now under review.)

Next stop was my primary care office. I ended up seeing the nurse practitioner because my doctor was in a bad car accident several months back and is currently in rehab. His daughter, who is also a nurse practitioner, has been helping cover patients. We’re not sure whether my doctor will return to his practice. It’s a wait-and-see game for now.

Unfortunately, she can’t prescribe the narcotic meds I’m on, so I’ll have to go back next week to see another doctor just to get those refilled. Nothing like making a special trip just to prove you’re still the same person who needed the meds last week.

They were also supposed to retest my potassium levels today. That didn’t happen.

Instead, I got the lecture about my coffee habit and how high potassium can damage kidneys. Considering I’m already fighting to keep my kidney numbers where they need to be, I guess it’s time to start thinking about weaning myself off coffee.

Let me be clear: this may be the greatest personal challenge I have faced to date.

I don’t want to say coffee, and I are in a committed relationship… but we’ve definitely been exclusive for a long time.

My last appointment was with my financial adviser. He manages my retirement funds, and we meet yearly to review where everything is invested and how things are performing. Thankfully, things look solid. What he’s doing is working, and that’s a huge relief. I like the idea of continuing to eat and keep the lights on.

We also talked about future plans — mainly selling this house and moving somewhere safer. This neighborhood just isn’t what it was 35 years ago. That’s a whole story for another day, probably involving the phrase “kids these days.”

The bigger issue right now is the house itself. There’s a long list of repairs waiting for attention.

The deck my dad and I built over 25 years ago is starting to splinter and show its age. It probably needs to be torn down and replaced completely. Part of me hates that. The other part of me hates splinters more.

There’s visible wear around the chimney. The painters we hired five years ago did a poor job — but we went cheap, and sometimes you really do get what you pay for. Apparently, we paid for “looks good from across the street.”

Both bathroom vanities need replacing. The stairs need the carpet removed and the laminate installed. The roof needs shingle work before it decides to become an indoor water feature.

My adviser’s advice was simple: get several estimates, choose the contractor we trust most, then call, and they’ll cut the check. Easy… at least on paper.

Now comes the fun part — finding contractors.
I know of one.
Which means I am now officially accepting applications from the universe.

I was actually supposed to go fishing tomorrow, but it looks like it will be late afternoon before temperatures get comfortable enough for me to be outside for any length of time. So I decided to postpone it until spring decides to show up regularly instead of just teasing us for a few hours at a time.

The fish are safe for now… but their luck runs out the minute spring clocks in full time.

Some days are about big life moments.
Some days are about survival.
And some days are just about showing up, getting poked with needles, getting lectured about coffee, and trying to keep life moving forward one appointment at a time.

Today was one of those days.

And honestly?
I’m grateful I was able to make them all.

Even if I may have to say goodbye to coffee soon.
Please keep me in your thoughts during this difficult time.

A Doorbell Camera and a Second Chance With My Dad

12 Thursday Feb 2026

Posted by Tim Hughes Living with CML in Family, Life, Photography, Uncategorized

≈ 1 Comment

Tags

age, Dad, Family, Life, love, Memories, Mom, Parents, Siblings, time, tremors, writing

A sunset through the windshield of my truck on my way home from installing the doorbell camera.

Today I had the privilege of spending most of the afternoon with my parents. Both of them are in their mid-eighties and, overall, are doing well. Mom has some health issues and deals with a lot of pain from arthritis and scoliosis. A woman who once stood nearly six feet tall is now just over five feet because she’s so hunched over. Dad is also hunched over some, but not from scoliosis — it’s from injuries sustained in a head-on collision they were both involved in back in 2016. I count it as a blessing every day that they are both still here after that accident.

Dad’s tremors are so bad now that he can’t sign his name anymore. If legal documents need to be signed, he either has me sign for him or uses a rubber stamp with his signature on it. He still eats with regular utensils, but you can tell it’s a struggle.

He called me last week because he bought a doorbell camera and needed help installing it. Today was the first day I’ve had without doctor appointments or other commitments that were hard to move on short notice.

My parents live about 45 minutes away. It’s really not that far, and honestly, I should visit more often — especially now.

When I got there, Dad was outside trying to remove the old doorbell. He was struggling because he didn’t have the right size screwdriver, and with his tremors… well, even with the right tool, it would have been tough.

After I got the old one off, we went inside, and he handed me the unopened box with the new camera. He told me it was supposed to use the existing doorbell wiring for power. I kept that in mind while reading the manual.

The problem was that nowhere in the manual did it mention using the existing wiring. What I was reading and what this 86-year-old man was telling me were two completely different things.

