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Grayfeathersblog

~ Diabetes, Cancer Fighter, Father of Twins, Kayak Fishing, Woodcrafter, Lover of Life

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Category Archives: Cancer

365 Day Photo Challenge 353/365 “Friday’s Failure”

18 Friday Dec 2015

Posted by Tim Hughes Living with CML in Cancer, Leukemia, Photography

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365 Day Photo Challenge, Failures, Pain Meds, Work

https://tchphotography.smugmug.com/Mechanical/i-Mttww8p/A

I got up this morning, pain was somewhat minimal.  I got a shower and started getting dressed when the pain started increasing.  I went ahead and got dressed and took my pain meds before I left for work.  The temperature had dropped and caused my windshield to be coated with a heavy coat of ice.  By the time I scrapped all the ice I was in considerable pain.  I was determined to make it to work my I just couldn’t make it.  I turned around just before reaching the interstate.  I made it home just as my wife was leaving for work.  I went inside and took two ibuprofen PM so I could at least get some rest.  I woke up at 2pm when my oncologist called to tell me that my medication had been approved by my insurance company. After a few phone calls to the pharmacy and to the drug manufacturer I went back to bed. It is now 10:30 pm and I haven’t been up long.  I’ve already taken my pain meds and I’m going to take a shower before going back to bed.  I haven’t eaten anything all day because I just haven’t felt like it.  Maybe I’ll feel better tomorrow.

“Life Goes On!”

365 Day Photo Challenge 352/365 “New Medication”

17 Thursday Dec 2015

Posted by Tim Hughes Living with CML in Cancer, Leukemia, Photography

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365 Day Photo Challenge, Cancer, CML, Medication, Sprycel

image (1)

I heard from my oncologist today and I’ve got a new drug to take for my CML.  The survival rate is no more than the previous drug but as long as it keeps me alive I’m good. It also has about the same side effects as the other so unless there’s something I don’t know about I guess I’ll be ok with it as well.

I stayed home again today with this kidney stone that has yet to pass.  I had to get up early this morning to take a pain pill but so far today I’m moderately pain free.  I’ll be going into work tomorrow regardless if I’m pain free or not.  I’m low on time so I have to go in.

I Lost it Today :(

17 Wednesday Dec 2014

Posted by Tim Hughes Living with CML in Cancer, Depression, Leukemia

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Tags

Bad Mood, Bloodwork, Blurred Vision, Cancer, Challenges, Christmas, CML, Depression, Leukemia

Today was not a good day for me.  I guess all the troubles in my life finally caught up with me.

For those just finding out about this blog, I have CML, a form of Leukemia.  I was diagnosed with it this past February.  I’ve been taking Gleevec and until last week I thought I was doing pretty good.  My BCR AbL started off at 138 and had gotten down to .134 three months ago.  My last report last week the test showed that it went up to over 2. It was a big disappointment.  I go back in six weeks.

Last week was the beginning of my trouble when my 17 yr old daughter was involved in an accident.  It seems that an 88 yr old man pulled out in front of her.  My daughter is fine with the exception of some back pain in which she is seeing a doctor about.  This was my wife’s 14 yr old van that was totaled by the insurance company.  We do not really have the funds to get another vehicle at this time especially since Christmas is just around the corner.  Just don’t know what to do at this point.

And to add to already what’s going on I’m having eye issues and I’m going to have eye surgery the first part of January.

This is the Christmas season and it’s supposed to be a happy time.  It usually is but the last few years it get’s harder and harder to get into the Christmas spirit.  With my health the way it is and not knowing what the future holds it’s easy for me to get depressed.  I’m the father of three and I’m supposed to be strong and not show emotions but I’m here to tell you that it’s difficult for me to hold it in.  Especially today.

It was while at lunch today.  We were listening to the company choir sing some Christmas songs when it hit me.  I was remembering the times when my kids were younger and times were much different.  I got to thinking just how much longer do I have?  I was doing ok until the choir started singing a song that I haven’t heard since my childhood and that’s when I started to loose it.  Not wanting to show my emotions in public I had to get up and leave the table.  It took be several hours to get my act together.

Maybe tomorrow will be a better day.

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