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~ Diabetes, Cancer Fighter, Photographer, Exercise, Twins, Boy Scout Leader, Kayak Fishing, Lover of Life

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Tag Archives: Oncologist

Confusing News!

25 Saturday Jun 2016

Posted by Tim Hughes Living with CML in Cancer, Photography

≈ Leave a comment

Tags

BCR ABL, Confusion, Doctor's, Misinformation, Numbers, Oncologist

_2TH1080

During my week off on vacation I received a phone call from my oncologist saying that my numbers were at the lowest since my diagnoses nearly three years ago.  He was really excited to tell me the news.  Today, I got an email from my health insurance company stating that my numbers has went up to the highest that my numbers have been since 2014.  I’m really hoping that my doctor is right and my numbers has indeed went down and not up.  I guess I need to call him on Monday to confirm.

6/7/2016 1 Data SourceBCBSAL none
4/6/2016 0.1 Data SourceBCBSAL none
1/27/2016 0.55 Data SourceBCBSAL none
12/2/2015 0.32 Data SourceBCBSAL none
11/11/2015 0.63 Data SourceBCBSAL none
8/3/2015 0.05 Data SourceBCBSAL none
4/7/2015 0.08 Data SourceBCBSAL none
1/27/2015 0.1 Data SourceBCBSAL none
12/9/2014 0.22 Data SourceBCBSAL none
7/14/2014 0.73 Data SourceBCBSAL none
5/12/2014 27.71 Data SourceBCBSAL none
2/13/2014 133.48 Data SourceHealth plan Provider

Happy Weekend!!

24 Friday Jun 2016

Posted by Tim Hughes Living with CML in Cancer, Leukemia

≈ 1 Comment

Tags

Cancer, Cats, CML, Doctor's Appointment, Howard Cosell, Oncologist

_2TH0429

This has got to have been one of the longest weeks in history.  After being off for two weeks, one of which was spent in the hospital, the other at home recuperating, working a full week and then off for another week; it’s been difficult for me to get myself out of bed and off to work.  Motivation has been the key.  With only .086 hours of PTO (Paid Time Off) I pretty much have to go to work or else I don’t get paid and with that the possibility of being disciplined is pretty much been my motivation to go to work.

The whole month of May was pretty much filled up with doctor’s appointments.  With the fact that I knew that I was going to take off a week in June, I wanted to make sure I had plenty of time left over for a cushion just in case I had some medical issues or one of my kids or wife, for that matter, got sick.  Not knowing that I myself would have to go back into the hospital for the flu and pneumonia didn’t help matters any. So, with that thought in mind I would always work over to make up for any time that I had to take off for a doctor’s appointment.  Made for a very long month.  Anyway, one of the doctor’s appointments was with a neurophysiologist. Not by my choice but my employers. It seems that my boss wanted me to go because of some mistakes that I’ve been making at work.  Some of these mistakes were quite costly but luckily none were any danger to me or to my co workers.   The appointment lasted for four hours and I failed several tests miserably.  I talked to the doctor that performed the tests the next day and he told me that I had some sort of mental disability.  He did not give me the diagnoses but told me that he would file a report and give it to my general practitioner.  It’s been over a month and I’m still waiting for the results to come in.  Another test that was performed was done while I was home recuperating.  It was an appointment to check my feet.  I spent two hours getting my feet shocked only for them to tell me what I already knew, Diabetic Neuropathy.

Back to the mental disability.  With being diagnosed with CML and taking a form of chemotherapy, I’ve been told, not by doctors but by other people to look into Chemobrain. Personally, I don’t think I have this because I haven’t had a bone marrow transplant.  But I do have most of the symptoms though.  I have noticed that my short term memory is not as good as it used to be and while I can remember some things deep in my childhood other memories during that same time frame I can’t remember at all.  At first I just counted it as getting old but after losing several arguments with the wife I have come to the realization that maybe it’s not just about getting old any more.  And with the current result from the neurophysiologist I tend to agree that I do have some sort of mental issues.  What can be done about it remains to be seen.