Let me pause and tell you something about my dad. He is never wrong. Or maybe more accurately… he never admits to being wrong. And he really doesn’t like being told he is. So installing this camera took a lot longer than it should have, mostly because I had to carefully explain that what he thought and what the manual said were not the same thing — without actually saying, “Dad, you’re wrong.”

I have a Ring doorbell at my house. Installing mine took about 30 minutes total — removing the old one, installing the new one, connecting Wi-Fi, and setting up the app. Thirty minutes, tops.

Today? It took from 11:30 AM until just after 4 PM to install the doorbell, set up and configure the app, connect the monitor to Wi-Fi, mount the monitor on the wall, and then teach Dad how to use everything. Between learning the system myself and teaching him step by step, it was a process.

I’m not sure if I should be embarrassed it took that long… or proud I got it done that fast, considering everything involved.

Growing up, Dad and I didn’t get along very well. The older I got, the worse it seemed to get. We were both hard-headed, both quick-tempered, and we yelled a lot. I never felt like I could please him. We fought often, and honestly, I was glad when the day came that I could move out.

But now I’m older. I have kids of my own. I’ve lived some life. And our relationship is better than it’s ever been.

I’m the oldest of four — two younger brothers and a baby sister. I don’t live the closest, but I’m probably the most mechanically inclined. I can turn a wrench. The others are more keyboard-and-screen guys. So when something physical or mechanical needs to be done, I usually get the call.

And honestly? I don’t mind anymore.

It gives me time with them. Real-time. Time I know is limited. It feels like I’ve been given a second chance with my dad.

It’s still not always easy. Telling him he’s wrong without telling him he’s wrong is an art form that requires patience and diplomacy.

When I left today, the doorbell was working, the monitor was mounted, and both he and Mom were thankful I came. As I was walking out, Dad said he didn’t think he could have done it himself because it was more complicated than he expected.

And truthfully, some of these modern devices are just more complicated than they need to be.

But today wasn’t really about installing a doorbell camera.

It was about time.
It was about patience.
It was about grace.

Because one day, there will be no phone call asking for help installing something.
One day, there will be no slow walk to the door to greet me.
One day, there will be no tremor-shaken hands trying to turn a screwdriver.

And when that day comes, I won’t remember how long it took to install that camera.
I’ll remember standing next to my dad.
I’ll remember my mom sitting nearby, hurting but smiling.
I’ll remember being needed.

If you’re lucky enough to still have your parents here, go see them.
Take the phone call.
Fix the thing.
Explain the manual.
Be patient.

Because sometimes second chances don’t come as big life moments.

Sometimes they show up as a five-hour doorbell installation on a random afternoon…
And you don’t realize how important it was until you’re driving home.

Kayak, Quiet, and Keeping It Together; Out There, I Found Myself Again

11 Wednesday Feb 2026

Posted by Tim Hughes Living with CML in Cancer, Depression, Fishing, Kayaking, Leukemia, Life, Nature, Uncategorized

≈ 2 Comments

Tags

Cancer, Cell Service, Communication, Depression, Diabetes, Dialysis, Fishing, Garmin Mini InReach, GPS, health, kayak, Kayaking, kidney failure, Leukemia, Life, love, mental-health, Nature, religious, satellite, solitude, writing

My fishing buddy texted me Monday night asking if we were still meeting for breakfast Tuesday morning—a morning ritual we started a few months back. For the second time in two weeks, I had to tell him no because of doctor appointments. I worry that he thinks I’m brushing him off, but honestly, that’s not the case at all.

We’re both at an age—and health status—where we really shouldn’t go fishing alone. He’s 72 and has had five strokes. Thankfully, his health has improved a great deal, and I’m not overly worried about the two of us being out in an area with no cell service for hours on end. I carry a Mini InReach, a satellite communicator that allows me to send and receive text messages via satellite if things go sideways and help is needed. It even has an SOS button. If either of us were to have a medical emergency, pressing that button would send our GPS coordinates to rescuers. It might take a few hours, but help would be on the way.

I’m 62, and if you’ve read any of my posts, you already know I have my own long list of health concerns. Having a partner with you in a place where two-way communication is sketchy isn’t just a good idea—it’s warranted.

But it comes at a cost.

Sometimes, I need to be alone. I enjoy getting out in my kayak, stopping for a while, and just absorbing the sounds of nature. It’s where I have one-on-one time with my God. Rick is always nearby, as he should be, but I no longer feel like I truly get that quiet space. If I slow down to let him get ahead, he stops too, probably just to make sure nothing’s wrong.

When I first started kayak fishing, I went alone. Rick didn’t have a kayak then. Back then, my world felt like it was closing in on me. My cancer numbers were out of control, my kidneys were failing, and dialysis felt like the only road left in front of me. I was depressed, scared, and felt more lost than I ever had in my life.

