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~ Diabetes, Cancer Fighter, Father of Twins, Kayak Fishing, Lover of Life

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Tag Archives: Doctor

A Car Accident, Too Many Phone Calls, and a Future Son-in-Law

04 Wednesday Mar 2026

Posted by Tim Hughes Living with CML in bariatric-surgery, Boy Scouts, diet, Family, Fishing, Kayaking, Life, Retirement, Twins, Uncategorized, Weight Loss, Woodworking

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accident, Alarm, Appointment, Bible Study, Boy Scouts, Breakfast, Car, Coffee, Daughter, Doctor, Engraver, Family, fault, Fishing, health, Interruption, Kayaking, Laser, Life, Marriage, mental-health, Phone, Police, Woodworking, writing

Tomorrow is Thursday, and this week has gone from bad to worse.

My 4 a.m. alarm didn’t go off Tuesday morning, which meant I missed my Tuesday Bible study. That may not sound like a big deal to most people, but it is to me. I haven’t missed one since I started going nearly six months ago.

I woke up around 5 a.m. and immediately realized it was too late to rush around and try to make it on time. The real sign that I wasn’t rushing anywhere was that I didn’t even make coffee first thing. Anyone who knows me knows that’s a sure sign something is off.

After getting cleaned up and eating breakfast, I headed out to the shop and started working on some crafts with my laser. I’ve got a craft fair coming up, and every spare minute seems to be dedicated to getting items ready for it. My breakfast appointment wasn’t until 8 a.m., so I had some time to kill.

I met my friend Rick for breakfast, and of course, the first thing he asked was when we were going fishing. I told him “Soon,” but explained that I had some projects I needed to finish before the craft show. I could tell he wasn’t thrilled with that answer.

During breakfast, my phone kept ringing. No fewer than four people called wanting to talk about Scout-related matters. Even though I consider myself no longer involved in Scouts, apparently, the news hasn’t fully spread yet.

Once I got back home, I went right back to working on my crafts. Before long, the phone started ringing again. More Scout calls.

Running a laser in the shop requires attention. It’s essentially a controlled fire, and if you’re not careful, things can go wrong in a hurry. After trying to juggle phone calls and watch the laser at the same time, I finally decided it wasn’t worth the risk. I shut the laser down.

At 1 p.m., I had a dentist’s appointment.

I have a love-hate relationship with my dentist. I’ve been seeing him for over 30 years, and I trust him completely. But that doesn’t mean I enjoy what he does. I absolutely cannot stand the sound of a dental drill.

Thankfully, I haven’t had a cavity in years, but every now and then, he has to replace a filling that he put in decades ago. Yesterday was one of those days.

After leaving the dentist, things took a turn for the worse.

While merging into another lane, I was hit by a car. The driver had been turning left onto the roadway and collided with me. Before the police arrived, he admitted to me that it was his fault. But when the officers got there, his story had changed. Suddenly, he was telling them that I ran into him because I wasn’t paying attention.

There had been a witness who told me he saw the young man hit me. Unfortunately, by the time I tried to get his information, he had already left. Now I’ll have to wait five to seven business days to pick up the police report and see what it says.

Today was my bariatric appointment.

At one point, my lowest weight was 165 pounds. To be honest, I didn’t look very healthy at that weight. I had gotten too thin. People were quietly asking others if I had some sort of serious illness and wasn’t telling anyone.

My scale at home said 185 pounds this morning. I knew the doctor’s office scale would be a little heavier because of shoes and clothes. Sure enough, it read 191. Still, that’s lower than my last reading at the doctor’s office a year ago.

My doctor would like me to get down to about 175 pounds. He thinks that’s my ideal weight. Personally, I’m pretty comfortable where I am now, but I wouldn’t mind getting down to 175. I just don’t want to go much lower than that.

The next couple of days will be catch-up days.

I have projects cut out that still need sanding. Items that are sanded but need painting. And pieces that are painted but still need to be glued together and assembled.

