Let me introduce you to a friend of mine. Her name is Tiffany. She is currently in her third year of remission. The above picture is the day she was admitted into the hospital for a month long round of treatment for CML.
Her story is a little different than mine. She claimed that she had trouble taking her meds. She had terrible reactions when she took her meds and therefore quit taking them. Her CML advanced into something else and her doctors had to take more radical steps in treating her. She was only treated for about a year with oral meds before she had her bmt. Her Instagram account is full of pictures where she shows tubes running out of her nose and later being put in her chest. These are pictures that I look at and put concern in my heart.
I’ve been put in the hospital before for different reasons but only for a short time. I think the most I’ve ever stayed in a hospital is five days. I can tell you that I like to have went out of my mind after staying in the hospital that long. One thing that I know will be different, after about the third day, I felt pretty good. Good enough to go home. I doubt very seriously that after three or four days I’ll feel like going home.
There is still a lot that I don’t know about having a bmt. I do know that before anything happens a donor will have to be found. That could take a while even though I do have three siblings that could be a match. I also found out that I could be having some kidney trouble. This too could also slow things down I suppose. I have an appointment with the kidney doctor next week.
I’m a person of worry. I worry about everything. The main worry I have right now is that once treatment starts I won’t be able to leave the hospital. That means that all my family better stay safe. I can’t be leaving the hospital to go to no funerals. Things that get broken will have to stay broken until such time as I feel like repairing them or I can get someone there to repair it. I may get someone that I used to work with to check on my wife from time to time to make sure nothing needs repaired.