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Tag Archives: Chemotherapy

When Your Brain Hits the Snooze Button

09 Monday Feb 2026

Posted by Tim Hughes Living with CML in Cancer, Disability, Leukemia, Life, Pets, Retirement, Uncategorized

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argument, brain, Brain Fog, Breakfast, Chemotherapy, Devotional, Food, Forgetfulness, health, Meditation, recipe, Recipes, Sleep

Brain fog is working overtime this morning.

My cat got me up earlier than normal, so I started my day the usual way — getting my coffee going and sitting down to do my daily devotional. Afterward, I usually sit in the darkness for a bit to reflect on what I just read and mentally prepare myself for the rest of the day. That normally lasts about 15 to 20 minutes, depending on what I have planned.

Evidently, today I went into a deep sleep while doing so.
So instead of reflecting on scripture, I apparently reflected on the inside of my eyelids.

I got up, went into the kitchen, took a bowl out of the cabinet, and proceeded to pour cereal into it when my wife walked into the kitchen and asked what I was doing. I could only look at her with what I assume was a very strange look on my face — the same look Windows gives right before it crashes.

Normally, when someone is pouring cereal into a bowl, it means they’re about to eat breakfast. So I told her I was fixing breakfast.

She then informed me that I had already eaten breakfast.

A small argument began.

“No, I haven’t,” I replied, with the confidence of a man who clearly has no idea what he’s talking about.

She then pointed to the kitchen sink where an empty bowl with a spoon sat. Next to it was an empty plate with a fork — the same plate where I had apparently made myself a sausage patty earlier.

I honestly don’t remember eating breakfast this morning. But the evidence was sitting right there in the sink like a crime scene I had committed against breakfast foods.

I took the bowl of cereal, poured it back into the cereal box (because groceries are too expensive to waste), and went to sit down — feeling beaten and confused.

It made me wonder… how many times have I done something like this before and not remembered it? I think this was the first time with breakfast. Otherwise, I probably would have noticed empty dishes in the sink and wondered if we had a very polite burglar who only steals memories and leaves dishes.

What I do know is that during conversations, I can forget things right in the middle of saying them, and it’s frustrating. Sure, I know as you get older your brain starts playing games with you, but this feels different.

For as long as I can remember, I’ve done the classic “walk into a room and forget why I’m there” routine. I’ll leave one room, get halfway down the hall, and forget where I was going or what I needed. At this point, I just assume I live in the hallway now.

But lately, it feels… bigger than that.

I’ve also quit arguing with my wife about things that come up missing. I used to accuse her of moving things and not remembering where she put them — when in fact, it was me who moved them and can’t remember doing it. Turns out the call was coming from inside the house… and by house, I mean my brain.

I go back to the doctor on Tuesday, and if I can remember, this will definitely be one of the topics I bring up. I’m not sure if there’s anything they can do, but at least it will be on record.

And maybe — just maybe — tomorrow I’ll only eat breakfast once.

The Phone Call That Changed Everything

17 Saturday Jan 2026

Posted by Tim Hughes Living with CML in Cancer, Depression, Diabetic, Disability, Leukemia, Life, Weather

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Anniversery, Cancer, Celebrate, Chemotherapy, CML, Depression, Doctor, health, Lab Work, Laughter, Leukemia, Life, Medicine, Oncologist, Weather

It’s hard to believe, but I’m coming up on my 12th anniversary of being diagnosed with CML (Chronic Myeloid Leukemia). My most recent lab work showed my cancer as undetected—which is always good news… with an asterisk. In my case, “undetected” can be a little sneaky. It can be undetected on one visit and pop back out of range on the next. I wish I could tell you why there’s such a swing, but I don’t do anything differently from month to month. Same diet. Same routine. Same bad jokes. The only thing that really changes is what the numbers decide to do.

I will never forget the day I found out. Or the days leading up to it.

I had gone in for a routine six-month checkup when my GP called and asked me to come back in for more lab work because something looked “off.” Then on February 14, 2014—Valentine’s Day—my wife and I were getting ready to meet one of my daughter’s newest boyfriends. He was coming to pick her up for a high school date, and I was in the important stage of fatherhood known as trying to find the right words to mildly terrify a teenage boy.

That’s when my phone rang.

Keep in mind, this was late on a Friday afternoon, when most doctors’ offices are already mentally in their cars. The nurse told me my white blood cell count was extremely high and that they wanted me to see an oncologist.