But even with all the chaos this week, there has been a bright moment.

My wife and I had dinner with one of my daughter’s boyfriends. During dinner, he asked us for permission to ask my daughter to marry him.

It felt strange even writing that sentence.

I can hardly believe that soon I may have a married daughter and gain a son-in-law. He’s a good young man, and I truly believe he cares deeply about her. I know she feels the same way about him.

She had been worried that I might not give my permission. But I would never stand in the way of my daughter’s happiness.

That moment was a candle in what had otherwise been a pretty dark and stressful week.

Now I’m hoping the rest of the week goes by quietly and uneventfully.

After all the doctor’s appointments, the phone calls, and a car accident, I think I’ve earned a couple of calm days.

When Life Schedules You Back-to-Back

12 Thursday Feb 2026

Posted by Tim Hughes Living with CML in Family, Fishing, Life, Photography, Uncategorized

≈ 1 Comment

Tags

appointments, Bloodwork, Doctor, Family, Financce, health, investments, Life, Medicare, mental-health, Procrit, repairs, writing

Today was one of those days where it felt like my full-time job was simply showing up somewhere else every few hours. Three appointments, three different parts of life, all packed into one long day.

I left the house around 9 a.m. for my first appointment at 10. I pulled in around 9:30 — early, I know — but I’ve always believed it’s better to be thirty minutes early than five minutes late. Plus, if something crazy happens, I’ve got buffer time. If nothing crazy happens, I get bonus time to sit in a waiting room and read my Kindle.

To my surprise, I was the only one in the waiting room, which rarely happens. I half expected someone to jump out and yell, “Just kidding, we’re running two hours behind!”

Then came the usual routine: three sticks before they finally got enough blood for testing. At this point, I think my veins hide when they see a needle coming. I’m pretty sure if they could talk, they’d be yelling, “Scatter! It’s Tuesday again!”

This visit was to my oncologist’s office to check my hemoglobin. It’s been running low for quite a while now. Normally, I go in once a month for a Procrit shot to help my body produce red blood cells and fight the anemia. Normal hemoglobin runs between about 12 and 15. Mine has been in the 6.5 to 8 range for a couple of years now — basically the bargain-bin section of hemoglobin numbers.

We tried iron infusions at first. They worked… briefly. Then it was right back to square one. When Procrit was first suggested, Medicare wouldn’t cover it. That meant $400 per shot, once a month. For that price, I feel like it should come with a steak dinner and a T-shirt.

Thankfully, Medicare eventually changed course and started covering it.

The good news today? No shot needed. My hemoglobin came in at 11.1. Still low, but close enough that the doctor decided to hold off and test again next month. I’ll take that as a small win. Around here, we celebrate small wins. Sometimes with coffee. (Which, apparently, is now under review.)

Next stop was my primary care office. I ended up seeing the nurse practitioner because my doctor was in a bad car accident several months back and is currently in rehab. His daughter, who is also a nurse practitioner, has been helping cover patients. We’re not sure whether my doctor will return to his practice. It’s a wait-and-see game for now.

Unfortunately, she can’t prescribe the narcotic meds I’m on, so I’ll have to go back next week to see another doctor just to get those refilled. Nothing like making a special trip just to prove you’re still the same person who needed the meds last week.

They were also supposed to retest my potassium levels today. That didn’t happen.

Instead, I got the lecture about my coffee habit and how high potassium can damage kidneys. Considering I’m already fighting to keep my kidney numbers where they need to be, I guess it’s time to start thinking about weaning myself off coffee.

Let me be clear: this may be the greatest personal challenge I have faced to date.

I don’t want to say coffee, and I are in a committed relationship… but we’ve definitely been exclusive for a long time.

My last appointment was with my financial adviser. He manages my retirement funds, and we meet yearly to review where everything is invested and how things are performing. Thankfully, things look solid. What he’s doing is working, and that’s a huge relief. I like the idea of continuing to eat and keep the lights on.