A bit of good news is that while I was away on vacation my oncologist called me with the results of my last set of tests.  It seems that my Bcr-Abl tests came back any my numbers were a whole lot lower.  In his words, “the numbers bottomed out”.  He didn’t give me the exact numbers but he did say that they have not been any lower since my diagnosis.  I can’t wait to go back in two weeks to see what the numbers actually are.

With all that’s happening in my life right now, especially with my health, my friends are all concerned that I would try to end it all.  I’m not sure as to why they feel this way.  I’ve never given them any cause for concern in that area.  At least I don’t think so.  All I know, there is no way there is any possibility of that ever happening.  If someone even remotely suggests that I committed suicide someone better be on the lookout for a murderer.  I’ve got too much to live for right now for me to commit something cowardly as that.

365 Day Photo Challenge 363/365 “Feeling Miserable”

28 Monday Dec 2015

Posted by Tim Hughes Living with CML in Photography

≈ 1 Comment

Tags

365 Day Photo Challenge, CML, Oncologist, Side Effects

_1TH7269

This is going to be short and sweet.  I’ve got a headache that I’ve had for several days and today my chest started hurting when I breath. These are all  listed side effects of the new meds.  I called my oncologist today and he has taken me off the meds for a week.  I’m hoping that I’m coming down with a cold or something and it’s not my new meds.  If it’s not one thing it’s another.

365 Day Photo Challenge 337/365 “Renewed Friendships”

02 Wednesday Dec 2015

Posted by Tim Hughes Living with CML in Photography

≈ 2 Comments

Tags

365 Day Photo Challenge, Alabama, Cancer, Friendship, Leukemia, Oncologist, Travel

DSC_8471

After my appointment with my oncologist I spent some time renewing an old friendship with a young lady from my past.  I had seen that she was in town for a few days and I called her up to see if she wanted to meet for some coffee.  She was elated to hear from me.  We met at a local coffee shop where we talked for over two hours.  I drank so much coffee I think it will be sometime next week before I get any sleep.

It’s amazing how time gets away from you.  I had no idea that it had been ten years since I’d seen her.  We had so much to talk about but so little time to catch up.  She had to hurry on to catch a flight back to where she’s now living.  It was really good to be able to spend what little time I had with her today.  I’m hoping that it won’t be another ten years before I get a chance to see her again.

“Life Goes On!”

365 Day Photo Challenge 336/365 “Me Time”

01 Tuesday Dec 2015

Posted by Tim Hughes Living with CML in Photography

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Tags

365 Day Photo Challenge, Cancer, CML, Lukemia, Me Time, Oncologist, Sick

https://tchphotography.smugmug.com/HDR/i-M4pCJfS/A

I have an oncologist appointment tomorrow afternoon.  All I’m going to do is give some blood so that they can do some more blood work to find out why my BCR abl has shot back up.  Afterwards I’m going to have some much deserved ME time.  Right now I’m fighting off a cold and I’ve got a sore throat and some congestion.  I think I’ve caught my daughter’s cold.  If I’m not much better tomorrow I may be spending my me time at the doctor’s office.

“Life Goes On”

365 Day Photo Challenge 220/365 “Oncologist Report”

06 Thursday Aug 2015

Posted by Tim Hughes Living with CML in Photography

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Tags

365 Day Photo Challenge, Cancer, CML, daughters, Good Report, Life Is Good, Oncologist, Twins

https://tchphotography.smugmug.com/Botanical-Gardens/i-VHCv9xc/A

Today was my day.  It’s been so long since I’ve had a day when most things went without having a problem.  I even had a civil conversation with my boss this morning.  My day was pretty well planned out so I went straight to it.  I stayed pretty busy and the day went by pretty quick.  About 2 pm the receptionist from my oncologist called and said that the doctor wanted to speak to me.  My results weren’t due in until next week so I immediately went into panic mode.  The doctor came on line and told me that my levels were lower than they had been since my diagnoses.  That was exactly what I was needing to round out my day.