At that moment, I had never heard the word “oncologist.” I didn’t know what kind of doctor that was.

During the phone call, my wife quietly looked it up and said, “Tim… that’s a cancer doctor.”

Needless to say, my carefully rehearsed intimidation speech for my daughter’s boyfriend completely left the building.

My appointment was scheduled for the following Tuesday at 10 a.m., which made that weekend the longest weekend of my life. A thousand scenarios ran through my head. I didn’t sleep much. I just wanted Tuesday to get there so I could talk to someone who actually knew what was going on.

Tuesday morning arrived with snow and ice. I kept calling the office. No answer. The hospital sat on top of a steep hill, and the road was iced over. No one was going up it, including me.

Later that day, the temperatures rose, someone finally answered, and my appointment was moved to 2 p.m.

I’ll never forget meeting my oncologist. He made a lasting impression. My wife decided that day she didn’t like him from the start.

I had a thousand questions loaded and ready. I opened my mouth to ask the first one. He held up a finger and said, “I’m talking. When I’m done, I’ll answer your questions.”

And just like that, I realized I was not in charge anymore.

He’s an older doctor, and sometimes I worry that one day I’ll walk in and find out he’s retiring. I’ve been with him nearly the whole time—nearly because there was one stretch when he tried to pawn me off on another doctor at another hospital because my numbers wouldn’t behave. But that’s a story for another time.

The time after my diagnosis was one of the darkest periods of my life. I slipped into a depression I had never known before. I truly thought CML was a death sentence. I was afraid to buy anything because I figured it would just have to be sold or given away. There were days I stayed home—not because I was sick, but because I didn’t want anyone to see me fall apart.

And honestly… at that time, I didn’t care.

Through some very serious conversations with my wife, my parents, and my oncologist, I slowly crawled my way out of that hole. It didn’t happen quickly. It didn’t happen neatly. But it happened.

They say laughter is the best medicine, and while my insurance company may disagree, I’ve found it to be pretty true. If you go back and read some of my early posts, you’ll notice they don’t carry the same humor as the ones I write now. There’s a reason for that.

I still have days when the weight hits harder than others. I still have moments of fear, frustration, and fatigue. But I’ve learned that sometimes it’s better to laugh at life’s situations than to let them crush you. Humor didn’t remove cancer from my life—but it did give me a way to live with it.

So here I am, almost twelve years in. Still showing up. Still rolling the dice on lab work. Still grateful for “undetected,” even when it comes with an asterisk. Still learning. Still stumbling. Still here. And still trying to laugh whenever possible… because some days, laughter is the only thing in the room that reminds you you’re still alive.

If you’re reading this and you’re walking through cancer, or any other terminal or life-altering diagnosis, let me tell you something I had to learn the hard way: don’t give up. Don’t give up on tomorrow. Don’t give up on joy. Don’t give up on the people who love you. And don’t give up on yourself.

There will be dark days. There will be scary appointments. There will be lab results that knock the wind out of you. But there will also be days you never thought you’d see. Conversations you didn’t think you’d have. Laughs, you didn’t think you were capable of anymore. Life doesn’t end when a diagnosis begins. It just changes.

Hold on. Ask questions. Lean on the people God has put in your life. Celebrate the good days. Endure the hard ones. And if all you can do on some days is get out of bed and breathe, then that is more than enough for that day.

Almost twelve years ago, I thought my story was coming to an end.

It turns out that it was just the beginning of a very different chapter.

And as long as there’s breath in your lungs, there is still a reason to keep turning the pages.

Please Hold…My Brain is Loading

11 Sunday Jan 2026

Posted by Tim Hughes Living with CML in bariatric-surgery, Cancer, Family, Leukemia, Weight Loss

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B12, blog, Brain Fog, Buffering, Chemotherapy, CML, Concentrating, Diary, Drugs, Forgetfulness, gastric bypass, health, Leukemia, Life, Medications, Memory, Memory Loss, Mental, mental-health, Sleep, Sticky Notes, Venting, writing

When I started this blog some years ago, it was mainly meant to be a diary of sorts — a place to vent and to voice my opinions. Gaining an audience was never part of the plan. This was more “Dear Diary” than “Dear Internet.” It wasn’t until I was diagnosed with CML that I decided to use this platform to write about my experiences with cancer and maybe, just maybe, help some other poor soul going through the same thing.