We also talked about future plans — mainly selling this house and moving somewhere safer. This neighborhood just isn’t what it was 35 years ago. That’s a whole story for another day, probably involving the phrase “kids these days.”

The bigger issue right now is the house itself. There’s a long list of repairs waiting for attention.

The deck my dad and I built over 25 years ago is starting to splinter and show its age. It probably needs to be torn down and replaced completely. Part of me hates that. The other part of me hates splinters more.

There’s visible wear around the chimney. The painters we hired five years ago did a poor job — but we went cheap, and sometimes you really do get what you pay for. Apparently, we paid for “looks good from across the street.”

Both bathroom vanities need replacing. The stairs need the carpet removed and the laminate installed. The roof needs shingle work before it decides to become an indoor water feature.

My adviser’s advice was simple: get several estimates, choose the contractor we trust most, then call, and they’ll cut the check. Easy… at least on paper.

Now comes the fun part — finding contractors.
I know of one.
Which means I am now officially accepting applications from the universe.

I was actually supposed to go fishing tomorrow, but it looks like it will be late afternoon before temperatures get comfortable enough for me to be outside for any length of time. So I decided to postpone it until spring decides to show up regularly instead of just teasing us for a few hours at a time.

The fish are safe for now… but their luck runs out the minute spring clocks in full time.

Some days are about big life moments.
Some days are about survival.
And some days are just about showing up, getting poked with needles, getting lectured about coffee, and trying to keep life moving forward one appointment at a time.

Today was one of those days.

And honestly?
I’m grateful I was able to make them all.

Even if I may have to say goodbye to coffee soon.
Please keep me in your thoughts during this difficult time.

Under the Microscope… Again (Apparently I’m Now 5.9% Banana)

06 Friday Feb 2026

Posted by Tim Hughes Living with CML in bariatric-surgery, Diabetic, diet, Life, Uncategorized, Weight Loss

≈ 4 Comments

Tags

addiction, Appointment, Bloodwork, Change, Coffee, craving, Doctor, Food, health, labs, labwork, Life, lifestyle, pottassium, relationships, Surgery, writing

Lab results are in, and just like that… I’m under scrutiny again.

When I got the email with the results, the first thing that jumped out at me was my potassium. High. Again.

This isn’t new. It was high before, then magically went back to normal on the retest. Go figure. But here we are again. My doctor called yesterday and told me my potassium was elevated to an “extremely high” level. Naturally, I went digging through my past labs, and I noticed a pattern — since my weight-loss surgery last April, my potassium has been slowly climbing.

And I have absolutely no explanation why.

For those who don’t live their lives waiting on lab portals to refresh, high potassium — or hyperkalemia — means there’s too much potassium in your blood. Normal is between 3.5 and 5.0 mEq/L. Mine? 5.9 mEq/L.
Apparently, that extra .9 is where doctors start using their serious voice.

Now here’s where it gets interesting.

The only real lifestyle change I’ve made since surgery is that I’ve apparently developed a full-blown relationship with coffee. Before surgery, I had never enjoyed a single cup in my life. Not one drop. Loved the smell. Hated the taste. But after surgery? My body apparently said, “You know what we need? Coffee. All of it.”

Those pre-surgery classes warned me this might happen. Foods you hate, you’ll crave. Foods you love, you might hate. They never warned me I’d wake up one day emotionally attached to a coffee mug.

I’ve asked other doctors if coffee could be the culprit. Most said, “Probably not,” though they also gently hinted that maybe I shouldn’t be drinking coffee like it’s my full-time job. This latest doctor, however, seems less convinced.

The nurse asked how much coffee I drink in a day.

I was honest.

  • 22 oz before breakfast
  • 22 oz with breakfast
  • 22 oz sometime after supper

Apparently, this is not the answer they were hoping for.

And it doesn’t stop there.

