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~ Diabetes, Cancer Fighter, Photographer, Exercise, Father of Twins, Kayak Fishing, Lover of Life

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Author Archives: Tim Hughes Living with CML

Some Might Say It’s About Time

20 Monday Nov 2023

Posted by Tim Hughes Living with CML in Photography

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BMI, Exercise, Medicare, obese, weight-loss sergery

I’m tired and I’m giving up. Let’s face it. Without it I’m screwed. I love to eat the wrong things and I can’t do the right exercises with my health the way it is and the situation is getting worse. Life is just too short to spend the rest of my life in a constant state of disappointment about my weight. For years now I’ve fought with the idea to have some sort of weight-loss surgery thinking that I didn’t pay someone to get this fat so I’m not going to pay someone to get rid of it. Two weeks ago, I made the phone call to hopefully get the ball rolling.
I made an appointment to sit through a virtual seminar. The first thing that they asked us to do was to make sure my insurance would cover the surgery. Before the seminar, I made a few phone calls and found out that Medicare does cover the surgery IF you meet certain qualifications. I talked to a nice lady and she asked me several questions. Some of the qualifications included were obesity, diabetes, heart disease, and BMI over 30. Unfortunately, I met all the above. I”ll just have to pay 20 percent of the bill. But there is a hitch. I have a stomach ulcer. In some cases, they will not do the surgery on a patient with a stomach ulcer.

On December 4th, I have two appointments. One to see my gastrologist and then to see the weight-loss surgeon. Hopefully, the gastrologist will give me the go-ahead to have the surgery. I’ll keep everyone updated.

O

Let’s go fishing!

19 Monday Jun 2023

Posted by Tim Hughes Living with CML in Photography

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Creek, Fishing, fluid, kayak, river, tarpon 120, Water, wilderness systems

I’m still having the problem of fluid retention. It’s not as bad as before though. I’ve only had one Thorsontesis done in the last couple of years. Fluid mainly accumulates in parts of my body such as my feet and legs now. I can start telling by seeing a couple of extra pounds on my bathroom scales every day. When this happens, I take a couple of my booster meds, and in a couple of days, my extra weight is gone. It’s a major pain having to keep up with it. Now that I have gained control of my fluid I have started to feel a little better. I still can’t do much without getting out of breath but I’m doing what I can.

I’m not sure I’ve written anything about it but about three years ago I drove to Knoxville Tn and purchased a kayak from one of my high school friends. It’s a Tarpon 120, 12ft long kayak. I used it a lot the first year I got it but it sat under my deck for the next two years. Not this year though. I go fishing at least once a week since it got warm.

I’ve taken my wife, who doesn’t like to fish, and one of my daughters who likes to fish. It’s not riding a bicycle 20 or so miles but at least I’m not sitting on my couch 24 hours a day like I have been.

It’s been a minute

18 Sunday Jun 2023

Posted by Tim Hughes Living with CML in diet, Weight Loss

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body measurements, diet, Low Carb, Weight, Weight loss

That’s my daughter’s favorite saying. When it’s been a while since she’s done something she’ll say “It’s been a minute.” Well, it’s been a minute since I’ve posted anything. I’ll try to keep it brief so as not to bore you.

Nothing has really changed except my weight. I have lost quite a few pounds, over twenty pounds since January. I woke up one morning and decided to take control of my eating habits. Actually, it was a New Year’s resolution that started it all. No more sweets, nothing white, and no fast food restaurants. Basically, a low-carb diet. Sure, I have my cheat days but I try really hard to stay on top of it. Weekends are my worst as far as trying to stay on it.

Taken in 2011 during a family Disney cruse.

Taken with my wife just after a kayak trip to the river just a few days ago.

As you can see, there’s just a little bit of difference in the weight. 340 lbs in 2011 and 265 lbs in 2023. Also, I’ve gone from a size 48 to a size 38 as of today.

That’s it for now. There’s a ton more that’s happened but I’ll save that for another day. I promise I’ll start posting more regularly.

Peace to you

Week 3

16 Friday Sep 2022

Posted by Tim Hughes Living with CML in Photography

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Fluid Retintion, kidney failure, salt, weight gain

This has not been a good week. Fluid started collecting in my body. Each morning I would weigh and the number would be two to three pounds more than the previous day. I had gained nine pounds before I was able to start back on my booster meds. With the booster, it was not enough to have a loss week.

On another note, I got some results from my oncologist the other day. One of the things they test is my creatinine levels. It has gone up in the last couple of months. This is not good. The higher the number the closer I get to dialysis. For those that don’t know, I’m at stage 4 out of 5 kidney failure. I have got to limit my salt intake otherwise I’ll be on dialysis three days a week. I do not want that.

Two Weeks Down

09 Friday Sep 2022

Posted by Tim Hughes Living with CML in Photography

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struggle, Weight loss

Samantha in the Rain

What a rollercoaster of a ride! I thought I knew all about weight loss but nature threw a curve ball at me. I was doing so well but I woke up one morning to find that I had gained three pounds over the course of twenty-four hours. I had counted all carbs and it was far below my allotted amount. I had exercised quite a bit that day too so I felt confident that I going to see a new number. Boy, when I stepped on that scale thinking I would see a much lower number, I was astonished to find out that I had gained three pounds. The rest of the week went about the same. This week’s weight loss was a struggle but I managed to lose exactly one pound. I’ll take it.

