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Grayfeathersblog

~ Diabetes, Cancer Fighter, Photographer, Exercise, Father of Twins, Kayak Fishing, Lover of Life

Grayfeathersblog

Category Archives: Uncategorized

365 Day Challenge Day Four

04 Sunday Jan 2015

Posted by Tim Hughes Living with CML in Uncategorized

≈ 2 Comments

Tags

365 Day Photo Challenge, 50 miler, Boy Scouts, Memorial, News, Photography, tornado

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I mentioned it in yesterday’s post and since then I haven’t been able to think much of anything else.  We had some pretty bad storms last night but luckily the tornado’s didn’t happen.

If you follow the link in the photo above it will take you to a site where I have posted all the pictures that were taken during the unveiling of the memorial our Boy Scout Troop did in honor of all those that perished during the tornado event of April 2011.   As you can tell by some of the pictures it was a local news media event.  Three television new’s media plus two local news paper media personal were there to cover the event.  It was a very emotional event to say the least.  It really brought our community together.

365 Day Challenge Day Three

03 Saturday Jan 2015

Posted by Tim Hughes Living with CML in Uncategorized

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Tags

365 Photo Challenge, Rain, Storms, tornado, Weather

Day Three

It’s been raining all week, in fact, we are currently under a Tornado Watch. Our community is still rebuilding since our last tornado which came through here back in 2011. Missed our house about half a mile.  Our community looked like a bomb had went off. Hopefully, we will miss any bad weather that may come our way.

Happy New Year!!!

31 Wednesday Dec 2014

Posted by Tim Hughes Living with CML in Uncategorized

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I hope everyone has a Happy New Year.  May your new year be blessed with happiness and love.

Zuzu’s Petals

20 Saturday Dec 2014

Posted by Tim Hughes Living with CML in Uncategorized

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I really needed this today. Maybe someone else does as well.

Caroline's avatarBeautiful Life with Cancer

Desperate Jimmy Stewart runs down the bridge, I grasp my heart, he has my complete attention. It is coming, my favorite part of the movie, so much emotion. He cries out to God, “I want to live again!” The snow begins to fall and he finds Zuzu’s petals in his pocket. I love the scene so much that my heart swells. It is ok that his bills aren’t paid. It doesn’t matter that he is headed to jail. He doesn’t care anymore that his dreams never came true, he never traveled the world, and he never became a millionaire. He has his life back. He has his wife, his children. He has his God.

Just a few more days until Christmas. It is coming as quickly as the movie playing and my favorite scene approaching. In the blink of an eye, I will be holding my heart and fighting back…

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Birmingham Botanical Gardens

28 Tuesday Oct 2014

Posted by Tim Hughes Living with CML in Uncategorized

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Alabama, Birmingham, Botanical, Flowers, Gardens, Japanese, Nature, Statue

Birmingham Botanical Gardens is Alabama’s largest living museum with more than 12,000 different plants in its living collections. The Gardens’ 67.5 acres contains 25+ unique gardens, 30+ works of original outdoor sculpture and miles of serene paths.

The Gardens features the largest public horticulture library in the U.S., conservatories, a wildflower garden, two rose gardens, the Southern Living garden, and Japanese Gardens with a traditionally crafted tea house. Education programs run year round and over 10,000 school children enjoy free science-curriculum based field trips annually.

Birmingham Botanical Gardens, the most visited free attraction in Alabama, is open daily, offering free admission to more than 350,000 yearly visitors. (Copied from the Birmingham Botanical Garden’s website).

I’ve been going to this place for years and over the years I can tell that this place has lost a little of it’s luster.  I imagine that the economy has made a huge impact on the finances this place gets.  Don’t get me wrong, this place is still beautiful and full of life.  But to be honest, there’s a lot of maintenance that needs to be done.  The maintenance staff was working hard while I was there this past week and I guess it takes time to bring everything up to date.  Then again, they may just be trying to get everything ready for winter.

If you’re ever in the Birmingham area I would highly recommend spending a couple of hours in this place.  You can sit on one of the many benches and listen to the sound of chipmunks playing around in the leaves.  Of course, right now with the constructions going on across the street you can also hear the sound of jackhammers off in the distance. You can also hear the sound of the train whistle located nearby at the Birmingham Zoo.

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Good News for Now!

24 Wednesday Sep 2014

Posted by Tim Hughes Living with CML in Uncategorized

≈ 3 Comments

Tags

Bloodwork, Cancer, CML, Dr Appt, Leukemia, Medications, Oncologist, Test

Heard from my oncologist this afternoon. My levels has dropped down to .134%.from .734% two months ago. It’s still not zero but it’s slowly getting there. The doctor feels confidant enough to leave me on my current medication. The only thing that was discussed that I’m not to pleased with was the topic of another bone marrow biopsy. We will discuss this more in depth at my next doctor appointment in three months

No News Yet plus Furious

22 Monday Sep 2014

Posted by Tim Hughes Living with CML in Uncategorized

≈ 3 Comments

Tags

Cancer, CML, Dating, daughters, Fatherhood, Furious, Leukemia, text

There’s a saying that no news is good news.  Well, in my case that’s not necessarily so.  I started several times today to call just to see if they had come in but I refrained from doing so.