If I go somewhere, I have a freshly made 22 oz riding with me in the truck. I also have what can only be described as a coffee emergency kit — a toolbox with all the fixings — just in case I get stranded somewhere that doesn’t have a coffee shop with my brand of coffee.

Yes. I know. It’s really sick.

Some people say caffeine keeps them awake. Not me. I can drink coffee at 9 PM and be asleep by 11 like a toddler after a long day at daycare. I’m not wired all day. I’m not bouncing off walls. I’m just… caffeinated and functional.

Her suggestion?
Limit myself to one cup per day.

Not one 22 oz cup.
One. Cup.

Friends… that is simply not going to happen.

Today I tried. I drank only one 22-oz cup. And I spent the rest of the day thinking about coffee like it was an ex who still had my hoodie.

I go back to the doctor next Tuesday for more labs. Hopefully, I can make it until then. And maybe — just maybe — they’ll tell me it’s not the coffee doing this.

So now I wait. More labs. More monitoring. More trying to figure out what exactly my body is doing and why it suddenly decided potassium is its favorite hobby.

In the meantime, if you see me walking around slightly jittery but emotionally stable, just know I’m doing my best… and possibly negotiating with myself about a second cup.

When a Routine Becomes a Memory

03 Tuesday Feb 2026

Posted by Tim Hughes Living with CML in Boy Scouts, Cancer, Diabetic, Disability, Life, Uncategorized

≈ 1 Comment

Tags

awards, blood, Bloodwork, Boy Scouts, camping, ceremony, Coffee, Doctor, Dutch Oven, health, labwork, leader, Life, mental-health, needles, Scouts, writing

Tuesdays are my long days.

They start at 4:00 a.m. — rolling out of bed, grabbing a shower, getting dressed, and heading straight to the kitchen for the first of what will be four cups of coffee. Tuesday mornings mean Bible study across town at 6:00 a.m., so once my first 22-ounce cup is ready, I sit at the kitchen table and go over the material we’ll be covering later that morning. Sometimes I’ll pour a bowl of cereal while I drink my coffee and wake up enough to be conversational.

This morning, though, I lost track of time. One coffee refill turned into “oh wow, I need to leave now.”

I left the house about ten minutes later than normal, thinking I could make up the time on the drive. That thought lasted right up until I hit a blocked road. Detour ahead. The detour added about twenty minutes to my drive, which pretty much killed any hope of being early. And I’m one of those people who would rather be thirty minutes early than five minutes late. I ended up pulling in right at 6:00 a.m. — which, technically, is on time… but still feels late to me.

Normally, after Bible study, I head back toward home and stop for breakfast with one of my fishing buddies. Not today. Today was lab work day, which meant going to the doctor’s office to give blood. Ever since I lost all this weight, nurses seem to have trouble getting blood from me without sticking me multiple times. Either the blood stops flowing, or my veins decide to roll out of the way like they’re dodging responsibility.

This morning was no different. Three sticks before they found a vein that cooperated long enough to get what they needed.

After lab work, I went across the street to a diner and grabbed a breakfast sandwich to go. Once I got home, I spent most of the afternoon working on Boy Scout awards. We’ve got an awards ceremony for the young men in our troop this Saturday, and everything had to be sorted and organized. Of course, I found out I’m missing some awards, so tomorrow it’s back to the Scout office to track those down.

Tuesday nights are — or maybe I should say were — Scout nights for me.

Tonight was my last regular Tuesday night with the Boy Scouts. We have the awards ceremony on Saturday, and that will be my last official night serving as a leader. I’m not going to say much more about that until after Saturday. I’ve got something in mind that I’ll be writing about and posting here once everything is finished. All I’ll say for now is… it’s bittersweet.

After the meeting, some of the leaders stayed behind talking about old times and even tossing around ideas about future camping trips. I haven’t been home long, and it’s getting late. I’m not really sure what my Tuesday evenings will look like starting next week. Part of me is a little sad… and part of me is relieved.

I do have a training class starting next month that will fall on Tuesdays, but it’s only for eight weeks. After that? I guess we’ll see what new routine Tuesday decides to become.