As with most things in life, plans change. Sometimes gently. Sometimes with a two-by-four.

Not only was I dealing with CML, but I also decided to write about my experiences with gastric bypass surgery. When I was doing my research, I noticed there really wasn’t much content out there. And what I did find often ended shortly after surgery, for whatever reason — almost like everyone vanished once the anesthesia wore off and nobody ever came back to update the internet.

There’s something else that’s been going on for quite some time, and I’ve finally decided to put it down on paper. I’ve been experiencing brain fog for several years, and over time, it has gotten worse. “Brain fog” is a term used to describe symptoms such as difficulty concentrating, memory problems, mental cloudiness, confusion, and trouble finding words — essentially, feeling like your brain is running Windows 95 in a world that expects fiber internet.

I notice it most when I’m trying to carry on a conversation and, right in the middle of it, my mind just… leaves. Names vanish. Phone numbers disappear. Sometimes I forget what I was saying while I’m still saying it. Short-term or long-term, it doesn’t matter. It’s there… then it’s not, kind of like my car keys.

What makes this so difficult isn’t just the symptoms themselves, but how they sneak into everyday life. I’ll walk into a room and forget why I’m there. I’ll open my phone to look something up and immediately forget what I was looking for. I’ll stand in the kitchen staring into the fridge like it’s going to explain my life choices to me.

Conversations that should be easy sometimes turn into mental obstacle courses as I search for words I’ve used my entire life. It affects my confidence more than I care to admit. When you can’t trust your own memory, you start second-guessing yourself. You hesitate before speaking. You rely more on notes, reminders, and the people around you. I’m grateful for their patience, but it’s a strange feeling when your own brain doesn’t always show up prepared.

Some days are better than others. There are moments when everything feels clear and normal, and I start to think maybe I’ve turned a corner. Then there are days when my thoughts feel like they’re moving through mud, and even simple tasks take extra effort. Those are the days that wear on you — not with fireworks, but with a steady drip of “Seriously? Again?”

If you Google the term “brain fog,” you’ll find a long list of possible causes: lack of sleep, medications, chemotherapy, B12 deficiency, and even anemia. I’ve spoken to my doctor about it, and while some over-the-counter options might help, with my anemia and the chemotherapy drugs I’m on, they may not make much difference. In other words, this may just be part of my user agreement for now.

I don’t share any of this for sympathy. I share it because this blog has always been about honesty — the good, the bad, and the occasionally forget-why-I-walked-in-here. Brain fog may be part of my story right now, but it’s not the whole story. I still laugh, I still enjoy life, and I still manage to function… even if I need a few more sticky notes than the average person.

I’ve learned to adapt. I write more things down. I set reminders. I give myself a little more grace than I used to. And when I lose my train of thought mid-sentence, I’ve decided it’s perfectly acceptable to blame the fog, shrug, and move on. If nothing else, it gives the people around me a chuckle — and honestly, some days I’m laughing right along with them.

And if you ever see me standing in a room staring off into space like I’m waiting on divine revelation, don’t worry. I’m probably just buffering.

365 Day Photo Challenge 217/365 “Oncologist Appointment Today”

03 Monday Aug 2015

Posted by Tim Hughes Living with CML in Photography

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Tags

365 Day Photo Challenge, Alabama, Bike Ride, Cancer, Chemotherapy, CML, Cycling, Eye appointment, Eye Surgery, Oncologist, Photography, Waterfall

https://tchphotography.smugmug.com/Botanical-Gardens/i-LpJ69bk/A

I spent the afternoon at my oncologist today.  I never really like going there because it breaks my heart seeing all those people sitting on those recliners getting their chemo treatments.  Not knowing their situation I always fear the worse for them.  My blood work for the most part turned out ok.  However, they won’t get the results from the main test for at least a week or more.  The toughest part is the waiting.

Going to the eye doctor tomorrow to get a new prescription for new glasses.  Since my eye surgery my eyesight has diminished quite a bit so I’m actually looking forward to being able to see again.

I was not able to ride tonight due to a scout meeting I had to attend.  With tomorrow’s eye appointment I’m not sure if I’ll be able to ride or not.  Wednesday looks good but Thursday is out because of another meeting after work.  The weekend looks good but there is a waterfall I want to find and photograph so getting a ride in on Saturday may not happen.  We shall see.

“Life Goes On!”

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