• About

Grayfeathersblog

~ Diabetes, Cancer Fighter, Father of Twins, Kayak Fishing, Lover of Life

Grayfeathersblog

Tag Archives: healthcare

Insurance Knows Best… Supposedly

25 Wednesday Feb 2026

Posted by Tim Hughes Living with CML in Cancer, Diabetic, Disability, Family, Leukemia, Life, Photography, Retirement, Uncategorized

≈ 2 Comments

Tags

co-pay, cost, Diagnoses, Doctors, Drugs, health, health-insurance, healthcare, Insurance, Medicare, Medication, Pharmacy, prescriptions, rejection, research

Doctor Says Yes… Insurance Says “We’ll Think About It”

Photo by Anna Shvets on Pexels.com

Doctors, diagnoses, prescriptions, Medicare, insurance, and denial — those are words that seem to follow me around these days. Sometimes I think dealing with the medical system is almost a full-time job. If they paid by the appointment, I’d be drawing a salary by now.

One thing I’ve never quite understood is how a doctor can go to school for years, train for years more, examine you personally, and decide what medication you need — only for the insurance company to step in and say, “Nope, we don’t think so.”

Apparently, somewhere a person is sitting behind a desk who knows more about my condition than the doctor who actually saw me.

I worked for a health insurance company for 32 years before I retired. I was in the maintenance department, which meant I fixed things like doors and lights — not insurance claims. Still, people who knew where I worked would often ask me why their medication was denied even though their doctor prescribed it.

I always had to explain that just because I worked there didn’t mean I knew anything about insurance decisions.

Truth be told, I still don’t.

A good example is what happened recently with my son. He was prescribed medication for severe sleep deprivation. His previous insurance covered it, and he was happy because they had finally found something that actually worked.

Then he changed jobs.

His new insurance company now says the medication is “not medically necessary.” I guess sleeping is optional now.

The doctors now think he might have sleep apnea and ordered a sleep study. Before he even got scheduled, he got a phone call saying the test would cost over $2,000 because his insurance wouldn’t cover it.

He’s a young man with a mortgage, a car payment, and utility bills. In other words, he’s living in the real world — the one where people don’t just have $2,000 laying around for a test that might help them sleep at night.

Meanwhile, I realize I’m one of the fortunate ones. Because of my disabilities, I qualify for Medicare, and because I worked for an insurance company, I retired with a good supplemental plan. That combination gives me coverage that many people would love to have.

I don’t pay co-pays for doctor visits. I don’t pay for emergency room visits. Every time I leave the hospital, the bill says I owe exactly zero dollars, which is my favorite number.

I do pay for some medications, but not a lot.

One medication I take costs about $20,000 for a 30-day supply.

Yes, twenty thousand dollars.

For that price, I feel like it ought to come with a steak dinner and a weekend vacation.

Fortunately, the drug company offers a $0 co-pay card because they know insurance only pays part of the cost. Thanks to that program, I don’t pay a penny for a medication that costs more than some cars.

I consider myself blessed, because there are people who need this same drug and simply can’t get it because they don’t have the right insurance. That part isn’t funny at all.

When I ask why the drug costs so much, I’m told it’s because of all the research that went into developing it. I understand that research costs money, but sometimes I wonder if the scientists also built a few vacation homes along the way.

After being on this medication for a while, I feel like I’ve personally contributed a pretty fair share toward paying for that research — and I know some folks have been on it a lot longer than I have.

I don’t know what the answer is. Doctors are trying to help people. Insurance companies are trying to control costs. Drug companies are trying to recover research money.

And patients are just trying to stay alive without going broke in the process.

Maybe one day there will be a system where if your doctor says you need something, you can actually get it without filling out forms, making phone calls, and saying a small prayer first.

Until then, I guess we’ll just keep taking our prescriptions — and a healthy dose of patience right along with them.

January 28th A Huge Setback

28 Sunday Jan 2024

Posted by Tim Hughes Living with CML in Photography

≈ Leave a comment

Tags

amputate, broken foot, CAT Scan, Charcot Midfoot, Doctor, ER, fitness, gout, health, healthcare, MRI, osteomyelitis, splint

I’ve had neuropathy in both of my feet for several years. I can stump my toe and never know it.  It is a blessing and a curse.  I’ve had blisters on my toes and feet so bad that it would take months to heal. The bad part is that I never knew I had these blisters until it was too late.  I have tried to check my feet several times a day since then.  I wasn’t too surprised when they told me that I had broken a bone in my foot as well as having several fractures on the top of my foot.  The scary part is that I don’t know how I did it.

Two weeks ago, I woke up to get ready to go to church and noticed my right foot had swelled badly. I first thought of gout.  I treated my foot for gout for a couple of days and when it didn’t get any better, I made an appointment to see a doctor.

The doctor took X-rays and took bloodwork. The doctor told me that I had osteomyelitis, an infection in the bones of my foot, and that I needed to go straight to the ER.  Fortunately, I live on the way to my hospital, so I stopped and packed a bag grabbed my wife, and went to the ER. Nine hours later I was finally seen by a doctor. A CAT scan and more bloodwork were performed.  I was seen by no less than five different doctors, and all speculated the same thing. It all depended on a scheduled MRI that didn’t happen for another two days.  Yes, I was finally admitted and had to wait until an MRI was performed.

I had an orthopedic surgeon come see me and he was the only one who offered another scenario.  All the other doctors were saying the only way to stop the infection was to amputate my leg. The orthopedic surgeon suggested that I had Charcot Midfoot, a rare occurrence that diabetics with severe neuropathy can get.  Basically, it makes your bones brittle and if not treated can cause amputation of a limb or two. If the MRI showed infection that would mean several months of heavy antibiotics with the possibility of amputation of my foot to start off with.  If the MRI showed no infection, my foot would be put in a splint and I could go home and schedule an appointment with an orthopedic surgeon for follow-up appointments.

At approximately 11 am I was wheeled off for my MRI.  At approximately 2 pm I was told that there was no infection, and I was cleared to go home once my foot was put in a brace. At that time I was told that transport had been called and should be there within the hour. At 8:15 pm the transport finally arrived but not after my daughter called the hospital and complained.

Once home there had to be several changes.  A knee scooter, a shower stool, and a toilet rail had to be ordered to make my life a little easier.  I’ll be laid up for at least six weeks, maybe longer.  I’ve called and left a message with one of the doctors.  Hopefully, they’ll call me tomorrow to set up a follow-up appointment.  I’ve also got several other doctors to call tomorrow to reschedule appointments.  Oh, one other thing.  I live in a house with stairs leading to my living area.  I’ll have to call the fire department to get me in and out of my house.  This should be fun.

Blog Stats

  • 12,473 hits

Enter your email address to follow this blog and receive notifications of new posts by email.

Join 497 other subscribers
Follow Grayfeathersblog on WordPress.com

2015

March 2026
M T W T F S S
 1
2345678
9101112131415
16171819202122
23242526272829
3031  
« Feb    

Blog at WordPress.com.

  • Subscribe Subscribed
    • Grayfeathersblog
    • Join 497 other subscribers
    • Already have a WordPress.com account? Log in now.
    • Grayfeathersblog
    • Subscribe Subscribed
    • Sign up
    • Log in
    • Report this content
    • View site in Reader
    • Manage subscriptions
    • Collapse this bar
 

Loading Comments...