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~ Diabetes, Cancer Fighter, Photographer, Exercise, Father of Twins, Kayak Fishing, Lover of Life

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Author Archives: Tim Hughes Living with CML

January 28th A Huge Setback

28 Sunday Jan 2024

Posted by Tim Hughes Living with CML in Photography

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amputate, broken foot, CAT Scan, Charcot Midfoot, Doctor, ER, fitness, gout, health, healthcare, MRI, osteomyelitis, splint

I’ve had neuropathy in both of my feet for several years. I can stump my toe and never know it.  It is a blessing and a curse.  I’ve had blisters on my toes and feet so bad that it would take months to heal. The bad part is that I never knew I had these blisters until it was too late.  I have tried to check my feet several times a day since then.  I wasn’t too surprised when they told me that I had broken a bone in my foot as well as having several fractures on the top of my foot.  The scary part is that I don’t know how I did it.

Two weeks ago, I woke up to get ready to go to church and noticed my right foot had swelled badly. I first thought of gout.  I treated my foot for gout for a couple of days and when it didn’t get any better, I made an appointment to see a doctor.

The doctor took X-rays and took bloodwork. The doctor told me that I had osteomyelitis, an infection in the bones of my foot, and that I needed to go straight to the ER.  Fortunately, I live on the way to my hospital, so I stopped and packed a bag grabbed my wife, and went to the ER. Nine hours later I was finally seen by a doctor. A CAT scan and more bloodwork were performed.  I was seen by no less than five different doctors, and all speculated the same thing. It all depended on a scheduled MRI that didn’t happen for another two days.  Yes, I was finally admitted and had to wait until an MRI was performed.

I had an orthopedic surgeon come see me and he was the only one who offered another scenario.  All the other doctors were saying the only way to stop the infection was to amputate my leg. The orthopedic surgeon suggested that I had Charcot Midfoot, a rare occurrence that diabetics with severe neuropathy can get.  Basically, it makes your bones brittle and if not treated can cause amputation of a limb or two. If the MRI showed infection that would mean several months of heavy antibiotics with the possibility of amputation of my foot to start off with.  If the MRI showed no infection, my foot would be put in a splint and I could go home and schedule an appointment with an orthopedic surgeon for follow-up appointments.

At approximately 11 am I was wheeled off for my MRI.  At approximately 2 pm I was told that there was no infection, and I was cleared to go home once my foot was put in a brace. At that time I was told that transport had been called and should be there within the hour. At 8:15 pm the transport finally arrived but not after my daughter called the hospital and complained.

Once home there had to be several changes.  A knee scooter, a shower stool, and a toilet rail had to be ordered to make my life a little easier.  I’ll be laid up for at least six weeks, maybe longer.  I’ve called and left a message with one of the doctors.  Hopefully, they’ll call me tomorrow to set up a follow-up appointment.  I’ve also got several other doctors to call tomorrow to reschedule appointments.  Oh, one other thing.  I live in a house with stairs leading to my living area.  I’ll have to call the fire department to get me in and out of my house.  This should be fun.

January 10th, 2024

10 Wednesday Jan 2024

Posted by Tim Hughes Living with CML in Photography

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bariatric-surgery, diet, Weighloss

My wife and I attended the Bariatric Diatairy and Fitness class yesterday. Wow! Words can’t describe all the emotions that we went through. This surgery is more than I had anticipated. We were there for a total of 4.5 hours and they just touched the tip of the iceberg. I had no idea that this would be so entailed. If you were not scared before, you should be now!! I thought I had done some research but none of the research that I did prepared me for what I am to expect after surgery.

I know that they are not going to throw me to the wolves after surgery. There will be follow-ups. There will be more classes to attend. There are several social media outlets to help you through the tough times as well as other support groups available. I’m just in a state of shock right now. What’s going to be the toughest part is going in the hospital able to eat anything you want and coming out only to be able to drink your food for two weeks. It will be at least eight weeks before I’ll be able to even think about eating solid foods again.