When “Stable” Is a Standing Ovation

30 Friday Jan 2026

Posted by Tim Hughes Living with CML in Cancer, Diabetic, diet, Leukemia, Life, Uncategorized, Weight Loss

≈ 2 Comments

Tags

Diagnosis, Dialysis, Doctor, eGFR, energy, Flood, health, Hemoglobin, Hospital, infusion, Iron, Kidney, kidney disease, kidney failure, Kidneys, Life, Medical, Nepgrologist, Oncologist, wellness

My nephrologist called me the other day to reschedule my appointment. Apparently, the hospital had a flood on the top floor, and their offices were flooded as well. Because when you’re already dealing with kidney issues, why not throw in some surprise indoor rain?

As a result, they had to temporarily move their offices to one of their satellite locations in a nearby city. The day before my appointment, they called again and asked if we could just do a teleconference instead. Same time, same doctor, no driving, and no pants required from the waist down—absolutely.

My lab work had already been done a couple of weeks earlier, and because I like to mentally prepare myself for either good news or emotional damage, I had my results emailed directly to me. Now, I’m not a doctor, and I don’t pretend to understand every number on those reports, but there are a few that I follow very closely.

First up is eGFR, or estimated Glomerular Filtration Rate. This number tells you how well your kidneys are filtering your blood. A normal range is between 90 and 120—numbers I personally haven’t seen in a while and would probably frame if they ever showed up again.

  • 60–89 is Stage 2 kidney disease
  • 45–59 is Stage 3a
  • 30–44 is Stage 3b
  • 15–29 is Stage 4
  • Below 15 means kidney failure, and dialysis becomes a very real conversation

Then there’s Creatinine, a waste product filtered by the kidneys. In simple terms, the higher the number, the worse things are working. Think of it as your kidneys’ performance review—lower is better.

The last big number I keep an eye on is hemoglobin, the protein responsible for carrying oxygen throughout your body. This one has a direct impact on how much energy I have, which explains why some days I feel like I could conquer the world, and other days I need a nap after tying my shoes. Normal range is 13.2-17.1

So here are the numbers I focus on:

  • eGFR: 35
  • Creatinine: 2.09
  • Hemoglobin: 10.5

Now yes, an eGFR of 35 doesn’t exactly scream “picture of perfect health,” but context is everything. Last year, that number was 14. At that point, my doctor was already talking about my next visit being with a dialysis specialist. That’s not a meeting you look forward to.

So going from 14 to 35? I’ll call that a solid upgrade.

My creatinine also improved significantly—from 4.29 last year down to just over 2. Another small victory, but I’ll gladly stack those wins wherever I can get them.

Hemoglobin, however, continues to do whatever it wants. It fluctuates so much that I regularly need iron infusions. My oncologist thinks it’s related to my kidney function, while my nephrologist believes it’s tied to the chemo drug I’m on. At this point, I feel like the two of them should arm wrestle, and whoever wins gets to be right.

When the call wrapped up, my nephrologist said she was happy with where things are. She even used the word “stable.”

And if you’ve never dealt with chronic illness, “stable” might sound underwhelming. But when you live in this world, stable is a beautiful word.

Stable means no dialysis—for now.
Stable means nothing is getting worse.
Stable means today is better than last year.

So yeah, I’ll take stable.
No complaints.
And preferably without any more floods—indoor or otherwise.

The Phone Call That Changed Everything

17 Saturday Jan 2026

Posted by Tim Hughes Living with CML in Cancer, Depression, Diabetic, Disability, Leukemia, Life, Weather

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Anniversery, Cancer, Celebrate, Chemotherapy, CML, Depression, Doctor, health, Lab Work, Laughter, Leukemia, Life, Medicine, Oncologist, Weather

It’s hard to believe, but I’m coming up on my 12th anniversary of being diagnosed with CML (Chronic Myeloid Leukemia). My most recent lab work showed my cancer as undetected—which is always good news… with an asterisk. In my case, “undetected” can be a little sneaky. It can be undetected on one visit and pop back out of range on the next. I wish I could tell you why there’s such a swing, but I don’t do anything differently from month to month. Same diet. Same routine. Same bad jokes. The only thing that really changes is what the numbers decide to do.