Being out in the middle of nowhere—surrounded by silence, by peace, by the kind of beauty only God could create—gave me something I couldn’t find anywhere else. It gave me room to breathe. It gave me space to think. It gave me a place where I could be honest about how scared I really was. Sometimes it didn’t fix anything… but sometimes it gave me just enough strength to get through one more day.

I needed that time alone. It wasn’t about fishing. It wasn’t about getting away from people. It was survival. It was the only place where I felt I could truly talk to God and not feel like I had to be strong for anyone else.

This isn’t meant to be a religious post. I don’t use this platform for politics, religion, or controversy. This is simply how I dealt with a situation that felt completely out of my control.

I hope each of us has a place we can go—a place of solitude, reflection, prayer, or even just quiet—where we can catch our breath when life feels too heavy.

And I want to ask something, not as a writer, not as someone posting on social media, but as someone who knows what it feels like to be overwhelmed:

How do you deal with depression?
When you feel like things are getting out of control, how do you hold on?
What helps you get through the days when everything feels heavier than it should?

Because the truth is… someone reading this right now might be barely holding on.
Someone might be smiling on the outside and falling apart on the inside.
Someone might just need to know they’re not the only one fighting that battle.

If you have something that helps you keep going, share it.
You might help someone more than you will ever know.

Under the Microscope… Again (Apparently I’m Now 5.9% Banana)

06 Friday Feb 2026

Posted by Tim Hughes Living with CML in bariatric-surgery, Diabetic, diet, Life, Uncategorized, Weight Loss

≈ 4 Comments

Tags

addiction, Appointment, Bloodwork, Change, Coffee, craving, Doctor, Food, health, labs, labwork, Life, lifestyle, pottassium, relationships, Surgery, writing

Lab results are in, and just like that… I’m under scrutiny again.

When I got the email with the results, the first thing that jumped out at me was my potassium. High. Again.

This isn’t new. It was high before, then magically went back to normal on the retest. Go figure. But here we are again. My doctor called yesterday and told me my potassium was elevated to an “extremely high” level. Naturally, I went digging through my past labs, and I noticed a pattern — since my weight-loss surgery last April, my potassium has been slowly climbing.

And I have absolutely no explanation why.

For those who don’t live their lives waiting on lab portals to refresh, high potassium — or hyperkalemia — means there’s too much potassium in your blood. Normal is between 3.5 and 5.0 mEq/L. Mine? 5.9 mEq/L.
Apparently, that extra .9 is where doctors start using their serious voice.

Now here’s where it gets interesting.

The only real lifestyle change I’ve made since surgery is that I’ve apparently developed a full-blown relationship with coffee. Before surgery, I had never enjoyed a single cup in my life. Not one drop. Loved the smell. Hated the taste. But after surgery? My body apparently said, “You know what we need? Coffee. All of it.”

Those pre-surgery classes warned me this might happen. Foods you hate, you’ll crave. Foods you love, you might hate. They never warned me I’d wake up one day emotionally attached to a coffee mug.

I’ve asked other doctors if coffee could be the culprit. Most said, “Probably not,” though they also gently hinted that maybe I shouldn’t be drinking coffee like it’s my full-time job. This latest doctor, however, seems less convinced.

The nurse asked how much coffee I drink in a day.

I was honest.

  • 22 oz before breakfast
  • 22 oz with breakfast
  • 22 oz sometime after supper

Apparently, this is not the answer they were hoping for.

And it doesn’t stop there.

If I go somewhere, I have a freshly made 22 oz riding with me in the truck. I also have what can only be described as a coffee emergency kit — a toolbox with all the fixings — just in case I get stranded somewhere that doesn’t have a coffee shop with my brand of coffee.

Yes. I know. It’s really sick.

Some people say caffeine keeps them awake. Not me. I can drink coffee at 9 PM and be asleep by 11 like a toddler after a long day at daycare. I’m not wired all day. I’m not bouncing off walls. I’m just… caffeinated and functional.

Her suggestion?
Limit myself to one cup per day.

Not one 22 oz cup.
One. Cup.

Friends… that is simply not going to happen.

Today I tried. I drank only one 22-oz cup. And I spent the rest of the day thinking about coffee like it was an ex who still had my hoodie.

I go back to the doctor next Tuesday for more labs. Hopefully, I can make it until then. And maybe — just maybe — they’ll tell me it’s not the coffee doing this.

So now I wait. More labs. More monitoring. More trying to figure out what exactly my body is doing and why it suddenly decided potassium is its favorite hobby.

In the meantime, if you see me walking around slightly jittery but emotionally stable, just know I’m doing my best… and possibly negotiating with myself about a second cup.

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