On another note.  I am so furious right now I can’t see straight.  I have never had to deal with such things until my teenage daughter turned 16 and started dating.  These boys these days are so horrible.  A few weeks ago my daughter got a dear john text.  That within it self made me furious.  What a coward.  About a week later to my disappointment they got back together.  Guess what!  He did it again.  I wished I could put my hands around his neck and teach him the necessity of breathing.  He better be glad he’s away a college right now and not down the road where his parents live.  No one hurts my daughter and gets away with it.  This is part of fatherhood that I’m not prepared for.  Ho does one prepare for such things?

Thanks for following me!!

21 Sunday Sep 2014

Posted by Tim Hughes Living with CML in Uncategorized

≈ 3 Comments

Tags

BCR ABL, Blogging, Blood Cancer, Cancer, CML, Leukemia, Oncologist

Went to the my oncologist last Wednesday.  He was not happy with my last results that was taken over two months ago. BCR ABl test results was .73% which I thought was pretty good until he told me it HAD to be down to zero and had to be within the first six months.  I was diagnosed in February so six months would make it in July.  I’m currently waiting for the doctor to call me to tell me what my results were last week.  If it’s not zero then I’m going to have to get on some other type of meds.

I don’t do this or any other blog for followers but just to be able to get things off my chest.  As I am honored to have each of you follow me I am somewhat surprised to see some what I would call super bloggers that are following me.  I’m really glad to have each and everyone of you on board.

Life Does Have a Purpose

14 Sunday Sep 2014

Posted by Tim Hughes Living with CML in Uncategorized

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Tags

Alabama, Band, CML, College, Diabeties, Million Dollar Band, Old Age, Parents

Life has been busy and full of activities.  Work still sucks but I only have 3 yrs 11 months and 15 days left before I can retire at 55.  But who’s counting?

My health hasn’t changed much.  My eyesight has not improved much and I’m still taking ejections every month.  My CML is still not under control yet but I’m hopping that by my next doctor’s visit that will change.  When I was diagnosed my levels were at 138%.  At my last visit two months ago it had dropped to .73%.  0% is where it needs to be.  My next visit will be this Tuesday so I’m hopping for the best.

I turned 51 one month ago tomorrow.  For my birthday my son gave me two sets of tickets to a couple of Alabama games.  What is so special about this is that my son plays for the Million Dollar Band.  He is a senior this year and we have not been to a game with ticket prices being as high as they are we just couldn’t afford for the rest of the family to go.

My wife and one of my daughters went to a wedding while my parents, my other daughter and I went to the game.  Needless to say getting to our seats was an adventure within itself. Both my parents are in their early to mid 70’s.  The tickets we had were in the highest portion of the stadium that you could be.  I was really worried for my mom who has trouble walking long distances.  Once we finally made it to our seats we all had a great time watching the game as well as watching our son march on the field.  Couldn’t see him but I know he was down there somewhere.

As l’m going through the pictures of yesterday, I am reminded that life moves quickly.  It seems just like yesterday that my son and I was playing catch in our back yard.  Now I’m seeing him in full uniform marching in a college band.  Where does the time go.  I took a picture of my parents with my son and daughter.  As I’m sitting here in front of the computer editing the picture I realize that life does have a purpose.  My parents had a purpose raising me and now it’s my turn to raise my kids.  I think my parents did an outstanding job with me and I’m hopping I’m doing the same with my kids.  So far no arrest records have been made on either of my kids so apparently I’m doing a fair job.

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Bike Path or Road? A question for cyclist.

18 Wednesday Jun 2014

Tags

30-A, Bicycle, Bike, Cycling, Florida, Road Bike, Traffic

I’m on vacation at Santa Rosa Beach in Florida. There is a popular strip called 30-A where there is all kinds of shops and of course nice places to stay. One thing they have here is a nice bike path. The problem is that everyone likes to use this path to either ride their cruisers on, walk their dogs, or just take a leisurely stroll. There is no room for road bikes.

Yesterday I started riding the bike path as it was designed for and I was constantly having to go around slower traffic so I decided to ride the road. There is a lot of vehicle traffic on 30-A so I’m constantly worried that I’ll get hit by a passing car. I obey all traffic rules by stopping at stop signs and at all crosswalks for pedestrians. But for some reason these Floridians do not accept road bikers on their roads especially since there is a bike path nearby. I don’t mean to pick on Floridians, I run across frustrated drivers everywhere.

What do you think guys? Should a road bike continue to ride on the road when there is a bike path nearby or continue to ride on the road?

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Posted by Tim Hughes Living with CML | Filed under Uncategorized

≈ 5 Comments

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