I will never forget the day I found out. Or the days leading up to it.

I had gone in for a routine six-month checkup when my GP called and asked me to come back in for more lab work because something looked “off.” Then on February 14, 2014—Valentine’s Day—my wife and I were getting ready to meet one of my daughter’s newest boyfriends. He was coming to pick her up for a high school date, and I was in the important stage of fatherhood known as trying to find the right words to mildly terrify a teenage boy.

That’s when my phone rang.

Keep in mind, this was late on a Friday afternoon, when most doctors’ offices are already mentally in their cars. The nurse told me my white blood cell count was extremely high and that they wanted me to see an oncologist.

At that moment, I had never heard the word “oncologist.” I didn’t know what kind of doctor that was.

During the phone call, my wife quietly looked it up and said, “Tim… that’s a cancer doctor.”

Needless to say, my carefully rehearsed intimidation speech for my daughter’s boyfriend completely left the building.

My appointment was scheduled for the following Tuesday at 10 a.m., which made that weekend the longest weekend of my life. A thousand scenarios ran through my head. I didn’t sleep much. I just wanted Tuesday to get there so I could talk to someone who actually knew what was going on.

Tuesday morning arrived with snow and ice. I kept calling the office. No answer. The hospital sat on top of a steep hill, and the road was iced over. No one was going up it, including me.

Later that day, the temperatures rose, someone finally answered, and my appointment was moved to 2 p.m.

I’ll never forget meeting my oncologist. He made a lasting impression. My wife decided that day she didn’t like him from the start.

I had a thousand questions loaded and ready. I opened my mouth to ask the first one. He held up a finger and said, “I’m talking. When I’m done, I’ll answer your questions.”

And just like that, I realized I was not in charge anymore.

He’s an older doctor, and sometimes I worry that one day I’ll walk in and find out he’s retiring. I’ve been with him nearly the whole time—nearly because there was one stretch when he tried to pawn me off on another doctor at another hospital because my numbers wouldn’t behave. But that’s a story for another time.

The time after my diagnosis was one of the darkest periods of my life. I slipped into a depression I had never known before. I truly thought CML was a death sentence. I was afraid to buy anything because I figured it would just have to be sold or given away. There were days I stayed home—not because I was sick, but because I didn’t want anyone to see me fall apart.

And honestly… at that time, I didn’t care.

Through some very serious conversations with my wife, my parents, and my oncologist, I slowly crawled my way out of that hole. It didn’t happen quickly. It didn’t happen neatly. But it happened.

They say laughter is the best medicine, and while my insurance company may disagree, I’ve found it to be pretty true. If you go back and read some of my early posts, you’ll notice they don’t carry the same humor as the ones I write now. There’s a reason for that.

I still have days when the weight hits harder than others. I still have moments of fear, frustration, and fatigue. But I’ve learned that sometimes it’s better to laugh at life’s situations than to let them crush you. Humor didn’t remove cancer from my life—but it did give me a way to live with it.

So here I am, almost twelve years in. Still showing up. Still rolling the dice on lab work. Still grateful for “undetected,” even when it comes with an asterisk. Still learning. Still stumbling. Still here. And still trying to laugh whenever possible… because some days, laughter is the only thing in the room that reminds you you’re still alive.

If you’re reading this and you’re walking through cancer, or any other terminal or life-altering diagnosis, let me tell you something I had to learn the hard way: don’t give up. Don’t give up on tomorrow. Don’t give up on joy. Don’t give up on the people who love you. And don’t give up on yourself.

