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Author Archives: Tim Hughes Living with CML

365 Photo Challenge Three Symbols of Freedom

06 Tuesday Jan 2015

Posted by Tim Hughes Living with CML in Uncategorized

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365 Photo Challenge, American Flag, Bald Eagle, Boy Scouts, Eagle, Eagle Scout, Lady Liberty, Photography

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This photo was taken at our local Boy Scout office  The wall on the left is where they inscribe all the names of scouts that have achieved the rank of Eagle.  The three symbols include the Bald Eagle, the American Flag and Lady Liberty.  My son’s name is on that wall.  So very proud of him.

365 Photo Challenge It’s What I Do

05 Monday Jan 2015

Posted by Tim Hughes Living with CML in Uncategorized

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365 Photo Challenge, AC Units, Chiller, HVAC, Job, Work

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For those that are looking at this piece of machinery thinking “What in the world is this?”  I’ts a chiller.  It’s what cools our building complex.  What you’re looking at is three 750 ton Air Conditioning units.  My main job is to see that these bad boys run with out any problems.  I have to take readings on these things every day of the work week making sure that the temperature and pressures are correct.  Most of the time they run with no issues but when they break down it can get very expensive.

365 Day Challenge Day Four

04 Sunday Jan 2015

Posted by Tim Hughes Living with CML in Uncategorized

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365 Day Photo Challenge, 50 miler, Boy Scouts, Memorial, News, Photography, tornado

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I mentioned it in yesterday’s post and since then I haven’t been able to think much of anything else.  We had some pretty bad storms last night but luckily the tornado’s didn’t happen.

If you follow the link in the photo above it will take you to a site where I have posted all the pictures that were taken during the unveiling of the memorial our Boy Scout Troop did in honor of all those that perished during the tornado event of April 2011.   As you can tell by some of the pictures it was a local news media event.  Three television new’s media plus two local news paper media personal were there to cover the event.  It was a very emotional event to say the least.  It really brought our community together.

365 Day Challenge Day Three

03 Saturday Jan 2015

Posted by Tim Hughes Living with CML in Uncategorized

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365 Photo Challenge, Rain, Storms, tornado, Weather

Day Three

It’s been raining all week, in fact, we are currently under a Tornado Watch. Our community is still rebuilding since our last tornado which came through here back in 2011. Missed our house about half a mile.  Our community looked like a bomb had went off. Hopefully, we will miss any bad weather that may come our way.

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365 Photo Challenge “The Master is Asleep”

02 Friday Jan 2015

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Attitude, Cats, Pets, Photo Challenge

Today’s photo is of one of our cats, Clyde.  Clyde is a nine year old male and weighs about fourteen pounds.  He is the master of our household, or at least he thinks he is.  He will not let my wife sleep in.  He will get on top of her and yell until she gets up to feed him.  This usually starts around 6 am in the morning. If she stays in bed too long he will eventually leave a gift of pee somewhere in the house other than his litter box.

Clyde is one of two cats that live with us.  His sister, Bonnie, died a few years back with a heart attack, or so the vet says.  About a year later we acquired another female cat named Sophie, a cat with a completely different demeanor.

Clyde

Clyde

Posted by Tim Hughes Living with CML | Filed under Pets

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365 Photo/Weight Loss Challenge

01 Thursday Jan 2015

Posted by Tim Hughes Living with CML in Weight Loss

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365 challenge, Barefoot, Cancer, carbs, Challenges, Weight loss

Hello.  I’ve debated whether or not to do this or not but here goes.

This is me with all my “glory”.  My current weight as of this morning is 300.4 and as of today I’m doing a 365 day weight loss challenge and I’m going to use the 365 Photo Challenge to help me keep track of my progress.  No, you won’t see a picture of me everyday but maybe once a month or so.  If I were to set a goal it would be about 5 lbs a month.  That’s 60 lbs in a year.  I think I can do it.

I will be taking pictures of my everyday life whether it be at work, home or at play.  I enjoy photography so there’s no telling what you might see.  I have a lot going on in my life so be prepared for some interesting stuff.

Wish Me Luck.

Happy New Year!!!

31 Wednesday Dec 2014

Posted by Tim Hughes Living with CML in Uncategorized

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I hope everyone has a Happy New Year.  May your new year be blessed with happiness and love.

Zuzu’s Petals

20 Saturday Dec 2014

Posted by Tim Hughes Living with CML in Uncategorized

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I really needed this today. Maybe someone else does as well.