One Week Down

02 Friday Sep 2022

Posted by Tim Hughes Living with CML in Photography

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Exercise, Weight loss, Yard Work

After a rough start to the week, I was able to get back on track and do what I needed to do. To help matters, I had a flower bed that I needed to replace the dead rose bushes. It took me three days to do it but I managed to replace the dead bushes with new bushes. I am completely worn out. After all that I managed to lose 2.8 pounds last week.

Let’s see what next week has to offer.

Time for a Poll

01 Thursday Sep 2022

Posted by Tim Hughes Living with CML in Photography

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Cancer, CML, poll, Weight, Weightloss

Tomorrow is weigh-in. I’d like to see if anyone out there is willing to voice their opinion as to how much I’ve gained or lost.

Come on guys let’s play along. Did I gain weight? If so, how much? Did I lose weight? If so, how much did I lose?

I’m looking forward to seeing what you guys have to say. Remember, I lost over fifteen pounds last week. Did I lose that much again? What do you think??

Alice Fitts. One of the girls that I photographed earlier this week.

Week one

26 Friday Aug 2022

Posted by Tim Hughes Living with CML in Weight Loss

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Weight loss

Model Heavin A recent picture I took of a young lady

Drum Roll Please………. 15.6 pounds down since August 19th. No, that’s probably not healthy to lose this much in one week but consider this, it’s mostly fluid. I started taking a drug known as Metolazone which is a booster drug to Bumetanide. Bumetanide, or Bumax for short, is a drug to get the excess fluid off the body. When taken with Metolzone, it’s like Bumax on steroids. There is a certain way I have to take it in order for it to work. It doesn’t take but a week or two to get all the fluid out from inside the body. Now, if I have confirmed fluid in my lung cavity then I have to get rid of the fluid another way, Bumax won’t help there.

Not only did I take the booster drug this week, but I’ve also cut carbs, and salt and I’ve done a little bit of exercise. While on the drugs to help get rid of the fluid, I can lose upwards of 2 pounds a day. Once off the drug, I’ll be good to lose less than a pound a week.

I’m off the drug so we’ll see what happens next week.

Another Year Older

20 Saturday Aug 2022

Posted by Tim Hughes Living with CML in Cancer, Weight Loss

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Birthday, Cancer, health issues, weight gain, Weight loss

A peaceful time and place

I turned 59 a few days ago. I did not go into a dark, deep depression. It was just another day for me. As many health problems as I have, I consider it a blessing just to wake up in the mornings. My wife, on the other hand, has an issue with each birthday she comes across. She’s a little over a year older than me and when she turned 60, let’s just say that she turned into a different person. It took a few days for her to get out of her slump. I’m not looking forward to next year.

I know I’ve written about it before but one of my health issues is that I’m having issues with my breathing. This has been an ongoing thing for several years. It started off as a side effect of one of my cancer medications. The medication was causing fluid to build up around my heart and lungs. I had to have fluid removed from around my lungs on four different occasions totalling up to around 5 liters. The first time I had it done they weren’t sure what was causing my breathing issue and it took several weeks of testing before they found out. During this time I wasn’t able to do much of anything without getting out of breath. Even walking a short distance became a struggle. Remember now, I was still trying to work through all of this.

Like I said, this has been an on going struggle for a couple of years now but after several medication changes it got better. Now it’s back but with a difference. There is no fluid around my lungs. X-rays have proved it. As with the other times, my weight would go up dramatically, and it’s doing the same thing now. I’ve gained upwards around 30 pounds in about a months time. That’s not normal. I’m on mediation to help relieve the fluid but I ran out last week. I had to wait until this week before I could get it refilled because of the insurance.

I think a big contributor to this is salt. I’m supposed to be on a low sodium diet but that’s hard for me to do. I’ve greatly reduced the amount of salt but I need to reduce it some more. Another thing that is not helping is, of course, my diet. I’ve got to do better. I’ve committed myself to a weightloss program for the next six months. But, until I get this fluid undercontrol, I will just continue to gain weight. Losing weight for me right now will definitely be a challenge. One, I get out of breath so easily so walking is a challenge even the treadmill will be a challenge. Two, the fluid. If I only knew the cause then I might could do something about that.2

On August 15th, my birthday, I weighed in at 287.2. On the 16th I weighed 287.4, 18th 288.5, 19th 290.5, also on the 19th I received my medication and the next day, the 20th I weighted in at 286.6. Of course I peed every thirty minutes or so. I haven’t weighed in this morning so I don’t know if I’ve lost any weight or not. BTW, I know I’m going to get some people telling me not to weigh everyday but this is what my cardiologist wants me to do. I should weigh about 275lbs once I get all the fluid off.

I’m planning on posting weekly to let everyone know how I’m doing on my weight loss.

Just Breathe

24 Friday Jun 2022

Posted by Tim Hughes Living with CML in Photography

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I would if I could. For years now I’ve been having trouble breathing, especially when I do anything strenuous. Walking up a hill or an incline, pushing or pulling an object or just taking a shower causes me to get out of breath. For years now I thought it was due to fluid being built up around my heart and lungs due to diastolic heart failure and medications for my CML. I just recently went to my pulmonologist and they found a little bit of fluid around my lungs which I had it removed it was only 1.5 liters of fluid. After having it removed I’m still having trouble breathing. The pulmonologist put me on a once a day inhaler for 2 months. Today marks the end of my inhaler as well as my next appointment for my pulmonologist and I’m not any better as of yet.

I’ve got my doctor scratching his head because there is no apparent reasoning for my shortness of breath. The pulmonologist did suggest that I tried to lose weight because I’ve got a lot of pressure against my lungs.

I’ve lost 6 lb since my last visit two months ago.

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