Something else the teacher said. Some of the things that I love to eat before surgery I will not be able to tolerate afterwards. Then again, there will be some foods that I hate now, I will be able to fall in love with. My mindset about food will change she said. 

One thing I just don’t get and maybe once I have the surgery I’ll understand but why do people go through all that they have to go through just to ignore what the doctor says and go back to eating again and gaining everything that they had lost?

Today’s weigh-in: 279.2

Total loss: 1.6

This months goal 275

January 8th, 2024

08 Monday Jan 2024

Posted by Tim Hughes Living with CML in Photography

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bariatric-surgery, colonoscopy, fitness class, Weight loss

I had a colonoscopy last Friday. I’ve had one previously done about five years ago. This one was different. I woke up during the procedure. That’s something I wouldn’t wish on my worst enemy. I was too droggy to say anything but by the way I was groaning, I think the doctor knew I was away. Nothing was said or done, he just kept going until the procedure was done. Tomorrow, my wife and I have a dietary/fitness class which is required by my Bariatric surgeon. It’s a four-hour class starting at 11:30 am and should end around 3:30 pm.

‘The diet is going good but the weight is fluctuating like a rollercoaster. I have never understood how I can eat like a bird and still gain weight the next day. Go figure.’The diet is going good but the weight is fluctuating like a rollercoaster. I have never understood how I can eat like a bird and still gain weight the next day. Go figure.

Today’s weight: 278.4 lbs

Total Loss: 2.4 lbs

This month’s goal: 275 lbs

January 2nd.

02 Tuesday Jan 2024

Posted by Tim Hughes Living with CML in Photography

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Doctor Appointment, weight gain, Weight loss, weight loss surgery

No, I’m not going to post every day. It’s just this week is full of doctor appointments.

Today I saw my nephrologist. My numbers were up a little since my last visit four months ago. Not to worry she says because we had to deal with two holidays with food involved but I’m really going to have to buckle down before my next appointment. Tomorrow is another doctor visit. This one will be with my primary care doctor and the first of three visits required by Medicare for my weight loss surgery. On Friday will be my colonoscopy What fun.

Today’s weight 281.6 Gained 1.2 lbs

January 1st. Happy New Year!

01 Monday Jan 2024

Posted by Tim Hughes Living with CML in Photography

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bariatric-surgery, goals, Happy New Year, Weight loss

New year, new beginnings. I’ve said this before in the previous New Year, but it will be different this year. Why? Because this year I’m in the process of getting approved for weight loss surgery. Why now? That’s the same thing my wife asked. It’s because I’m tired of being fat. I’m tired of this rollercoaster I’m on and want off. I turned sixty years old this past year and don’t want to live the rest of my life out of shape. I have a colonoscopy planned on Friday so this should give me a boost to my weight loss journy.

Morning weight: 280.4

Goal weight: 275

“A journey of a thousand miles begins with a single step”. Today, I took my first step.

New Year equals New Beginnings

22 Friday Dec 2023

Posted by Tim Hughes Living with CML in Weight Loss

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Doctor, lifestyle, Weight loss

I had to wait until I got paid this month before I was able to but I signed my wife and myself up to the required class for the bariatric surgery. I also called my primary doctor and I’ve set up the first of three appointments that are also a requirement for the surgery. These appointments are to monitor how well I’m doing to adjust to my new lifestyle. The doctor will have to fill out paperwork to be turned in to the surgen after the three months. I still have no clue as to what my cost will be.

I had a visit with my phuminologist the other day and the nurse that did my trioge mentioned to me that she had the surgery about a year ago and she had lost over sixty pounds. I would be extremely happy with sixty pounds. As just so happens, my daughter worked at the same school that she did so they know each other. My daughter told me she looked huge. She still has some weight to lose but she doesn’t look nothing like she did sixty pounds ago.

I suspect April or May if I’m approved. That’s my goal.

Step Two Complete

08 Friday Dec 2023

Posted by Tim Hughes Living with CML in Photography, Weight Loss

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astrology, balance, Doctor, healthandwellness, Moon, shrink, universal-energy, weight loss surgery

The above moon shot is this month’s Beaver Moon.