I had a meeting after work so I got in really late but both my daughters were still up and they both had a great first day back to school.  That made me happy too.  Maybe this will keep going at least one more day until the weekend.

“Life Goes On!”

365 Day Photo Challenge 217/365 “Oncologist Appointment Today”

03 Monday Aug 2015

Posted by Tim Hughes Living with CML in Photography

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Tags

365 Day Photo Challenge, Alabama, Bike Ride, Cancer, Chemotherapy, CML, Cycling, Eye appointment, Eye Surgery, Oncologist, Photography, Waterfall

https://tchphotography.smugmug.com/Botanical-Gardens/i-LpJ69bk/A

I spent the afternoon at my oncologist today.  I never really like going there because it breaks my heart seeing all those people sitting on those recliners getting their chemo treatments.  Not knowing their situation I always fear the worse for them.  My blood work for the most part turned out ok.  However, they won’t get the results from the main test for at least a week or more.  The toughest part is the waiting.

Going to the eye doctor tomorrow to get a new prescription for new glasses.  Since my eye surgery my eyesight has diminished quite a bit so I’m actually looking forward to being able to see again.

I was not able to ride tonight due to a scout meeting I had to attend.  With tomorrow’s eye appointment I’m not sure if I’ll be able to ride or not.  Wednesday looks good but Thursday is out because of another meeting after work.  The weekend looks good but there is a waterfall I want to find and photograph so getting a ride in on Saturday may not happen.  We shall see.

“Life Goes On!”

365 Day Photo Challenge 116/365 “Test Results”

28 Tuesday Apr 2015

Posted by Tim Hughes Living with CML in Photography

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Tags

365 Day Photo Challenge, Alabama, Bluegrass, Cancer, CML, Dixie Stampede, Guitar, Oncologist, Pigeon Forge, RBC-Abl, Tennessee, Test Results, Travel

_1TH4228

I finally heard back from my oncologist yesterday.  It was such an emotional day yesterday that I forgot to post something about it.  It took them three weeks for them to get around to find the time to read to me my results.  Anyway, I know their busy and no news is good news, right?  Two months ago my RBC-abl test was .135 which is not bad but remember we’re looking for zero.  Yesterday I found out that that the new number is .08 which is better but again, not zero.  The oncologist did say that it was not uncommon for it to take eighteen months for it to get to zero.  It’s been 14 months as of the 14th of this month.

The above picture is of some pre-show entertainment for the Dixie Stampede, a diner show in Pigeon Forge Tennessee.  If you’re ever there it’s a must see.

“Life Goes On!”

365 Day Photo Challenge 34/365 “Good News”

03 Tuesday Feb 2015

Posted by Tim Hughes Living with CML in Photography

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365 Photo Challenge, Alabama, Birmingham, Cancer, Chronic Myeloid Leukemia, CML, Oncologist, Photo, Photography, Railroad Park

http://tchphotography.smugmug.com/Birmingham/i-JfvvrW4/A

Good news to share tonight. I heard from my oncologist today. He said that things looked better this time around.
There are three tests that he performs. All three tests started off extremely high. Two of those test for the past few months have come back with no trace which is what we’re looking for but one of these test is being somewhat stubborn. Six weeks ago the results were .22 which had went up from .134. The last test showed .0015 which is excellent compared to 138 nearly a year ago (normal is between 5 and 10). We’re still looking for zero. I go back in 2 months for another round of tests. Thanks for all your prayers and support.

The above picture is from Railroad Park in downtown Birmingham, Alabama.

Good News for Now!

24 Wednesday Sep 2014

Posted by Tim Hughes Living with CML in Uncategorized

≈ 3 Comments

Tags

Bloodwork, Cancer, CML, Dr Appt, Leukemia, Medications, Oncologist, Test

Heard from my oncologist this afternoon. My levels has dropped down to .134%.from .734% two months ago. It’s still not zero but it’s slowly getting there. The doctor feels confidant enough to leave me on my current medication. The only thing that was discussed that I’m not to pleased with was the topic of another bone marrow biopsy. We will discuss this more in depth at my next doctor appointment in three months

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