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Grayfeathersblog

~ Diabetes, Cancer Fighter, Father of Twins, Kayak Fishing, Lover of Life

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Category Archives: Leukemia

Time to Vent

03 Friday Jun 2016

Posted by Tim Hughes Living with CML in Cancer, Leukemia, Photography

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Alabama Theater, Ambulance, daughters, Flu, Graduation, Hospital, Pneumonia, Sick, Sick Time, Son, Vacation

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November 2015 I caught the flu and spent 5 days at home.  December 2015 had kidney stones in which I spent another week at home.  Last week of December, 1st week in January 2016 I spent 4 days in the hospital with some sort of chest infection in which I was off a total of 2 weeks off from work.  With all that time off from November 2015 to the first week in January I used all of my vacation time.  From January to now trying my best to build my time back up which meant for every hour I spent at the doctor’s office I had to spend an hour working overtime without pay to make up for the time lost. I have vacation planned for week after next and I’m not sure if I’m going to be able to take off because someone came into work sick with the flu and I caught it.

I had finally built my time back up to 77 hours but I got sick with the flu and pneumonia and had to spend a week in the hospital and another week at home recuperating. This was very costly not only money wise but I missed some things that I’ll never get back.

While at the doctor’s office Monday a week ago, I passed out because my O2 levels were so low that  I had to be carted off to the hospital via ambulance.  That within itself is quite costly.  Two weeks of vacation time gone, my vacation to Disney is in jeopardy because I won’t have the time to take off and the most costly of all was the fact that I was not able to go to my daughter’s graduation from high school.

I have the most inconsiderate co workers that anyone can have.  They always come to work sick and in most cases, I end up catching whatever they have.  They don’t care either.  All they want to do is brag about how much time they’ve got accumulated.  This is twice in six months that I’ve used up all my vacation time being sick and I’m so mad right now that I could take these guys and beat their face in with my fist.

Thankfully my wife and kids have not gotten sick from me being sick.  While I was in the hospital they took all the necessary precautions by wearing a mask and disposable hospital gowns.  I’m better now but easily get out of breath when doing the least little thing.  I’m scheduled to go back to work on Monday.

Rant over.

The above picture was taken after the graduation was over by my son.  I think he’s got a hidden talent in photography.  He did an awesome job.

 

Out of Shape :(

11 Monday Apr 2016

Posted by Tim Hughes Living with CML in Cancer, Leukemia

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Tags

Fitbit, Treadmilll

After working all day and getting close to 15,000 steps on my Fitbit, I reluctantly got on the treadmill after eating supper.  In the past I have been able to reach speeds of 3.8 mph for 1.5 hrs but not tonight.  I started off at 3.2 mph and it wasn’t long before I realized I couldn’t keep up the pace.  I reduced the speed to 2.8 mph and tried to keep up for 30 minutes.  That was all I could do tonight.  I know it’s a start and I’ve gotta start somewhere  but I had no idea I was that out of shape.  I guess I’ll see how my feet do tomorrow.  Right now they’re a little sore but the true test comes the next day.

Thanks everyone for your kind words of support on my last post.  They are appreciated.

365 Day Photo Challenge 353/365 “Friday’s Failure”

18 Friday Dec 2015

Posted by Tim Hughes Living with CML in Cancer, Leukemia, Photography

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365 Day Photo Challenge, Failures, Pain Meds, Work

https://tchphotography.smugmug.com/Mechanical/i-Mttww8p/A

I got up this morning, pain was somewhat minimal.  I got a shower and started getting dressed when the pain started increasing.  I went ahead and got dressed and took my pain meds before I left for work.  The temperature had dropped and caused my windshield to be coated with a heavy coat of ice.  By the time I scrapped all the ice I was in considerable pain.  I was determined to make it to work my I just couldn’t make it.  I turned around just before reaching the interstate.  I made it home just as my wife was leaving for work.  I went inside and took two ibuprofen PM so I could at least get some rest.  I woke up at 2pm when my oncologist called to tell me that my medication had been approved by my insurance company. After a few phone calls to the pharmacy and to the drug manufacturer I went back to bed. It is now 10:30 pm and I haven’t been up long.  I’ve already taken my pain meds and I’m going to take a shower before going back to bed.  I haven’t eaten anything all day because I just haven’t felt like it.  Maybe I’ll feel better tomorrow.

“Life Goes On!”

365 Day Photo Challenge 352/365 “New Medication”

17 Thursday Dec 2015

Posted by Tim Hughes Living with CML in Cancer, Leukemia, Photography

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365 Day Photo Challenge, Cancer, CML, Medication, Sprycel

image (1)

I heard from my oncologist today and I’ve got a new drug to take for my CML.  The survival rate is no more than the previous drug but as long as it keeps me alive I’m good. It also has about the same side effects as the other so unless there’s something I don’t know about I guess I’ll be ok with it as well.

I stayed home again today with this kidney stone that has yet to pass.  I had to get up early this morning to take a pain pill but so far today I’m moderately pain free.  I’ll be going into work tomorrow regardless if I’m pain free or not.  I’m low on time so I have to go in.

I Lost it Today :(

17 Wednesday Dec 2014

Posted by Tim Hughes Living with CML in Cancer, Depression, Leukemia

≈ 2 Comments

Tags

Bad Mood, Bloodwork, Blurred Vision, Cancer, Challenges, Christmas, CML, Depression, Leukemia

Today was not a good day for me.  I guess all the troubles in my life finally caught up with me.

For those just finding out about this blog, I have CML, a form of Leukemia.  I was diagnosed with it this past February.  I’ve been taking Gleevec and until last week I thought I was doing pretty good.  My BCR AbL started off at 138 and had gotten down to .134 three months ago.  My last report last week the test showed that it went up to over 2. It was a big disappointment.  I go back in six weeks.

Last week was the beginning of my trouble when my 17 yr old daughter was involved in an accident.  It seems that an 88 yr old man pulled out in front of her.  My daughter is fine with the exception of some back pain in which she is seeing a doctor about.  This was my wife’s 14 yr old van that was totaled by the insurance company.  We do not really have the funds to get another vehicle at this time especially since Christmas is just around the corner.  Just don’t know what to do at this point.

And to add to already what’s going on I’m having eye issues and I’m going to have eye surgery the first part of January.

This is the Christmas season and it’s supposed to be a happy time.  It usually is but the last few years it get’s harder and harder to get into the Christmas spirit.  With my health the way it is and not knowing what the future holds it’s easy for me to get depressed.  I’m the father of three and I’m supposed to be strong and not show emotions but I’m here to tell you that it’s difficult for me to hold it in.  Especially today.

It was while at lunch today.  We were listening to the company choir sing some Christmas songs when it hit me.  I was remembering the times when my kids were younger and times were much different.  I got to thinking just how much longer do I have?  I was doing ok until the choir started singing a song that I haven’t heard since my childhood and that’s when I started to loose it.  Not wanting to show my emotions in public I had to get up and leave the table.  It took be several hours to get my act together.

Maybe tomorrow will be a better day.

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