Today’s appointment was with a Shrink. Supposedly, after all the weight loss, there might some be behavioral issues and they wanted to find out if I already had some issues that might need to be addressed. I had seen a shrink a couple of years ago when I was trying to get on dissability so I sort of knew what to expect. She said I passed. I had 26 out of 30 possible points. My next step is to get a chest x-ray sometime next week. I’m going to have to schedule a special class sometime in Januairy, Then it’s on to three months with my primary doctor. I have to proove to him that I can stay on some sort of program for three months before they invest in their time,

Step One Complete

07 Thursday Dec 2023

Posted by Tim Hughes Living with CML in Photography

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Bariatric, bariatric-surgery, Doctor, Exercise, gastric-sleeve, Gastrologist, Gym, health, obesity, Surgery, Weight loss, Weightloss

I spoke with the Bariatric surgeon on Monday and discussed my options. We both concluded that the gastric bypass was the way to go. She was a young doctor and my wife questioned her ability. I think she was just jealous of her looks. We talked about the class that I am going to have to take and the three visits I have to have with my general practitioner. Those will all have to be scheduled. I think I’m going to wait until the first of the year to start this because of the temptations with all the Christmas foods.

My next appointment was with my Gastrologist on the same day. I found out that my stomach ulcer had healed and I can now reduce the meds that I am taking. That’s good news because that was one of the concerns I had with the Bariatric surgery. I also found out that I had a Hiatal Hernia. This can also be taken care of during the Bariatric surgery.

The doctor visits will take three months. If I start in January, that would mean that the surgery would not be until April of next year. There is no mention of any amount of weight that has to be lost but there are several things that I have to do these three months. I have to keep a record of my meals, which I already have an app for that. I have to go to the gym or somehow show that I’m at least trying to exercise every day.

This is going to be a long drawn-out process but I’m ready for it. I’m tired of looking the way I do and feeling the way I do.

Happy Thanksgiving Everyone!!

23 Thursday Nov 2023

Posted by Tim Hughes Living with CML in Family, Photography

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Family, Food, Thanksgiving

I hope everyone had a Happy Thanksgiving and spent some time with their families. I spent the majority of my day with my family. My mom and dad are in their mid-eighties and don’t get around as much as they used to. Today is one of the few days that I allow myself not to be too concerned with what and how much I eat. Christmas is another holiday that I do this. The rest of the year is spent watching how much carbs I consume. Tomorrow is a new day and I’ll get back on my diet then.

I hope everyone has a good and restful night.

Peace to you and your families.

Living With an Elder Cat

22 Wednesday Nov 2023

Posted by Tim Hughes Living with CML in Pets

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Cat, elder, Grumpy, Old, ornery

Living with a nineteen-year-old cat is like something I’ve never experienced
before. Every day there’s something new with him. He’s part of the family so we
feel that we have to deal with all of his issues, and I do mean issues.

Clyde has health issues. He has an enlarged heart; thyroid problems and he
has high blood pressure. He’s on three different types of meds three times a
day. Recently, he’s developed a weak bladder. When he goes into a deep sleep
his bladder leaks wherever he’s lying. He has taken over our bed and we have to
keep the bed covered with a tarp during the day to keep us from having to
change the sheets. He sleeps 98% of the time. The only time he gets up is to go
to the kitchen to eat. He’ll go to the bathroom and sit on the floor until
someone walks in there and helps him on the counter so that he can drink from
the faucet.

He is very vocal. He lets us know when his towel is wet so we can go change
it. He has a routine, and he knows when it’s time for his meds because right after
his meds he gets a hand-full of treats. He loves his treats. Taking the meds,
not so much. In the above picture, he had just had his meds along with a
hand-full of treats. He’s thinking that he didn’t have enough treats and wants
more.

I’ve heard cats living up to 21 years.  Knowing him, he’ll live long past that. He’s an ornery, old, grumpy cat. 

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