There will be dark days. There will be scary appointments. There will be lab results that knock the wind out of you. But there will also be days you never thought you’d see. Conversations you didn’t think you’d have. Laughs, you didn’t think you were capable of anymore. Life doesn’t end when a diagnosis begins. It just changes.

Hold on. Ask questions. Lean on the people God has put in your life. Celebrate the good days. Endure the hard ones. And if all you can do on some days is get out of bed and breathe, then that is more than enough for that day.

Almost twelve years ago, I thought my story was coming to an end.

It turns out that it was just the beginning of a very different chapter.

And as long as there’s breath in your lungs, there is still a reason to keep turning the pages.

Holiday Doldrums

17 Wednesday Dec 2025

Posted by Tim Hughes Living with CML in Depression, Family, Pets

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Tags

books, Cats, Christmas, Doctor, emotion, Family, Gifts, Home made, Kids, Life, Ornaments, Pets, writing

Christmas is a little over a week away and as usual I’m struggling to get everything bought. This year I’ve decided to make several of my gives to my friends and family. I may end up being that person that no one wants a gift from next year but it is what it is. I made my wife and kids Christmas ornaments honoring my cat that just recently passed. I’m really hoping that everyone likes them.

My wife and I are still dealing with the loss. We’ve also noticed that our other cat, Sophie, has started acting differently. I think it’s her way of dealing with his absence and the solitude she experiences when we’re not here. We’ve talked and I’d like to go ahead and get another little kitten but we’re not sure how Sophie will respond. She “tolerated” Clyde and was not really the best of friends but they got along for the most part. I think my wife will eventually agree but it will take some time for her to come around.

This will be Clyde’s marker for his resting place. I’ve been real busy and haven’t took the time time to get the marker done. If the truth is known, every time I sat down to work on it I got upset and couldn’t bare to think about it. There is currently a little wooden cross that my wife placed there until I could get this made. Once I have the marker in place I think this will be the closure that I will need. I will place the marker tomorrow after I get home from my oncologist appointment tomorrow afternoon. Maybe the rains will have moved out by then.

I’m sure I’ll post again but in case I don’t, I hope everyone has a happy holiday and a Merry Christmas.

Four Month Post Op

24 Saturday Aug 2024

Posted by Tim Hughes Living with CML in bariatric-surgery, Diabetic, diet, Disability, Leukemia, Retirement, Weight Loss

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bariatric-surgery, crow boot, Doctor, orthopedic, post-op, Weight loss

July 24th 2024 226lbs
August 24th 216 lbs

Lost ten pounds this month. Everything is progressing nicely. The doctor wants me to lose thirty more pounds. If this keeps going the way they have, that should take another three months. I’m in no hurry. Just as long as I lose what I need to lose to get my BMI to a healthy range.

I go to my orthopedic Dr on Monday. I should know more when I get this boot off and in a regular shoe. Hope it will be in the next six weeks or so. The first thing I’m going to do is get my kayak out and go fishing.

Update: April 2nd

02 Tuesday Apr 2024

Posted by Tim Hughes Living with CML in Photography

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Tags

bariatric-surgery, cast, Doctor, foot, gastric bypass, health, liquid diet, liver shrink, Surgery, Weight loss

It’s been a while I know.  A lot has been going on so hold on to your hat.

Monday, April 1st marks the 10th week that I’ve either been in a splint or a cast.  This is my third hard cast since I was put in one.  I have a problem with either the cast getting wet, broke or both.  I’ve had several x-rays and I’ve been told each time that my foot is healing but has a long way to go.  My foot is still swollen a little and it looks like a lizard with all that dead skin just hanging there.  I did speak to the doctor and if everything continues as it has, I should be able to be put in a Crow Boot in about two months.  At least with a Crow Boot I should be able to walk on it some.

It’s like I’m a prisoner in my own home.  I live in a split foyer home.  When you walk in the front door you must either go up or go downstairs.  Seven of them to be exact. Going downstairs is not a problem.  I simply grab ahold of the banister and the handrail and hop down the stairs.  Going up is another issue. Right now, the solution is to use a walker with the front legs adjusted to the step above and hop up the stairs.  I’m exhausted by the time I make it up the stairs.  This is the reason I don’t go anywhere other than for doctor appointments. 