Caroline's avatarBeautiful Life with Cancer

Desperate Jimmy Stewart runs down the bridge, I grasp my heart, he has my complete attention. It is coming, my favorite part of the movie, so much emotion. He cries out to God, “I want to live again!” The snow begins to fall and he finds Zuzu’s petals in his pocket. I love the scene so much that my heart swells. It is ok that his bills aren’t paid. It doesn’t matter that he is headed to jail. He doesn’t care anymore that his dreams never came true, he never traveled the world, and he never became a millionaire. He has his life back. He has his wife, his children. He has his God.

Just a few more days until Christmas. It is coming as quickly as the movie playing and my favorite scene approaching. In the blink of an eye, I will be holding my heart and fighting back…

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I Lost it Today :(

17 Wednesday Dec 2014

Posted by Tim Hughes Living with CML in Cancer, Depression, Leukemia

≈ 2 Comments

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Bad Mood, Bloodwork, Blurred Vision, Cancer, Challenges, Christmas, CML, Depression, Leukemia

Today was not a good day for me.  I guess all the troubles in my life finally caught up with me.

For those just finding out about this blog, I have CML, a form of Leukemia.  I was diagnosed with it this past February.  I’ve been taking Gleevec and until last week I thought I was doing pretty good.  My BCR AbL started off at 138 and had gotten down to .134 three months ago.  My last report last week the test showed that it went up to over 2. It was a big disappointment.  I go back in six weeks.

Last week was the beginning of my trouble when my 17 yr old daughter was involved in an accident.  It seems that an 88 yr old man pulled out in front of her.  My daughter is fine with the exception of some back pain in which she is seeing a doctor about.  This was my wife’s 14 yr old van that was totaled by the insurance company.  We do not really have the funds to get another vehicle at this time especially since Christmas is just around the corner.  Just don’t know what to do at this point.

And to add to already what’s going on I’m having eye issues and I’m going to have eye surgery the first part of January.

This is the Christmas season and it’s supposed to be a happy time.  It usually is but the last few years it get’s harder and harder to get into the Christmas spirit.  With my health the way it is and not knowing what the future holds it’s easy for me to get depressed.  I’m the father of three and I’m supposed to be strong and not show emotions but I’m here to tell you that it’s difficult for me to hold it in.  Especially today.

It was while at lunch today.  We were listening to the company choir sing some Christmas songs when it hit me.  I was remembering the times when my kids were younger and times were much different.  I got to thinking just how much longer do I have?  I was doing ok until the choir started singing a song that I haven’t heard since my childhood and that’s when I started to loose it.  Not wanting to show my emotions in public I had to get up and leave the table.  It took be several hours to get my act together.

Maybe tomorrow will be a better day.

Birmingham Botanical Gardens

28 Tuesday Oct 2014

Posted by Tim Hughes Living with CML in Uncategorized

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Alabama, Birmingham, Botanical, Flowers, Gardens, Japanese, Nature, Statue

Birmingham Botanical Gardens is Alabama’s largest living museum with more than 12,000 different plants in its living collections. The Gardens’ 67.5 acres contains 25+ unique gardens, 30+ works of original outdoor sculpture and miles of serene paths.

The Gardens features the largest public horticulture library in the U.S., conservatories, a wildflower garden, two rose gardens, the Southern Living garden, and Japanese Gardens with a traditionally crafted tea house. Education programs run year round and over 10,000 school children enjoy free science-curriculum based field trips annually.

Birmingham Botanical Gardens, the most visited free attraction in Alabama, is open daily, offering free admission to more than 350,000 yearly visitors. (Copied from the Birmingham Botanical Garden’s website).

I’ve been going to this place for years and over the years I can tell that this place has lost a little of it’s luster.  I imagine that the economy has made a huge impact on the finances this place gets.  Don’t get me wrong, this place is still beautiful and full of life.  But to be honest, there’s a lot of maintenance that needs to be done.  The maintenance staff was working hard while I was there this past week and I guess it takes time to bring everything up to date.  Then again, they may just be trying to get everything ready for winter.

If you’re ever in the Birmingham area I would highly recommend spending a couple of hours in this place.  You can sit on one of the many benches and listen to the sound of chipmunks playing around in the leaves.  Of course, right now with the constructions going on across the street you can also hear the sound of jackhammers off in the distance. You can also hear the sound of the train whistle located nearby at the Birmingham Zoo.

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