My gastric bypass surgery has been approved and my surgery is scheduled for the 17th of April.  I have to start my liver shrink diet on the 10th and my 2-day liquid diet starts on the 15th. If I told you th.at I wasn’t worried I’d be lying.  There’s a lot to consider even after the surgery. Just my doctors and my immediate family know about it.  None of my friends or even my parents don’t know about it. The reason?  I have a couple of family members that have had this surgery and they are bigger now than before they had the surgery.  Simply put, they gave up on themselves.  I have a point to make.  I’ll eventually tell them after I lose about 100 lbs.

Another reason I’m doing the surgery is my health.  If everything goes well, I will no longer be a diabetic and I will no longer have to use a Bipap machine to sleep.  The money I’ll save no longer using insulin will more than pay for the vitamins that I’ll have to take.

Stay tuned for updates after the surgery.

January 28th A Huge Setback

28 Sunday Jan 2024

Posted by Tim Hughes Living with CML in Photography

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amputate, broken foot, CAT Scan, Charcot Midfoot, Doctor, ER, fitness, gout, health, healthcare, MRI, osteomyelitis, splint

I’ve had neuropathy in both of my feet for several years. I can stump my toe and never know it.  It is a blessing and a curse.  I’ve had blisters on my toes and feet so bad that it would take months to heal. The bad part is that I never knew I had these blisters until it was too late.  I have tried to check my feet several times a day since then.  I wasn’t too surprised when they told me that I had broken a bone in my foot as well as having several fractures on the top of my foot.  The scary part is that I don’t know how I did it.

Two weeks ago, I woke up to get ready to go to church and noticed my right foot had swelled badly. I first thought of gout.  I treated my foot for gout for a couple of days and when it didn’t get any better, I made an appointment to see a doctor.

The doctor took X-rays and took bloodwork. The doctor told me that I had osteomyelitis, an infection in the bones of my foot, and that I needed to go straight to the ER.  Fortunately, I live on the way to my hospital, so I stopped and packed a bag grabbed my wife, and went to the ER. Nine hours later I was finally seen by a doctor. A CAT scan and more bloodwork were performed.  I was seen by no less than five different doctors, and all speculated the same thing. It all depended on a scheduled MRI that didn’t happen for another two days.  Yes, I was finally admitted and had to wait until an MRI was performed.

I had an orthopedic surgeon come see me and he was the only one who offered another scenario.  All the other doctors were saying the only way to stop the infection was to amputate my leg. The orthopedic surgeon suggested that I had Charcot Midfoot, a rare occurrence that diabetics with severe neuropathy can get.  Basically, it makes your bones brittle and if not treated can cause amputation of a limb or two. If the MRI showed infection that would mean several months of heavy antibiotics with the possibility of amputation of my foot to start off with.  If the MRI showed no infection, my foot would be put in a splint and I could go home and schedule an appointment with an orthopedic surgeon for follow-up appointments.

At approximately 11 am I was wheeled off for my MRI.  At approximately 2 pm I was told that there was no infection, and I was cleared to go home once my foot was put in a brace. At that time I was told that transport had been called and should be there within the hour. At 8:15 pm the transport finally arrived but not after my daughter called the hospital and complained.

Once home there had to be several changes.  A knee scooter, a shower stool, and a toilet rail had to be ordered to make my life a little easier.  I’ll be laid up for at least six weeks, maybe longer.  I’ve called and left a message with one of the doctors.  Hopefully, they’ll call me tomorrow to set up a follow-up appointment.  I’ve also got several other doctors to call tomorrow to reschedule appointments.  Oh, one other thing.  I live in a house with stairs leading to my living area.  I’ll have to call the fire department to get me in and out of my house.  This should be fun.

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